Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 I have read every message written in this group tonight and I have laughed cried and just been relieved to know that I'm not crazy (or at least as crazy as I thought)for feeling afraid, angery and shameful all at once! My son Devon is 17 months and he was diagnoised two weeks after birth (the longest two weeks in my life). I live in North Carolina and we go to Baptist Hospital where a Dr. Yeatts plans to start the surgery process (add fisia (sp?) to bring up the lid) when Devon is 20 months old. Devon has developed normally with a few bumps along the way (awful case of reflux and a temper the size of Florida!) and normal vision. He likes to be carried high in our arms which makes my family upset because they tire of holding him this way. I try to explain that he sees better but they don't get it. I am hypersensitive about the stares and 'sleepy-eye' comments... I guess I understand, but it hurts. Has anyone started the surgery so young? How to you comfort a child healing from this process? I have an older daughter who doesn't have BPES. Any suggestions on how to get her prepared? Or to get me prepared? Thanks... I think I just needed to share with someone. Family and friends say 'oh he is cute as he is!' (I agree but worry about the future!). Quote Link to comment Share on other sites More sharing options...
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