Re: Re: Transportation and Home based funding

[Guest guest]

Well I drive my son to and from work 3-4 times a week, to the bank, to his

social events.  As I said I am the only PSW at this time and am billing the max

they said I could bill.  If I can bill for mileage too, that would be even

better.  I guess I will be calling around tomorrow and asking some questions. 

Do you know if there is a max you can claim?  Thanks for the info.

Shirley

From: Kathy <kathyb54@...>

Subject: Re: Transportation and Home based funding

IPADDUnite

Date: Thursday, September 25, 2008, 3:12 AM

This benefit can only be for miles when you transport your

son/daughter for NON MEDICAL travel. You can use it to take them to

work, class, shopping, trips, anywhere but doctors or medical related

visits.

Hope this helps!

kathy

>

> Let me check that out. My husband did talk to our service

facilitator today, but I forgot to ask about the process.

> Ellen

> Ellen Garber Bronfeld

> egskb@...

> Re: Transportation and Home based funding

>

>

> Thanks for the info. My husband asked that very question because

we do spend time (and gas)

> driving Quentin to therapies, etc. Where do we get this form?

> Thais

>

> --

> WOW! Homepage (http://www.wowway. com)

>

>

>

>

>

>

[Guest guest]

Thanks, Kathy.

I will pass this on to my hubby and keep you all posted on what we plan to do.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Transportation and Home based funding

Hello there!

In response to the transportaion reimbursement. I am from Southern

Illinois and here is the information I have:

When I attended the workshop last April where Charlotte was speaking,

she said the believed it had increased but the current rate was 38

cents per mile. My current resources have no clue as to what the

amount is, so I have filed my forms at 38 cents per mile simple

because nobody seems to know anything about this.

The form can be obtained from either your ISSA representative at DDS

or your service facilitator. In my case, my service facilitator was

clueless so my ISSA representative at DDS called Springfield for the

information and gave it to me. You complete the form, turn it into

your service facilitator and she/he sends it up to DDS, atleast this

is the process I have been told.

There was also some confusion about if the amount was in your monthly

alotment received from ACESS but I have been told by many since it

was the Medicaid Waiver it was over and above my Home Based allotment.

I have completed forms for June, July and August so far and not

received any reimbursement as of this posting. I did however receive

a W-9 form yesterday that my service facilitator said they needed to

set me up.

It is my understanding that nobody in the State of Illinois is

currently recieving payment for this because the State of Illinois

dismissed without setting the budget and I was also told it took them

till October last year to set budget so they could release payment so

don't expect any thing for a while. With this being an election

year, I assume they will get back to business and get this taken care

of by November because they want our votes.

I was also told my by service facilitator that when they do start

releasing funds, they will release ours first since the amounts are

smaller than the amounts claimed by the organizations but at this

point this is all verbal information.

I hope this helps someone out there!

I would also appreciate the politicians getting off their duffs and

taking care of business in the State of Illinois!

Thank you!

Kathy

Mother of

>

> Hi all:

> It has recently come to my attention that there is a reimbursement

rate

> for transportation as part of the list of billable service hours

from

> the adult Medicaid Waiver. Since we are hiring our own personal

> support workers and using ACES$, the way this would work,

apparently,

> is the employer, my husband, would bill directly to DHS via a

specific

> form, for reimbursement for all of our driving time taking Noah to

his

> various activities and work. The benefit to us is that we would be

> getting reimbursed for our time but without incurring income tax on

the

> dollars we are getting back. Is anyone actually doing this?

> Thanks to a very well informed Ruth Ann Sikora for the

information!

> Thanks.

> Ellen

>

[Guest guest]

The plot thickens!!!

Let's keep each other posted on responses we get from our Service Facilitators

and hopefully together we will figure this out!

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Transportation and Home based funding

>

>

> Thanks for the info. My husband asked that very question because

we do spend time (and gas)

> driving Quentin to therapies, etc. Where do we get this form?

> Thais

>

> --

> WOW! Homepage (http://www.wowway. com)

>

>

>

>

>

>

[Guest guest]

This is what I do about transportation costs.  My daughter is current on the

Child's waiver and she receives services from Clearbrook.

I track the mileage for medical and job training (I don't currently do it for

SRAs, but I could) and then reimburse myself from my daughter's SSI.

Finato

www.AngelSpeaks.com

www.wegrowdreams.org

From: Kathy <kathyb54@...>

Subject: Re: Transportation and Home based funding

IPADDUnite

Date: Wednesday, September 24, 2008, 8:10 PM

Hello there!

In response to the transportaion reimbursement. I am from Southern

Illinois and here is the information I have:

When I attended the workshop last April where Charlotte was speaking,

she said the believed it had increased but the current rate was 38

cents per mile. My current resources have no clue as to what the

amount is, so I have filed my forms at 38 cents per mile simple

because nobody seems to know anything about this.

The form can be obtained from either your ISSA representative at DDS

or your service facilitator. In my case, my service facilitator was

clueless so my ISSA representative at DDS called Springfield for the

information and gave it to me. You complete the form, turn it into

your service facilitator and she/he sends it up to DDS, atleast this

is the process I have been told.

There was also some confusion about if the amount was in your monthly

alotment received from ACESS but I have been told by many since it

was the Medicaid Waiver it was over and above my Home Based allotment.

I have completed forms for June, July and August so far and not

received any reimbursement as of this posting. I did however receive

a W-9 form yesterday that my service facilitator said they needed to

set me up.

It is my understanding that nobody in the State of Illinois is

currently recieving payment for this because the State of Illinois

dismissed without setting the budget and I was also told it took them

till October last year to set budget so they could release payment so

don't expect any thing for a while. With this being an election

year, I assume they will get back to business and get this taken care

of by November because they want our votes.

I was also told my by service facilitator that when they do start

releasing funds, they will release ours first since the amounts are

smaller than the amounts claimed by the organizations but at this

point this is all verbal information.

I hope this helps someone out there!

I would also appreciate the politicians getting off their duffs and

taking care of business in the State of Illinois!

Thank you!

Kathy

Mother of

>

> Hi all:

> It has recently come to my attention that there is a reimbursement

rate

> for transportation as part of the list of billable service hours

from

> the adult Medicaid Waiver. Since we are hiring our own personal

> support workers and using ACES$, the way this would work,

apparently,

> is the employer, my husband, would bill directly to DHS via a

specific

> form, for reimbursement for all of our driving time taking Noah to

his

> various activities and work. The benefit to us is that we would be

> getting reimbursed for our time but without incurring income tax on

the

> dollars we are getting back. Is anyone actually doing this?

> Thanks to a very well informed Ruth Ann Sikora for the

information!

> Thanks.

> Ellen

>

[Guest guest]

Is this for the adult waiver only?

From: IPADDUnite [mailto:IPADDUnite ] On

Behalf Of Gloria Kern

Sent: Thursday, September 25, 2008 1:24 PM

IPADDUnite

Subject: Re: Transportation and Home based funding

Hi, the amount of reimbursement I file for is .38 per mile and it is for the

time is in the car so it is 1 round trip to each event even though

I may make 2 trips to get there. I did just receive my check for July a

couple days ago. I fax the form (DHS Request for Payment, DD and MH Fee for

Service Program " BILLING BY PROVIDER -EVENT) to my agency. I was told they

enter it into a computer. It is my understanding that it is part of my

totaling funding under Home Based. The advantage is that it is not taxable

income, so if you do a lot of traveling it is worth it. Mine is usually

around $125 per month. My other workers do not travel with her at this time,

but if they did I'm told they can file for this reimbursement also. I have

also taken her on the train and bus a few times and by cab and we got

reimbursed for this, charged as Developmental Training and transportation. I

keep a spreadsheet where I enter daily what we do, the DSW hours, and the

transportation, for backup in case there ever is a question. Hope this

helps. The form is in the manual, which I requested when I was provided

services. This caused me to ask questions. The program code is 55T.

Gloria

[Guest guest]

Great summary.

Thanks, Gloria.

This is very helpful.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Transportation and Home based funding

Hi, the amount of reimbursement I file for is .38 per mile and it is for the

time is in the car so it is 1 round trip to each event even though I

may make 2 trips to get there. I did just receive my check for July a couple

days ago. I fax the form (DHS Request for Payment, DD and MH Fee for Service

Program " BILLING BY PROVIDER -EVENT) to my agency. I was told they enter it into

a computer. It is my understanding that it is part of my totaling funding under

Home Based. The advantage is that it is not taxable income, so if you do a lot

of traveling it is worth it. Mine is usually around $125 per month. My other

workers do not travel with her at this time, but if they did I'm told they can

file for this reimbursement also. I have also taken her on the train and bus a

few times and by cab and we got reimbursed for this, charged as Developmental

Training and transportation. I keep a spreadsheet where I enter daily what we

do, the DSW hours, and the transportation, for backup in case there ever is a

question. Hope this helps. The form is in the manual, which I requested when I

was provided services. This caused me to ask questions. The program code is 55T.

Gloria

[Guest guest]

OK, so it sounds like it is 38 cents a mile and this does have to be part of

your allotted amount, it is not taxable, and you have to file a 55T, and you do

this through your SF? And since you got a check already that blows the theory

that it is the last thing to get paid like my SF said.  So why isn't this told

to everyone when you receive your Home Base Services?  Also what manual are you

talking about?  Yikes everything is a scavenger hunt.  Thanks, Shirley

From: Gloria Kern <prentice50@...>

Subject: Re: Transportation and Home based funding

IPADDUnite

Date: Thursday, September 25, 2008, 6:23 PM

Hi, the amount of reimbursement I file for is .38 per mile and it is for the

time is in the car so it is 1 round trip to each event even though I

may make 2 trips to get there. I did just receive my check for July a couple

days ago. I fax the form (DHS Request for Payment, DD and MH Fee for Service

Program " BILLING BY PROVIDER -EVENT) to my agency. I was told they enter it into

a computer. It is my understanding that it is part of my totaling funding under

Home Based. The advantage is that it is not taxable income, so if you do a lot

of traveling it is worth it. Mine is usually around $125 per month. My other

workers do not travel with her at this time, but if they did I'm told they can

file for this reimbursement also. I have also taken her on the train and bus a

few times and by cab and we got reimbursed for this, charged as Developmental

Training and transportation. I keep a spreadsheet where I enter daily what we

do, the DSW hours, and the

transportation, for backup in case there ever is a question. Hope this helps.

The form is in the manual, which I requested when I was provided services. This

caused me to ask questions. The program code is 55T.

Gloria

[Guest guest]

Annoying isn't it!!!

We were not told, to the best of my recollection!

There is a manual for providers on the Home based medicaid waiver program...I do

not know if it is available online, but it might be.

There is a DRAFT of a family manual that has not been completed by DHS/DDD as

yet.

Ellen

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Transportation and Home based funding

IPADDUnite

Date: Thursday, September 25, 2008, 6:23 PM

Hi, the amount of reimbursement I file for is .38 per mile and it is for the

time is in the car so it is 1 round trip to each event even though I

may make 2 trips to get there. I did just receive my check for July a couple

days ago. I fax the form (DHS Request for Payment, DD and MH Fee for Service

Program " BILLING BY PROVIDER -EVENT) to my agency. I was told they enter it into

a computer. It is my understanding that it is part of my totaling funding under

Home Based. The advantage is that it is not taxable income, so if you do a lot

of traveling it is worth it. Mine is usually around $125 per month. My other

workers do not travel with her at this time, but if they did I'm told they can

file for this reimbursement also. I have also taken her on the train and bus a

few times and by cab and we got reimbursed for this, charged as Developmental

Training and transportation. I keep a spreadsheet where I enter daily what we

do, the DSW hours, and the

transportation, for backup in case there ever is a question. Hope this helps.

The form is in the manual, which I requested when I was provided services. This

caused me to ask questions. The program code is 55T.

Gloria

[Guest guest]

When Lilia was at CAU a few weeks ago she addressed a large group regarding

HBSS. She was asked about the manual. She said what I thought was pretty

significatn. Parents should not need a manual to figure this out.

Unfortunately we do since it appears many service facilitators dont have a

very stron handle on this. It is wonderful IPADD exists, however with the

long list of concerns about SF, Lilia should be made aware of how poorly

informed our 'advocates' are. Cindi ADD

[Guest guest]

I will be informing her, .

I update her periodically.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Re: Transportation and Home based funding

When Lilia was at CAU a few weeks ago she addressed a large group regarding

HBSS. She was asked about the manual. She said what I thought was pretty

significatn. Parents should not need a manual to figure this out.

Unfortunately we do since it appears many service facilitators dont have a

very stron handle on this. It is wonderful IPADD exists, however with the

long list of concerns about SF, Lilia should be made aware of how poorly

informed our 'advocates' are. Cindi ADD

[Guest guest]

Hi Cindi, I know we were at the same meeting with Acess and Ray Graham and they

never said anything about a manual and just rushed you through the paperwork.  I

had my first meeting with Ray Graham and PACT and they said nothing.  Shouldn't

this be given to you when you start Home Based Services?  Anyone know how we get

a manual?

Shirley

From: Cindi Swanson <cbswanson@...>

Subject: Re: Re: Transportation and Home based funding

IPADDUnite

Date: Friday, September 26, 2008, 3:25 AM

When Lilia was at CAU a few weeks ago she addressed a large group regarding

HBSS. She was asked about the manual. She said what I thought was pretty

significatn. Parents should not need a manual to figure this out.

Unfortunately we do since it appears many service facilitators dont have a

very stron handle on this. It is wonderful IPADD exists, however with the

long list of concerns about SF, Lilia should be made aware of how poorly

informed our 'advocates' are. Cindi ADD

[Guest guest]

I too attended the meeting at CAU at which Lilia Teninty presented to the

group, as well as the Acess mtg. As many of you parents do also, I attend many

workshops/conferences to be better informed . However, it is clear that

information across the board is inconsistent, people are not " on the same page "

thereby giving inaccurate or incomplete information. This leads to some extreme

frustration . This has added another layer of " bureaucracy " for families to

deal with. But most importantly it is often not serving the people that it was

meant to serve, our individuals with disabilities. Where is the " person

-centeredness " in all of this?

I too think that Lilia needs to be aware of the issues/concerns that are

occuring with HBS , in order for improvements/changes to occur.

**************Looking for simple solutions to your real-life financial

challenges? Check out WalletPop for the latest news and information, tips and

calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

[Guest guest]

Hi all,

Most of it is on the DHS website. I'll work on it Monday and hopefully have

it when I'm featured on your fabulous group!

Partridge

From: IPADDUnite [mailto:IPADDUnite ] On

Behalf Of Gloria Kern

Sent: Friday, September 26, 2008 1:10 PM

IPADDUnite

Subject: Re: Transportation and Home based funding

What I got was a copy of the manual for providers, which gave way too much

information for me to absorb, but some useful stuff that made me then ask

questions. I got it from my agency I believe. Now if someone could tell me

how to find providers to accept the rates allowed and how to get respite I

would be grateful, because I never use all of my funding. I've been told

directly be Director Trenity(sp?) that I can use it for SRA, but mine will

not do so as they claim they have to have all of their staff takes 40 hours

of training. Anybody using it for SRA or know if that is true? Gloria

[Guest guest]

Gloria, why are you not claiming the rest of the funding  yourself?  I am sure

you provide help 24/7 and could claim the money for help with meals, laundry,

personal hygiene, banking, whatever you have to do to assist.

From: Gloria Kern <prentice50@...>

Subject: Re: Transportation and Home based funding

IPADDUnite

Date: Friday, September 26, 2008, 6:10 PM

What I got was a copy of the manual for providers, which gave way too much

information for me to absorb, but some useful stuff that made me then ask

questions. I got it from my agency I believe. Now if someone could tell me how

to find providers to accept the rates allowed and how to get respite I would be

grateful, because I never use all of my funding. I've been told directly be

Director Trenity(sp?) that I can use it for SRA, but mine will not do so as they

claim they have to have all of their staff takes 40 hours of training. Anybody

using it for SRA or know if that is true? Gloria

[Guest guest]

Thanks, . I will pass this on...

Well put.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Re: Transportation and Home based funding

I too attended the meeting at CAU at which Lilia Teninty presented to the

group, as well as the Acess mtg. As many of you parents do also, I attend many

workshops/conferences to be better informed . However, it is clear that

information across the board is inconsistent, people are not " on the same

page "

thereby giving inaccurate or incomplete information. This leads to some

extreme

frustration . This has added another layer of " bureaucracy " for families to

deal with. But most importantly it is often not serving the people that it was

meant to serve, our individuals with disabilities. Where is the " person

-centeredness " in all of this?

I too think that Lilia needs to be aware of the issues/concerns that are

occuring with HBS , in order for improvements/changes to occur.

**************Looking for simple solutions to your real-life financial

challenges? Check out WalletPop for the latest news and information, tips and

calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

[Guest guest]

I thought it was not useable for SRA's as yet...anyone know if that has changed?

I will double check with our SRA...last I checked it was not an option...

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Transportation and Home based funding

What I got was a copy of the manual for providers, which gave way too much

information for me to absorb, but some useful stuff that made me then ask

questions. I got it from my agency I believe. Now if someone could tell me how

to find providers to accept the rates allowed and how to get respite I would be

grateful, because I never use all of my funding. I've been told directly be

Director Trenity(sp?) that I can use it for SRA, but mine will not do so as they

claim they have to have all of their staff takes 40 hours of training. Anybody

using it for SRA or know if that is true? Gloria

[Guest guest]

Thanks, ...we do have the manual...

Looking forward to having your expertise for the week!

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Transportation and Home based funding

What I got was a copy of the manual for providers, which gave way too much

information for me to absorb, but some useful stuff that made me then ask

questions. I got it from my agency I believe. Now if someone could tell me

how to find providers to accept the rates allowed and how to get respite I

would be grateful, because I never use all of my funding. I've been told

directly be Director Trenity(sp?) that I can use it for SRA, but mine will

not do so as they claim they have to have all of their staff takes 40 hours

of training. Anybody using it for SRA or know if that is true? Gloria

[Guest guest]

That is certainly what we do...

I am one of Noah's PSW's...I never get paid for all the hours I put in!

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Transportation and Home based funding

IPADDUnite

Date: Friday, September 26, 2008, 6:10 PM

What I got was a copy of the manual for providers, which gave way too much

information for me to absorb, but some useful stuff that made me then ask

questions. I got it from my agency I believe. Now if someone could tell me how

to find providers to accept the rates allowed and how to get respite I would be

grateful, because I never use all of my funding. I've been told directly be

Director Trenity(sp?) that I can use it for SRA, but mine will not do so as they

claim they have to have all of their staff takes 40 hours of training. Anybody

using it for SRA or know if that is true? Gloria

[Guest guest]

Just a quick response...don't beat yourself up...I don't always accomplish my

own personal goals each year...but if we keep our own goals reasonable and our

children's goals small and more realistically achievable, we can potentially

feel accomplished at the end of each year...as we all know, some years are

better than others...

Noah is 22...he is now making his bed and even changing his linens (albeit the

bed isn't exactly as neat as I would like it to be) but he still cannot ride a

bike or tie his shoes...

I will go back to the shoes again soon, but I am not ready to try the bike

again...we just continue to move forward in small, incremental steps and keep

working on whatever we (Noah and I) agree are the priorities at the time.

Right now Noah's priority is for me to stop typing

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Transportation and Home based funding

>I have a problem deciding what is the responsibility of a " parent "

to any child, as opposed to what I should be paid for doing so I only

charge for things that I wouldn't have to do for her if she were

a " typical " young adult. Also, she does get SSI and pays me room and

board. I guess in this area I fall into the " I'm so happy to get

something, and I don't want to lose it " position. We will be doing

her annual plan in a few weeks and I have learned a lot from this

group on what to add to that plan. If it's in there, then I will

feel better about claiming it. I also understand a little better how

teachers feel about writing the goals update. Now that my time has

come to status the goals written, and we have not accomplished them,

I feel like I am a failure, even though these same goals have been in

her IEP for years, and I actually know she will probably never

accomplish them. We need to keep working on them none the less. How

do other parents deal with this?

> Gloria, why are you not claiming the rest of

the funding yourself? I am sure you provide help 24/7 and could

claim the money for help with meals, laundry, personal hygiene,

banking, whatever you have to do to assist.

>

>

[Guest guest]

I know all of us are very different and so are our children.  is 27 and

has DS and I have to do many things every day.  doesn't understand time. 

He can tell you what time it is 9 am, 6:27 pm but if I tell him he has to be at

work at 9 am he has no ideal when to get up or how much time he has left to

finish getting ready.  He knows what a 1, 5, 10, 20 dollar bill is but if

something cost 7 dollars he has no idea what to give someone.  He has to be

reminded to take a shower, shave today, don't wear your shorts today it is too

cold.  He can copy what I tell him when writing a check, but has no idea on his

own.  He can not cook, but can make a sandwich.  I drive him to and from work,

to the bank, to the store, and to his activities.  The list goes on.  So I have

to direct him, remind him, assist him, etc. every day, several times a day.  So

I select which things to charge for each day.  I charge 1 hour every day just to

personnel

hygiene.  We work on math pages and sight word bingo as he does not read very

much but needs to know community words.  If i take him to a movie I would not go

to myself I charge that.  The list goes on, but again, your child and situation

could be way different.  I charge the max every month as  I do not want to loose

one penny of funding as I plan to find more things to help him with

independence.  I am looking for a program he can go to maybe once a week to help

with life skills in the future. We are new to all this, we just got funded in

July.  I love this message board even when it confuses me.  I wish there were

more opportunities to get parents together with the experts in person, to share

our questions and answers.  Thank you to everyone here.

Shirley

From: freddybearluv2002 <prentice50@...>

Subject: Re: Transportation and Home based funding

IPADDUnite

Date: Saturday, September 27, 2008, 3:38 AM

>I have a problem deciding what is the responsibility of a " parent "

to any child, as opposed to what I should be paid for doing so I only

charge for things that I wouldn't have to do for her if she were

a " typical " young adult. Also, she does get SSI and pays me room and

board. I guess in this area I fall into the " I'm so happy to get

something, and I don't want to lose it " position. We will be doing

her annual plan in a few weeks and I have learned a lot from this

group on what to add to that plan. If it's in there, then I will

feel better about claiming it. I also understand a little better how

teachers feel about writing the goals update. Now that my time has

come to status the goals written, and we have not accomplished them,

I feel like I am a failure, even though these same goals have been in

her IEP for years, and I actually know she will probably never

accomplish them. We need to keep working on them none the less. How

do other parents deal with this?

> Gloria, why are you not claiming the rest of

the funding  yourself?  I am sure you provide help 24/7 and could

claim the money for help with meals, laundry, personal hygiene,

banking, whatever you have to do to assist.

>

>

[Guest guest]

I have looked at our son like a brick building...and we, his parents are the

mortar! If we remove the mortar, the support, 24-7 he is going to fall

apart like a house of cards. Adam leaves for work every morning handsome as

can be, confident. EVery night he checks in with us, " do I need a shower "

Yes,every adult needs a shower every night. He shaves on his own, but every

night his father checks his shave, often me when Art is out of town,to make

sure he doesnt have a patch. What I am saying is He is 21. I have two

other sons, and he see how little I have had to do for them. We take

ourselves out of the equation..can Adam do this without us. If the answer

is no, that goes into our HBSS as grooming or community skills,or social

planning and it is all legitimate. at least acccording to our SF and other

sources. Art, the dad is PSW.Adam can walk up the street to get a

haircut, cut but the night before there is about an hour of money coaching.

He leaves with the right outer wear, after we spent the morning listening to

the weather on the radio and quiz, do you need a parka or the rain coat. If

our young adults did not have us constantly coaching I fear what their lives

would bbe like. But this all goes under quality community life, which HBSS

affords us. And I am very thankful for it. Cindi

[Guest guest]

Cindi, I agree, I am also very thankful for the extra support.  My son can do

lots of things on his own, but there are many important things that he can not

do on his own.  I like the building and mortar thing.

Shirley

From: Cindi Swanson <cbswanson@...>

Subject: Re: Re: Transportation and Home based funding

IPADDUnite

Date: Saturday, September 27, 2008, 1:16 PM

I have looked at our son like a brick building...and we, his parents are the

mortar! If we remove the mortar, the support, 24-7 he is going to fall

apart like a house of cards. Adam leaves for work every morning handsome as

can be, confident. EVery night he checks in with us, " do I need a shower "

Yes,every adult needs a shower every night. He shaves on his own, but every

night his father checks his shave, often me when Art is out of town,to make

sure he doesnt have a patch. What I am saying is He is 21. I have two

other sons, and he see how little I have had to do for them. We take

ourselves out of the equation..can Adam do this without us. If the answer

is no, that goes into our HBSS as grooming or community skills,or social

planning and it is all legitimate. at least acccording to our SF and other

sources. Art, the dad is PSW.Adam can walk up the street to get a

haircut, cut but the night before there is about an hour of money coaching.

He leaves with the right outer wear, after we spent the morning listening to

the weather on the radio and quiz, do you need a parka or the rain coat. If

our young adults did not have us constantly coaching I fear what their lives

would bbe like. But this all goes under quality community life, which HBSS

affords us. And I am very thankful for it. Cindi

[Guest guest]

Shirley, Cindi, Kathy, Gloria and others,

Thank you all for sharing these details about working with the waiver money.

Some people I speak with who are not yet funded in the Waiver, wonder how

valuable it really can be? I think your descriptions help 'illuminate' for us

all. Appreciate you sharing.

Laurie

Re: Re: Transportation and Home based funding

IPADDUnite

Date: Saturday, September 27, 2008, 1:16 PM

I have looked at our son like a brick building...and we, his parents are the

mortar! If we remove the mortar, the support, 24-7 he is going to fall

apart like a house of cards. Adam leaves for work every morning handsome as

can be, confident. EVery night he checks in with us, " do I need a shower "

Yes,every adult needs a shower every night. He shaves on his own, but every

night his father checks his shave, often me when Art is out of town,to make

sure he doesnt have a patch. What I am saying is He is 21. I have two

other sons, and he see how little I have had to do for them. We take

ourselves out of the equation..can Adam do this without us. If the answer

is no, that goes into our HBSS as grooming or community skills,or social

planning and it is all legitimate. at least acccording to our SF and other

sources. Art, the dad is PSW.Adam can walk up the street to get a

haircut, cut but the night before there is about an hour of money coaching.

He leaves with the right outer wear, after we spent the morning listening to

the weather on the radio and quiz, do you need a parka or the rain coat. If

our young adults did not have us constantly coaching I fear what their lives

would bbe like. But this all goes under quality community life, which HBSS

affords us. And I am very thankful for it. Cindi

[Guest guest]

Let's not for one minute minimize how valuable home based funding

is...regardless of all this discussion about the hassles and the lack of

consistent information, I am VERY appreciative of having what amounts to about

$17,000 net, to offset the cost of Noah's supports and services!!! This is

REALLY great!!! We can work out the mechanics as we go.

What is really sad is that the state of Illinois is broke and many other

families will be waiting much longer after exiting the school system, for

financial assistance. That is a far bigger problem that 55T vs 55D.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Re: Transportation and Home based funding

IPADDUnite

Date: Saturday, September 27, 2008, 1:16 PM

I have looked at our son like a brick building...and we, his parents are the

mortar! If we remove the mortar, the support, 24-7 he is going to fall

apart like a house of cards. Adam leaves for work every morning handsome as

can be, confident. EVery night he checks in with us, " do I need a shower "

Yes,every adult needs a shower every night. He shaves on his own, but every

night his father checks his shave, often me when Art is out of town,to make

sure he doesnt have a patch. What I am saying is He is 21. I have two

other sons, and he see how little I have had to do for them. We take

ourselves out of the equation..can Adam do this without us. If the answer

is no, that goes into our HBSS as grooming or community skills,or social

planning and it is all legitimate. at least acccording to our SF and other

sources. Art, the dad is PSW.Adam can walk up the street to get a

haircut, cut but the night before there is about an hour of money coaching.

He leaves with the right outer wear, after we spent the morning listening to

the weather on the radio and quiz, do you need a parka or the rain coat. If

our young adults did not have us constantly coaching I fear what their lives

would bbe like. But this all goes under quality community life, which HBSS

affords us. And I am very thankful for it. Cindi

[Guest guest]

Well said Ellen.  I am happy that I have ANY funding at all.  I just wish things

were easier.  As I get older things seem to get harder, but as a mother I keep

fighting and digging to get those answers.  Sooner or later you get the answers.

Shirley

From: Cindi Swanson <cbswansonjuno (DOT) com>

Subject: Re: Re: Transportation and Home based funding

IPADDUnite@gro ups.com

Date: Saturday, September 27, 2008, 1:16 PM

I have looked at our son like a brick building...and we, his parents are the

mortar! If we remove the mortar, the support, 24-7 he is going to fall

apart like a house of cards. Adam leaves for work every morning handsome as

can be, confident. EVery night he checks in with us, " do I need a shower "

Yes,every adult needs a shower every night. He shaves on his own, but every

night his father checks his shave, often me when Art is out of town,to make

sure he doesnt have a patch. What I am saying is He is 21. I have two

other sons, and he see how little I have had to do for them. We take

ourselves out of the equation..can Adam do this without us. If the answer

is no, that goes into our HBSS as grooming or community skills,or social

planning and it is all legitimate. at least acccording to our SF and other

sources. Art, the dad is PSW.Adam can walk up the street to get a

haircut, cut but the night before there is about an hour of money coaching.

He leaves with the right outer wear, after we spent the morning listening to

the weather on the radio and quiz, do you need a parka or the rain coat. If

our young adults did not have us constantly coaching I fear what their lives

would bbe like. But this all goes under quality community life, which HBSS

affords us. And I am very thankful for it. Cindi