Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 Hi, I live in Germany, our 14 month old a has BPES, she was born in the USA (Seattle). She has been diagnosed when she was 2 month old. We have just moved to Berlin-Germany. Apearantly there is no need for surgery right now because her vision is not affected. She has no motoric problems, startet crawling at the age of 6 month, walking at 13 month. We were advised in Seattle to wait with the surgery until the age of 4-5y, however we are looking for a plastic surgeon in Europe who has experience with the epicantus and ptosis procedure. Has anyone of you heard of specialists in Europe? I´d be greatful for some advise. We are getting a genetic testing next week as my husband and I do not have BPES but my husbands sister has had ptosis (without epicantus etc..) so the doctors wonder if she might have inherited her condition from her father although he does not have it himself ... Hope to hearing from you soon, Anja Quote Link to comment Share on other sites More sharing options...
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