Re: This is from my Pain Management doctor's notes

[Guest guest]

Margee

I am glad that you at least got some partial answers. What bothers me here is

what are you supposed to do for the pain in the meantime while they figure out

what they are going to do here?

To me that is cruel that they will not give you medication to allow you to have

some comfort in the interim. What are you going to do if you decide you do not

want to go the surgical route?

Have you discussed this with the the pain mgt doc? As I said I think I would get

a second opinion here. I dont think it would be out of reason in this situation.

Kim

This is from my Pain Management doctor's notes

It's too long to type everything, but this is what he says about me.

He feels at this time the only realistic options of getting

significant pain relief would be either surgical intervention or

implantation of a spinal cord stimulator.

Due to my spinal stenosis however the only way to get a spinal cord

stimulator lead into my upper spine would be to do it with an open

laminectomy. He could try to use percutaneous occipital leads for the

treatment for my headaches but this would only address one part of my

severe pain.

So now we are waiting to see what my Neurosurgeon sees in my scan that

was done today and see what plan they come up with.

[Guest guest]

I'm on the Gabapentin am and pm, just waiting to hear from

Neurosurgeon. I hope to hear from him tomorrow, sure don't want to

wait all weekend to hear something.

I know, some days the pain get's so bad, I can hardly function. Then

the migraines come on and makes it even worse.

I just deal with it hour by hour. Only good thing is the doseage for

Gabapentin is high enough at night to let me sleep all night.But I

wake up groggy in the morning.

>

> Margee

> I am glad that you at least got some partial answers. What bothers

me here is what are you supposed to do for the pain in the meantime

while they figure out what they are going to do here?

>

> To me that is cruel that they will not give you medication to allow

you to have some comfort in the interim. What are you going to do if

you decide you do not want to go the surgical route?

>

> Have you discussed this with the the pain mgt doc? As I said I think

I would get a second opinion here. I dont think it would be out of

reason in this situation.

> Kim

> This is from my Pain Management doctor's notes

>

>

> It's too long to type everything, but this is what he says about me.

>

> He feels at this time the only realistic options of getting

> significant pain relief would be either surgical intervention or

> implantation of a spinal cord stimulator.

> Due to my spinal stenosis however the only way to get a spinal cord

> stimulator lead into my upper spine would be to do it with an open

> laminectomy. He could try to use percutaneous occipital leads for the

> treatment for my headaches but this would only address one part of my

> severe pain.

>

> So now we are waiting to see what my Neurosurgeon sees in my scan that

> was done today and see what plan they come up with.

>

>

>

>

>

>

[Guest guest]

I agree listen a pain management doctor is that you are not getting

proper treatment. I would consult 1 more time then move on to anoher

doctor who will help you bu managing your pain until they find anthor

way to rlief your pain. demand reilif even if it mean going to E.R

thats what i had to do before i found the best pain doctor in

Delaware. Mike group owner [ulator , " kimleach "

<kimleach@...> wrote:

>

> Margee

> I am glad that you at least got some partial answers. What bothers

me here is what are you supposed to do for the pain in the meantime

while they figure out what they are going to do here?

>

> To me that is cruel that they will not give you medication to allow

you to have some comfort in the interim. What are you going to do if

you decide you do not want to go the surgical route?

>

> Have you discussed this with the the pain mgt doc? As I said I

think I would get a second opinion here. I dont think it would be out

of reason in this situation.

> Kim

> This is from my Pain Management doctor's

notes

>

>

> It's too long to type everything, but this is what he says about

me.

>

> He feels at this time the only realistic options of getting

> significant pain relief would be either surgical intervention or

> implantation of a spinal cord stimulator.

> Due to my spinal stenosis however the only way to get a spinal

cord

> stimulator lead into my upper spine would be to do it with an open

> laminectomy. He could try to use percutaneous occipital leads for

the

> treatment for my headaches but this would only address one part

of my

> severe pain.

>

> So now we are waiting to see what my Neurosurgeon sees in my scan

that

> was done today and see what plan they come up with.

>

>

>

>

>

>

[Guest guest]

I am so depressed right now!

Go the call from my Neurosurgeon's office, he has looked at my scans

that were done on 10-29, I need follow-up appt. with him but none

available until 12-4, yes December!

I have no answers and now have to just wait?

I called and left message for my Pain Management doctor, they are both

in the same office and maybe i can find out something sooner.

I first tried to get help with my pain beginning of Aug. I waited 4

weeks for appt. with new Orthopedic doctor, then 4 weeks to see Pain

Management doctor, now it's been 4 weeks since then and I'm still in

pain and getting worse all of the time!

> >

> > Margee

> > I am glad that you at least got some partial answers. What bothers

> me here is what are you supposed to do for the pain in the meantime

> while they figure out what they are going to do here?

> >

> > To me that is cruel that they will not give you medication to allow

> you to have some comfort in the interim. What are you going to do if

> you decide you do not want to go the surgical route?

> >

> > Have you discussed this with the the pain mgt doc? As I said I

> think I would get a second opinion here. I dont think it would be out

> of reason in this situation.

> > Kim

> > This is from my Pain Management doctor's

> notes

> >

> >

> > It's too long to type everything, but this is what he says about

> me.

> >

> > He feels at this time the only realistic options of getting

> > significant pain relief would be either surgical intervention or

> > implantation of a spinal cord stimulator.

> > Due to my spinal stenosis however the only way to get a spinal

> cord

> > stimulator lead into my upper spine would be to do it with an open

> > laminectomy. He could try to use percutaneous occipital leads for

> the

> > treatment for my headaches but this would only address one part

> of my

> > severe pain.

> >

> > So now we are waiting to see what my Neurosurgeon sees in my scan

> that

> > was done today and see what plan they come up with.

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Margee,

Hang in there. I know exactly how you are feeling and what you are going

through.

I've been out of action for a while the pain has been horrendous and I've passed

out a couple of times. This week has not been good on the news front for me

either. As I think I mentioned before that I had a consultation with a

neurosugeon who said he could fix me and that was nearly 6 months ago.

Last week I was promised that I would have an answer by Wednesday this week

confirming a date for my op but guess what, I'm still not on his list yet as

according to his p.a. " he's a very busy man " and now I have to phone them in a

weeks time when i might get an answer. My pain doctor was so fed up with the

lack of response that 6 weeks ago he referred me to another hospital and I had

an appointment to see one of their doctors on 10th November. Well, I had a phone

call from them today cancelling my appointment as they had misread the letter

from my pain doctor and they don't have the necessary neurosurgical expertise to

deal with the type of lead that I have fitted. With my history they won't touch

me.

As you can imagine I'm feeling really down too, so I feel for you, I really do.

Hugs

________________________________

From: Margee' <48margee@...>

Stimulator

Sent: Friday, 31 October, 2008 20:40:39

Subject: Re: This is from my Pain Management doctor's notes

I am so depressed right now!

Go the call from my Neurosurgeon' s office, he has looked at my scans

that were done on 10-29, I need follow-up appt. with him but none

available until 12-4, yes December!

I have no answers and now have to just wait?

I called and left message for my Pain Management doctor, they are both

in the same office and maybe i can find out something sooner.

I first tried to get help with my pain beginning of Aug. I waited 4

weeks for appt. with new Orthopedic doctor, then 4 weeks to see Pain

Management doctor, now it's been 4 weeks since then and I'm still in

pain and getting worse all of the time!

> >

> > Margee

> > I am glad that you at least got some partial answers. What bothers

> me here is what are you supposed to do for the pain in the meantime

> while they figure out what they are going to do here?

> >

> > To me that is cruel that they will not give you medication to allow

> you to have some comfort in the interim. What are you going to do if

> you decide you do not want to go the surgical route?

> >

> > Have you discussed this with the the pain mgt doc? As I said I

> think I would get a second opinion here. I dont think it would be out

> of reason in this situation.

> > Kim

> > This is from my Pain Management doctor's

> notes

> >

> >

> > It's too long to type everything, but this is what he says about

> me.

> >

> > He feels at this time the only realistic options of getting

> > significant pain relief would be either surgical intervention or

> > implantation of a spinal cord stimulator.

> > Due to my spinal stenosis however the only way to get a spinal

> cord

> > stimulator lead into my upper spine would be to do it with an open

> > laminectomy. He could try to use percutaneous occipital leads for

> the

> > treatment for my headaches but this would only address one part

> of my

> > severe pain.

> >

> > So now we are waiting to see what my Neurosurgeon sees in my scan

> that

> > was done today and see what plan they come up with.

> >

> >

> >

> >

> >

> >

[Guest guest]

My PM doctor will go over the scans with me on 11-6, so that's sooner

than 12-4.

Have had another migraine today, starting to come on daily now.

> > >

> > > Margee

> > > I am glad that you at least got some partial answers. What bothers

> > me here is what are you supposed to do for the pain in the meantime

> > while they figure out what they are going to do here?

> > >

> > > To me that is cruel that they will not give you medication to allow

> > you to have some comfort in the interim. What are you going to do if

> > you decide you do not want to go the surgical route?

> > >

> > > Have you discussed this with the the pain mgt doc? As I said I

> > think I would get a second opinion here. I dont think it would be out

> > of reason in this situation.

> > > Kim

> > > This is from my Pain Management doctor's

> > notes

> > >

> > >

> > > It's too long to type everything, but this is what he says about

> > me.

> > >

> > > He feels at this time the only realistic options of getting

> > > significant pain relief would be either surgical intervention or

> > > implantation of a spinal cord stimulator.

> > > Due to my spinal stenosis however the only way to get a spinal

> > cord

> > > stimulator lead into my upper spine would be to do it with an open

> > > laminectomy. He could try to use percutaneous occipital leads for

> > the

> > > treatment for my headaches but this would only address one part

> > of my

> > > severe pain.

> > >

> > > So now we are waiting to see what my Neurosurgeon sees in my scan

> > that

> > > was done today and see what plan they come up with.

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Margee

You NEED to CALL your Neuro and ask to speak to his nurse or PA. Tell them you

are NOT happy waiting another 4 weeks to get results from your CT scan when you

have already been waiting all this time.

See if you can get at least results and see which way the neuro is heading.

I am sorry you are in hurry and wait mode as I call it. I am becoming very used

to it!

Kim

This is from my Pain Management doctor's

> notes

> >

> >

> > It's too long to type everything, but this is what he says about

> me.

> >

> > He feels at this time the only realistic options of getting

> > significant pain relief would be either surgical intervention or

> > implantation of a spinal cord stimulator.

> > Due to my spinal stenosis however the only way to get a spinal

> cord

> > stimulator lead into my upper spine would be to do it with an open

> > laminectomy. He could try to use percutaneous occipital leads for

> the

> > treatment for my headaches but this would only address one part

> of my

> > severe pain.

> >

> > So now we are waiting to see what my Neurosurgeon sees in my scan

> that

> > was done today and see what plan they come up with.

> >

> >

> >

> >

> >

> >

[Guest guest]

Tell pain managment doctor you have to wait till december and you

need pain meds tp hold you over until prtho can see you. Most pain

doc will give you 1-2 month supply until you see the ortho doctor. If

there in same office it should be eaiser Let me know where are you

from? city state I have a list of the top pain management docttors in

usa mike group owner

> > >

> > > Margee

> > > I am glad that you at least got some partial answers. What

bothers

> > me here is what are you supposed to do for the pain in the

meantime

> > while they figure out what they are going to do here?

> > >

> > > To me that is cruel that they will not give you medication to

allow

> > you to have some comfort in the interim. What are you going to do

if

> > you decide you do not want to go the surgical route?

> > >

> > > Have you discussed this with the the pain mgt doc? As I said I

> > think I would get a second opinion here. I dont think it would be

out

> > of reason in this situation.

> > > Kim

> > > This is from my Pain Management

doctor's

> > notes

> > >

> > >

> > > It's too long to type everything, but this is what he says

about

> > me.

> > >

> > > He feels at this time the only realistic options of getting

> > > significant pain relief would be either surgical intervention

or

> > > implantation of a spinal cord stimulator.

> > > Due to my spinal stenosis however the only way to get a

spinal

> > cord

> > > stimulator lead into my upper spine would be to do it with an

open

> > > laminectomy. He could try to use percutaneous occipital leads

for

> > the

> > > treatment for my headaches but this would only address one

part

> > of my

> > > severe pain.

> > >

> > > So now we are waiting to see what my Neurosurgeon sees in my

scan

> > that

> > > was done today and see what plan they come up with.

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I am so sorry you been in so much pain. I hope you get better. I

know what it is to in pain and had so many surgeries no doctor wants

to handle you. I been there 2 spine surgeries A Idet surgery many

many steriod injections and nerve blocks. Get well Mike group

owner

> > >

> > > Margee

> > > I am glad that you at least got some partial answers. What

bothers

> > me here is what are you supposed to do for the pain in the

meantime

> > while they figure out what they are going to do here?

> > >

> > > To me that is cruel that they will not give you medication to

allow

> > you to have some comfort in the interim. What are you going to do

if

> > you decide you do not want to go the surgical route?

> > >

> > > Have you discussed this with the the pain mgt doc? As I said I

> > think I would get a second opinion here. I dont think it would be

out

> > of reason in this situation.

> > > Kim

> > > This is from my Pain Management doctor's

> > notes

> > >

> > >

> > > It's too long to type everything, but this is what he says

about

> > me.

> > >

> > > He feels at this time the only realistic options of getting

> > > significant pain relief would be either surgical intervention or

> > > implantation of a spinal cord stimulator.

> > > Due to my spinal stenosis however the only way to get a spinal

> > cord

> > > stimulator lead into my upper spine would be to do it with an

open

> > > laminectomy. He could try to use percutaneous occipital leads

for

> > the

> > > treatment for my headaches but this would only address one part

> > of my

> > > severe pain.

> > >

> > > So now we are waiting to see what my Neurosurgeon sees in my

scan

> > that

> > > was done today and see what plan they come up with.

> > >

> > >

> > >

> > >

> > >

> > >