Guest guest Posted September 2, 2003 Report Share Posted September 2, 2003 Becki, I'm not sure it was wisdom or an education from the school of hard knocks. You sound like a wonderful mother. If you follow your heart, whatever happens, you will get through it. I have developed a great sense of humor that I am not sure I would have without Blephs. I think being able to laugh at ones self is a very royal trait. It will get you through alot of tough times. Please instill in Mason that he does'nt have to be a wall flower. People are attracted to or want to hang around with someone who is great to be with. I have a beautiful eight year old daughter. She has blue eyes, blonde hair and is the kind of child that people notice. The wonderful thing is she learned at a young age that it is nice to be pretty, but much more beautiful to be nice. She is not judgemental, snobby,or rude. I know my mom went to great lengths to make certain that I tried to do my best at whatever was at hand. Needless to say I was not great in sports involving balls, because of depth perception, but man can I skate. Confidence, thats what it is all about. Find something he is good at and watch him soar. Please keep me posted at how he is doing. I have to admit that I usually don't visit chat sites, but was fascinated by the fact that there were others with my same situation. I would love to see a picture of Mason and please let me know if you need to talk, anytime. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Hi there!...you sound like such a lovely person:)...we have a 7 month old son with blephs, he is so beautiful, his huge smile makes up for his tiny eyes:)...my mum looks at him and gets teary eyed! she said theres something about him...he is doing great developmentally!...we have a 4 year old son as well, who doesn't have blephs, we'd never heard of this before???...and no-one in the families have it either!...its just one of those things ha!...We look at our son, and can see these gorgeous blue eyes under there! you just get frustrated that there is something like to much skin covering them!...I think the hardest part of this is the constant stears, and feeling like all you have to talk about with people is ethans eyes! its always the 1st question usually...I remember when my 1st son tyler had a broken leg and he had to be in a wheelchair, I was pregnant, and the steers we used to get with him, I would say, that I can't imagine having a baby with something wrong, as the gawking was most frustrating! not there there is something "wrong" with ethan:)...you know what I mean...we get the comments like, oh he's sleeping!....or "I thought your husband might have been asian!"...or once when he was sleeping a lady said, "oooh it looks like his eyes are painted on"...that wasn't bad though, I love to watch him sleep, its the time when I can say there is nothing wrong with his eyes:)...he looks so angelic and flawless! like a porcelin doll:)...when they say that after surgery his eyes might stay open a little while sleeping! thats scares me, because as I said thats when it looks like nothings wrong with them. His brother has the hugest eyes! thats what your drawn to with him, same with ethans eyes, except for different reasons! I just don't think I will be able to handle my baby coming home from school saying he's been teased! it will break my heart:(...they say no surgery will be done til he's about 5 or so, they take a tendon from his leg and thats when its right to do the surgery!...I will send you a photo of my wee man:)...do you have any of you now and when you were younger! always interesting to see before and after shots...thanks for listening...leanne and family... ps...where are you from?...we are in NZ... blepharophimosis Wisdom Becki,I'm not sure it was wisdom or an education from the school of hard knocks. You sound like a wonderful mother. If you follow your heart, whatever happens, you will get through it. I have developed a great sense of humor that I am not sure I would have without Blephs. I think being able to laugh at ones self is a very royal trait. It will get you through alot of tough times. Please instill in Mason that he does'nt have to be a wall flower. People are attracted to or want to hang around with someone who is great to be with. I have a beautiful eight year old daughter. She has blue eyes, blonde hair and is the kind of child that people notice. The wonderful thing is she learned at a young age that it is nice to be pretty, but much more beautiful to be nice. She is not judgemental, snobby,or rude. I know my mom went to great lengths to make certain that I tried to do my best at whatever was at hand. Needless to say I was not great in sports involving balls, because of depth perception, but man can I skate. Confidence, thats what it is all about. Find something he is good at and watch him soar. Please keep me posted at how he is doing. I have to admit that I usually don't visit chat sites, but was fascinated by the fact that there were others with my same situation. I would love to see a picture of Mason and please let me know if you need to talk, anytime. Quote Link to comment Share on other sites More sharing options...
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