thanks

[Guest guest]

Never had any cats. Am I the exception that proves the rule??

Re: Re: thanks

The cats may just be like the observation that all people who died of cancer drank water before getting the cancer. On the other hand, there are diseases people get from drinking water. There may be something only a few cats carry. Something that is hard to get from a cat but possible if conditions are right. Just as lot of people are around domestic animals but very few get rabies from them.One thing that could help rule the cats out is if there are enough people that can say they had little or no contact with cats yet they have achalasia. But, as for me we had a lot of cats around when I was a child.JerryVicki Roth wrote:>Seems like half the world has cats--hard to believe that there wouldn't be>more folks with achalasia if there is some cause and effect relationship>here!

[Guest guest]

I also have never had cats. Re: Re: thanks The cats may just be like the observation that all people who died of cancer drank water before getting the cancer. On the other hand, there are diseases people get from drinking water. There may be something only a few cats carry. Something that is hard to get from a cat but possible if conditions are right. Just as lot of people are around domestic animals but very few get rabies from them.One thing that could help rule the cats out is if there are enough people that can say they had little or no contact with cats yet they have achalasia. But, as for me we had a lot of cats around when I was a child.JerryVicki Roth wrote:>Seems like half the world has cats--hard to believe that there wouldn't be>more folks with achalasia if there is some cause and effect relationship>here!

[Guest guest]

Well I hope there is no connection. And I doubt there is any connection. I

hate to think of any new readers of this list coming into these cat

messages and thinking we know more than we do. But if there was a

connection to cats, never having any cats would not mean you never had

contact with one.

Jerry

At 05:01 PM 2/22/2001 -0500, Bill Leavitt wrote:

>Never had any cats. Am I the exception that proves the rule??

[Guest guest]

Hi--

Bill, I doubt you are the exception that proves the rule, cat-wise! (I'm

guessing that cats don't cause achalasia--the " proof " seems to be the lack

of achalasia in the general population, given that cats and humans have

lived in close proximity for thousands of years.)

I think we are all eager to understand this disorder better, so we're kind

of looking for overlapping experiences in our lives. We could probably

find a zillion variables we've had in common, some of them related to

achalsia (like trouble eating bread, for example), but others that may be

just happenstance.

This is why epidemiologists have such a difficult time tracing the

incidence and prevalence of various disorders, I guess.

My question du jour for the group today is the following: How does this

disorder affect your work life? Does it make a difference in how well you

get through the day? Have you ever had to curtail your career in response

to this disease? Or have you found good ways to continue working AND

manage achalasia-related problems at the same time?

Hint: my too-often followed work strategy is NOT a good one, I've

decided,that is, I tend to simply not eat or drink much when I have a lot to

do at work. Since nutrition and hydration aren't exactly optional

activities, this " strategy " of not ingesting much stinks!

The obvious other answer is for me to eat and drink in small amounts, but

when you have GERD, that just means you are constantly making yourself

feel lousy throughout the day by eating.

H'mm. Am I crabby today or what?? Thanks for listening to me

vent!

Vicki

On Thu, 22 Feb 2001, Bill Leavitt wrote:

> Never had any cats. Am I the exception that proves the rule??

> Re: Re: thanks

>

>

> The cats may just be like the observation that all people who died of

> cancer drank water before getting the cancer. On the other hand, there are

> diseases people get from drinking water. There may be something only a few

> cats carry. Something that is hard to get from a cat but possible if

> conditions are right. Just as lot of people are around domestic animals but

> very few get rabies from them.

>

> One thing that could help rule the cats out is if there are enough people

> that can say they had little or no contact with cats yet they have

> achalasia. But, as for me we had a lot of cats around when I was a child.

>

> Jerry

>

> Vicki Roth wrote:

> >Seems like half the world has cats--hard to believe that there wouldn't be

> >more folks with achalasia if there is some cause and effect relationship

> >here!

>

>

>

[Guest guest]

> Thanks, Sue NJ, for all of the wonderful recipes.

When I find more that *don't* rely on artificial sweeteners I'll send them

along. I had to toss some right out because they would call for something

like " 16 packets of Nutraswet " and everyone knows you can't bake with that

stuff. Yecch.

Sue in NJ

[Guest guest]

I will pray and hope for a mighty successful surgery

next week. The reward is freedom.

I was "slightly" a vegetarian when I had my myotomy.

I drank vegetable juices and smoothies for the first

few days. Then progressed to salads and cooked foods.

When I was no longer nervous.... I had a steak and potato dinner. YUM.

Ohhh the possibilities!

Kat

[Guest guest]

Hi Donna. Please stay with the idea of eating slow. I was on the Nissen Diet for two months. You go from two weeks of liquid diet and progress to soft foods. I had my surgery on Aug. 7th. and I just started eating raw baby carrots. I still have to drink with some foods. I have a glass of water with me at all times. The surgery is not a cure, but it is wonderful to be able to eat again. Yesterday, I had trouble getting some applesauce down. It came back up. This was after eating an egg salad sandwich and some bean soup. I know that I will never eat the way I used to eat again. I will learn to live with this way of eating. Small bites, slow eating and thanking God it goes down at all.

You will be just fine. It is a new way of life, but it could be a lot worse. Now we can help others. That is the best part. Being there for others. God help us all. Bev in SC.

[Guest guest]

You are most welcome. Bev.

[Guest guest]

Nadalie, Deb/tn, Lucy and ,

Thank you for your congrats! I am very grateful for folks like you guys to

cheer me on. Thank you again for taking the time to celebrate with me.

Rae

260/150/150

" Eating food is my way to live...not my way of life. "

[Guest guest]

Hi Cary -

Thanks for noticing my loss so far. Yes I do journal. It varies as to what

exactly I do though. Some days I write in it. Other days I print out/copy

articles information I find. Other times it is emails that send or receive. I

also belong to the Clubhouse and find things there frequently.

It is all about seeing those little bright lights, those ideas that suddenly pop

up from no where! Those little gems that help me to understand. I gather them

and keep them.

Then when things start getting me down - as they do with all of us - I sit back

and turn the pages. I start at the beginning. I read it all. The early days

of my journal were much harder for me. That is where I let it all out and that

was painful. But worth it.

To keep myself going and to remind myself of how far I have come - well that is

easy really. I use the scale, or course, but I now only get on it once a month.

That is my official weigh in. The rest of the time I use my foodmover, measure

my food and " know " if I am doing okay. I don't worry about the numbers any

more.....I only worry about how I feel.

The other thing I have done is to take my measurements. Again, I take them the

first of every month and have since the first day of my new life. I have lost

35 inches since I began this journey, and I can tell you where they all came

from.

But most important of all, I have gotten to know my body. I have spent a lot of

time since the very first day, looking at myself in a mirror. Getting to know

this person. Now this might sound weird to all of you.....but I have done this

in the clothing God gave me - meaning naked.

I have learned the bumps, the lumps, the rolls, the marks, the scars, the

mountains of fat.....I have learned it all. I know what is there. I know what

it looks like and what it doesn't look like.

My reason for doing this? I knew I had to learn to accept and love the person I

WAS ...... before the person inside of me could be set free.

I think more than anything this is what keeps me going. You see I am okay with

what my body WAS, what it IS and what it WILL BE!

Because I know where I started, I can see the changes that are happening every

day. I can see the eating healthy paying off. I can see the exercise paying

off. And because I can see it....I can believe it. And that makes this entire

journey possible. I can see the light at the end of the tunnel so to speak.

Now the journey isn't going super fast. It has slowed to a halt these past few

months. But I am okay with that. I am at a different place now then I was

before. In the early days I needed the pounds to disappear quickly...and they

did. But now I just need to know that I am doing the best I can. That I am

treating myself better....eating healthier....exercising. That is all that

matters these days.

So my advice to everyone? Get to know who you are. Truly know it. Not what

your mind tells you...but what your eye, your hands, and experience tell you.

Sorry if this rambled on and on. I tend to get carried away about the things

that have worked for me....and as you can tell, this is one of those things!

Take Care,

[Guest guest]

What a wonderful message,

I love this list and all of you who make it possible to share

lea

Thanks

Today is Thanksgiving and I would like to give thanks to all the members

of

this group. You guys are pretty amazing. Between all of us there is so

much

incredible information...life saving information. Bless each and

everyone one

of you.

Happy Thanksgiving.

In a message dated 11/27/03 1:10:58 PM Eastern Standard Time,

leonardleonard1@... writes:

>

> " may be the best nutritional food supplement....I've interviewed many

> patients,

> maybe a hundred, who have taken Haelan as the only form of cancer

treatment

> that

> helped them. Either it causes remissions, or...tumors...shrink and

> disappear....

[Guest guest]

What a wonderful message,

I love this list and all of you who make it possible to share

lea

Thanks

Today is Thanksgiving and I would like to give thanks to all the members

of

this group. You guys are pretty amazing. Between all of us there is so

much

incredible information...life saving information. Bless each and

everyone one

of you.

Happy Thanksgiving.

In a message dated 11/27/03 1:10:58 PM Eastern Standard Time,

leonardleonard1@... writes:

>

> " may be the best nutritional food supplement....I've interviewed many

> patients,

> maybe a hundred, who have taken Haelan as the only form of cancer

treatment

> that

> helped them. Either it causes remissions, or...tumors...shrink and

> disappear....

[Guest guest]

You are all very important to me and I am grateful. Bev.

Thanks

Today is Thanksgiving and I would like to give thanks to all the members

of

this group. You guys are pretty amazing. Between all of us there is so

much

incredible information...life saving information. Bless each and

everyone one

of you.

Happy Thanksgiving.

In a message dated 11/27/03 1:10:58 PM Eastern Standard Time,

leonardleonard1@... writes:

>

> " may be the best nutritional food supplement....I've interviewed many

> patients,

> maybe a hundred, who have taken Haelan as the only form of cancer

treatment

> that

> helped them. Either it causes remissions, or...tumors...shrink and

> disappear....

[Guest guest]

You are all very important to me and I am grateful. Bev.

Thanks

Today is Thanksgiving and I would like to give thanks to all the members

of

this group. You guys are pretty amazing. Between all of us there is so

much

incredible information...life saving information. Bless each and

everyone one

of you.

Happy Thanksgiving.

In a message dated 11/27/03 1:10:58 PM Eastern Standard Time,

leonardleonard1@... writes:

>

> " may be the best nutritional food supplement....I've interviewed many

> patients,

> maybe a hundred, who have taken Haelan as the only form of cancer

treatment

> that

> helped them. Either it causes remissions, or...tumors...shrink and

> disappear....

[Guest guest]

I would love to know what list this is...would you email me with the

info? They are very biased..grrrrrrrrrr

Sherry

> Thank you for creating a list where I can go to vent. Thank you for

the wisdom and time it takes to find info and share it. Thank you for

the great advice everyone has gave me.

> Complaining to the list owner will do no good. The person who said

she would forward the e-mail is a list owner. Also the other owner

thinks I am whacked. Almost a year ago, a list member accused me of

not helping Nate's ADHD because he isn't medicated. I contacted her

off list and gave examples of how she had made the comment many

times. She insulted me and sent my e-mails to the list. I was

outraged but I am the one who got flamed. She didn't bother to send

her e-mail either. When I tried to defend myself, I was warned with

the possibility of being booted.

> I have learned that I different in almost all ways from everyone on

the list. My husband and I are simple people who don't care about

material items. We go without so I can stay home. I don't trust

doctors and believe they know all.

> But I stay with the list because I have been their for almost 8

years. It is the only list I have to talk about my son. I have

learned to stay away from hot items. I refuse to discuss hot items on

the list but some people like to keep it going. I think they do it to

try and show how smart they are while I am nothing. It used to bother

me. But I have learned to develop a thick skin and laugh at what they

don't know.

> ~`~Holly~`~

> iel (5/96) & Jenavieve (5/02)

> The truth is, if vaccinations work, then the vaccinated child has

nothing to fear from those not vaccinated.

>

>

>

[Guest guest]

Thanks for the info

Regrds n

>From: " " <lindaj@...>

>Reply-

>< >

>Subject: Re: Gut, Earth Dragon

>Date: Thu, 27 May 2004 16:59:20 -0500

>

>Both www.needs.com and www.vitaminshoppe.com carry them. They're both

>selling them for the same price.

>

>

>lindaj@...

>

> Gut, Earth Dragon

> > > >

> > > > I cannot tolerate Earth Dragon peptides.

> > > >

> > > > But my gut felt A LOT better when I was taking them.

> > > > They are supposedly a traditional remedy for gut probs.

> > > > in Asian countries. I think they are very worth a try.

> > > >

> > > > Zippy

> > > >

> > > >

> > > >

> > > >

> > > > This list is intended for patients to share personal experiences

>with

> > >each other, not to give medical advice. If you are interested in any

> > >treatment discussed here, please consult your doctor.

> > > >

[Guest guest]

Oh Penny,

What a wonderful daughter. I know your Dad appreciates it. I know

he appreciates your strength as well. Spend as much time as you can

and always let him feel loved. What a hard thing. I wish I could

have spent more time with my Mom, I'll forever be saddened by that.

I'm so sorry, it is a hard road you have in front of you, but you

will survive it. I know we will all be here for you! Trust me, the

hurt fades (slowly). We're here for you Penny!

Mike

> I JUST WANTED TO TAKE A MINUTE AND THANK YOU ALL FOR YOU THOUGHTS

> AND PRAYERS. DAD IS STILL IN THE HOSPITAL BUT I HAVE BEEN KEEPING

> MYSELF BUSY AT HIS HOUSE GETTING THE BACKROOM READY FOR WHEN HE

DOES

> COME HOME.THATS WHERE WE WILL BE PUTTING HIS HOSPITAL BED AS IT HAS

> A BEAUTIFUL VEIW OF THE LAKE .I WENT TO SEE HIM AT THE HOSPITAL AND

> HE SEEMS TO HAVE EXCEPTED HIS FATE INFACT HE WAS SO EXCEPTING IT

> UPSET ME HE WAS MAKING SILLY COMENNTS LIKE HOW HE IS GOING TO SAVE

A

> FORTUNE THIS CHRISTMAS . I KNOW IT IS HIS WAY OF DEALING WITH IT I

> GUESS I AM MORE LIKE HIM THEN I THOUGHT BECAUSE I DO THE SAME THING

> WHEN THINGS GET TO SERIOUS I HAVE TO SAY OR DO SOMETHING FUNNY TO

> LIGHTEN THE MOOD. WE HAD A FAMILY TALK AND MY DAD HAS TOLD US THAT

> IF HIS HEART WAS TO STOP (HE ALSO HAS BEEN DEALING WITH A ENLARGED

> HEART FOR THE LAST 10 YEARS) THAT HE DOES NOT WANT TO BE BROUGHT

> BACK BECUASE TO HIM IT WILL BE THE LESSER OF TO EVILS. WHY COME

BACK

> TO LET THE CANCER HAVE ITS WAY WITH HIM HE SAID .MY HEAD KNOWS

THATS

> THE BEST WAY NOW I JUST HAVE TO GET MY HEART TO UNDERSTAND I GUESS.

> I AM LOOKING FORWARD TO SPENDING AS MUCH TIME WITH HIM AS I CAN

WHEN

> HE COMES HOME . I HAVE LOTS OF WONDERFUL MEMORYS ALL READY BUT I AM

> LOOKING FORWARD TO MAKING AS MANY MORE AS I CAN WHILE HE IS STILL

> WITH ME THANKS AGAIN FOR THE PRAYERS PENNY

[Guest guest]

In a message dated 8/31/2004 9:11:18 AM Eastern Daylight Time, pennylevesque@... writes:

I HAVE LOTS OF WONDERFUL MEMORYS ALL READY BUT I AM LOOKING FORWARD TO MAKING AS MANY MORE AS I CAN WHILE HE IS STILL WITH ME THANKS AGAIN FOR THE PRAYERS PENNY

Penny,

When I read your post, a thought came to me about something that might be something to share with your dad. Perhaps you could go through old family photos and make a memory book or scrapbook that you could look at together. It's always a joy to look at pictures of time gone by, and maybe that might even help bring some sense of love and the power of family getting us through these painful times.

Hugs,

Jan from Northern KY

[Guest guest]

JAN

THANK YOU FOR THE IDEAS I ACTUALLY LEFT ALL OF THE PHOTO ABLUMS OUT

WHEN I CLEARED OUT THE BACK ROOM TO PAINT IT . I WAS LOOKING AT SOME

OF THEM TODAY AND THEY MADE ME SMILE TO SEE HOW MANY CRAZY THINGS WE

USED TO DO I REMEMBER WHEN I WAS PREGNANT FOR MY DAUGHTER I WANTED

COTTEN CANDY REALLY BAD AND IT WAS DEC BUT THAT DID NOT STOP MY DAD

HE WENT DOWN THE BASEMENT AND ABOUT 20 MINS LATER CAME UPSTAIRS AND

HANDED ME A GARBAGE BAG FULL OF COTTON CANDY .(WE HAVE ONE BECAUSE

MY UNCLE USED TO RUN HIS OWN LITTLE TRAVILING CARNEVAL ). UPON

HANDING ME THE BAG I WAS TOLD TO STOP WHINNING AND I HAD BETTER

PRODUCE A GRANDSON WELL I GOT THE COTTON CANDY AND HE GOT ANOTHER

GIRL TO SPOIL ROTTEN BUT HE DID NOT SEEM TO MIND HE LOVED HER JUST

AS MUCH AS HE WOULD IF SHE HAD BEEN A BOY . SEE THINKING ABOUT IT

AND IM SMILING AGAIN THANKS AGAIN FOR THE IDEAS PENNY

>

> In a message dated 8/31/2004 9:11:18 AM Eastern Daylight Time,

> pennylevesque@y... writes:

>

> I HAVE LOTS OF WONDERFUL MEMORYS ALL READY BUT I AM

> LOOKING FORWARD TO MAKING AS MANY MORE AS I CAN WHILE HE IS STILL

> WITH ME THANKS AGAIN FOR THE PRAYERS PENNY

>

>

>

>

> Penny,

> When I read your post, a thought came to me about something that

might be

> something to share with your dad. Perhaps you could go through

old family

> photos and make a memory book or scrapbook that you could look at

together. It's

> always a joy to look at pictures of time gone by, and maybe that

might even

> help bring some sense of love and the power of family getting us

through these

> painful times.

> Hugs,

> Jan from Northern KY

[Guest guest]

Hi - Just wanted to add my congratulations too. Like the old saying goes" the squeaky wheel gets the oil". That is an amazing turn of events eh! Whatever you did worked, but I'll bet you never thought you would hear from him again!!. Anyway I am happy for you that you will have the best surgeon doing the job for you after all and I hope and pray the results are as good as mine. I will be five years post-op on November 5th at which time I will see Dr. Finley for my annual check-up. We are off to sdale Arizona for the month of October. Leaving on the 1st, otherwise I would have popped up to see you at VGH. Nevertheless I will be thinking of you. Good Luck - I am sure everything will go great.

All the best and take good care of yourself.........., Vancouver BC.

Thanks

Thanks Maggie, Biancka, Rita, Jan and Sandy for your replies. I really can’t believe that this day is finally coming. I had my mind prepared for the wait, but my body was saying NO WAY!! I can’t believe that in a week from now, I will be one day post op… wow. Let’s all hope all goes well, and according to schedule… they have a history of bumping people here…

I think I will be able to keep up to date on things around here. Work can’t miss me, so they are lending me a laptop to work from home. How thoughtful…L !!! It will be great to have for this type of thing though! I don’t want to miss out on any one elses news!

Chilliwack, BC

[Guest guest]

cambfaye wrote:

>> Already this

>season, my partner has shelled out over $800 to de thaw and insolate !!!!

>

OUCH! When we had our frozen pipe the contractor (This guy was more like

our handyman - he did it all) got the pipe defrosted, and told us where

to go and what to buy to insulate the exposed pipes ourselves. We paid

less than $20 for all the insulating material and saved hundreds by

doing it ourselves. Thank goodness anything prone to freezing was within

easy reach. When my dad bought his first house 27 years ago and had a

frozen pipe, half a wall had to come down to find and fix it. What a mess!

Sue in NJ

[Guest guest]

Your story is all too true for most of us. Hang in there!! And most importantly keep searching for answers. I am amazed at how much I have learned about this disease just since 2 years ago and I fully credit every member of this group, because the answers that I could not get from the Doctors, I got right here in this family of fellow Achalasians. I hope you are still feeling somewhat better. Our thoughts and prayers are with you. Shelia and Tyler

[Guest guest]

Your warm glass of water sounds COMPLETELY familar.

> Thank you for your welcome. It is much appreciated. Thanks also for

> the web site. I will have a look at it.

> Am sitting at the computer drinking a tumbler of warm water. Does this

> sound like a familiar drink to others? I think of it as an attempt to

> clear my oesophagus of as much of the days " bits and pieces " as

> possible before I go to bed. Do others do this?

> Good vibes to all from ANN

[Guest guest]

I will never forget after my surgery, my first big drink of ice cold

apple juice!! Straight from heaven it was! I never have to drink warm

water anymore, a glass of cold water before bed is what I have, just to

make sure there is nothing lingering around! Your time will come too!

Janet.

> Thank you for your welcome. It is much appreciated. Thanks also for

> the web site. I will have a look at it.

> Am sitting at the computer drinking a tumbler of warm water. Does

this

> sound like a familiar drink to others? I think of it as an attempt to

> clear my oesophagus of as much of the days " bits and pieces " as

> possible before I go to bed. Do others do this?

> Good vibes to all from ANN

[Guest guest]

Dear , without this group I am totally lost in the dark about my desease Achalasia. the people in this group are really special to me. they are the only person who really understand what I feel what I going through for 20 years. they speak and comfort better than doctors around me. no one I can trust to give me advise about achalasia except people from this site. I really mean it. for more than 20 years I never see or know anyone in my country with the same desease. I want you to know that I really appreicate what you do. I wish you happiness and more success in your effort. This site make a difference in my life. Finally I have friends who really understand.. thank you, I sha Kuala Lumpur, Malaysia." H. " <dhhughes@...> wrote:Blank I would like to share some exciting news with the group. As some of you may know, I am the founder of this group, as well as, many other groups that make up the Global Health Network's International Support Community. I have spent many years working to develop a website (http://GlobalHealthNetwork.org) dedicated to providing information and support for people affected by various disabilities, diseases and disorders. Today, the Global Health Network offers over 700 support groups and serves more than 35,000 members around the world. Recently, I have become involved with a company called GENDIA, located in Belgium. GENDIA (http://www.Gendia.net) is an international network of genetic diagnostic labs whose goal is to help facilitate genetic testing. Together we are developing the GENDIA FOUNDATION, a non-profit organization, dedicated to assisting individuals in need of genetic testing and do not have the financial resources to afford such services. This is a global project and assistance will be provided to many individuals in undeveloped countries. In order to help raise awareness and funds for the Gendia Foundation, we have developed a line of promotional products as shown below. Funds will be used to help those who can not afford genetic testing and to support our outreach mission. To read more about the Gendia Foundation

and meet our Board of Directors click here....http://transglobalhealth.com/GENDIABD.mht T-Shirts - Cost $13 Back of T-Shirts (Includes listing of our top 100 Support Groups) To see a listing of our top 100 groups...click here 8oz Coffee Mugs - Cost $10 Legal or Letter Size Clip Boards - $12 8" Diameter Mouse Pads - $7 To order your shirt(s), please print and mail the following order form by November 30th. We will try to have your orders back to you by Christmas. http://transglobalhealth.com/orderform.htm H. 19icecream

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