Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 Where did you find a statistic that says BPES is more frequent in the Asian population? I would be interested in reading that information. Thanks, April --- luis ortega <lortega57@...> wrote: > BPES is not only cosmetic, it also impairs vision, > so many children need > surgical interventions to avoid blindness. In women > BPES may cause > infertility. And in some people both infertility and > facial features may > cause psychological disturbances. BPES may alter the > health state of some > people. In the other hand BPES is more frequent in > Asian people. This is not > discriminatory is a statistical fact. > Of course that nobody with BPES should be > discriminated. Our children, every > human being to tell the truth, are equal and we must > teach them that they > are not different to other people. Of course they > can be happy, but is also > true that sometimes, many times, other children and > also adults look at them > with strange faces, or make jokes about their eyes, > and that they need out > support more than other children. My 6-years old > daughter with BPES is > extremely beautiful to me. I will try hard her to be > happy, but I know that > sometimes it is and will be difficult. > > Happy New Year > > > > > >From: " a " <ekittycat12000@...> > >Reply-blepharophimosis > >blepharophimosis > >Subject: blepharophimosis Re: BPES does not > discriminate.... > >Date: Wed, 04 Jan 2006 00:48:06 -0000 > > > > > > > It's been a long time that I've visited this > group and recently I > > > have been catching up on the postings. I just > love this group and > > > love how supportive all the members can be. > Both my daughter and I > > > have BPES, along with my father and 2 older > sisters. We wish that > > > this group existed during our time! I do feel > fortunate that it > > > exists for my daughter. > > > > > > Some of the postings I've read so far is a bit > disturbing. There > > > are couple of postings where BPES is described > to be > > > a " disability " . Another posting wrote if it is > related to Asians > >or > > > even to orphans. Other postings go as far if > BPES is related to the > > > child's weight! > > > > > > I would like to say from experience, that BPES > does not > > > discriminate. It is not an Asian, nor an orphan > thing. It is not > >a > > > disability. It is not a cause for low weights > in children. > > > Children with BPES are normal children. My > daughter and your > > > daugthers and sons are normal kids. And BPES is > really nothing. > >If > > > we emphasize too much on the negative, then we > are teaching our > > > children the wrong thing. > > > > > > What BPES is a genetic anomaly. BPES means > small eyes. BPES means > > > droopy eyelids. And BPES does not mean our kids > will live unhappy, > > > unhealthy lives. I grew up happily with my > small eyes and so will > > > my daughter. BPES is cosmetic. > > > > > > I love how there are photos that show different > races across the > > > world. From US, Singapore, to Europe, to > Australia. These photos > > > and families are our tools to teach our children > with bleph that > > > they are not alone and that they WILL be ok. > Perhaps what was once > > > a " rare " disorder is no longer true. The growth > of this group > >shows > > > how we are not alone. > > > > > > So please believe in the positive of BPES and > show your kids the > > > beauty they possess in those little eyes! > > > > > > Merry Christmas to everyone in this group! > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 > > > > It's been a long time that I've visited this > > group and recently I > > > > have been catching up on the postings. I just > > love this group and > > > > love how supportive all the members can be. > > Both my daughter and I > > > > have BPES, along with my father and 2 older > > sisters. We wish that > > > > this group existed during our time! I do feel > > fortunate that it > > > > exists for my daughter. > > > > > > > > Some of the postings I've read so far is a bit > > disturbing. There > > > > are couple of postings where BPES is described > > to be > > > > a " disability " . Another posting wrote if it is > > related to Asians > > >or > > > > even to orphans. Other postings go as far if > > BPES is related to the > > > > child's weight! > > > > > > > > I would like to say from experience, that BPES > > does not > > > > discriminate. It is not an Asian, nor an orphan > > thing. It is not > > >a > > > > disability. It is not a cause for low weights > > in children. > > > > Children with BPES are normal children. My > > daughter and your > > > > daugthers and sons are normal kids. And BPES is > > really nothing. > > >If > > > > we emphasize too much on the negative, then we > > are teaching our > > > > children the wrong thing. > > > > > > > > What BPES is a genetic anomaly. BPES means > > small eyes. BPES means > > > > droopy eyelids. And BPES does not mean our kids > > will live unhappy, > > > > unhealthy lives. I grew up happily with my > > small eyes and so will > > > > my daughter. BPES is cosmetic. > > > > > > > > I love how there are photos that show different > > races across the > > > > world. From US, Singapore, to Europe, to > > Australia. These photos > > > > and families are our tools to teach our children > > with bleph that > > > > they are not alone and that they WILL be ok. > > Perhaps what was once > > > > a " rare " disorder is no longer true. The growth > > of this group > > >shows > > > > how we are not alone. > > > > > > > > So please believe in the positive of BPES and > > show your kids the > > > > beauty they possess in those little eyes! > > > > > > > > Merry Christmas to everyone in this group! > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.