Tr: Re: My Son

[Guest guest]

Hi ,

I think of Garrett today.

I keep a very good remember of my three surgeries. Everybody was very friendly

with me in the hospital.

I didn't suffer. The only thing I hated was when they had to get off the

threads.

Don't worry !

----Message réexpédié----

>A: <blepharophimosis >

>De: " Feichtner " <mfeichtner@...>

>Date: Fri, 22 Aug 2003 14:44:11 -0700

>Sujet: Re: blepharophimosis My Son

>

>My son had the same problem as far as favoring one eye over the other. I'm

>not sure about Canada, but here in Ohio where i live his eye doctor did a

>totally different type of surgery for his one eye turning in. His eye

>surgeon doesn't do anything except the " cosmetic " stuff, even though the

>procedures aren't considered cosmetic. Garrett, my son, had Duanes

>Retraction Syndrome and had surgery for that about 2 years ago. That was

>where his eye was turned in. They went in and snipped the muscle or

>something, i actually forget. He was also given atropine drops to blur the

>vision in the eye he was favoring. We tried the patch for years, but that

>didn't work at all. We did the drops for 3 months and when we took him in

>for his check up we were told that he was using both eyes equally.

>

>His eye surgeon wouldn't even consider doing surgery until he was at least

>5yrs old. He says the longer they wait the better the results. He had a

>temporary procedure done when he was 4 mons. old just to raise his eyelids

>enough for him to see. Which, in my husbands opinion, was too late, but the

>surgeon wouldn't do anything until the eye doctor said that something needed

>to be done. He thinks they waited too long because he's been wearing

>glasses since shortly before he turned 2 and he gets a new script every 3

>months. He turned 5 in July. His lenses just keep getting thicker and

>thicker.

>

>Has your son been to a regular eye doctor for an exam? I'm sure he has,

>but if he seems to be favoring one eye over the other there may another

>issue going on besides the blepharophimosis. I myself had surgery for

>blepharophimosis when i was child. Funny you should mention the drilling

>through the nose, because that's what they did to me when i was 5. I can

>vaguely remember, but i do remember they used fishing weights in the corners

>where they drilled the hole. I can remember having patches on my eyes and

>the fishing weights falling out because i kept trying to peek out of the

>patches. They do it totally different know. My oldest son, Austin, also

>had surgery for it and it's amazing how his eyes look. I've been trying for

>months to get my husband to be buy me a new scanner because the one i have

>broke. I want to put our pictures on here. My youngest is having his first

> " permanent " surgery next Friday so i'm getting kinda anxious. His surgeon

>has already told me that he's not sure that his will turn out as well as

>Austin's did because Garrett's is alot worse. We'll just have to hope for

>the best. They'll do the 2nd surgery 4-6 mons after this first one.

>Hope you find a good doctor somewhere for your son. There are amazing

>surgeons here in the US, maybe you could look for one here.

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