RE: Services

[Guest guest]

In a message dated 7/11/00 12:26:00 PM Pacific Daylight Time,

egroups writes:

<<

>>

Marisa:

So sorry you didn't get your services yet.......does this mean you WILL get

them but just not this month? And will you be eligible for diaper service AT

ALL?? That is ludicrous that they would mention not giving any drinks after

7:00 p.m....who the hell do they think they are?

That's like when people notice is not potty trained and ask " why? " , like

I'm not being a good parent because he's not trained

yet........errrrrrrr........

[Guest guest]

,

I think I'm going to get the respite but this regional center is not as

good as the previous one. They really have no excuse for not giving us the

services except the delay saves them money.

The thing with withholding fluids is so ridiculous. Brook has no control

over his bladder so it's not like he's dry in the day time and we just want

to help him stay dry at night. Plus he's still not a good eater all the time

and we rely on his milk intake for nutrition.

Marisa

[Guest guest]

In a message dated 7/19/00 9:37:53 PM Pacific Daylight Time,

egroups writes:

<< since Ben requires constant supervision, we have applied

for a waiver funded program that Ohio has (Ohio Home Care Waiver). If we

are approved we will be able to afford better trained people to work with

Ben. >>

Beth:

I had two points of yours in your post that I wanted to comment on, but my

limited computer skills only showed up one point, as stated above!

I, too, have applied for and will shortly be receiving funds, but a word of

slight caution....these respite workers get paid quite a bit....like

$8.00/hr.!! As you have read from my other post, can no longer go to

regular daycare...would you believe I was paying only $55.0/week (part time

only) for him ??!! And, it's only $90.00/week all day....this place stays

open till 10:00 p.m. weeknights and till midnight on Friday and Saturday!

This is why I am so devastated that he can no longer go there! I called my

providers with the state and asked them how much I would have to pay them out

of my asistance money and they said $8.00/hr! Well, do the math! That's

almost $40.00 just in ONE DAY!

It's nice to have the services, but they are not always available or

affordable, even with financial assistance!!! OOOOPS, forgot the other

point,,,,,will have to go back and highlight it on another email back to the

list......heheh.....

[Guest guest]

In a message dated 7/19/00 9:37:53 PM Pacific Daylight Time,

egroups writes:

<< Also, some places have respite services where your child

can stay out of the home for a weekend or a week. Some parents use these

services so that they can go on vacation with the rest of the family. >>

Ahhhhh...found it! Anyway, be careful of these so called group homes! A lot

of them are filled with young adults and there is always the danger of the

child being molested/abused...they have offered this to me, but is so

young (7) and developmentally like a toddler so there is no way I can leave

him there without children his own age....at least, that's my

situation... is the youngest child in the program I'm in.....mostly older

teens and young adults......

Beth, don't get me wrong.....your advice was wonderful and I agree with

you on a lot of issues.....I was trying to just tell you all my side and how

it's working for me, that's all......

Regards,

[Guest guest]

WHEN WE LIVED IN A BIGGER COMMUNITY FOR A FEW YEARS, THEY HAD SEVERAL

DIFFERENT COMPANIES AND RESPITE PROGRAMS LIKE YOU ARE TALKING ABOUT FOR A

WEEKEND OR FOR A WEEK, AND NATHAN HAS 576RESPITE HOURS TO USE A YEAR SO WE

CHOSE A COMPANY THAT DOES JUST KIDS ON EVERY OTHER WEEKEND, VERY NICE, AND

THEY DID THE TEENS AND ADULTS ON ALTERNATE WEEKENDS,BUT SINCE WE MOVED HOME

THIS SERVICE IS TOO FAR AWAY, AND IS MISSED, BUT NICE WHILE IT LASTED.

SHAWNA.

>From: Ltb3105@...

>Reply-egroups

>egroups

>Subject: Re: Services

>Date: Thu, 20 Jul 2000 16:47:44 EDT

>

>In a message dated 7/19/00 9:37:53 PM Pacific Daylight Time,

>egroups writes:

>

><< Also, some places have respite services where your child

> can stay out of the home for a weekend or a week. Some parents use these

> services so that they can go on vacation with the rest of the family. >>

>Ahhhhh...found it! Anyway, be careful of these so called group homes! A

>lot

>of them are filled with young adults and there is always the danger of the

>child being molested/abused...they have offered this to me, but is so

>young (7) and developmentally like a toddler so there is no way I can leave

>him there without children his own age....at least, that's my

>situation... is the youngest child in the program I'm in.....mostly

>older

>teens and young adults......

>

> Beth, don't get me wrong.....your advice was wonderful and I agree

>with

>you on a lot of issues.....I was trying to just tell you all my side and

>how

>it's working for me, that's all......

>

>Regards,

>

>

>------------------------------------------------------------------------

>Remember four years of good friends, bad clothes, explosive chemistry

>experiments.

>1/7077/13/_/691668/_/964126074/

>------------------------------------------------------------------------

>

>

[Guest guest]

In a message dated 04/06/2001 7:18:44 AM US Mountain Standard Time,

.Camarata@... writes:

<< Is there anything I can do to force them to

use outside agencies to get his therapy made up >>

Call your local advocacy group. Here I would contact the Center for the

Disability Law. There is MAJOR lawsuit going on in the state with so many

names being added to it to sue for services that a child DID NOT GET that

they were supposed to. For example, one friend was told that until they

had an aide her son couldn't attend preschool. (This was a sp ed preschool

in our district.) He missed 6 months. She is on the list for that. Another

friend has a son with ADD and the school refused to follow his 504 plan and

this whole year has been a wash for HIM. She is on the list.

Check it out.

[Guest guest]

My son 6 yr old with DS was supposed to get 1 hour a week of PT and 1

1/2 hour a week of OT. He has received almost no services from these folks

this year and when I called the County Sp Ed said that they are having

trouble filling the positions. Is there anything I can do to force them to

use outside agencies to get his therapy made up? in Kentucky

[Guest guest]

You might also check your state regs and try filing a compliance

complaint--in our state, if a district fails to provide what's on the IEP

and is caught at it, they can be made to provide compensation in the form of

services, including ESY. Often, if a district has the failure to provide

services clearly pointed out to them by the parents, they offer up the

compensation w/o other pressure, but are more likely to if it resolves the

complaint.

If districts don't have the personnel to provide services, they HAVE to

contract for them because they HAVE to provide the services they committed

to on the IEP.

Judi

Re: Services

In a message dated 04/06/2001 7:18:44 AM US Mountain Standard Time,

.Camarata@... writes:

<< Is there anything I can do to force them to

use outside agencies to get his therapy made up >>

Call your local advocacy group. Here I would contact the Center for the

Disability Law. There is MAJOR lawsuit going on in the state with so many

names being added to it to sue for services that a child DID NOT GET that

they were supposed to. For example, one friend was told that until they

had an aide her son couldn't attend preschool. (This was a sp ed preschool

in our district.) He missed 6 months. She is on the list for that.

Another

friend has a son with ADD and the school refused to follow his 504 plan and

this whole year has been a wash for HIM. She is on the list.

Check it out.

Please edit posts when replying!