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Message for Caroline Obbard

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Hi My name is Joyce and I live in London with my 2 daughters Tina and

Mayowa. (I don't know if we 've ever met thru the europe group that

meets up in london)

Both girls have this condition. Mayowa is 11 and Tina is 8. I got my GP

to refer me to a geneticist and to Dr in Moorfield eye hospital.

You could suggest the same to your GP.

Take care

Joyce

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