Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Hi My name is Joyce and I live in London with my 2 daughters Tina and Mayowa. (I don't know if we 've ever met thru the europe group that meets up in london) Both girls have this condition. Mayowa is 11 and Tina is 8. I got my GP to refer me to a geneticist and to Dr in Moorfield eye hospital. You could suggest the same to your GP. Take care Joyce Quote Link to comment Share on other sites More sharing options...
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