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Hi everyone. I have been a member of this group for a while now. I

have never really heard from anyone the whole time. I can not believe

the amount of cases presenting themselves now. This amazes me. I am

so far the only Canadian that I have known yet. Where in Canada are

you Trish? It is scary, is this disorder now becoming a lot less

rare? I have a little boy with the disorder. I would love to

correspond with all of you. He is 3 now and had had 4 different

surgeries. I would be glad to answer any questions you might have.

Please feel free to contact me.

a

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