Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 Hello Carolyn, Welcome to the list. What sort of help would you like? I know that question might sound dumb---- but it would help in knowing what to tell you to know what sort of things you want to know. There is an awful lot of possible information to say otherwise..... In general Andy's book and the FAQ for this list are good places to start. The FAQ is at: /files/Mercury-Autism%20FAQ (be sure you get the whole line--- it sometimes gets chopped.) Moria At 06:49 AM 3/29/2001 -0000, you wrote: >Hello, >I just found out about this group through a friend. >I am a mother of a 3 yr old boy diagnosed pdd/nos. >I am very interested in getting started with heavy metal >detox, but am not quite sure where to start other than >ordering Dr. Andy's book. Is there anyone in this >group from Hawaii? If anyone can help, I'd surely >appreciate it! > >sincerely, >Carolyn N. > > > > > > >======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 Hi Moria! Thank you for your reply! : ) I've just finished reading the faq, and am going to order Dr. Andy's book today. How long have you been doing chelation? Do you do any other interventions as well? I'm just curious to find out what kind of progress people have been getting from this treatment. thanks, Carolyn --- In @y..., Moria Merriweather <moriam@e...> wrote: > Hello Carolyn, > > Welcome to the list. > > What sort of help would you like? I know that question might sound > dumb---- but it would help in knowing what to tell you to know > what sort of things you want to know. There is an awful lot of > possible information to say otherwise..... > > In general Andy's book and the FAQ for this list are good places > to start. The FAQ is at: > /files/Mercury- Autism%20FAQ > (be sure you get the whole line--- it sometimes gets chopped.) > > Moria > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 Hi Moria! Thank you for your reply! : ) I've just finished reading the faq, and am going to order Dr. Andy's book today. How long have you been doing chelation? Do you do any other interventions as well? I'm just curious to find out what kind of progress people have been getting from this treatment. thanks, Carolyn --- In @y..., Moria Merriweather <moriam@e...> wrote: > Hello Carolyn, > > Welcome to the list. > > What sort of help would you like? I know that question might sound > dumb---- but it would help in knowing what to tell you to know > what sort of things you want to know. There is an awful lot of > possible information to say otherwise..... > > In general Andy's book and the FAQ for this list are good places > to start. The FAQ is at: > /files/Mercury- Autism%20FAQ > (be sure you get the whole line--- it sometimes gets chopped.) > > Moria > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 Hi Carolyn, First I will break the news that I don't have any children (autistic or otherwise)--- so I cannot report on chelation from that angle. Sorry! Hopefully a number of our buddies here will answer your question about how things are going. There are definately other interventions in use as well! I'm doing chelation on myself. My last amalgam filling was replaced on 11/30/2000. I started using ALA only on 12/31/2000. I have only done 5 " rounds " so far--- I basically did chelation during January 2001, then in early Feb I got some sort of flu and have never completely recovered. (I realize that may sound really bizarre-----) (My joke is that my " chelation cycle " is 1 month on, 2 months off.) (That is a joke: I was doing 3/4 and 3/11 cycles!) To get a little bit of idea of how some of the kids of list members are doing, go to / and click on files and then look for a file called something like " chelation survey " . (Sorry I can't get you the URL right now...) It should give you some sense of what people are seeing. best, Moria > > Hello Carolyn, > > > > Welcome to the list. > > > > What sort of help would you like? I know that question might > sound > > dumb---- but it would help in knowing what to tell you to know > > what sort of things you want to know. There is an awful lot of > > possible information to say otherwise..... > > > > In general Andy's book and the FAQ for this list are good > places > > to start. The FAQ is at: > > /files/Mercury- > Autism%20FAQ > > (be sure you get the whole line--- it sometimes gets chopped.) > > > > Moria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Good for you mom!!! Keep up the repositioning and that may be all she needs! If I can help with anything, just ask. Oh, by the way, congratulations on the new baby! Dustie, mom to DOCband 12/23/02 > I am a new mom to 11 week old . At her 8 week visit, I > expressed my concern to her pedi about her head shape and right ear > being pushed forward. Having read all the posts on this site, I went > to the doctor with lots of questions. When I asked about possible > Plagio, the Dr told me that her head shape was purely cosmetic and by > the time she was 5, I would not even notice it. Her only suggestion > was to increase tummy time. She told me if I felt I needed > reassurance as a new mom, to go see a specialist. Boy, I felt like a > bad mommy! So, I immeadiately made an approintment to see a > neurologist. had her appt last Saturday, and without > question, the neuro ordered a CAT Scan with bone windows. He is > worried about possible Cranio. He said the Lambdoid bone may have > prematurely closed. He said if the tests results indicate Cranio, he > will refer us to a nuerosurgeon. Otherwise, he said we should think > about a band. Well, her test is scheduled for next Monday, my first > day back at work from maternity leave!! I saw her pedi on Monday > because had a bad cold. When I told her we saw the neuro and > her ordered the test, she looked so shocked and preceded to tell me > that she sees this quite often and most parents do nothing for the > head flattening except positioning. When I asked her what she would > do if it was her child, she ignored me and just handed me a script > for rash ointment. > In the meantime, my fiance and I have increased tummy time and do > side to side sleeping. I have noticed a change in her head > shape > Other than her head shaping, is completely healthy! (Thank > God) She is my little angel. She was born 5 weeks premature due to > placenta previa. > > I want to thank everyone for sharing all of their experiences. When > I first read about plagio, I would just hold and cry for > hours. I now know that this seems to be a common problem and there > is lots of support available. I feel so much better about the > situation. I just can't wait until the test is done. And I am > looking for a new pedi! > > Thank you! > > (mom to ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Hi & welcome to our group! Glad you have finally introduced yourself & and have been lurking long enough to get some useful plagio information! I am so happy to read that you have noticed improvement with repositioning. Since you have in fact seen improvment, the odds of having craniosynostosis are quite minimal, so that's great news! Many of our plagio babies, mine included, are referred for a CTscan or Xrays to rule out cranio just to be 100% safe. What a shame to hear of yet another plagio uneducated pediatrician : ( I am so tired of reading stories like yours time & time again. But the important thing here is that you took it upon yourself to get the attention she needs & deserves. GREAT job mom! you should be very proud of your persistence and following your gut instinct. Please let us know how her scan goes next week Monday. In the mean time, keep up your great repositioning efforts! Debbie Abby's mom DOCGrad MI > I am a new mom to 11 week old . At her 8 week visit, I > expressed my concern to her pedi about her head shape and right ear > being pushed forward. Having read all the posts on this site, I went > to the doctor with lots of questions. When I asked about possible > Plagio, the Dr told me that her head shape was purely cosmetic and by > the time she was 5, I would not even notice it. Her only suggestion > was to increase tummy time. She told me if I felt I needed > reassurance as a new mom, to go see a specialist. Boy, I felt like a > bad mommy! So, I immeadiately made an approintment to see a > neurologist. had her appt last Saturday, and without > question, the neuro ordered a CAT Scan with bone windows. He is > worried about possible Cranio. He said the Lambdoid bone may have > prematurely closed. He said if the tests results indicate Cranio, he > will refer us to a nuerosurgeon. Otherwise, he said we should think > about a band. Well, her test is scheduled for next Monday, my first > day back at work from maternity leave!! I saw her pedi on Monday > because had a bad cold. When I told her we saw the neuro and > her ordered the test, she looked so shocked and preceded to tell me > that she sees this quite often and most parents do nothing for the > head flattening except positioning. When I asked her what she would > do if it was her child, she ignored me and just handed me a script > for rash ointment. > In the meantime, my fiance and I have increased tummy time and do > side to side sleeping. I have noticed a change in her head > shape > Other than her head shaping, is completely healthy! (Thank > God) She is my little angel. She was born 5 weeks premature due to > placenta previa. > > I want to thank everyone for sharing all of their experiences. When > I first read about plagio, I would just hold and cry for > hours. I now know that this seems to be a common problem and there > is lots of support available. I feel so much better about the > situation. I just can't wait until the test is done. And I am > looking for a new pedi! > > Thank you! > > (mom to ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Welcome to the group! It seems to me, after reading the posts, that most people get that same response when they see the doctor for the first time after noticing the flat spot. I know I did and I felt so helpless. The doctor going on about " purely cosmetic " and " the hair will cover it " ..... It's been 2 months and 3 doctors later and I'm still fighting. My husband wonders if maybe insurance companies are providing doctors with " monetary incentives " when they avoid recommending correctional devises. I thought that was a bit extreme at first, but now I am starting to wonder. > I am a new mom to 11 week old . At her 8 week visit, I > expressed my concern to her pedi about her head shape and right ear > being pushed forward. Having read all the posts on this site, I went > to the doctor with lots of questions. When I asked about possible > Plagio, the Dr told me that her head shape was purely cosmetic and by > the time she was 5, I would not even notice it. Her only suggestion > was to increase tummy time. She told me if I felt I needed > reassurance as a new mom, to go see a specialist. Boy, I felt like a > bad mommy! So, I immeadiately made an approintment to see a > neurologist. had her appt last Saturday, and without > question, the neuro ordered a CAT Scan with bone windows. He is > worried about possible Cranio. He said the Lambdoid bone may have > prematurely closed. He said if the tests results indicate Cranio, he > will refer us to a nuerosurgeon. Otherwise, he said we should think > about a band. Well, her test is scheduled for next Monday, my first > day back at work from maternity leave!! I saw her pedi on Monday > because had a bad cold. When I told her we saw the neuro and > her ordered the test, she looked so shocked and preceded to tell me > that she sees this quite often and most parents do nothing for the > head flattening except positioning. When I asked her what she would > do if it was her child, she ignored me and just handed me a script > for rash ointment. > In the meantime, my fiance and I have increased tummy time and do > side to side sleeping. I have noticed a change in her head > shape > Other than her head shaping, is completely healthy! (Thank > God) She is my little angel. She was born 5 weeks premature due to > placenta previa. > > I want to thank everyone for sharing all of their experiences. When > I first read about plagio, I would just hold and cry for > hours. I now know that this seems to be a common problem and there > is lots of support available. I feel so much better about the > situation. I just can't wait until the test is done. And I am > looking for a new pedi! > > Thank you! > > (mom to ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Hi , and welcome to the group! Your story sounds, unfortunately, all too familiar. Too many of us parents have had our concerns brushed off by a ped. Good for you for listening to your mommy instincts and taking to see a specialist. Be sure to let us know the results of her scans, and best of luck to you! Happy New Year! Niki Kaylie & Danny (STAR grads) Phila., PA > I am a new mom to 11 week old . At her 8 week visit, I > expressed my concern to her pedi about her head shape and right ear > being pushed forward. Having read all the posts on this site, I went > to the doctor with lots of questions. When I asked about possible > Plagio, the Dr told me that her head shape was purely cosmetic and by > the time she was 5, I would not even notice it. Her only suggestion > was to increase tummy time. She told me if I felt I needed > reassurance as a new mom, to go see a specialist. Boy, I felt like a > bad mommy! So, I immeadiately made an approintment to see a > neurologist. had her appt last Saturday, and without > question, the neuro ordered a CAT Scan with bone windows. He is > worried about possible Cranio. He said the Lambdoid bone may have > prematurely closed. He said if the tests results indicate Cranio, he > will refer us to a nuerosurgeon. Otherwise, he said we should think > about a band. Well, her test is scheduled for next Monday, my first > day back at work from maternity leave!! I saw her pedi on Monday > because had a bad cold. When I told her we saw the neuro and > her ordered the test, she looked so shocked and preceded to tell me > that she sees this quite often and most parents do nothing for the > head flattening except positioning. When I asked her what she would > do if it was her child, she ignored me and just handed me a script > for rash ointment. > In the meantime, my fiance and I have increased tummy time and do > side to side sleeping. I have noticed a change in her head > shape > Other than her head shaping, is completely healthy! (Thank > God) She is my little angel. She was born 5 weeks premature due to > placenta previa. > > I want to thank everyone for sharing all of their experiences. When > I first read about plagio, I would just hold and cry for > hours. I now know that this seems to be a common problem and there > is lots of support available. I feel so much better about the > situation. I just can't wait until the test is done. And I am > looking for a new pedi! > > Thank you! > > (mom to ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2002 Report Share Posted December 31, 2002 Hi and welcome. It sounds like you have done everything right - you're a good mom. I'm sorry to hear about how casually your ped treated the condition. I think your story is exactly why babies with flattened heads should be referred to a specialist. Ruling out cranio is very important. I'm glad to hear that they could get you in for the scan so early. Since you have seen some improvement with repositioning maybe it won't end up being cranio. In most cranio cases the head shape does not improve with repo or bands and almost always requires surgery. I'm not surprised at your ped's reaction when you asked her what she would do if it were her child. She is probably feeling a little guilty for treating you so casually when, as it turns out, your baby might have cranio. I'm glad you are looking for a new ped! Please let us know how the scan goes and what the results are. Marci (Mom to ) Oklahoma > I am a new mom to 11 week old . At her 8 week visit, I > expressed my concern to her pedi about her head shape and right ear > being pushed forward. Having read all the posts on this site, I went > to the doctor with lots of questions. When I asked about possible > Plagio, the Dr told me that her head shape was purely cosmetic and by > the time she was 5, I would not even notice it. Her only suggestion > was to increase tummy time. She told me if I felt I needed > reassurance as a new mom, to go see a specialist. Boy, I felt like a > bad mommy! So, I immeadiately made an approintment to see a > neurologist. had her appt last Saturday, and without > question, the neuro ordered a CAT Scan with bone windows. He is > worried about possible Cranio. He said the Lambdoid bone may have > prematurely closed. He said if the tests results indicate Cranio, he > will refer us to a nuerosurgeon. Otherwise, he said we should think > about a band. Well, her test is scheduled for next Monday, my first > day back at work from maternity leave!! I saw her pedi on Monday > because had a bad cold. When I told her we saw the neuro and > her ordered the test, she looked so shocked and preceded to tell me > that she sees this quite often and most parents do nothing for the > head flattening except positioning. When I asked her what she would > do if it was her child, she ignored me and just handed me a script > for rash ointment. > In the meantime, my fiance and I have increased tummy time and do > side to side sleeping. I have noticed a change in her head > shape > Other than her head shaping, is completely healthy! (Thank > God) She is my little angel. She was born 5 weeks premature due to > placenta previa. > > I want to thank everyone for sharing all of their experiences. When > I first read about plagio, I would just hold and cry for > hours. I now know that this seems to be a common problem and there > is lots of support available. I feel so much better about the > situation. I just can't wait until the test is done. And I am > looking for a new pedi! > > Thank you! > > (mom to ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 I was also told that my daughter would have a 50% chance of having a child with Bleph. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2003 Report Share Posted December 24, 2003 > Hello all, I am new to this message board and was hoping all the > mothers out there could give me some insight into blepharophimosis. > So I am searching for other mothers who Why are you only interested in what *mothers* have to say? What about fathers? What about people who actually have BPEI (apart from your lucky boyfriend)? I'll give you the benefit of the doubt and assume you really didn't mean to be so blatantly sexist, and are really implicitly asking for other mothers' perspectives on what it's like to bear children with (or potentially with) BPEI. Is that right? (I'm guessing a bit because you didn't actually ask that explicitly in your post.) I'll wander back outside to the shed, now... Rob (Not a mother, sorry, but I've been called worse) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2003 Report Share Posted December 24, 2003 ARE YOU SERIOUS.. SHE DIDNT MEAN ANYTHING SEXIXST BY IT ........ SHE PG AND CURIOUS ON WHAT OTHER MOMS THOUGHT IN HERE SITUATION.....Rob <rawatson@...> wrote: > Hello all, I am new to this message board and was hoping all the > mothers out there could give me some insight into blepharophimosis. > So I am searching for other mothers who Why are you only interested in what *mothers* have to say? What about fathers? What about people who actually have BPEI (apart from your lucky boyfriend)? I'll give you the benefit of the doubt and assume you really didn't mean to be so blatantly sexist, and are really implicitly asking for other mothers' perspectives on what it's like to bear children with (or potentially with) BPEI. Is that right? (I'm guessing a bit because you didn't actually ask that explicitly in your post.)I'll wander back outside to the shed, now...Rob(Not a mother, sorry, but I've been called worse) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2003 Report Share Posted December 26, 2003 DAWN-MARIE ANDERSON wrote: > ARE YOU SERIOUS.. SHE DIDNT MEAN ANYTHING SEXIXST BY IT ........ SHE > PG AND CURIOUS ON WHAT OTHER MOMS THOUGHT IN HERE SITUATION..... Ah! A bite! Reel 'er in! No need to shout. Problem with your caps lock key perhaps? No, I'm not particularly serious. Call it a combination of pre-Christmas tension and the straw that broke the camel's back. Can anyone spot the knee-jerk? If you bother to read my post (should I have typed in it all in capitals for you?) you'll see that I said I assume the author DIDN'T mean to be sexist. If you further bother to read the original post you'll see there are no questions asked that relate to being a BPEI-enhanced person's mother, only about BPEI in general, but responses only from mothers please. I'm still confused by that and was just trying to clarify things. Bye. I'll be outside sweltering in the garden. Call out if you need your caps lock key fixed (I have just the right mallet), or a debate on gender politics. Rob > > Why are you only interested in what *mothers* have to say? What about > fathers? What about people who actually have BPEI (apart from your > lucky boyfriend)? I'll give you the benefit of the doubt and assume > you really didn't mean to be so blatantly sexist, and are really > implicitly asking for other mothers' perspectives on what it's like > to bear children with (or potentially with) BPEI. Is that right? (I'm > guessing a bit because you didn't actually ask that explicitly in > your post.) > > I'll wander back outside to the shed, now... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2003 Report Share Posted December 26, 2003 Hopefully - people understand what Rob's trying to say here. I would just like to add that I really appreciate Rob 's many previous posts to this group. They are very informative and full of helpful advice. I met Rob a few years ago when he was on a business trip to England, and it was a great pleasure to finally get to meet up with him in person, and spend some time together. We are just a few days apart in age, as is another of our friends. I jokingly thought that a space ship flew by about 43 years ago and zapped us when were growing in wombs I have met 3 families where the father and child both have BPEI (BPES) . It is sometimes easy to overlook a father's role in parenting, and as Rob says, the way that post was written was most likely unintentional. I hope you all have a happy new year. And, whatever you do, don't stop writing to this group and keeping us up-to-date. Shireen London, England -----Original Message-----From: Rob [mailto:rawatson@...]Sent: 26 December 2003 01:26blepharophimosis Subject: Re: blepharophimosis New MOMDAWN-MARIE ANDERSON wrote:> ARE YOU SERIOUS.. SHE DIDNT MEAN ANYTHING SEXIXST BY IT ........ SHE> PG AND CURIOUS ON WHAT OTHER MOMS THOUGHT IN HERE SITUATION.....Ah! A bite! Reel 'er in!No need to shout. Problem with your caps lock key perhaps?No, I'm not particularly serious. Call it a combination of pre-Christmas tension and the straw that broke the camel's back.Can anyone spot the knee-jerk? If you bother to read my post (should I have typed in it all in capitals for you?) you'll see that I said I assume the author DIDN'T mean to be sexist. If you further bother to read the original post you'll see there are no questions asked that relate to being a BPEI-enhanced person's mother, only about BPEI in general, but responses only from mothers please. I'm still confused by that and was just trying to clarify things.Bye. I'll be outside sweltering in the garden. Call out if you need your caps lock key fixed (I have just the right mallet), or a debate on gender politics.Rob> > Why are you only interested in what *mothers* have to say? What about> fathers? What about people who actually have BPEI (apart from your> lucky boyfriend)? I'll give you the benefit of the doubt and assume> you really didn't mean to be so blatantly sexist, and are really> implicitly asking for other mothers' perspectives on what it's like> to bear children with (or potentially with) BPEI. Is that right? (I'm> guessing a bit because you didn't actually ask that explicitly in> your post.)> > I'll wander back outside to the shed, now... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 Hello Parents I have been reading this segment of emails> To all parties involved.Please note. THIS CLEARLY APPEARS TO BE a manifestation of STRESS concerning all parties involved. I have a suggestion and a gental reminder for what its worth. Stress is NOT a healthy zone for you to allow in your life.It is not a good thing for you and can manifest itself in many formats if not recognized and allowed to continue. We are all here to support one another in whatever capasity we can offer.... after all to a great extent we are ALL IN THE SAME BOAT. Step back recognize the event for what it truley is and MOVE FORWARD........theres many arenas withen BPES that cause stress. This is my opinion only. TAKE CARE and LOVE to you............... son (a BPES survivor age 48) Rob <rawatson@...> wrote: DAWN-MARIE ANDERSON wrote:> ARE YOU SERIOUS.. SHE DIDNT MEAN ANYTHING SEXIXST BY IT ........ SHE> PG AND CURIOUS ON WHAT OTHER MOMS THOUGHT IN HERE SITUATION.....Ah! A bite! Reel 'er in!No need to shout. Problem with your caps lock key perhaps?No, I'm not particularly serious. Call it a combination of pre-Christmas tension and the straw that broke the camel's back.Can anyone spot the knee-jerk? If you bother to read my post (should I have typed in it all in capitals for you?) you'll see that I said I assume the author DIDN'T mean to be sexist. If you further bother to read the original post you'll see there are no questions asked that relate to being a BPEI-enhanced person's mother, only about BPEI in general, but responses only from mothers please. I'm still confused by that and was just trying to clarify things.Bye. I'll be outside sweltering in the garden. Call out if you need your caps lock key fixed (I have just the right mallet), or a debate on gender politics.Rob> > Why are you only interested in what *mothers* have to say? What about> fathers? What about people who actually have BPEI (apart from your> lucky boyfriend)? I'll give you the benefit of the doubt and assume> you really didn't mean to be so blatantly sexist, and are really> implicitly asking for other mothers' perspectives on what it's like> to bear children with (or potentially with) BPEI. Is that right? (I'm> guessing a bit because you didn't actually ask that explicitly in> your post.)> > I'll wander back outside to the shed, now... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2005 Report Share Posted August 29, 2005 I'm not sure what kind of helmet you're going in for but we did a Hangar helmet. I can fill you in on that process if you'd like! Columbia, SC Son w/ severe plagio and moderate tort In Hangar helmet for 3 months --- In Plagiocephaly , " momtonolan " <momtonolan@y...> wrote: > I am new to this site. My son, Nolan, is 5 months old and is being > fitted for a helmet for plagiocephaly this week. I have no idea what > to expect at the appointment. Can anyone help me out or tell me ways > to make it easier? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Hi, ! It did, thanks. It went a lot better than I expected. Andy only got fussy at the end but he was an angel when they put the stockinette thingies on. They did two -- one for the front part of the cast and one for the back. It was so cute, they cut out a whole hole for his face so he looked kind of like a little nun. Our orthotist is very nice and seems to know what he is doing. As you might have seen in my earlier post, we went with the local provider, but the helmet looks just like others I've seen, even better than I was expecting. Now we are just hoping for the best. And I'm working on decorating ideas! mom of Andy and Ella, 7 mos. > > > > > > > > I am new to this site. My son, Nolan, is 5 months old > and > > > is > > > > > being > > > > > > > > fitted for a helmet for plagiocephaly this week. I have > > no > > > > idea > > > > > > what > > > > > > > > to expect at the appointment. Can anyone help me out or > > > tell > > > > me > > > > > > ways > > > > > > > > to make it easier? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 I read your post. Great news about the corrected age too. Sleep well tonight. I know you're all glad to have that behind you. I've been trying to post pictures of my son in his blue helmet but can't get the darn thing to work. I hear it's temperamental. > > > > > > > > > I am new to this site. My son, Nolan, is 5 months old > > and > > > > is > > > > > > being > > > > > > > > > fitted for a helmet for plagiocephaly this week. I > have > > > no > > > > > idea > > > > > > > what > > > > > > > > > to expect at the appointment. Can anyone help me out > or > > > > tell > > > > > me > > > > > > > ways > > > > > > > > > to make it easier? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 > > > > > > > Hi, Carol. > > > > I haven't found out yet if the Yanke helmet is FDA approved. , Is this Yanke Bionics you are speaking of? Are you in NE Ohio? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Hi, . Yes, it is Yanke Bionics. We are indeed in NE Ohio. We are just getting started and went to the Akron office today for casting but I know there is also one in Canton and in a few other places. Do you have any experience with them? mom of Andy and Ella, 7 mos. > > > > > Hi, Carol. > > > > > I haven't found out yet if the Yanke helmet is FDA approved. > > > , > > Is this Yanke Bionics you are speaking of? Are you in NE Ohio? > > Quote Link to comment Share on other sites More sharing options...
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