Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Hi all: I promise this is the last thing I will post this evening... Ellen The Arc of Illinois July 16, 2008 Leaders in The Arc: The death count at Howe continues to rise. See story from the Chicago Tribune. Last week the Governor cut 2% from community services and continues to fully fund Howe at $57 million in all state funding! Tony auski The Arc of Illinois 708-206-1930 2 more patient deaths probed at Tinley Park center for disabled Watchdog group targets Tinley Park disabled-care facility By Hood Chicago Tribune reporter 11:38 PM CDT, July 15, 2008 Investigators for the non-profit group Equip for Equality said this week that they are looking into the deaths of two more patients at the beleaguered Howe Developmental Center in Tinley Park. Equip for Equality, a federally mandated watchdog for disabled-care facilities, had previously said substandard care and neglect were responsible for 21 patient deaths at Howe since 2005, allegations the group has used to pressure Gov. Rod Blagojevich to close the state- run center. While the Illinois Department of Human Services, which oversees the state's nine disabled-care centers, has begun removing patients from Howe, Blagojevich has yet to address the concerns of advocacy groups or to comment on the ongoing investigations into the facility's practices. One such investigation, by Illinois State Police, looked into claims of patient abuse. Some of what police found was summarized in a report by the state Office of the Inspector General, including that one Howe employee had an outstanding warrant for his arrest stemming from drug possession and other criminal charges. The report also cited an incident in which two staff members were charged after allegedly engaging in a knife fight on the Howe campus. Police looked into a third case in which a patient who required constant supervision broke his arm without staff being present. An investigation by the inspector general's office found that one disabled patient ran away from the facility despite being assigned one-on-one care with a staff member, who complained of " fatigue. " A second case found that a patient was treated for nicotine poisoning after being observed with a mouthful of cigarette butts. Tom Green, spokesman for ! the Depa rtment of Human Services, said the employee who allowed a patient to run away got a 15-day unpaid suspension, and the state reviewed the other case to determine if the patient needed additional supervision. The employees involved in the knife fight are no longer working for Howe, Green said. More troubling, Equip for Equality officials said, is a pattern of misconduct that has resulted in death. In April, a male patient in his 50s died after a series of medical mistakes, said Deborah Kennedy, director of abuse investigations at Equip for Equality. Staff failed to monitor the patient's vital signs after they had given him medication and did not follow up after he suffered a head injury, Kennedy said. Howe was also blamed for not having adequate medical equipment on hand to treat his maladies. The organization is investigating another death earlier this month that they suspect was caused by similar lapses in medical care, Kennedy said. " It's just tragic, " said Zena Naiditch, president and chief executive of Equip for Equality. " You know in cases like these that if the person had been living somewhere else and been receiving the proper care that they'd still be alive. " The Department of Justice continues to investigate other allegations of abuse. In March 2007, the federal government rescinded Howe's Medicaid certification, stripping the center of nearly $30 million in funding. But rather than close a 324-patient facility that employs about 750 people, the state chose to offset the federal cuts and now contributes about $60 million a year to keep it open. Naiditch and others have urged the state to pull its funding from Howe and invest in smaller, community-based alternatives. It's a transition that's already under way, Green said. Since 2007, more than 60 patients have been removed from Howe and placed either with guardians or in the community with round-the-clock care. There are plans to move more Howe patients in 2009, he said. jhood@... , Chicago Tribune Please click here to be removed from our list. If you still receive emails from us in the future, please ensure it was not forwarded from another party or sent to an email address that is different than the one asked to be removed. DO NOT REPLY TO THIS EMAIL. Or write us at: The Arc of Illinois 18207-A-Dixie Highway Homewood, IL 60430 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 Interestingly, our local paper--The Southtown Star--has a story this morning on how the Tinley Park police department has kept a lot of these stories out of the news. The thought was, they wanted the patients to have " dignity " and not splash this stuff in the media. They are consulting with the town attorney as to the best thing to do now. Stay tuned. MArie > > Hi all: > I promise this is the last thing I will post this evening... > Ellen > > The Arc of Illinois > > > > July 16, 2008 > > > > Leaders in The Arc: > > > > The death count at Howe continues to rise. See story from the Chicago > Tribune. > > > > Last week the Governor cut 2% from community services and continues > to fully fund Howe at $57 million in all state funding! > > > > Tony auski > > The Arc of Illinois > > 708-206-1930 > > > > 2 more patient deaths probed at Tinley Park center for disabled > > Watchdog group targets Tinley Park disabled-care facility > > By Hood > > Chicago Tribune reporter > > 11:38 PM CDT, July 15, 2008 > > Investigators for the non-profit group Equip for Equality said this > week that they are looking into the deaths of two more patients at > the beleaguered Howe Developmental Center in Tinley Park. > > Equip for Equality, a federally mandated watchdog for disabled- care > facilities, had previously said substandard care and neglect were > responsible for 21 patient deaths at Howe since 2005, allegations the > group has used to pressure Gov. Rod Blagojevich to close the state- > run center. > > While the Illinois Department of Human Services, which oversees the > state's nine disabled-care centers, has begun removing patients from > Howe, Blagojevich has yet to address the concerns of advocacy groups > or to comment on the ongoing investigations into the facility's > practices. > > One such investigation, by Illinois State Police, looked into claims > of patient abuse. Some of what police found was summarized in a > report by the state Office of the Inspector General, including that > one Howe employee had an outstanding warrant for his arrest stemming > from drug possession and other criminal charges. > > The report also cited an incident in which two staff members were > charged after allegedly engaging in a knife fight on the Howe campus. > Police looked into a third case in which a patient who required > constant supervision broke his arm without staff being present. > > An investigation by the inspector general's office found that one > disabled patient ran away from the facility despite being assigned > one-on-one care with a staff member, who complained of " fatigue. " A > second case found that a patient was treated for nicotine poisoning > after being observed with a mouthful of cigarette butts. > > Tom Green, spokesman for ! the Depa rtment of Human Services, said > the employee who allowed a patient to run away got a 15-day unpaid > suspension, and the state reviewed the other case to determine if the > patient needed additional supervision. The employees involved in the > knife fight are no longer working for Howe, Green said. > > More troubling, Equip for Equality officials said, is a pattern of > misconduct that has resulted in death. > > In April, a male patient in his 50s died after a series of medical > mistakes, said Deborah Kennedy, director of abuse investigations at > Equip for Equality. Staff failed to monitor the patient's vital signs > after they had given him medication and did not follow up after he > suffered a head injury, Kennedy said. Howe was also blamed for not > having adequate medical equipment on hand to treat his maladies. > > The organization is investigating another death earlier this month > that they suspect was caused by similar lapses in medical care, > Kennedy said. > > " It's just tragic, " said Zena Naiditch, president and chief executive > of Equip for Equality. " You know in cases like these that if the > person had been living somewhere else and been receiving the proper > care that they'd still be alive. " > > The Department of Justice continues to investigate other allegations > of abuse. In March 2007, the federal government rescinded Howe's > Medicaid certification, stripping the center of nearly $30 million in > funding. > > But rather than close a 324-patient facility that employs about 750 > people, the state chose to offset the federal cuts and now > contributes about $60 million a year to keep it open. Naiditch and > others have urged the state to pull its funding from Howe and invest > in smaller, community-based alternatives. > > It's a transition that's already under way, Green said. Since 2007, > more than 60 patients have been removed from Howe and placed either > with guardians or in the community with round-the-clock care. There > are plans to move more Howe patients in 2009, he said. > > jhood@... > > , Chicago Tribune > > > > > Please click here to be removed from our list. If you still receive > emails from us in the future, please ensure it was not forwarded from > another party or sent to an email address that is different than the > one asked to be removed. DO NOT REPLY TO THIS EMAIL. Or write us at: > The Arc of Illinois > 18207-A-Dixie Highway > Homewood, IL 60430 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 I read this article and was appalled to calculate that this means that Illinois spends approximately $176,000 per person at this institute which lost it's federal government subsidy due to the lack of quality of care. Beside being the mother of an individual with DD, I am appalled as a taxpayer!!!!! Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 If deaths were occurring in community agencies, you can bet it would be splashed all over the news and there would be an outpouring of outrage and calls for closure...the dignity the Tinley Park police are trying to protect is the dignity of the institutional system and the politicians and unions that directly benefit...obvious dead residents are not benefitting from this wonderful system!!! Excuse me...this is a load of crap! Ellen Ellen Garber Bronfeld egskb@... Re: Horror story continues at State Operated Facilities Interestingly, our local paper--The Southtown Star--has a story this morning on how the Tinley Park police department has kept a lot of these stories out of the news. The thought was, they wanted the patients to have " dignity " and not splash this stuff in the media. They are consulting with the town attorney as to the best thing to do now. Stay tuned. MArie > > Hi all: > I promise this is the last thing I will post this evening... > Ellen > > The Arc of Illinois > > > > July 16, 2008 > > > > Leaders in The Arc: > > > > The death count at Howe continues to rise. See story from the Chicago > Tribune. > > > > Last week the Governor cut 2% from community services and continues > to fully fund Howe at $57 million in all state funding! > > > > Tony auski > > The Arc of Illinois > > 708-206-1930 > > > > 2 more patient deaths probed at Tinley Park center for disabled > > Watchdog group targets Tinley Park disabled-care facility > > By Hood > > Chicago Tribune reporter > > 11:38 PM CDT, July 15, 2008 > > Investigators for the non-profit group Equip for Equality said this > week that they are looking into the deaths of two more patients at > the beleaguered Howe Developmental Center in Tinley Park. > > Equip for Equality, a federally mandated watchdog for disabled- care > facilities, had previously said substandard care and neglect were > responsible for 21 patient deaths at Howe since 2005, allegations the > group has used to pressure Gov. Rod Blagojevich to close the state- > run center. > > While the Illinois Department of Human Services, which oversees the > state's nine disabled-care centers, has begun removing patients from > Howe, Blagojevich has yet to address the concerns of advocacy groups > or to comment on the ongoing investigations into the facility's > practices. > > One such investigation, by Illinois State Police, looked into claims > of patient abuse. Some of what police found was summarized in a > report by the state Office of the Inspector General, including that > one Howe employee had an outstanding warrant for his arrest stemming > from drug possession and other criminal charges. > > The report also cited an incident in which two staff members were > charged after allegedly engaging in a knife fight on the Howe campus. > Police looked into a third case in which a patient who required > constant supervision broke his arm without staff being present. > > An investigation by the inspector general's office found that one > disabled patient ran away from the facility despite being assigned > one-on-one care with a staff member, who complained of " fatigue. " A > second case found that a patient was treated for nicotine poisoning > after being observed with a mouthful of cigarette butts. > > Tom Green, spokesman for ! the Depa rtment of Human Services, said > the employee who allowed a patient to run away got a 15-day unpaid > suspension, and the state reviewed the other case to determine if the > patient needed additional supervision. The employees involved in the > knife fight are no longer working for Howe, Green said. > > More troubling, Equip for Equality officials said, is a pattern of > misconduct that has resulted in death. > > In April, a male patient in his 50s died after a series of medical > mistakes, said Deborah Kennedy, director of abuse investigations at > Equip for Equality. Staff failed to monitor the patient's vital signs > after they had given him medication and did not follow up after he > suffered a head injury, Kennedy said. Howe was also blamed for not > having adequate medical equipment on hand to treat his maladies. > > The organization is investigating another death earlier this month > that they suspect was caused by similar lapses in medical care, > Kennedy said. > > " It's just tragic, " said Zena Naiditch, president and chief executive > of Equip for Equality. " You know in cases like these that if the > person had been living somewhere else and been receiving the proper > care that they'd still be alive. " > > The Department of Justice continues to investigate other allegations > of abuse. In March 2007, the federal government rescinded Howe's > Medicaid certification, stripping the center of nearly $30 million in > funding. > > But rather than close a 324-patient facility that employs about 750 > people, the state chose to offset the federal cuts and now > contributes about $60 million a year to keep it open. Naiditch and > others have urged the state to pull its funding from Howe and invest > in smaller, community-based alternatives. > > It's a transition that's already under way, Green said. Since 2007, > more than 60 patients have been removed from Howe and placed either > with guardians or in the community with round-the-clock care. There > are plans to move more Howe patients in 2009, he said. > > jhood@... > > , Chicago Tribune > > > > > Please click here to be removed from our list. If you still receive > emails from us in the future, please ensure it was not forwarded from > another party or sent to an email address that is different than the > one asked to be removed. DO NOT REPLY TO THIS EMAIL. Or write us at: > The Arc of Illinois > 18207-A-Dixie Highway > Homewood, IL 60430 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 Ellen and all IPADD ..I am wonderig when the Tribune is going to bight on this. This is the biggest cover up and could be the tip of the iceberg. If I had a family member in an institution because I felt they were safe I'd crawl there to get him out. This is a coverup and the media and politicians and the rest of us should be screaming. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 I agree...I hope to get around to writing an editorial for the Trib this evening...probably no chance it will get published, but I can at least try... E Ellen Garber Bronfeld egskb@... Re: Re: Horror story continues at State Operated Facilities Ellen and all IPADD ..I am wonderig when the Tribune is going to bight on this. This is the biggest cover up and could be the tip of the iceberg. If I had a family member in an institution because I felt they were safe I'd crawl there to get him out. This is a coverup and the media and politicians and the rest of us should be screaming. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 I tend to think many of these people are long forgotten by their families, much like my uncle was a Lincoln. It is the only reasoning I can put in my mind why this continues. Does anyone know the average age of residents at the developmental Centers. > > Ellen and all IPADD ..I am wonderig when the Tribune is going to bight on > this. This is the biggest cover up and could be the tip of the iceberg. If > I had a family member in an institution because I felt they were safe I'd > crawl there to get him out. This is a coverup and the media and politicians > and the rest of us should be screaming. Cindi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 often when we approach lawmakers to move money out of the institutions and into community based support lawmakers will say they hear from families who have loved ones in institutions and they feel they are sage and the parents want to die knowing their child is safe y . The lawmakers also hear loudly from the unions that make a living off the state ops, as well as the local towns who make their livlihood off the state ops. There is a contingent, but it is clearly a voting contingent. And if union and townsfolk threaten the local politician and his job, he is going to stick with the institution...unless we and our young adults WHO CAN vote, go to the polls and get these people out. Every time I talk to my senator, or his aide , I am told how awful this is and how he does not like the pay raise. However I have not heard a soundbite yet from any senator showing the nerve/guts to stand up and say this in Springfield. Frustrating. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 Interesting question, Rhonda... Ellen Ellen Garber Bronfeld egskb@... Re: Horror story continues at State Operated Facilities I tend to think many of these people are long forgotten by their families, much like my uncle was a Lincoln. It is the only reasoning I can put in my mind why this continues. Does anyone know the average age of residents at the developmental Centers. > > Ellen and all IPADD ..I am wonderig when the Tribune is going to bight on > this. This is the biggest cover up and could be the tip of the iceberg. If > I had a family member in an institution because I felt they were safe I'd > crawl there to get him out. This is a coverup and the media and politicians > and the rest of us should be screaming. Cindi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 , I live one town over from Howe and my husband goes there once a month to take care of the ENT needs of the patients (Chuck feels he has to look out for them because no one else seems to be). I have spoken AT LENGTH to my state rep about Howe and his arguments as just as you describe them-- families come to him with exactly the concerns you state, there is the employee faction (C gets so little from going there--he could make five times as much if he continued office hours that afternoon, so it is not monetary on our end). I don't know what Tinley Park gets out of having Howe there and I worked for their Park district for 8 years and I'm sure I would have heard something. Anyway, you forgot the most important part--since I have a DD son, there must be something " wrong " with me and that's why I'm not listened to. My state rep (can I tell 'em who it is, Ellen and Laurie?)is always in our local paper since he regularly " saves " Howe, with his big mug, smiling, with a bunch of staff members and parents. The man sees me and runs and hubby is on our local symphony board with him , too, so I see him at functions all the time. I think he has much to answer for and am not sure I am able to be even civil at this point. He's up for election and my family won't be voting for him. I just wish I knew who the republican running against him is---I'd be wearing their button at the next function we have to go to--perhaps then he will listen to me. Marie > > often when we approach lawmakers to move money out of the institutions and > into community based support lawmakers will say they hear from families who > have loved ones in institutions and they feel they are sage and the parents > want to die knowing their child is safe y . The lawmakers also hear > loudly from the unions that make a living off the state ops, as well as the > local towns who make their livlihood off the state ops. There is a > contingent, but it is clearly a voting contingent. And if union and > townsfolk threaten the local politician and his job, he is going to stick > with the institution...unless we and our young adults WHO CAN vote, go to > the polls and get these people out. Every time I talk to my senator, or > his aide , I am told how awful this is and how he does not like the pay > raise. However I have not heard a soundbite yet from any senator showing > the nerve/guts to stand up and say this in Springfield. Frustrating. Cindi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 Senator Garrett in the northern suburbs did indeed stand up and make a statement about the inappropriateness of taking a pay raise at this time. She was shot down by Senator Rickey Hendon (I think) and definitely by Senate President Emil . It made the news... Ellen Ellen Garber Bronfeld egskb@... Re: Re: Horror story continues at State Operated Facilities often when we approach lawmakers to move money out of the institutions and into community based support lawmakers will say they hear from families who have loved ones in institutions and they feel they are sage and the parents want to die knowing their child is safe y . The lawmakers also hear loudly from the unions that make a living off the state ops, as well as the local towns who make their livlihood off the state ops. There is a contingent, but it is clearly a voting contingent. And if union and townsfolk threaten the local politician and his job, he is going to stick with the institution...unless we and our young adults WHO CAN vote, go to the polls and get these people out. Every time I talk to my senator, or his aide , I am told how awful this is and how he does not like the pay raise. However I have not heard a soundbite yet from any senator showing the nerve/guts to stand up and say this in Springfield. Frustrating. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 As far as I am concerned, Marie, you can certainly tell the group who your State Representative is... As long as we do not put into print anything inflammatory or slanderous, we should certainly feel free to report the facts as we know them. Ellen Ellen Ellen Garber Bronfeld egskb@... Re: Horror story continues at State Operated Facilities , I live one town over from Howe and my husband goes there once a month to take care of the ENT needs of the patients (Chuck feels he has to look out for them because no one else seems to be). I have spoken AT LENGTH to my state rep about Howe and his arguments as just as you describe them-- families come to him with exactly the concerns you state, there is the employee faction (C gets so little from going there--he could make five times as much if he continued office hours that afternoon, so it is not monetary on our end). I don't know what Tinley Park gets out of having Howe there and I worked for their Park district for 8 years and I'm sure I would have heard something. Anyway, you forgot the most important part--since I have a DD son, there must be something " wrong " with me and that's why I'm not listened to. My state rep (can I tell 'em who it is, Ellen and Laurie?)is always in our local paper since he regularly " saves " Howe, with his big mug, smiling, with a bunch of staff members and parents. The man sees me and runs and hubby is on our local symphony board with him , too, so I see him at functions all the time. I think he has much to answer for and am not sure I am able to be even civil at this point. He's up for election and my family won't be voting for him. I just wish I knew who the republican running against him is---I'd be wearing their button at the next function we have to go to--perhaps then he will listen to me. Marie > > often when we approach lawmakers to move money out of the institutions and > into community based support lawmakers will say they hear from families who > have loved ones in institutions and they feel they are sage and the parents > want to die knowing their child is safe y . The lawmakers also hear > loudly from the unions that make a living off the state ops, as well as the > local towns who make their livlihood off the state ops. There is a > contingent, but it is clearly a voting contingent. And if union and > townsfolk threaten the local politician and his job, he is going to stick > with the institution...unless we and our young adults WHO CAN vote, go to > the polls and get these people out. Every time I talk to my senator, or > his aide , I am told how awful this is and how he does not like the pay > raise. However I have not heard a soundbite yet from any senator showing > the nerve/guts to stand up and say this in Springfield. Frustrating. Cindi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 Okay, his name is Al Riley and he is certainly on record as being " for " Howe. And his picture is in every news story, at least locally, about how he has worked to keep Howe in operation. Marie > > > > often when we approach lawmakers to move money out of the > institutions and > > into community based support lawmakers will say they hear from > families who > > have loved ones in institutions and they feel they are sage and > the parents > > want to die knowing their child is safe y . The lawmakers > also hear > > loudly from the unions that make a living off the state ops, as > well as the > > local towns who make their livlihood off the state ops. There is > a > > contingent, but it is clearly a voting contingent. And if union > and > > townsfolk threaten the local politician and his job, he is going > to stick > > with the institution...unless we and our young adults WHO CAN > vote, go to > > the polls and get these people out. Every time I talk to my > senator, or > > his aide , I am told how awful this is and how he does not like > the pay > > raise. However I have not heard a soundbite yet from any senator > showing > > the nerve/guts to stand up and say this in Springfield. > Frustrating. Cindi > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 At the VERY least we might want to think about voting for people who understand the need to equalize resources between community and institutions and who are willing to make that happen. Ellen Ellen Garber Bronfeld egskb@... Re: Horror story continues at State Operated Facilities Okay, his name is Al Riley and he is certainly on record as being " for " Howe. And his picture is in every news story, at least locally, about how he has worked to keep Howe in operation. Marie > > > > often when we approach lawmakers to move money out of the > institutions and > > into community based support lawmakers will say they hear from > families who > > have loved ones in institutions and they feel they are sage and > the parents > > want to die knowing their child is safe y . The lawmakers > also hear > > loudly from the unions that make a living off the state ops, as > well as the > > local towns who make their livlihood off the state ops. There is > a > > contingent, but it is clearly a voting contingent. And if union > and > > townsfolk threaten the local politician and his job, he is going > to stick > > with the institution...unless we and our young adults WHO CAN > vote, go to > > the polls and get these people out. Every time I talk to my > senator, or > > his aide , I am told how awful this is and how he does not like > the pay > > raise. However I have not heard a soundbite yet from any senator > showing > > the nerve/guts to stand up and say this in Springfield. > Frustrating. Cindi > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Maybe everyone on this list should print out a copy of both the Blueprint for System Redesign in Illinois and the Gap Analysis (both released in January 2008 by the Human Resources Research Institute in partnership with the Illinois Council on Developmental Disabilities) and send them to her/his legislators (I'll do the same). We'd kill a lot of trees, but maybe if they kept receiving copies, they would actually read one (we could send them by email, too). These documents are very specific about the wastefulness and just downright wrongness of State ops and the absolute necessity of expanding community programs and taking the money to do it from state ops. The report is also sites, very specifically, how other states have done this successfully. Marie Grass Amenta <teteme@...> wrote: , I live one town over from Howe and my husband goes there once a month to take care of the ENT needs of the patients (Chuck feels he has to look out for them because no one else seems to be). I have spoken AT LENGTH to my state rep about Howe and his arguments as just as you describe them-- families come to him with exactly the concerns you state, there is the employee faction (C gets so little from going there--he could make five times as much if he continued office hours that afternoon, so it is not monetary on our end). I don't know what Tinley Park gets out of having Howe there and I worked for their Park district for 8 years and I'm sure I would have heard something. Anyway, you forgot the most important part--since I have a DD son, there must be something " wrong " with me and that's why I'm not listened to. My state rep (can I tell 'em who it is, Ellen and Laurie?)is always in our local paper since he regularly " saves " Howe, with his big mug, smiling, with a bunch of staff members and parents. The man sees me and runs and hubby is on our local symphony board with him , too, so I see him at functions all the time. I think he has much to answer for and am not sure I am able to be even civil at this point. He's up for election and my family won't be voting for him. I just wish I knew who the republican running against him is---I'd be wearing their button at the next function we have to go to--perhaps then he will listen to me. Marie > > often when we approach lawmakers to move money out of the institutions and > into community based support lawmakers will say they hear from families who > have loved ones in institutions and they feel they are sage and the parents > want to die knowing their child is safe y . The lawmakers also hear > loudly from the unions that make a living off the state ops, as well as the > local towns who make their livlihood off the state ops. There is a > contingent, but it is clearly a voting contingent. And if union and > townsfolk threaten the local politician and his job, he is going to stick > with the institution...unless we and our young adults WHO CAN vote, go to > the polls and get these people out. Every time I talk to my senator, or > his aide , I am told how awful this is and how he does not like the pay > raise. However I have not heard a soundbite yet from any senator showing > the nerve/guts to stand up and say this in Springfield. Frustrating. Cindi > " The secret to l'Arche is relationship: meeting people...heart to heart " . Vanier Visit us on the 2nd Thursday of each month! andra Conroy Executive Director and Community Leader L'Arche Chicago 1049 S Austin Blvd Chicago IL 60644 Office:708-795-1273 Home: 773-287-8249 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 , I am so frustrated with our state rep, I could scream! I'll see him at a fund raising party next week end--maybe I'll print it up and HAND DELIVER it. Marie > > > > often when we approach lawmakers to move money out of the > institutions and > > into community based support lawmakers will say they hear from > families who > > have loved ones in institutions and they feel they are sage and > the parents > > want to die knowing their child is safe y . The lawmakers > also hear > > loudly from the unions that make a living off the state ops, as > well as the > > local towns who make their livlihood off the state ops. There is > a > > contingent, but it is clearly a voting contingent. And if union > and > > townsfolk threaten the local politician and his job, he is going > to stick > > with the institution...unless we and our young adults WHO CAN > vote, go to > > the polls and get these people out. Every time I talk to my > senator, or > > his aide , I am told how awful this is and how he does not like > the pay > > raise. However I have not heard a soundbite yet from any senator > showing > > the nerve/guts to stand up and say this in Springfield. > Frustrating. Cindi > > > > > > > > > " The secret to l'Arche is relationship: meeting people...heart to heart " . Vanier > > Visit us on the 2nd Thursday of each month! > > andra Conroy > Executive Director and Community Leader > > L'Arche Chicago 1049 S Austin Blvd Chicago IL 60644 > Office:708-795-1273 Home: 773-287-8249 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 You might want to get some of those flourescent post-it arrows or something and have them sticking out from relevant pages just to facilitate his reading... Marie Grass Amenta <teteme@...> wrote: , I am so frustrated with our state rep, I could scream! I'll see him at a fund raising party next week end--maybe I'll print it up and HAND DELIVER it. Marie > > > > often when we approach lawmakers to move money out of the > institutions and > > into community based support lawmakers will say they hear from > families who > > have loved ones in institutions and they feel they are sage and > the parents > > want to die knowing their child is safe y . The lawmakers > also hear > > loudly from the unions that make a living off the state ops, as > well as the > > local towns who make their livlihood off the state ops. There is > a > > contingent, but it is clearly a voting contingent. And if union > and > > townsfolk threaten the local politician and his job, he is going > to stick > > with the institution...unless we and our young adults WHO CAN > vote, go to > > the polls and get these people out. Every time I talk to my > senator, or > > his aide , I am told how awful this is and how he does not like > the pay > > raise. However I have not heard a soundbite yet from any senator > showing > > the nerve/guts to stand up and say this in Springfield. > Frustrating. Cindi > > > > > > > > > " The secret to l'Arche is relationship: meeting people...heart to heart " . Vanier > > Visit us on the 2nd Thursday of each month! > > andra Conroy > Executive Director and Community Leader > > L'Arche Chicago 1049 S Austin Blvd Chicago IL 60644 > Office:708-795-1273 Home: 773-287-8249 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2008 Report Share Posted July 19, 2008 I wish every tax payer was just as appalled, Gloria, as they should be...it is both real cost to taxpayers and cost of life to very vulnerable individuals... Here is a letter to the editor that I wrote and submitted to the Trib just a few minutes ago...doubtful that it will get published. Letter to the Editor Ellen Garber Bronfeld Chicago Tribune July 17, 2008 On July 15th Chicago Tribune reporter Hood wrote about " two more deaths at Tinley Park center for the disabled. " Add that to the other 21 deaths that have occurred due to abuse and neglect at Howe since 2005. Howe is a state run institution that, as the article points out, has 324 patients. These " patients " are Illinois citizens who happen to have disabilities. These patients are living in a facility that the federal government has deemed unsafe. While 20,000 individuals with disabilities await funding for community supports and services in Illinois, our Governor has chosen to offset the loss of nearly $30 million dollars in funding to Howe and keep Howe open at a cost to taxpayers of about $60 million dollars, this year. No one is paying close attention to what is happening in and at the state operated facilities. The tragic deaths at Howe have not made page one news. However, on July 17th, a follow up story about a case of sexual abuse that occurred two years ago at a private facility, Riveredge, made front page news. It is certainly a sad and compelling story, but apparently the deaths of 23 individuals in a decertified institution do not rate the same coverage. Where is the outrage for 23 human beings who have lost their lives, very likely, needlessly? Have we become so callous a society, as to disregard the needs of our most vulnerable citizens? Even worse, have we come to a point where the life of a person with a disability simply has no value? It is apparent that the Governor and the Senators who protect him do not care about a few lives lost, after all, people with disabilities do not tend to vote. But those reading this can vote. Illinois is the 10th wealthiest state yet we are " dead " last when it comes to serving those with disabilities according to a recent well respected study. I challenge the voters in the state of Illinois to pay close attention to how our leaders treat its most vulnerable citizens and then decide if this is the moral compass by which Illinois should be set. I would suggest that in order to restore the dignity of the individuals who have lost their lives due to poor judgment and decision making at the top, we honor them and restore our own dignity as well by making wise decisions at the poll this November and in two years when we elect our next Governor. In addition, the tax payers may want to ask a few more questions of the state's leaders about how they are spending our money in regard to state institutions rather than supporting individuals with disabilities in their own communities for fewer dollars and a better quality of life. Thank you. Ellen Garber Bronfeld egskb@... Re:Horror story continues at State Operated Facilities I read this article and was appalled to calculate that this means that Illinois spends approximately $176,000 per person at this institute which lost it's federal government subsidy due to the lack of quality of care. Beside being the mother of an individual with DD, I am appalled as a taxpayer!!!!! Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 This is a great letter Ellen. I was just thinking that if each on of us cut and pasted the letter, signed our name after your, and mailed it to the Editor may it would get read and published. Let me know what you think and include the address you sent it to. Thanks Maureen Hartnett Ellen Bronfeld <egskb@...> wrote: I wish every tax payer was just as appalled, Gloria, as they should be...it is both real cost to taxpayers and cost of life to very vulnerable individuals... Here is a letter to the editor that I wrote and submitted to the Trib just a few minutes ago...doubtful that it will get published. Letter to the Editor Ellen Garber Bronfeld Chicago Tribune July 17, 2008 On July 15th Chicago Tribune reporter Hood wrote about " two more deaths at Tinley Park center for the disabled. " Add that to the other 21 deaths that have occurred due to abuse and neglect at Howe since 2005. Howe is a state run institution that, as the article points out, has 324 patients. These " patients " are Illinois citizens who happen to have disabilities. These patients are living in a facility that the federal government has deemed unsafe. While 20,000 individuals with disabilities await funding for community supports and services in Illinois, our Governor has chosen to offset the loss of nearly $30 million dollars in funding to Howe and keep Howe open at a cost to taxpayers of about $60 million dollars, this year. No one is paying close attention to what is happening in and at the state operated facilities. The tragic deaths at Howe have not made page one news. However, on July 17th, a follow up story about a case of sexual abuse that occurred two years ago at a private facility, Riveredge, made front page news. It is certainly a sad and compelling story, but apparently the deaths of 23 individuals in a decertified institution do not rate the same coverage. Where is the outrage for 23 human beings who have lost their lives, very likely, needlessly? Have we become so callous a society, as to disregard the needs of our most vulnerable citizens? Even worse, have we come to a point where the life of a person with a disability simply has no value? It is apparent that the Governor and the Senators who protect him do not care about a few lives lost, after all, people with disabilities do not tend to vote. But those reading this can vote. Illinois is the 10th wealthiest state yet we are " dead " last when it comes to serving those with disabilities according to a recent well respected study. I challenge the voters in the state of Illinois to pay close attention to how our leaders treat its most vulnerable citizens and then decide if this is the moral compass by which Illinois should be set. I would suggest that in order to restore the dignity of the individuals who have lost their lives due to poor judgment and decision making at the top, we honor them and restore our own dignity as well by making wise decisions at the poll this November and in two years when we elect our next Governor. In addition, the tax payers may want to ask a few more questions of the state's leaders about how they are spending our money in regard to state institutions rather than supporting individuals with disabilities in their own communities for fewer dollars and a better quality of life. Thank you. Ellen Garber Bronfeld egskb@... Re:Horror story continues at State Operated Facilities I read this article and was appalled to calculate that this means that Illinois spends approximately $176,000 per person at this institute which lost it's federal government subsidy due to the lack of quality of care. Beside being the mother of an individual with DD, I am appalled as a taxpayer!!!!! Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 I think if many of us wrote letters to the trib sighting our outrage at the cost of state ops etc, the trib might see it as a movement. cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 From: Ellen Bronfeld <egskb@...> Subject: Re: Re:Horror story continues at State Operated Facilities IPADDUnite Date: Sunday, July 20, 2008, 12:36 AM I wish every tax payer was just as appalled, Gloria, as they should be...it is both real cost to taxpayers and cost of life to very vulnerable individuals. .. Here is a letter to the editor that I wrote and submitted to the Trib just a few minutes ago...doubtful that it will get published. Letter to the Editor Ellen Garber Bronfeld Chicago Tribune July 17, 2008 On July 15th Chicago Tribune reporter Hood wrote about " two more deaths at Tinley Park center for the disabled. " Add that to the other 21 deaths that have occurred due to abuse and neglect at Howe since 2005. Howe is a state run institution that, as the article points out, has 324 patients. These " patients " are Illinois citizens who happen to have disabilities. These patients are living in a facility that the federal government has deemed unsafe. While 20,000 individuals with disabilities await funding for community supports and services in Illinois, our Governor has chosen to offset the loss of nearly $30 million dollars in funding to Howe and keep Howe open at a cost to taxpayers of about $60 million dollars, this year. No one is paying close attention to what is happening in and at the state operated facilities. The tragic deaths at Howe have not made page one news. However, on July 17th, a follow up story about a case of sexual abuse that occurred two years ago at a private facility, Riveredge, made front page news. It is certainly a sad and compelling story, but apparently the deaths of 23 individuals in a decertified institution do not rate the same coverage. Where is the outrage for 23 human beings who have lost their lives, very likely, needlessly? Have we become so callous a society, as to disregard the needs of our most vulnerable citizens? Even worse, have we come to a point where the life of a person with a disability simply has no value? It is apparent that the Governor and the Senators who protect him do not care about a few lives lost, after all, people with disabilities do not tend to vote. But those reading this can vote. Illinois is the 10th wealthiest state yet we are " dead " last when it comes to serving those with disabilities according to a recent well respected study. I challenge the voters in the state of Illinois to pay close attention to how our leaders treat its most vulnerable citizens and then decide if this is the moral compass by which Illinois should be set. I would suggest that in order to restore the dignity of the individuals who have lost their lives due to poor judgment and decision making at the top, we honor them and restore our own dignity as well by making wise decisions at the poll this November and in two years when we elect our next Governor. In addition, the tax payers may want to ask a few more questions of the state's leaders about how they are spending our money in regard to state institutions rather than supporting individuals with disabilities in their own communities for fewer dollars and a better quality of life. Thank you. Ellen Garber Bronfeld egskbsbcglobal (DOT) net Re:Horror story continues at State Operated Facilities I read this article and was appalled to calculate that this means that Illinois spends approximately $176,000 per person at this institute which lost it's federal government subsidy due to the lack of quality of care. Beside being the mother of an individual with DD, I am appalled as a taxpayer!!!! ! Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 Great job Ellen! You are a gifted writer! I think you have summed it up perfectly. Perhaps you should send this letter to as many newspapers you can in Illinois. Or even to USA today etc--the bigger papers outside Illinois, too. You have already done the hardest part...getting it written. I think all of us know how difficult it is to write such a powerful and passionate letter, especially when we are daily living out these prejudices and injustices. On behalf of those you have represented and helped " THANK YOU!! "   chris From: Ellen Bronfeld <egskb@...> Subject: Re: Re:Horror story continues at State Operated Facilities IPADDUnite Date: Sunday, July 20, 2008, 12:36 AM I wish every tax payer was just as appalled, Gloria, as they should be...it is both real cost to taxpayers and cost of life to very vulnerable individuals. .. Here is a letter to the editor that I wrote and submitted to the Trib just a few minutes ago...doubtful that it will get published. Letter to the Editor Ellen Garber Bronfeld Chicago Tribune July 17, 2008 On July 15th Chicago Tribune reporter Hood wrote about " two more deaths at Tinley Park center for the disabled. " Add that to the other 21 deaths that have occurred due to abuse and neglect at Howe since 2005. Howe is a state run institution that, as the article points out, has 324 patients. These " patients " are Illinois citizens who happen to have disabilities. These patients are living in a facility that the federal government has deemed unsafe. While 20,000 individuals with disabilities await funding for community supports and services in Illinois, our Governor has chosen to offset the loss of nearly $30 million dollars in funding to Howe and keep Howe open at a cost to taxpayers of about $60 million dollars, this year. No one is paying close attention to what is happening in and at the state operated facilities. The tragic deaths at Howe have not made page one news. However, on July 17th, a follow up story about a case of sexual abuse that occurred two years ago at a private facility, Riveredge, made front page news. It is certainly a sad and compelling story, but apparently the deaths of 23 individuals in a decertified institution do not rate the same coverage. Where is the outrage for 23 human beings who have lost their lives, very likely, needlessly? Have we become so callous a society, as to disregard the needs of our most vulnerable citizens? Even worse, have we come to a point where the life of a person with a disability simply has no value? It is apparent that the Governor and the Senators who protect him do not care about a few lives lost, after all, people with disabilities do not tend to vote. But those reading this can vote. Illinois is the 10th wealthiest state yet we are " dead " last when it comes to serving those with disabilities according to a recent well respected study. I challenge the voters in the state of Illinois to pay close attention to how our leaders treat its most vulnerable citizens and then decide if this is the moral compass by which Illinois should be set. I would suggest that in order to restore the dignity of the individuals who have lost their lives due to poor judgment and decision making at the top, we honor them and restore our own dignity as well by making wise decisions at the poll this November and in two years when we elect our next Governor. In addition, the tax payers may want to ask a few more questions of the state's leaders about how they are spending our money in regard to state institutions rather than supporting individuals with disabilities in their own communities for fewer dollars and a better quality of life. Thank you. Ellen Garber Bronfeld egskbsbcglobal (DOT) net Re:Horror story continues at State Operated Facilities I read this article and was appalled to calculate that this means that Illinois spends approximately $176,000 per person at this institute which lost it's federal government subsidy due to the lack of quality of care. Beside being the mother of an individual with DD, I am appalled as a taxpayer!!!! ! Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 I sent it to the Chicago Trib submission of articles site...of course I have already deleted my sent files...I do so at the end of every day...but it is easy to find on the internet... Good idea...you could also adapt the letter for your local legislators, the Governor, the leaders (, Madigan, Cross)... Thanks, Maureen. Ellen Ellen Garber Bronfeld egskb@... Re:Horror story continues at State Operated Facilities I read this article and was appalled to calculate that this means that Illinois spends approximately $176,000 per person at this institute which lost it's federal government subsidy due to the lack of quality of care. Beside being the mother of an individual with DD, I am appalled as a taxpayer!!!!! Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 Thanks, Chris. I am debating about where else to send the letter... Probably, at the very least, to my local legislators, but I do have a few reporter contacts and may pursue those as well... Ellen Ellen Garber Bronfeld egskb@... Re:Horror story continues at State Operated Facilities I read this article and was appalled to calculate that this means that Illinois spends approximately $176,000 per person at this institute which lost it's federal government subsidy due to the lack of quality of care. Beside being the mother of an individual with DD, I am appalled as a taxpayer!!!! ! Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 Great job Ellen!!!! Re:Horror story continues at State Operated Facilities I read this article and was appalled to calculate that this means that Illinois spends approximately $176,000 per person at this institute which lost it's federal government subsidy due to the lack of quality of care. Beside being the mother of an individual with DD, I am appalled as a taxpayer!!!!! Gloria Quote Link to comment Share on other sites More sharing options...
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