Re: New Picture + Database

[Guest guest]

Hi nne...Your daughter Caroline is beautiful:) Gorgeous blonde hair, Our son Ethan is a blondey as well...he is 8 months, and also hasn't had any surgery, not until about age 5 or so! Seems so long to wait, But hopefully the outcome will be great, especially with the way technology is going:) Do you have another pichure of Caroline up close?, It is hard to see that her eyes have anything wrong with them, they look *normal*, (I hate wording it like that, but you know what I mean).......We don't mean to imply that our babies arn't normal ha!...anyways...To everyone else, We will definately be interested to give out any information thats needed for this database...Just let us know!...Hope all is well with everyone...take care...Leanne and family:)

blepharophimosis New Picture + Database

Hello All - Great to see all the messages and all the photos - that made my day. I have posted a picture of Caroline - taken 2 weeks ago. She is now 19 months and have not had any surgeries yet. As for the database, what a great idea, we will be more than happy to share information in order to enlighten this + help new children/parents. I do not know who will take charge of the database (I am not a wiz), but do let me know what kind of info, and I will send it immediately. Otherwise, Caroline is doing great. She is tall for her age and skinny - looking much like us..! Developmental wise she is on par as for gross motor skills, and ahead of age for fine motor + speech/social skills.Thanks for all the messages - and all the post-operation pictures as well - they were really encouraging - you look beautiful - and there is no doubt in my mind that Caroline will benefit from the operations as well!! All the best from Scandinavia - Denmark, marianne

[Guest guest]

HI, HOW IS EVERYONE DOING? I KNOW I DON'T WRITE MUCH BUT I AM ALWAYS READING AND

CHECKING UP I TOO WILL BE WILLING TO PARTICIPATE IN THIS " DATABASE " THING WE

HAVE BEEN DISCUSSING. HOPE ALL IS WELL.

GOD BLESS

STEPHANIE