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I have just recently found out the name of my disorder. Can you

believe that I am 40 years old and was not aware that what I had was

not just bad luck. I was told my father had this condition, but

unfortunately, I have never met him. Even though I have had

approximately four surgeries, the first when I was four or five, the

doctors never told me exactly why I had this abnormality or what

exactly was wrong. I had conclulded that it was hereditary, but did

not know it was a dominant trait. Another fact that I find amazing

is my inability to concieve a child. After doing my own research, I

have found that infertility is a common sympton of Blephs. Not one

fertility expert that my husband and I visited ever mentioned this.

I guess it is just such a rare syndrome that many professionals are

not familiar with it. I have read some of the messages posted and

found a lot of them to be from parents with young children. I

understand exactly what you are feeling. I can ecspecially relate to

the children. I was there, I remember the looks, the teasing, the

questions, the feeling like I was different. I remember people

treating me like I was slow or retarded. I assure you I am neither.

I want the parents to know that your child can have a bright future.

I am successful in business, have a wonderful loving family,

including two beautiful adopted children, and one of the best

outlooks of anyone I know. My single mother never coddled me, never

let me use my condition as an excuse, and taught me to be grateful

for the blessings I do have. I would be happy to talk with anyone

who would like to chat about this. Take care and keep your head held

high! Ps: It always makes me wonder how ironic life can be when you

see the people who taunted you as a child, only to find out that they

did't fair so well as adults?