Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Hello Everybody. Came home from the hospital yesterday, where my 7 months old daughter was diagnosed with BPES. Unfortunately, I live in Denmark, and doctors here seem to have very little experience with this syndrome. Can you help me? I cannot seem to find anything written in layman's terms about this condition, and I have no idea what this will imply for her. I can see that a lot of you have experience with operations. What are the results of these? How will our babies look when the get older? Are there any other conditions following this? I found some websites mentioning learning difficulties and mental retardation? I am sooo confused, and I hope you will be able to provide me with more information since the doctors here seem to be able to tell very little. Thank you very much in advance. nne Quote Link to comment Share on other sites More sharing options...
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