Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Ptosis is just the low eyelids, BPES is Ptosis-Epicanthus Inversus Syndrome. When i was told what me and my kids have i was told Ptosis associated with blepharophimosis. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 Thanks shelly for answering my question.Some of this is confusing but it is nice to have a place to come and ask. Daisy Feichtner <mfeichtner@...> wrote: Ptosis is just the low eyelids, BPES is Ptosis-Epicanthus InversusSyndrome. When i was told what me and my kids have i was told Ptosisassociated with blepharophimosis. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 Daisy, I know it's confusing. I was just told in July I believe it was that what me and my kids had was BPES. I was always told just ptosis. I had told the surgeon that I found a ptosis group online and he said that's not what your family has what you have is called blepharophimosis. Now after all these years i'm just learning about BPES. It is confusing and alot to take in. I'm just glad that all the surgeries are about done. We're hoping just one more for my youngest son and i'm going to try and get that done when he's on spring break from school. It usually doesn't go the way i want it to though, but i guess i'll find out in January when i take him back in for a checkup. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 pwdr_99 wrote: > hello, > This is probably a stupid question but I am going ask anyway.what is > the difference between ptosis and bpes?Doesn't bpes involved ptosis? Ptosis (droopy upper eyelids) is the 'P' in B-P-E-S. Rob Quote Link to comment Share on other sites More sharing options...
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