Thankyou!

[Guest guest]

Hi

Thank you for the welcome. I am 40 and was diagnosed when I was 20 although had

been suffering for a couple of years. First GP was rubbish but I sought a second

opinion who listened carefully and realised my symptoms were after I ate so

referred me immidiately and I got diagnosed then pretty quickly.

the last 10 years I have had a great consultant who works with me rather than

simply telling me how to be. I am lucky to have a lot of support from him. the

doctors you meet along the way really influence how well you manage this.

I live in Oxfordshire (UK)and work for myself as a gardener which is something I

have always done as a hobby but found it so relaxing in the last few years I

have made it my job. This helps because I can work at my own pace and feel none

of the pressures of having to 'perform' on days when my energy is low. Not

everyone manages to be self employed but I love it.

What an amazing feeling it is to have found others.

Kay xx

> >

> > Hi everyone. I have just discovered this group and felt a wave of emotion. I

have suffered with acholasia for many years and have real ups and downs with it.

there are times when I cope very well and other times when the struggle feels so

totally exhausting and overwhelming. To be able to read other people's stories

and to be part of somewhere where we can encourage each other is so great as I

have never met anyone else with it and most people struggle to really understand

how it must be.

> >

> > Like so many of you I find the spasm pain overwhelming but fortunately have

found that Nifedipine eases it within 20 minutes. I am sure it dosn't work for

everyone but for those of you yet to try it do give it a go. It dosn't have any

effect on the motility for me but I am grateful to have something that takes

away the pain. I still feel fragile for a few hours but at least I can function

and work. It comes in capsule form which you can bite, swallow the ligued and

not have to try to swallow the whole capsule. Tastes horrid but hey who cares

when the alternative is acute pain!

> >

> > After many years of balloon dilatations I found the courage to have a Heller

Myotomy which so far has worked although my gullet generally has such poor

motility and the upper end is also in spasm fairly regularly so the relief tends

to be limited.

> > I find knowing how my gullet works and what it is doing and what causes the

sypmtoms to be so helpful. I know this condition is never going away but every

day is a new day.

> >

> > thanks to all of you for your posts. I no-longer feel alone with this. My

very best wishes, Kay

> >

>

[Guest guest]

thank you so much, Ann.

Kay

xxx

>

>

> From: Kay Davies <kayf.davies@...>

> Subject: Thankyou!

> achalasia

> Date: Tuesday, 8 February, 2011, 14:53

>

>

>  

>

>

>

> Hi everyone. I have just discovered this group and felt a wave of emotion. I

have suffered with acholasia for many years and have real ups and downs with it.

there are times when I cope very well and other times when the struggle feels so

totally exhausting and overwhelming. To be able to read other people's stories

and to be part of somewhere where we can encourage each other is so great as I

have never met anyone else with it and most people struggle to really understand

how it must be.

>

> Like so many of you I find the spasm pain overwhelming but fortunately have

found that Nifedipine eases it within 20 minutes. I am sure it dosn't work for

everyone but for those of you yet to try it do give it a go. It dosn't have any

effect on the motility for me but I am grateful to have something that takes

away the pain. I still feel fragile for a few hours but at least I can function

and work. It comes in capsule form which you can bite, swallow the ligued and

not have to try to swallow the whole capsule. Tastes horrid but hey who cares

when the alternative is acute pain!

>

> After many years of balloon dilatations I found the courage to have a Heller

Myotomy which so far has worked although my gullet generally has such poor

motility and the upper end is also in spasm fairly regularly so the relief tends

to be limited.

> I find knowing how my gullet works and what it is doing and what causes the

sypmtoms to be so helpful. I know this condition is never going away but every

day is a new day.

>

> thanks to all of you for your posts. I no-longer feel alone with this. My very

best wishes, Kay

>

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