New Member

[Guest guest]

Hi Everyone-

My name is Mara and I am a new member. I am a 25 year old female

with BPES and was also recently diagnosed with Pre Mature Ovarian

Failure (POF) which i am learning is linked to BPES.

Throughout my life, I have had 3 eye surgeries; ages, 1, 2 and 10.

Obviously, I don't remember the surgeries at 1 and 2 but I have a

very clear memory of my surgery at age 10. The last surgery was the

one that was most successful. It changed the look of my eyes

drastically.

That was 15 years ago, so I can't even imagine the technology that

there is now! As I have gotten older and my face has matured, my

eyes definitely look bigger than they ever did. The doctor had told

my parents that would happen but who really knew if it would. I can

honestly say that I look the best I have ever looked.

I have been reading all the messages posted and wish that this

resource was around when I was growing up. I would have loved to be

able to talk with others about what I was going through. I always

had a ton of friends but it was the strangers that really got to

me. " What's wrong with your eyes? " " Are you retarded or

something " ?; i would get these comments and other like it quite

often. It really hurt but luckily I had a very supportive family and

great friends who helped me through it definitely didn't stop me from

anything...I was involved in all types of sports (soccer, softball,

gymnastics, sking,etc) and always had a great attitude!

So, that's a little history about me. I would love to chat with

other e females who have pof or other problems conceiving as I am

concerned that I will not be able to have kids. I also have a

concern that there are other things linked to BPES that I am not

aware of. Since I have grown up with BPES, i would also be happy to

answer any questions anyone has.

I have also posted photos of me on the board. When I go to my

parents house, I can get photos of my from when I was younger to show

the difference.