Guest guest Posted February 20, 2001 Report Share Posted February 20, 2001 I think you'll find many cases of adult-onset seizures. My first grand mal happened when I was 34 and pregnant with my first child. Eleven years later I have had 5 seizure episodes. My thinking now is that my seizures are related to times of bigger than normal hormonal changes. I have been taking Dilantin/phenytoin, and the side effects have been very minimal. However a friend of mine tried to take it and could not tolerate it. The book _What Your Doctor May Not Tell You About Premenopause_ by Lee, Hanley, and Hopkins was helpful to me (including the suggested reading list in the back of the book). Here in Michigan, a person has to be seizure free for six months before driving again. I used to hate it even though I knew it was a good idea. Now I even somewhat (not totally!) enjoy it because it slows my life down. Am I getting old or what!? Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2001 Report Share Posted February 20, 2001 I am one of those who cannot tolerate Dilantin. When trying to switch to something other than Depakote (in the hope of having future children), my old Neurologist tried Tegretol first, which resulted in horrible hives at the end of a two week trial. Then he tried Dilantin (which I now know has many similar properties and probably should have just been skipped). When I broke out in the hives with the Dilantin, my intructions were to just stop taking it all together because I was still taking the Depakote. What he forgot to mention was that the blood work he had in his hands showed that Dilantin had lowered my blood levels of Depakote to sub-therapeutic and I ended up having two 10-minute grand mals in one day.........and two ER visits to two seperate hospitals in one day. I was also very lucky because had the first seizure happened about 5 minutes earlier than it did, I would have been driving my car. That is why I mentioned the driving thing. I do not get auras before my seizures, so I have no way of knowing they are coming. This is also why I found a " medication guru " in a big city hospital. Topamax seems to be working wonders for me so far. Jeanne > I think you'll find many cases of adult-onset seizures. My first grand mal > happened when I was 34 and pregnant with my first child. Eleven years later > I have had 5 seizure episodes. My thinking now is that my seizures are > related to times of bigger than normal hormonal changes. > > I have been taking Dilantin/phenytoin, and the side effects have been very > minimal. However a friend of mine tried to take it and could not tolerate > it. > > The book _What Your Doctor May Not Tell You About Premenopause_ by Lee, > Hanley, and Hopkins was helpful to me (including the suggested reading list > in the back of the book). > > Here in Michigan, a person has to be seizure free for six months before > driving again. I used to hate it even though I knew it was a good idea. > Now I even somewhat (not totally!) enjoy it because it slows my life down. > Am I getting old or what!? > > Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2003 Report Share Posted June 4, 2003 I have a brother that has blephophimosis with mental retation.I have been trying to reseach the syndrome with little luck.Most of the informatiom any one in the family had was lost years ago.Also, from what i understand, little was know about the syndrome at the time of his birth.I am interested in the genitics and any info any one would like to share. Thank you, Daisy Richhart Quote Link to comment Share on other sites More sharing options...
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