A Little Concerned......Len

[Guest guest]

Hi

I think most of you know Sara was Dx with epilepsy 1.5 years ago. She has

been on Carbatrol since first diagnosed.

Well, once and awhile she will get real dizzy when she wakes up. In fact the

past two days she's been so dizzy she missed summer school yesterday. She

snapped out of it yesterday by 8am but I kept her home anyway.

This morning it happened again and I gave her some juice and let her lay down

awhile. I thought I was going to have to cancel her bus but she came around

with enough time to throw her clothes on and eat quickly to catch the bus.

I took her to the DR last year for this (saw one in her group of drs....not

her Reg Ped.) and he blew this off, he even made the comment " are you sure

Sara knows what the word dizzy means? " I answered yes when she tells me she's

dizzy, she is white as a ghost, no color in her lips and holding on to the

nearest BIG object (like a dresser) YES she knows what DIZZY means anyway

they checked her blood, looked for stuff and chalked it off as a virus. Well,

I really don't buy this, she cant have a virus and be fine an hour

later....it only hits in the morning and she doesn't even have to get out of

bed for her to know she's soooooo dizzy. If it passed quickly maybe I

wouldn't be so alarmed but shoot its affecting her quality of life and MINE

Heehee (if she misses the bus I have to take her lol)

OK if you are still with me there is more Sara seizures seemed to be

triggered by bouts of strep throat......after her second seizure we had

tonsils and adenoids out to cut back on this trigger factor and she's been

strep free ever since BUT after the surgery the DR told me Sara has a very

small airway, that this is something we need to " deal " with in the future

(deal with??? what the heck did he mean by this, again I was blown away and

didn't ask). He also added she has LOTS of scar tissue from intubations. Well

I forgot all about this and didn't mention it to Sara's Neuro.....Im awful

with medical stuff......I get so overwhelmed about the worst scenarios

OK a question??? Mom (a nurse) and I were talking about Sara's seizures and

she wants me to talk to a DR about possibly her small airway might be the

TRIGGER for her seizures but I have no idea who to bring this up to...Sara's

ENT? Neuro who understands poorly, my questions? or her Ped who usually just

refers me to the specialists? In Aug. the DR is taking Sara off her Medicine

which is making me a bit nervous now (especially since she's been so dizzy

lately) I really would like to be more aggressive with her trigger factors to

ward off any future seizures.

Have any of your kids had dizzy spells? How long did they last?

Thank you all for listening, it just breaks my heart to see Sara this way,

laying on the bed white as a ghost bahhhhh I just cried before I typed this.

Kathy mom to Sara 9..........Oh the " Ozone Levels " are awful here right now,

could this be a factor in the dizzy spells?