Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 Hello! I am a long time member of this group and enjoy reading and occasionally contributing to the email postings. My daughter, Hannah, was born with BPES in 2000. Just recentely two college friends approached my husband and I about doing a documentary about the social implications of having BPES. What I mean is how people question you or your child. Hannah has been asked numerous times " What's wrong with your eyes? " or " Why are your eyes are so small? " And I was also accused of poor prenatal care. The biggest goal of their project is to educate people and to make the documentary available for free distribution. Melody and Gwenith are eager to network with others from around the world who are interested in this project. They would love to speak with people with a family history of BPES and those without. I know that there may be some people who will be upset by this and it is in no way suggesting that there is anything wrong with having BPES. These two young students are merely interested in raising awareness about BPES and making a positive impact. If you are interested please post an email. Thanks so much! Debbie Quote Link to comment Share on other sites More sharing options...
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