update from Michele

[Guest guest]

Hey everyone, finally got my before an after pics on the computer. . I

am a 33 year old woman that was diagnosed with BPES at 3 weeks old. I

live in Fairborn Ohio. USA. No one else in my family has it , so I

did now know much about a year ago, when I got bored and was reading

on the Internet about it. I have been having female problems since I

was around 27 or 28. My periods were always normal until about 1 year

ago and they just stopped. My doctor and Ob-gyn had been doing

different test not relating it to my BPES. All they knew is I was

going through non specific ovarian failure. When I started reading on

the Internet I was shocked to learn it was related to my eye disorder.

I printed out some information and my Ob-gyn remembered having another

patient 10 to 15 years ago with BPES that went through menopause at

28. At that time the did not link them together.

I have had 2 Surgeries, one when I was 4 and another when I was 5

years old. The doctor who did mine used leg muscles from a muscle bank

in my eyes. MY doctors name was A. Burns out of Columbus Ohio. He

is a Oculaoplastic Surgeon. My surgeries were pretty successful.In

fact at the time I was one of the 1st real successful surgeries. The

only problems I really have are some dryness, extreme sensitivity to

light and eyelashes that grow into the inner corners of my eyes. They

used patch therapy on me because I favor my left eye. I still do and

my right eye does get weak sometimes. I am glad my family went

through with the surgeries, if anything for cosmetic reasons. Even

though I still got teased a little in school, I think the surgeries

made my life a little more normal than without them.

[Guest guest]

> Hey everyone, finally got my before an after pics on the computer. . I

> am a 33 year old woman that was diagnosed with BPES at 3 weeks old. I

> live in Fairborn Ohio. USA. No one else in my family has it , so I

> did now know much about a year ago, when I got bored and was reading

> on the Internet about it. I have been having female problems since I

> was around 27 or 28. My periods were always normal until about 1 year

> ago and they just stopped. My doctor and Ob-gyn had been doing

> different test not relating it to my BPES. All they knew is I was

> going through non specific ovarian failure. When I started reading on

> the Internet I was shocked to learn it was related to my eye disorder.

> I printed out some information and my Ob-gyn remembered having another

> patient 10 to 15 years ago with BPES that went through menopause at

> 28. At that time the did not link them together.

> I have had 2 Surgeries, one when I was 4 and another when I was 5

> years old. The doctor who did mine used leg muscles from a muscle bank

> in my eyes. MY doctors name was A. Burns out of Columbus Ohio. He

> is a Oculaoplastic Surgeon. My surgeries were pretty successful.In

> fact at the time I was one of the 1st real successful surgeries. The

> only problems I really have are some dryness, extreme sensitivity to

> light and eyelashes that grow into the inner corners of my eyes. They

> used patch therapy on me because I favor my left eye. I still do and

> my right eye does get weak sometimes. I am glad my family went

> through with the surgeries, if anything for cosmetic reasons. Even

> though I still got teased a little in school, I think the surgeries

> made my life a little more normal than without them.

[Guest guest]

Hi..........We have some things in common. I am 48 years old..........

Michele <shell3238@...> wrote: > Hey everyone, finally got my before an after pics on the computer. . I> am a 33 year old woman that was diagnosed with BPES at 3 weeks old. I> live in Fairborn Ohio. USA. No one else in my family has it , so I> did now know much about a year ago, when I got bored and was reading> on the Internet about it. I have been having female problems since I> was around 27 or 28. My periods were always normal until about 1 year> ago and they just stopped. My doctor and Ob-gyn had been doing> different test not relating it to my BPES. All they knew is I was> going through non specific ovarian failure. When I started reading on> the Internet I was shocked to learn it was related to my eye disorder.> I printed out some information

and my Ob-gyn remembered having another> patient 10 to 15 years ago with BPES that went through menopause at> 28. At that time the did not link them together. > I have had 2 Surgeries, one when I was 4 and another when I was 5> years old. The doctor who did mine used leg muscles from a muscle bank> in my eyes. MY doctors name was A. Burns out of Columbus Ohio. He> is a Oculaoplastic Surgeon. My surgeries were pretty successful.In> fact at the time I was one of the 1st real successful surgeries. The> only problems I really have are some dryness, extreme sensitivity to> light and eyelashes that grow into the inner corners of my eyes. They> used patch therapy on me because I favor my left eye. I still do and> my right eye does get weak sometimes. I am glad my family went> through with the surgeries, if anything for cosmetic reasons. Even>

though I still got teased a little in school, I think the surgeries> made my life a little more normal than without them.