Rebekah

[Guest guest]

Who knows! One day the HEM says 15 grams the next, it's 10 grams. The

immuno recommended 10 grams in writing to the HEM, but I guess we will get a

surprise on the 12th of September. I'd be willing to try 5 grams and look

at the next trough values and see if she stays well, but the HEM doesn't

negotiate; he tells you what will happen. Can you tell we are a bit

dissatisfied??

A bit of good news! Rebekah actually had a good morning. She was chatty

and didn't ask for a blankie or nukie all morning. She didn't cry a lot and

asked to go back to bed at 11am! What a relief! We actually got an hour

and 15 minutes of school done this morning. Oh, I hope this lasts!!

Pam

>> Do you have a pre- treatment plan for the next infusion to help minimise

reactions the next time?

[Guest guest]

Hi ,

I am not from UK. Am from US, Tallahassee, Florida, but wanted to say

hello to you and welcome.

- debby (mom to Jordan 4 years, 5 months, ds/asd)

________________________________________________________________

On Wed, 28 May 2003 18:04:12 -0000 " lisasundowns2003 "

<LISASUNDOWNS@...> writes:

> Hi all,

> My name is and I am mum to Rebekah aged 5 who has finally been

> diagnosed with ds/asd. I live in the U.K. and have been trying,

> unsuccessfully, to find parents like myself within the U.K.

> I wondered if you had any British members on your website?

>

>

>

>

[Guest guest]

Rebekah Welcome to the group. I hope you find this group to be helpful and like

a family. I am Mike Maxey Group founder/owner anyway you need anythinhg blet me

know Mike group owner