Guest guest Posted December 28, 2001 Report Share Posted December 28, 2001 Hello everybody ! My name is Cécile, I am french and living in the french Alps. I have had four beautiful children, but the youngest one, darling andre, left us at age 3.5, last June, after a 16 monthes battle against a deadly pediatric cancer : neuroblastoma. andre was born in November 1997 and was the perfectly healthy child from the beginning, having only " well baby " visits at the pediatrician, eating a lot, running all the time, a happy child. During Spring 1999, he received 7 different vaccines in two monthes (DPTH and MMR). In autumn, we noticed he was getting thinner, but the pediatrician (at his 2 years visit in Novemeber) told us he was OK .... and mid February 2000, he was diagnosed with neuroblastoma stage IV (metastasized all over his body, he was dying). The oncologist was thinking that his cancerous cells were very aggressive and that the cancer might have started only 6 monthes before (hence my questions regarding vaccines). 4 monthes after stem cell transplant, he relapsed. I met electronically Raphaelle Horwin whose son had died from a brain tumor, and she was the one who opened my eyes to a possible link between vaccines and cancer. Right now, I have no answer : I plan to have his frozen tumor samples tested for SV-40 and may be for the rubella vaccine (but what should we look for ?) because I found an article on Medscape linking this vaccine and a syndrome (OMS) related to neuroblastoma. I have been quite lazy these last monthes, trying to get our life on track even without andre, and being pregnant with twins (due next spring), but I want to go forward and find something, if there is anything to find ... It might help give some sense to the horror we have been through ... If some of you do have ideas, I will welcome them gladly ! Last point : I also want to be as informed as possible, because I have to decide what to do for the baby girl and the baby boy when they are born, and what to do for my older daughters (almost 12, 8 and 6) Thanks for listening ===== Cécile, wife to , mother of Nathalie(11.5), Sandrine(8.5), Karine(6) and andre(forever 3.5) dx 02/00 NBIV N-MYC amplified. Left us on June 14th, 2001 andre sent us two new babies due next Spring .... e-mail : cecilecogez@... andre's story : http://www.caringbridge.com/page/alexandre __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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