Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 Hello, My name is Dawn-Marie and today our daughter Tailynn was just diganoised with having Blepharophimosis Syndrome... I dont know what im feeling right now scared and worried .. and feeling as if I did something wrong.. When knew from day one that there was someting wrong with her facial features but jumping from one doctor to another .. it can get dizzy... well I'm glad I found you guys... and that I can learn as much as possible with this syndrome.... Hope to hear from you all soon ... God bless TAILYNN AURORA FEB 26,2003 Quote Link to comment Share on other sites More sharing options...
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