Re: Has anyone ever just got agiated by by it ?

[Guest guest]

Hello Ihave had spinal cord stimulator since 2001 7 yrs now my

was also put in my butt I get upset when i sit down and alot times I

can feel the stimulator move. what bothers me most is having to put

the scs behind me a turn it up. people look at you funny if gthey

see you reaching to your butt to change settings. I have 4

settings one goes down my legs second just my low back. third if

back on and one leg. or other leg. Last summer we went on vacation i

had to stop take a break so i sat down next to this old lady i took

out my stimulator to turn unit up she heard the beeps gave me the

funny look i every seen. anyway thought I share that. Mike group

owner

>

> Hi All,

>

> it has been a while since I have posted on here. I just wanted

to

> ask if Anyone has ever become agiated by there SCS running all the

> time, I have had mine in for a little over 2 years now I have 4

> different settings on mine depending on what activity i am doing

and

> I can not sleep with mine on because that is all I think about

when I

> am trying to go to sleep at night. Sometimes. My battery is

implanted

> in my behind and they want to move it because I keep bumping it on

> things and I can see it through my clothing. But anyways I get

> agiated sometimes when it is running it seems that all I can think

> about is it and the buzzing it sends through me, I am still on

> medication I take Kadian,Topamax,Cymbalta and Baclofen. Anfd I am

> pretty much out of it most of the time I have had numerous

adjustment

> over this 2 year period, But I just can't seem to find any happy

> adjustment that does not agiat me when it is on. Is there anyone

else

> with this problem ??????

>

> Thanks Kathy

>

> P.S. I have a Conus Lipoma tumor in my spine that can not be

removed

> that has cause me total saddle block numbness and bowel, bladder

> incontinence the tumor has all the nerves that control that

control

> the lower part of my body growing though it. I have had a number

of

> test and have been told there is nothing that can be done to

remove

> it. I am like a spinal cord injury pateint but I am able to walk a

> little bit and have feeling fron the back of my knees down.

>

[Guest guest]

I used to reach around to my butt also to change my settings. I got many funny

looks also. I recently learned that I can change settings without reaching

around. I just hold the control straight up at waist level and it still

connects. My programmer showed this to me cause I was twisting my body to reach

around. He said the control actually prefers to be straight up rather than

pointed directly at the battery. I didnt believe it till I tried it.

Deanna

Re: Has anyone ever just got agiated by by it ?

Hello Ihave had spinal cord stimulator since 2001 7 yrs now my

was also put in my butt I get upset when i sit down and alot times I

can feel the stimulator move. what bothers me most is having to put

the scs behind me a turn it up. people look at you funny if gthey

see you reaching to your butt to change settings. I have 4

settings one goes down my legs second just my low back. third if

back on and one leg. or other leg. Last summer we went on vacation i

had to stop take a break so i sat down next to this old lady i took

out my stimulator to turn unit up she heard the beeps gave me the

funny look i every seen. anyway thought I share that. Mike group

owner

>

> Hi All,

>

> it has been a while since I have posted on here. I just wanted

to

> ask if Anyone has ever become agiated by there SCS running all the

> time, I have had mine in for a little over 2 years now I have 4

> different settings on mine depending on what activity i am doing

and

> I can not sleep with mine on because that is all I think about

when I

> am trying to go to sleep at night. Sometimes. My battery is

implanted

> in my behind and they want to move it because I keep bumping it on

> things and I can see it through my clothing. But anyways I get

> agiated sometimes when it is running it seems that all I can think

> about is it and the buzzing it sends through me, I am still on

> medication I take Kadian,Topamax, Cymbalta and Baclofen. Anfd I am

> pretty much out of it most of the time I have had numerous

adjustment

> over this 2 year period, But I just can't seem to find any happy

> adjustment that does not agiat me when it is on. Is there anyone

else

> with this problem ??????

>

> Thanks Kathy

>

> P.S. I have a Conus Lipoma tumor in my spine that can not be

removed

> that has cause me total saddle block numbness and bowel, bladder

> incontinence the tumor has all the nerves that control that

control

> the lower part of my body growing though it. I have had a number

of

> test and have been told there is nothing that can be done to

remove

> it. I am like a spinal cord injury pateint but I am able to walk a

> little bit and have feeling fron the back of my knees down.

>

[Guest guest]

---

yeah i know what you mean my Guy told me to hold it straight up in

front of me and it never works, Latly it seems to never find it and I

sit there beeoing like crazy I feel like people are looking at me

like I am going to make a bomb go off or something....LOL. I am just

sick of that buzzing feeling do you get that, they have adhusted mine

so many time I have his number on speed dial. Thanks

In Stimulator , " mike2boys " <mike2boys@...> wrote:

>

> Hello Ihave had spinal cord stimulator since 2001 7 yrs now my

> was also put in my butt I get upset when i sit down and alot times

I

> can feel the stimulator move. what bothers me most is having to put

> the scs behind me a turn it up. people look at you funny if gthey

> see you reaching to your butt to change settings. I have 4

> settings one goes down my legs second just my low back. third if

> back on and one leg. or other leg. Last summer we went on vacation

i

> had to stop take a break so i sat down next to this old lady i

took

> out my stimulator to turn unit up she heard the beeps gave me the

> funny look i every seen. anyway thought I share that. Mike group

>

owner

>

> >

> > Hi All,

> >

> > it has been a while since I have posted on here. I just wanted

> to

> > ask if Anyone has ever become agiated by there SCS running all

the

> > time, I have had mine in for a little over 2 years now I have 4

> > different settings on mine depending on what activity i am doing

> and

> > I can not sleep with mine on because that is all I think about

> when I

> > am trying to go to sleep at night. Sometimes. My battery is

> implanted

> > in my behind and they want to move it because I keep bumping it

on

> > things and I can see it through my clothing. But anyways I get

> > agiated sometimes when it is running it seems that all I can

think

> > about is it and the buzzing it sends through me, I am still on

> > medication I take Kadian,Topamax,Cymbalta and Baclofen. Anfd I am

> > pretty much out of it most of the time I have had numerous

> adjustment

> > over this 2 year period, But I just can't seem to find any happy

> > adjustment that does not agiat me when it is on. Is there anyone

> else

> > with this problem ??????

> >

> > Thanks Kathy

> >

> > P.S. I have a Conus Lipoma tumor in my spine that can not be

> removed

> > that has cause me total saddle block numbness and bowel, bladder

> > incontinence the tumor has all the nerves that control that

> control

> > the lower part of my body growing though it. I have had a number

> of

> > test and have been told there is nothing that can be done to

> remove

> > it. I am like a spinal cord injury pateint but I am able to walk

a

> > little bit and have feeling fron the back of my knees down.

> >

>

[Guest guest]

---

Yeah I was told that too, But mine never works that way all it does

is keep searching, so I have to end up putting it by my butt for it

to find it anyways. The question I am trying to find out is does the

buzzing ever get to you, I have had mine adjusted so many times I

have my guy on speed dial. I just get to were with every different

task that I have to make adjustments because it is either to high or

to low and then I can't sleep because of the constant buzzing thats

the only way I can discribe it, so I shut it down at night. Does it

ever get to any of you ?????? Thanks

In Stimulator , Deanna Ramsey <Photobug33777@...>

wrote:

>

> I used to reach around to my butt also to change my settings. I got

many funny looks also. I recently learned that I can change settings

without reaching around. I just hold the control straight up at waist

level and it still connects. My programmer showed this to me cause I

was twisting my body to reach around. He said the control actually

prefers to be straight up rather than pointed directly at the

battery. I didnt believe it till I tried it.

> Deanna

>

>

>

> Re: Has anyone ever just got agiated by by

it ?

>

>

> Hello Ihave had spinal cord stimulator since 2001 7 yrs now my

> was also put in my butt I get upset when i sit down and alot times

I

> can feel the stimulator move. what bothers me most is having to put

> the scs behind me a turn it up. people look at you funny if gthey

> see you reaching to your butt to change settings. I have 4

> settings one goes down my legs second just my low back. third if

> back on and one leg. or other leg. Last summer we went on vacation

i

> had to stop take a break so i sat down next to this old lady i took

> out my stimulator to turn unit up she heard the beeps gave me the

> funny look i every seen. anyway thought I share that. Mike group

> owner

>

> >

> > Hi All,

> >

> > it has been a while since I have posted on here. I just wanted

> to

> > ask if Anyone has ever become agiated by there SCS running all

the

> > time, I have had mine in for a little over 2 years now I have 4

> > different settings on mine depending on what activity i am doing

> and

> > I can not sleep with mine on because that is all I think about

> when I

> > am trying to go to sleep at night. Sometimes. My battery is

> implanted

> > in my behind and they want to move it because I keep bumping it

on

> > things and I can see it through my clothing. But anyways I get

> > agiated sometimes when it is running it seems that all I can

think

> > about is it and the buzzing it sends through me, I am still on

> > medication I take Kadian,Topamax, Cymbalta and Baclofen. Anfd I

am

> > pretty much out of it most of the time I have had numerous

> adjustment

> > over this 2 year period, But I just can't seem to find any happy

> > adjustment that does not agiat me when it is on. Is there anyone

> else

> > with this problem ??????

> >

> > Thanks Kathy

> >

> > P.S. I have a Conus Lipoma tumor in my spine that can not be

> removed

> > that has cause me total saddle block numbness and bowel, bladder

> > incontinence the tumor has all the nerves that control that

> control

> > the lower part of my body growing though it. I have had a number

> of

> > test and have been told there is nothing that can be done to

> remove

> > it. I am like a spinal cord injury pateint but I am able to walk

a

> > little bit and have feeling fron the back of my knees down.

> >

>

>

>

>

[Guest guest]

I can feel the buzzing but I am used to it so it doesnt bother me anymore.

Sent from my iPhone

On May 30, 2008, at 9:18 AM, " teewskathy " <teews2@...> wrote:

---

yeah i know what you mean my Guy told me to hold it straight up in

front of me and it never works, Latly it seems to never find it and I

sit there beeoing like crazy I feel like people are looking at me

like I am going to make a bomb go off or something....LOL. I am just

sick of that buzzing feeling do you get that, they have adhusted mine

so many time I have his number on speed dial. Thanks

In Stimulator , " mike2boys " <mike2boys@...> wrote:

>

> Hello Ihave had spinal cord stimulator since 2001 7 yrs now my

> was also put in my butt I get upset when i sit down and alot times

I

> can feel the stimulator move. what bothers me most is having to put

> the scs behind me a turn it up. people look at you funny if gthey

> see you reaching to your butt to change settings. I have 4

> settings one goes down my legs second just my low back. third if

> back on and one leg. or other leg. Last summer we went on vacation

i

> had to stop take a break so i sat down next to this old lady i

took

> out my stimulator to turn unit up she heard the beeps gave me the

> funny look i every seen. anyway thought I share that. Mike group

>

owner

>

> >

> > Hi All,

> >

> > it has been a while since I have posted on here. I just wanted

> to

> > ask if Anyone has ever become agiated by there SCS running all

the

> > time, I have had mine in for a little over 2 years now I have 4

> > different settings on mine depending on what activity i am doing

> and

> > I can not sleep with mine on because that is all I think about

> when I

> > am trying to go to sleep at night. Sometimes. My battery is

> implanted

> > in my behind and they want to move it because I keep bumping it

on

> > things and I can see it through my clothing. But anyways I get

> > agiated sometimes when it is running it seems that all I can

think

> > about is it and the buzzing it sends through me, I am still on

> > medication I take Kadian,Topamax,Cymbalta and Baclofen. Anfd I am

> > pretty much out of it most of the time I have had numerous

> adjustment

> > over this 2 year period, But I just can't seem to find any happy

> > adjustment that does not agiat me when it is on. Is there anyone

> else

> > with this problem ??????

> >

> > Thanks Kathy

> >

> > P.S. I have a Conus Lipoma tumor in my spine that can not be

> removed

> > that has cause me total saddle block numbness and bowel, bladder

> > incontinence the tumor has all the nerves that control that

> control

> > the lower part of my body growing though it. I have had a number

> of

> > test and have been told there is nothing that can be done to

> remove

> > it. I am like a spinal cord injury pateint but I am able to walk

a

> > little bit and have feeling fron the back of my knees down.

> >

>

[Guest guest]

-Hi Deanna,

I feel my stemulator,, but at night I turn it down so I can sleep,,

I lost my remote awhile back,, and of course it was up pretty high

(in walking mode lol ),, had a couple nights of rough sleeping.. I

dont like mine turned up so high that I feel alot of stemulation.my

battry is on my right side,, I know how ya feel about people looking

at ya.. I go thru that alll the time,,,, I have only had my stem for

3 months,, just seen my pain Dr today for the first time since

surgery..He was really surprized that i still have pain,, Oh well,,,

Plus I found out that I can no longer get blocks or epadurals,,, I

was really hoping that I caould still get them,,, oh well,, thats

the story of my life...hope everyone has a comfortable night.....

-- In Stimulator , Deanna Ramsey <Photobug33777@...>

wrote:

>

> I can feel the buzzing but I am used to it so it doesnt bother me

anymore.

>

> Sent from my iPhone

>

> On May 30, 2008, at 9:18 AM, " teewskathy " <teews2@...> wrote:

>

> ---

> yeah i know what you mean my Guy told me to hold it straight up in

> front of me and it never works, Latly it seems to never find it

and I

> sit there beeoing like crazy I feel like people are looking at me

> like I am going to make a bomb go off or something....LOL. I am

just

> sick of that buzzing feeling do you get that, they have adhusted

mine

> so many time I have his number on speed dial. Thanks

>

> In Stimulator , " mike2boys " <mike2boys@> wrote:

> >

> > Hello Ihave had spinal cord stimulator since 2001 7 yrs now my

> > was also put in my butt I get upset when i sit down and alot

times

> I

> > can feel the stimulator move. what bothers me most is having to

put

> > the scs behind me a turn it up. people look at you funny if

gthey

> > see you reaching to your butt to change settings. I have 4

> > settings one goes down my legs second just my low back. third if

> > back on and one leg. or other leg. Last summer we went on

vacation

> i

> > had to stop take a break so i sat down next to this old lady i

> took

> > out my stimulator to turn unit up she heard the beeps gave me

the

> > funny look i every seen. anyway thought I share that. Mike group

> >

> owner

> >

> > >

> > >

[Guest guest]

I also cant sleep with stimulator on. never could unless settings

where way down. mike

> > > >

> > > >

>

[Guest guest]

> > >

> > > Hi All,

> > >

> > > it has been a while since I have posted on here. I just wanted

> > to

> > > ask if Anyone has ever become agiated by there SCS running all

> the

> > > time, I have had mine in for a little over 2 years now I have 4

> > > different settings on mine depending on what activity i am

doing

> > and

> > > I can not sleep with mine on because that is all I think about

> > when I

> > > am trying to go to sleep at night. Sometimes. My battery is

> > implanted

> > > in my behind and they want to move it because I keep bumping it

> on

> > > things and I can see it through my clothing. But anyways I get

> > > agiated sometimes when it is running it seems that all I can

> think

> > > about is it and the buzzing it sends through me, I am still on

> > > medication I take Kadian,Topamax, Cymbalta and Baclofen. Anfd I

> am

> > > pretty much out of it most of the time I have had numerous

> > adjustment

> > > over this 2 year period, But I just can't seem to find any

happy

> > > adjustment that does not agiat me when it is on. Is there

anyone

> > else

> > > with this problem ??????

> > >

> > > Thanks Kathy

> > >

> > > P.S. I have a Conus Lipoma tumor in my spine that can not be

> > removed

> > > that has cause me total saddle block numbness and bowel,

bladder

> > > incontinence the tumor has all the nerves that control that

> > control

> > > the lower part of my body growing though it. I have had a

number

> > of

> > > test and have been told there is nothing that can be done to

> > remove

> > > it. I am like a spinal cord injury pateint but I am able to

walk

> a

> > > little bit and have feeling fron the back of my knees down.

> > >

> >

> >

> >

> >

[Guest guest]

I know how you all feel. My last SCS was put right below the

waistline on the right buttock. I have found that if you can sleep on

your back with the SCS on a low notch that it works much better. It

has to do with the impact of the lead wires being laid upon. I never

could sleep on my back until I got RSD in 2000. I have had 4 implants

so far.

a

> > > > >

> > > > >

> >

>