Guest guest Posted November 24, 2003 Report Share Posted November 24, 2003 Kids bounce back real quick after a surgery compaired to us whiney adults...LOL. My kids have had alot of surgeries. The younger they were the easier they bounced back. My oldest had his last surgery when he was 8 yrs old. He sure was alot different than the other surgeries he had when he was younger. He had surgery for hypospadias(his pee hole was in the wrong spot) when he was 9 months old and the surgeon told us not to let him pull himself up on furniture and stuff. As soon as we got him home he was crawling around pulling himself up on stuff. He acted as if nothing even had happened to him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2003 Report Share Posted November 25, 2003 As far as bouncing back my daughter did very well. As soon as everything wore off and she felt " normal " again she was all around as if nothing happened. About how she will look, well be prepared for alot of swelling. It wasn't very pretty the first day to be honest. When I took my daughters bandages off I was very upset. But the swelling went down in a few days and it looked great so.... Don't worry. I was a nervous wreck also. I think that was one of the worst most stressful days of my life so I know what you're going through Good luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2003 Report Share Posted November 25, 2003 THANK YOU SO MUCH.... YES IM KNOW ILL BE A NERVOUS WRECK.... IM VERY NERVOUS AND SO IS HER DADDY ... THANK YOU AGAIN .. FOR LETTING ME KNOW WHAT TO PREPARE FOR!! DAWN-MARIE > As far as bouncing back my daughter did very well. As soon as everything wore off and she felt " normal " again she was all around as if nothing happened. About how she will look, well be prepared for alot of swelling. It wasn't very pretty the first day to be honest. When I took my daughters bandages off I was very upset. But the swelling went down in a few days and it looked great so.... Don't worry. I was a nervous wreck also. I think that was one of the worst most stressful days of my life so I know what you're going through > Good luck > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2003 Report Share Posted November 25, 2003 Hi Dawnmarie, My daughter had her " lift " a few weeks before her first birthday. It was much harder on us than on her, I can assure you. I was a wreck, it was really hard to see her after the surgery, but she was a trooper. The kids are so great at bouncing back, it is amazing. Caylie started crawling for the first time that very night! There has never been a doubt in our mind that it was the right thing at the right time for her. Put your trust in those doctors, and hang in there, I'm sure your little one will do just fine too. Good Luck, Trish blepharophimosis suregery questions!!! I HAVE QUESTION RELATED TO THE AFTER ..AFFECT OF THE SURGERY ..HOW DO THEY REACT HOW ARE THEY AT HOME... AND SWELLING ETC: DO THEY BOUNCE BACK PRETTY FAST OR WHAT MY BABY TAILYNN WHO WILL 9 MTHS IS HAVING HER FIRST SURGERY.... AND IVE VERY NERVOUS AND SCARED SHE WILL BE HAVING THE SLING PROCEDURE FOR NOW.. SOMETIMES I FEEL LIKE BACKING OUT ..IM SCARED OF WHAT SHELL LOOK LIKE AFTER WORDS...UGH .. PLEASE LET ME KNOW .. IM A NERVUSE WRECK!!!LOL HER SURGERY WILL BE DEC 16TH 3 WEEKS ..IM VERY SCARED ..UGH ... THANK YOU VERY MUCH DAWNMARIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2003 Report Share Posted November 25, 2003 Hi! My daughter Sami just had her sling procedure Oct. 22nd. My husband and I were very surprised that she did not look bad at all. She did not have much swelling and very minimal bruising. One thing to be aware of is that after the sling procedure, they are unable to close their eyes. So, they sleep with them open for awhile and do not blink. It was a bit strange at first, especially when we first saw her in recovery and she appeared to be awake, but was actually sleeping.We had to make sure her eyes were well lubricated with ointment and drops. She then started blinking and now closes them at night. Our doc said she would learn to blink from her forehead muscles and that's what she does. (My husband, who also has BPES, also blinks from his forehead). Hope this helps. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2003 Report Share Posted November 25, 2003 Hi there...How come tailynn has to have surgery now?...so young?,,,we have been told to wait til our son is atleast 5 or so...for better results...Is her eyesight been affected? -- blepharophimosis suregery questions!!! I HAVE QUESTION RELATED TO THE AFTER ..AFFECT OF THE SURGERY ..HOW DO THEY REACT HOW ARE THEY AT HOME... AND SWELLING ETC: DO THEY BOUNCE BACK PRETTY FAST OR WHAT MY BABY TAILYNN WHO WILL 9 MTHS IS HAVING HER FIRST SURGERY.... AND IVE VERY NERVOUS AND SCARED SHE WILL BE HAVING THE SLING PROCEDURE FOR NOW.. SOMETIMES I FEEL LIKE BACKING OUT ..IM SCARED OF WHAT SHELL LOOK LIKE AFTER WORDS...UGH .. PLEASE LET ME KNOW .. IM A NERVUSE WRECK!!!LOL HER SURGERY WILL BE DEC 16TH 3 WEEKS ..IM VERY SCARED ..UGH ... THANK YOU VERY MUCH DAWNMARIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2003 Report Share Posted November 26, 2003 HI....Do you have pics of your daughter and husband?...would love to see them if you do:) -- Re: blepharophimosis suregery questions!!! Hi!My daughter Sami just had her sling procedure Oct. 22nd. My husband and I were very surprised that she did not look bad at all. She did not have much swelling and very minimal bruising. One thing to be aware of is that after the sling procedure, they are unable to close their eyes. So, they sleep with them open for awhile and do not blink. It was a bit strange at first, especially when we first saw her in recovery and she appeared to be awake, but was actually sleeping.We had to make sure her eyes were well lubricated with ointment and drops. She then started blinking and now closes them at night. Our doc said she would learn to blink from her forehead muscles and that's what she does. (My husband, who also has BPES, also blinks from his forehead). Hope this helps.Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2003 Report Share Posted November 26, 2003 WELL..HER LEFT EYE IS REALLY BAD....... AND HAVING HER TILT HER HEAD UP ALL HTE TIME IS GETTING TO US HAVING OUR TV UP ON THE ENTERTAINMENT CENTER AND SHE LOOKS UP AND THEN FALLS STRAIGHT BACK ALLTHE TIME....WELL IT WAS A LONG DESICION BUT WE DECIDE ITS BEST FOR HER .. TO GE THEM LIFTED...... DAWNtltne <tltne@...> wrote: Hi there...How come tailynn has to have surgery now?...so young?,,,we have been told to wait til our son is atleast 5 or so...for better results...Is her eyesight been affected? -- blepharophimosis suregery questions!!! I HAVE QUESTION RELATED TO THE AFTER ..AFFECT OF THE SURGERY ..HOW DO THEY REACT HOW ARE THEY AT HOME... AND SWELLING ETC: DO THEY BOUNCE BACK PRETTY FAST OR WHAT MY BABY TAILYNN WHO WILL 9 MTHS IS HAVING HER FIRST SURGERY.... AND IVE VERY NERVOUS AND SCARED SHE WILL BE HAVING THE SLING PROCEDURE FOR NOW.. SOMETIMES I FEEL LIKE BACKING OUT ..IM SCARED OF WHAT SHELL LOOK LIKE AFTER WORDS...UGH .. PLEASE LET ME KNOW .. IM A NERVUSE WRECK!!!LOL HER SURGERY WILL BE DEC 16TH 3 WEEKS ..IM VERY SCARED ..UGH ... THANK YOU VERY MUCH DAWNMARIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2003 Report Share Posted November 26, 2003 I ALREADY HAVE PICS IN THE ALBUM ON THE GROUP OF MY GIRLS.. MY HUBBY I WILL HAVE TO FIND....tltne <tltne@...> wrote: HI....Do you have pics of your daughter and husband?...would love to see them if you do:) -- Re: blepharophimosis suregery questions!!! Hi!My daughter Sami just had her sling procedure Oct. 22nd. My husband and I were very surprised that she did not look bad at all. She did not have much swelling and very minimal bruising. One thing to be aware of is that after the sling procedure, they are unable to close their eyes. So, they sleep with them open for awhile and do not blink. It was a bit strange at first, especially when we first saw her in recovery and she appeared to be awake, but was actually sleeping.We had to make sure her eyes were well lubricated with ointment and drops. She then started blinking and now closes them at night. Our doc said she would learn to blink from her forehead muscles and that's what she does. (My husband, who also has BPES, also blinks from his forehead). Hope this helps.Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2003 Report Share Posted November 26, 2003 I ALREADY HAVE PICS IN THE ALBUM ON THE GROUP OF MY GIRLS.. MY HUBBY I WILL HAVE TO FIND....tltne <tltne@...> wrote: HI....Do you have pics of your daughter and husband?...would love to see them if you do:) -- Re: blepharophimosis suregery questions!!! Hi!My daughter Sami just had her sling procedure Oct. 22nd. My husband and I were very surprised that she did not look bad at all. She did not have much swelling and very minimal bruising. One thing to be aware of is that after the sling procedure, they are unable to close their eyes. So, they sleep with them open for awhile and do not blink. It was a bit strange at first, especially when we first saw her in recovery and she appeared to be awake, but was actually sleeping.We had to make sure her eyes were well lubricated with ointment and drops. She then started blinking and now closes them at night. Our doc said she would learn to blink from her forehead muscles and that's what she does. (My husband, who also has BPES, also blinks from his forehead). Hope this helps.Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2003 Report Share Posted November 26, 2003 Let us all know how the surgery goes then.....good luck! -- blepharophimosis suregery questions!!! I HAVE QUESTION RELATED TO THE AFTER ..AFFECT OF THE SURGERY ..HOW DO THEY REACT HOW ARE THEY AT HOME... AND SWELLING ETC: DO THEY BOUNCE BACK PRETTY FAST OR WHAT MY BABY TAILYNN WHO WILL 9 MTHS IS HAVING HER FIRST SURGERY.... AND IVE VERY NERVOUS AND SCARED SHE WILL BE HAVING THE SLING PROCEDURE FOR NOW.. SOMETIMES I FEEL LIKE BACKING OUT ..IM SCARED OF WHAT SHELL LOOK LIKE AFTER WORDS...UGH .. PLEASE LET ME KNOW .. IM A NERVUSE WRECK!!!LOL HER SURGERY WILL BE DEC 16TH 3 WEEKS ..IM VERY SCARED ..UGH ... THANK YOU VERY MUCH DAWNMARIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2003 Report Share Posted November 26, 2003 We will certainly be thinking of you on that day. Our daughter, , is 7 months old and they want to do surgery around 15 months to 2 years depending on if she tilts her head when learning to walk. In terms of the surgery, our 3 year old daughter, just got her tonsils out. I was a wreck and she came home wanting to go outside to play. We were sent home with some good medicine to keep her feeling good so maybe that helped. The kids really don’t understand what is going on so I think your daughter will do great!! I know what you mean about being nervous about what they will look like afterward. She is beautiful now and will be beautiful after! I am sure I will ask you about your experience more when we get closer to ’s surgery. This is a note for everyone reading, last time we went to our opthamologist, we saw another little boy that had BPES. They said his dad had it, 6 uncles and his grandfather. None of them had ever had surgery. I found it so interesting just to run into them. Their first daughter didn’t have it. The boy was adorable and could open his eyes pretty well! Someone also mentioned doing blood testing in Belgium. We have a geneticist who said the only people testing for BPES is a lab in Belgium or one in Los Angeles. We live in Atlanta and might be sending out to Belgium for the testing. Seems like that might be a place doing specific research on this disorder so anyone in Europe might want to look into that. I will be getting more specifics soon if anyone wants them. Once again, our prayers will be with Tailynn on the 16th!! blepharophimosis suregery questions!!! I HAVE QUESTION RELATED TO THE AFTER ..AFFECT OF THE SURGERY ..HOW DO THEY REACT HOW ARE THEY AT HOME... AND SWELLING ETC: DO THEY BOUNCE BACK PRETTY FAST OR WHAT MY BABY TAILYNN WHO WILL 9 MTHS IS HAVING HER FIRST SURGERY.... AND IVE VERY NERVOUS AND SCARED SHE WILL BE HAVING THE SLING PROCEDURE FOR NOW.. SOMETIMES I FEEL LIKE BACKING OUT ..IM SCARED OF WHAT SHELL LOOK LIKE AFTER WORDS...UGH .. PLEASE LET ME KNOW .. IM A NERVUSE WRECK!!!LOL HER SURGERY WILL BE DEC 16TH 3 WEEKS ..IM VERY SCARED ..UGH ... THANK YOU VERY MUCH DAWNMARIE Quote Link to comment Share on other sites More sharing options...
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