Guest guest Posted September 7, 2003 Report Share Posted September 7, 2003 ola, we would love to meet you in amsterdam. but august? please let us know more, looking forward to it! bernice and nina --- shireenimohandes <andy.bowles@...> wrote: > Hi > > I would very much like to meet people with BPES. I > am travelling to > Amsterdam, Netherlands, 10th - 16th August. If there > are any members > of the group who are interested in meeting up, > please let me know. > > Also, I will be in New Orleans for the last two > weeks of November. A > few years ago 8 families met up for the day in St > Louis. Two of the > families were represented by 3 generations. It was > really nice to > meet so many people and share experiences. If people > are interested > in arranging something later in the year, I would be > happy to help > and co-ordinate. > > Shireen > > PS, by the way, if you click on here: > blepharophimosis/members > You can see a list of members. Some people have > listed where they > live. It is easy to update. Makes it easier to find > people who may > live nearby, or near a place you may be visiting. > > > Quote Link to comment Share on other sites More sharing options...
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