Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Me and my 2 sons didn't have our first surgery until we were 5 yrs. old. My surgeon said the later you wait the better the results. Surgeons are different from what i've read on here, so you just go with what you feel is right. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 My daughter had her first surgery when 4 months old but it was just a very minor one just to hold her eyelids open. When she's school aged she will have one to put creases in her lids and later to work on the folds in between her eyes. My daughter is 2 1/2 and VERY small for her age. She is in the 5th percentile for height and weight. She is 22 pounds. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2003 Report Share Posted October 12, 2003 My daughter is also 2 1/2. She was diagnosed at 6 weeks of age, and had her first surgery at 1 year. This was NOT anything cosmetic. It was just to lift her lids so she would continue to be getting enough light in to maintain vision. We too have been told that is it better to wait as long as you can before starting the cosmetic surgeries because of better results. She just had a check-up last week where the surgeon said that unless there are any vision problems between now and then, he will see her in 2 years when he will start the cosmetic surgery because she will start kindergarten the next fall. I know all the surgery stuff can be very confusing in the beginning. My husband and I were under the impression for the longest time after she was diagnosed that there was a quick-fix surgical proceedure out there that would magically work. It was not until everything was clarified for us around her first surgery that it all became clearer. It is so wonderful to see the " after " pictures on the posting board though. It is great to see how the cosmetic surgeries work. Trish Re: blepharophimosis Regarding size My daughter had her first surgery when 4 months old but it was just a very minor one just to hold her eyelids open. When she's school aged she will have one to put creases in her lids and later to work on the folds in between her eyes. My daughter is 2 1/2 and VERY small for her age. She is in the 5th percentile for height and weight. She is 22 pounds. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2003 Report Share Posted October 18, 2003 was 4 months. The amount of space between his lids was the deciding factor. Technically he should have had another surgery this summer...but his eyes are staying open nicely, buying us another year of time! He's had 5 surgeries do far.( technically 6 but they did 2 procedures at one time when he was 3 because of the distance between us and the surgeon, which is 13 hours). > my son is 2 1/2, He is very tiny for his age. He has always been > small. His appetite is small and he is very picky with what he will > eat. I have never considered his size and appetite to be linked to > BPES. His fine motor skills are extemely advanced for his age. Most > every thing developmentally is advanced. He speaks well, however, he > will ommit words like and, or, the in his speech. This is probably an > age factor. I do have a question for all of you. At what age have you > had your first surgery? My son like I said is 2 1/2 and still has not > had his first surgical proceedure. The specialists have said we can > do at any time before he starts school. We are considering going > sooner than later. Maybe this winter, when he is not even three. > Would you suggest sooner or later? Quote Link to comment Share on other sites More sharing options...
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