Guest guest Posted October 7, 2003 Report Share Posted October 7, 2003 Hello group. I just came across this group as I was searching for updated information on blepharophimosis. My middle daugther (age 6) was diagnoised with this condition shortly after birth. She has a local surgeon and a surgeon also in Michigan. Her surgeon in Michigan has completed two of the three reconstructive surgeries. My daugther will have the third and final surgery this December. We are so excited that the surgeries will finally be over for her soon. We visited with a genetic counselor recently and discovered that there is only one other person in our local area with Blepharophomosis. She is in her thirties. It is nice to see that their is an online group available for support. If there are parents who recently received this diagnosis regarding their child. E-mail me and I'll be happy to share any information I have as well as our families experience. Quote Link to comment Share on other sites More sharing options...
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