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I am sure there is much more we could all add.  That was a great letter. 

Brought a tear to my eye just reading it as it is so true.  Thank you everyone

who is fighting for all of us.  I am so new to this fight even tho my son is 28

with Down Syndrome.  I sent a letter to the Governor and plan on sending more

letters today.  I do not know how you all have the time. 

I have a hard time just reading my email, taking care of my son, and the daily

chores.  God bless you all who keep up on all of this and send the emails to

inform us and answer all of my questions.  Without you I would not be where I am

today.  I still have lots to learn but I have a great start.  Thank you. 

Shirley

From: ellenbronfeld <egskb@...>

Subject: Great letter...

IPADDUnite

Date: Wednesday, June 17, 2009, 3:55 AM

Hi all:

This is a REALLY great letter, though it is long...

Sherry Laten wrote it and will be submitting it to the various newspapers.. .

Ellen

THE STATE BUDGET CUTS GAPING HOLES IN OUR LIVES

What will happen to your child's early childhood program; your aging mother's

services that help her live in her own home; your close friend's brother with

autism who lives near him in a group home; your neighbor with Down Syndrome who

bags your groceries at the local market; your cousin just back from Iraq who has

a traumatic brain injury; the young family at church who needs expensive

medicine for their chronically ill child? How will your spouse get to work

without affordable public transportation? Will we be safe with half the state

troopers and inmates being released early? What will happen to you, if the

Illinois budget is slashed by 50%?

As it stands now, every state agency will be affected by the deep budget cuts in

Illinois. State agency budgets will be cut by 20%-50% and each agency director

is responsible for determining the fate of the people they serve.

This budget affects all citizens in Illinois. Some of us, however, depend on

others a lot more, to make sure that our basic needs are met for shelter, food,

clothing, education/work training, medical, educational, and psychological

treatment, and hope. We are family, neighbors, friends, co-workers of all the

people who will be most severely affected by the budget cuts.

Agencies funded by the Dept of Human Services serve the most vulnerable among

us. I know how devastating the budget cuts will be for these people, because,

for the past 36 years I have worked with people with developmental disabilities

and their families, one of the major groups slated for enormous cuts in DHS

funding.

Community agency administrators responsible for carrying out the DHS budget cuts

are competent and committed people who have spent their lives trying to develop

meaningful, effective, innovative, and personalized supports for people with

developmental disabilities and their families on shoe-string budgets without the

benefits of " bail-outs " and billion dollar bonuses. Community agency staffs have

some of the hardest jobs in the state, taking care of the basic needs of people:

feeding, dressing, toileting others with dignity; providing stimulating and safe

environments and opportunities to interact in the community. But how can these

agencies provide services to people with only 50% of the budget?

Who will help the 85 year old grandmother from your aunt's church, who, with a

heart condition, cares for her 40 year old grandson, who cannot talk or walk,

and needs to be fed and lifted on and off the toilet?

Who will help the family you know from the PTA, whose daughter with mental

retardation and intermittent explosive disorder was making progress at a child

care institution, and now will be sent home without treatment? Your friend says

she will have to quit her job to supervise this child 24/7 so that she and her

other children are safe.

What will happen to your son's good buddy from school, who has cerebral palsy

and seizures, when the supports he needs at school and home, are no longer

there?

What will happen to the young woman who bangs her head on the concrete floor

until it bleeds, when she doesn't get the treatment and support that you can

provide, as her doctor?

Who will help the eight adults with disabilities living down the street who

shoveled your walk last winter, when the staff necessary to maintain a safe,

healthy and positive environment, are laid off?

Who will provide in-home training and respite care for your sister's family, who

has done the impossible to keep their son with autism and severe communication

and behavioral needs at home? They sought services to prevent institutionalizing

their son, which would cost the state 7-8 times as much as home care, and having

to do so now, will devastate the entire family.

What will the parents do, whose adorable 2 year old was just diagnosed with

autism? Where will they go for help? What will they do with their dreams?

Who will help the grandfather whose wife recently died, care for his step-

daughter, who has intellectual challenges, and her two children with learning

and developmental needs? He's the nice friendly man you always talk to at the

corner store.

What will happen to your mail at work, when the woman who puts it in your office

mailbox and shreds the remains, no longer has a job coach to assist her?

Who will help the adults with developmental disabilities living at Howe

Developmental Center when staff is laid off? The federal government has already

eliminated Medicaid matching funds to Howe because of the poor living conditions

there.

What will happen when nurses and program directors are laid-off from community

agencies? Who is going to make sure the clients in the group homes and work

programs, including your niece, are safe from harm and remain healthy? And who

is going to resolve the inevitable crises that will erupt when programs are so

short staffed?

These are our children, siblings, parents, neighbors, relatives, close friends,

people who provide services to us, co-workers, and fellow " church, synagogue,

and mosque-goers " .

What will happen to the young man with autism at the community center pool that

you enjoy chatting with about computers on Monday and Wednesday evenings when

you both go for a swim? During the day, you see him working, handing out towels

and locker keys.

What will happen to the faceless woman from the workshop that put the twist tie

on your raisin bread and gathered the items for the holiday gift bags you gave

your staff?

These people cannot be left without a safety net. They are us. This system has

already been stretched beyond its limits with few funding increases to mark the

years. Many governmental and other monitoring groups have identified Illinois as

having the worst services for people with developmental disabilities in the

country. The WORST in all of the United States.

Where's the safety net? How strong is it? How are you and I going to make sure

that the people we care about lead safe, healthy and quality lives?

Please contact your state legislators, legislative leaders and Governor Quinn to

urge them to pass a state budget that meets the needs of THESE constituents

today and insures their bright futures tomorrow.

Sherry Laten, LCSW, Ph.D., Family Support and Behavioral Consultant, Buffalo

Grove, Illinois

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Guest guest

We will only be successful in our efforts if we are united in our mission.

Thank you for your help!

Ellen

Ellen Garber Bronfeld

egskb@...

Great letter...

IPADDUnite

Date: Wednesday, June 17, 2009, 3:55 AM

Hi all:

This is a REALLY great letter, though it is long...

Sherry Laten wrote it and will be submitting it to the various newspapers.. .

Ellen

THE STATE BUDGET CUTS GAPING HOLES IN OUR LIVES

What will happen to your child's early childhood program; your aging mother's

services that help her live in her own home; your close friend's brother with

autism who lives near him in a group home; your neighbor with Down Syndrome who

bags your groceries at the local market; your cousin just back from Iraq who has

a traumatic brain injury; the young family at church who needs expensive

medicine for their chronically ill child? How will your spouse get to work

without affordable public transportation? Will we be safe with half the state

troopers and inmates being released early? What will happen to you, if the

Illinois budget is slashed by 50%?

As it stands now, every state agency will be affected by the deep budget cuts

in Illinois. State agency budgets will be cut by 20%-50% and each agency

director is responsible for determining the fate of the people they serve.

This budget affects all citizens in Illinois. Some of us, however, depend on

others a lot more, to make sure that our basic needs are met for shelter, food,

clothing, education/work training, medical, educational, and psychological

treatment, and hope. We are family, neighbors, friends, co-workers of all the

people who will be most severely affected by the budget cuts.

Agencies funded by the Dept of Human Services serve the most vulnerable among

us. I know how devastating the budget cuts will be for these people, because,

for the past 36 years I have worked with people with developmental disabilities

and their families, one of the major groups slated for enormous cuts in DHS

funding.

Community agency administrators responsible for carrying out the DHS budget

cuts are competent and committed people who have spent their lives trying to

develop meaningful, effective, innovative, and personalized supports for people

with developmental disabilities and their families on shoe-string budgets

without the benefits of " bail-outs " and billion dollar bonuses. Community agency

staffs have some of the hardest jobs in the state, taking care of the basic

needs of people: feeding, dressing, toileting others with dignity; providing

stimulating and safe environments and opportunities to interact in the

community. But how can these agencies provide services to people with only 50%

of the budget?

Who will help the 85 year old grandmother from your aunt's church, who, with a

heart condition, cares for her 40 year old grandson, who cannot talk or walk,

and needs to be fed and lifted on and off the toilet?

Who will help the family you know from the PTA, whose daughter with mental

retardation and intermittent explosive disorder was making progress at a child

care institution, and now will be sent home without treatment? Your friend says

she will have to quit her job to supervise this child 24/7 so that she and her

other children are safe.

What will happen to your son's good buddy from school, who has cerebral palsy

and seizures, when the supports he needs at school and home, are no longer

there?

What will happen to the young woman who bangs her head on the concrete floor

until it bleeds, when she doesn't get the treatment and support that you can

provide, as her doctor?

Who will help the eight adults with disabilities living down the street who

shoveled your walk last winter, when the staff necessary to maintain a safe,

healthy and positive environment, are laid off?

Who will provide in-home training and respite care for your sister's family,

who has done the impossible to keep their son with autism and severe

communication and behavioral needs at home? They sought services to prevent

institutionalizing their son, which would cost the state 7-8 times as much as

home care, and having to do so now, will devastate the entire family.

What will the parents do, whose adorable 2 year old was just diagnosed with

autism? Where will they go for help? What will they do with their dreams?

Who will help the grandfather whose wife recently died, care for his step-

daughter, who has intellectual challenges, and her two children with learning

and developmental needs? He's the nice friendly man you always talk to at the

corner store.

What will happen to your mail at work, when the woman who puts it in your

office mailbox and shreds the remains, no longer has a job coach to assist her?

Who will help the adults with developmental disabilities living at Howe

Developmental Center when staff is laid off? The federal government has already

eliminated Medicaid matching funds to Howe because of the poor living conditions

there.

What will happen when nurses and program directors are laid-off from community

agencies? Who is going to make sure the clients in the group homes and work

programs, including your niece, are safe from harm and remain healthy? And who

is going to resolve the inevitable crises that will erupt when programs are so

short staffed?

These are our children, siblings, parents, neighbors, relatives, close

friends, people who provide services to us, co-workers, and fellow " church,

synagogue, and mosque-goers " .

What will happen to the young man with autism at the community center pool

that you enjoy chatting with about computers on Monday and Wednesday evenings

when you both go for a swim? During the day, you see him working, handing out

towels and locker keys.

What will happen to the faceless woman from the workshop that put the twist

tie on your raisin bread and gathered the items for the holiday gift bags you

gave your staff?

These people cannot be left without a safety net. They are us. This system has

already been stretched beyond its limits with few funding increases to mark the

years. Many governmental and other monitoring groups have identified Illinois as

having the worst services for people with developmental disabilities in the

country. The WORST in all of the United States.

Where's the safety net? How strong is it? How are you and I going to make sure

that the people we care about lead safe, healthy and quality lives?

Please contact your state legislators, legislative leaders and Governor Quinn

to urge them to pass a state budget that meets the needs of THESE constituents

today and insures their bright futures tomorrow.

Sherry Laten, LCSW, Ph.D., Family Support and Behavioral Consultant, Buffalo

Grove, Illinois

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Guest guest

Thanks! I will use this wonderful statement in all further e-mails to Advocates

Network!!!

Great letter...

IPADDUnite

Date: Wednesday, June 17, 2009, 3:55 AM

Hi all:

This is a REALLY great letter, though it is long...

Sherry Laten wrote it and will be submitting it to the various newspapers.. .

Ellen

THE STATE BUDGET CUTS GAPING HOLES IN OUR LIVES

What will happen to your child's early childhood program; your aging mother's

services that help her live in her own home; your close friend's brother with

autism who lives near him in a group home; your neighbor with Down Syndrome who

bags your groceries at the local market; your cousin just back from Iraq who has

a traumatic brain injury; the young family at church who needs expensive

medicine for their chronically ill child? How will your spouse get to work

without affordable public transportation? Will we be safe with half the state

troopers and inmates being released early? What will happen to you, if the

Illinois budget is slashed by 50%?

As it stands now, every state agency will be affected by the deep budget cuts

in Illinois. State agency budgets will be cut by 20%-50% and each agency

director is responsible for determining the fate of the people they serve.

This budget affects all citizens in Illinois. Some of us, however, depend on

others a lot more, to make sure that our basic needs are met for shelter, food,

clothing, education/work training, medical, educational, and psychological

treatment, and hope. We are family, neighbors, friends, co-workers of all the

people who will be most severely affected by the budget cuts.

Agencies funded by the Dept of Human Services serve the most vulnerable among

us. I know how devastating the budget cuts will be for these people, because,

for the past 36 years I have worked with people with developmental disabilities

and their families, one of the major groups slated for enormous cuts in DHS

funding.

Community agency administrators responsible for carrying out the DHS budget

cuts are competent and committed people who have spent their lives trying to

develop meaningful, effective, innovative, and personalized supports for people

with developmental disabilities and their families on shoe-string budgets

without the benefits of " bail-outs " and billion dollar bonuses. Community agency

staffs have some of the hardest jobs in the state, taking care of the basic

needs of people: feeding, dressing, toileting others with dignity; providing

stimulating and safe environments and opportunities to interact in the

community. But how can these agencies provide services to people with only 50%

of the budget?

Who will help the 85 year old grandmother from your aunt's church, who, with a

heart condition, cares for her 40 year old grandson, who cannot talk or walk,

and needs to be fed and lifted on and off the toilet?

Who will help the family you know from the PTA, whose daughter with mental

retardation and intermittent explosive disorder was making progress at a child

care institution, and now will be sent home without treatment? Your friend says

she will have to quit her job to supervise this child 24/7 so that she and her

other children are safe.

What will happen to your son's good buddy from school, who has cerebral palsy

and seizures, when the supports he needs at school and home, are no longer

there?

What will happen to the young woman who bangs her head on the concrete floor

until it bleeds, when she doesn't get the treatment and support that you can

provide, as her doctor?

Who will help the eight adults with disabilities living down the street who

shoveled your walk last winter, when the staff necessary to maintain a safe,

healthy and positive environment, are laid off?

Who will provide in-home training and respite care for your sister's family,

who has done the impossible to keep their son with autism and severe

communication and behavioral needs at home? They sought services to prevent

institutionalizing their son, which would cost the state 7-8 times as much as

home care, and having to do so now, will devastate the entire family.

What will the parents do, whose adorable 2 year old was just diagnosed with

autism? Where will they go for help? What will they do with their dreams?

Who will help the grandfather whose wife recently died, care for his step-

daughter, who has intellectual challenges, and her two children with learning

and developmental needs? He's the nice friendly man you always talk to at the

corner store.

What will happen to your mail at work, when the woman who puts it in your

office mailbox and shreds the remains, no longer has a job coach to assist her?

Who will help the adults with developmental disabilities living at Howe

Developmental Center when staff is laid off? The federal government has already

eliminated Medicaid matching funds to Howe because of the poor living conditions

there.

What will happen when nurses and program directors are laid-off from community

agencies? Who is going to make sure the clients in the group homes and work

programs, including your niece, are safe from harm and remain healthy? And who

is going to resolve the inevitable crises that will erupt when programs are so

short staffed?

These are our children, siblings, parents, neighbors, relatives, close

friends, people who provide services to us, co-workers, and fellow " church,

synagogue, and mosque-goers " .

What will happen to the young man with autism at the community center pool

that you enjoy chatting with about computers on Monday and Wednesday evenings

when you both go for a swim? During the day, you see him working, handing out

towels and locker keys.

What will happen to the faceless woman from the workshop that put the twist

tie on your raisin bread and gathered the items for the holiday gift bags you

gave your staff?

These people cannot be left without a safety net. They are us. This system has

already been stretched beyond its limits with few funding increases to mark the

years. Many governmental and other monitoring groups have identified Illinois as

having the worst services for people with developmental disabilities in the

country. The WORST in all of the United States.

Where's the safety net? How strong is it? How are you and I going to make sure

that the people we care about lead safe, healthy and quality lives?

Please contact your state legislators, legislative leaders and Governor Quinn

to urge them to pass a state budget that meets the needs of THESE constituents

today and insures their bright futures tomorrow.

Sherry Laten, LCSW, Ph.D., Family Support and Behavioral Consultant, Buffalo

Grove, Illinois

Link to comment
Share on other sites

Guest guest

Thanks, .

Ellen

Ellen Garber Bronfeld

egskb@...

Great letter...

IPADDUnite

Date: Wednesday, June 17, 2009, 3:55 AM

Hi all:

This is a REALLY great letter, though it is long...

Sherry Laten wrote it and will be submitting it to the various newspapers.. .

Ellen

THE STATE BUDGET CUTS GAPING HOLES IN OUR LIVES

What will happen to your child's early childhood program; your aging mother's

services that help her live in her own home; your close friend's brother with

autism who lives near him in a group home; your neighbor with Down Syndrome who

bags your groceries at the local market; your cousin just back from Iraq who has

a traumatic brain injury; the young family at church who needs expensive

medicine for their chronically ill child? How will your spouse get to work

without affordable public transportation? Will we be safe with half the state

troopers and inmates being released early? What will happen to you, if the

Illinois budget is slashed by 50%?

As it stands now, every state agency will be affected by the deep budget cuts

in Illinois. State agency budgets will be cut by 20%-50% and each agency

director is responsible for determining the fate of the people they serve.

This budget affects all citizens in Illinois. Some of us, however, depend on

others a lot more, to make sure that our basic needs are met for shelter, food,

clothing, education/work training, medical, educational, and psychological

treatment, and hope. We are family, neighbors, friends, co-workers of all the

people who will be most severely affected by the budget cuts.

Agencies funded by the Dept of Human Services serve the most vulnerable among

us. I know how devastating the budget cuts will be for these people, because,

for the past 36 years I have worked with people with developmental disabilities

and their families, one of the major groups slated for enormous cuts in DHS

funding.

Community agency administrators responsible for carrying out the DHS budget

cuts are competent and committed people who have spent their lives trying to

develop meaningful, effective, innovative, and personalized supports for people

with developmental disabilities and their families on shoe-string budgets

without the benefits of " bail-outs " and billion dollar bonuses. Community agency

staffs have some of the hardest jobs in the state, taking care of the basic

needs of people: feeding, dressing, toileting others with dignity; providing

stimulating and safe environments and opportunities to interact in the

community. But how can these agencies provide services to people with only 50%

of the budget?

Who will help the 85 year old grandmother from your aunt's church, who, with a

heart condition, cares for her 40 year old grandson, who cannot talk or walk,

and needs to be fed and lifted on and off the toilet?

Who will help the family you know from the PTA, whose daughter with mental

retardation and intermittent explosive disorder was making progress at a child

care institution, and now will be sent home without treatment? Your friend says

she will have to quit her job to supervise this child 24/7 so that she and her

other children are safe.

What will happen to your son's good buddy from school, who has cerebral palsy

and seizures, when the supports he needs at school and home, are no longer

there?

What will happen to the young woman who bangs her head on the concrete floor

until it bleeds, when she doesn't get the treatment and support that you can

provide, as her doctor?

Who will help the eight adults with disabilities living down the street who

shoveled your walk last winter, when the staff necessary to maintain a safe,

healthy and positive environment, are laid off?

Who will provide in-home training and respite care for your sister's family,

who has done the impossible to keep their son with autism and severe

communication and behavioral needs at home? They sought services to prevent

institutionalizing their son, which would cost the state 7-8 times as much as

home care, and having to do so now, will devastate the entire family.

What will the parents do, whose adorable 2 year old was just diagnosed with

autism? Where will they go for help? What will they do with their dreams?

Who will help the grandfather whose wife recently died, care for his step-

daughter, who has intellectual challenges, and her two children with learning

and developmental needs? He's the nice friendly man you always talk to at the

corner store.

What will happen to your mail at work, when the woman who puts it in your

office mailbox and shreds the remains, no longer has a job coach to assist her?

Who will help the adults with developmental disabilities living at Howe

Developmental Center when staff is laid off? The federal government has already

eliminated Medicaid matching funds to Howe because of the poor living conditions

there.

What will happen when nurses and program directors are laid-off from community

agencies? Who is going to make sure the clients in the group homes and work

programs, including your niece, are safe from harm and remain healthy? And who

is going to resolve the inevitable crises that will erupt when programs are so

short staffed?

These are our children, siblings, parents, neighbors, relatives, close

friends, people who provide services to us, co-workers, and fellow " church,

synagogue, and mosque-goers " .

What will happen to the young man with autism at the community center pool

that you enjoy chatting with about computers on Monday and Wednesday evenings

when you both go for a swim? During the day, you see him working, handing out

towels and locker keys.

What will happen to the faceless woman from the workshop that put the twist

tie on your raisin bread and gathered the items for the holiday gift bags you

gave your staff?

These people cannot be left without a safety net. They are us. This system has

already been stretched beyond its limits with few funding increases to mark the

years. Many governmental and other monitoring groups have identified Illinois as

having the worst services for people with developmental disabilities in the

country. The WORST in all of the United States.

Where's the safety net? How strong is it? How are you and I going to make sure

that the people we care about lead safe, healthy and quality lives?

Please contact your state legislators, legislative leaders and Governor Quinn

to urge them to pass a state budget that meets the needs of THESE constituents

today and insures their bright futures tomorrow.

Sherry Laten, LCSW, Ph.D., Family Support and Behavioral Consultant, Buffalo

Grove, Illinois

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