Guest guest Posted September 16, 1997 Report Share Posted September 16, 1997 Duannes & BPES Our daughter Alyssa now 9 Mths old diagnosed with BPES at Birth, has just been diagnosed now with Duannes Syndrome as well. Can someone tell me is this linked with BPES? I would also like to know more about it....what exactly is it? and will she require surgery? Is it possible that it will worsen? Your help would be much appreciated. This new diagnosis has completely thrown us. Thanks, Quote Link to comment Share on other sites More sharing options...
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