Guest guest Posted February 3, 2000 Report Share Posted February 3, 2000 Hi Larkspurmr..... Welcome to the group! I have a son who will turn 14 this month..... he has OCD (as well as a bowl full of the alphabet soup), and he is dealing with the same issues that your son has been dealing with. He has been unable to go to school for over a year now. I would be interested to know more about the clinic that you brought your son to. Did you live nearby, or did you have to stay there for a month? Was your son in inpatient treatment? We are considering this option for our son and I would love to know everything that you can share to help us with our decision. You see..... you already have a lot to share..... I hope that we can offer you support and info. as well. Take care and welcome again! mary from La. ps Feel free to email me privately.... : ) larkspurmr@... wrote: > From: larkspurmr@... > > This is my first time here. I have a 14 yr. old son with OCD. He was diagnosed at 7. He is doing much better now but it has been a long, hard struggle for him. When he was first diagnosed, he was not able to leave the house and had to be schooled at home. Even that was a struggle for him. He couldn't touch the books and would have to wash many times. He also did checking, hoarding, magical thinking and scrupulosity. After two wrong diagnosis (separation anxiety and school phobia), he was diagnosed with OCD and we started him on medication. This helped somewhat but it was still difficult for him to go to school or leave the house; but at least he seemed to get some relief from the constant torment. We tried many different therapists who supposedly specialized in OCD but nothing seemed to help and the therapy with those doctors actually seemed to make him more anxious. When he was 9, we found a support group and that seemed to help him at least to know that he was not alone. > But school and the actual ocd thoughts and compulsions were still getting in the way of his everyday life. He avoided many things. After many horrific experiences with different therapists, I started inquiring about intensive exposure response programs. When he was 11, we went to Dr. Foa's intensive program for one month. There, we met the therapist that worked with my son and was able to connect with him and push through the resistance that other therapists could not. She truly knew what OCD was and understood it completely. My son saw this immediately. In the past he would tell us that we were wasting our money because the therapists were not helping him. They worked on contamination issues, hoarding and magical thinking. His whole life has changed since this therapy and none of the things he worked on have returned. He is now in school for almost a full day and is able to even have sleepovers at friends houses. Normal things for most kids but we think they are the > greatest things in the world! I'm glad to have found this board and hope I didn't write too much. > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2000 Report Share Posted February 3, 2000 Welcome! And thank you for sharing your inspiring success story. I am in the process of finding a new doc for my 12 yr old daughter (she's been diagnosed with ocd since age 9 but only takes meds, no CBT yet) and reading about your experience is very helpful. Do you think your son could explain what made the difference for him in terms of therapists? It seems like the old ones were working on the right things but not in the right way. I will be interviewing the new doc next week - do you have any suggestions for specific questions I should ask? It's great that your son's life changed so dramatically for the better. Sleepovers and returning to school are big accomplishments. You must be proud of him! Glad you're here. Dana in NC larkspurmr@... wrote: > From: larkspurmr@... > > This is my first time here. I have a 14 yr. old son with OCD. He was diagnosed at 7. He is doing much better now but it has been a long, hard struggle for him. When he was first diagnosed, he was not able to leave the house and had to be schooled at home. Even that was a struggle for him. He couldn't touch the books and would have to wash many times. He also did checking, hoarding, magical thinking and scrupulosity. After two wrong diagnosis (separation anxiety and school phobia), he was diagnosed with OCD and we started him on medication. This helped somewhat but it was still difficult for him to go to school or leave the house; but at least he seemed to get some relief from the constant torment. We tried many different therapists who supposedly specialized in OCD but nothing seemed to help and the therapy with those doctors actually seemed to make him more anxious. When he was 9, we found a support group and that seemed to help him at least to know that he was not alone. > But school and the actual ocd thoughts and compulsions were still getting in the way of his everyday life. He avoided many things. After many horrific experiences with different therapists, I started inquiring about intensive exposure response programs. When he was 11, we went to Dr. Foa's intensive program for one month. There, we met the therapist that worked with my son and was able to connect with him and push through the resistance that other therapists could not. She truly knew what OCD was and understood it completely. My son saw this immediately. In the past he would tell us that we were wasting our money because the therapists were not helping him. They worked on contamination issues, hoarding and magical thinking. His whole life has changed since this therapy and none of the things he worked on have returned. He is now in school for almost a full day and is able to even have sleepovers at friends houses. Normal things for most kids but we think they are the > greatest things in the world! I'm glad to have found this board and hope I didn't write too much. > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2000 Report Share Posted February 3, 2000 It is so encouraging to hear success stories! Thanks for writing. Judy larkspurmr@... wrote: > > From: larkspurmr@... > > This is my first time here. I have a 14 yr. old son with OCD. He was > diagnosed at 7. He is doing much better now but it has been a long, > hard struggle for him. When he was first diagnosed, he was not able > to leave the house and had to be schooled at home. Even that was a > struggle for him. He couldn't touch the books and would have to wash > many times. He also did checking, hoarding, magical thinking and > scrupulosity. After two wrong diagnosis (separation anxiety and > school phobia), he was diagnosed with OCD and we started him on > medication. This helped somewhat but it was still difficult for him > to go to school or leave the house; but at least he seemed to get some > relief from the constant torment. We tried many different therapists > who supposedly specialized in OCD but nothing seemed to help and the > therapy with those doctors actually seemed to make him more anxious. > When he was 9, we found a support group and that seemed to help him at > least to know that he was not alone. But school and the actual ocd > thoughts and compulsions were still getting in the way of his everyday > life. He avoided many things. After many horrific experiences with > different therapists, I started inquiring about intensive exposure > response programs. When he was 11, we went to Dr. Foa's intensive > program for one month. There, we met the therapist that worked with > my son and was able to connect with him and push through the > resistance that other therapists could not. She truly knew what OCD > was and understood it completely. My son saw this immediately. In > the past he would tell us that we were wasting our money because the > therapists were not helping him. They worked on contamination issues, > hoarding and magical thinking. His whole life has changed since this > therapy and none of the things he worked on have returned. He is now > in school for almost a full day and is able to even have sleepovers at > friends h! ! ouses. Normal things for most kids but we think they are > the greatest things in the world! I'm glad to have found this board > and hope I didn't write too much. > ---------------------------------------------------------------------- > [ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2000 Report Share Posted February 4, 2000 Hi! Welcome to the list!! I just found this list about a month ago. And I have to say I have been so glad that I did. There is lots of help and support to be found here. Thanks so much for sharing your son's story with us. It is so encouraging to hear stories like his. I am so happy for y'all. My son is 8 and was just diagnosed last month with OCD. He is mainly a washer. We have just started meds with him. He has seen his therapist only 3 times so we haven't been at this very long yet. Please tell us more about the clinic your son went to. Where was it located etc.?? Glad to meet ya! in Louisiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2000 Report Share Posted May 23, 2000 Tami, I am glad to see you writing again. I was on vacation and decided to read a few posts when I found out that your body decided to fight you. I was so concerned. Everybody in my family was praying for you. I went back to where I was reading email the next day and read more about you. I was relieved to hear that things were better than what they had been. I just want you to know that I have been thinking of you. I have missed your wonderful posts. Now, don't overdo it by posting too much. Like I have said before, a little Tami Light is a whole lot better than no Tami Light at all. I am glad to feel your radiance again! Get better soon! Shanni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2000 Report Share Posted May 23, 2000 Glad to hear you're doing better Tami. Was so surprised to see a post from you :-) Keep on taking good care of yourself and by the grace of God you'll be back here full time again :-) God bless you and your sweet little family. {{{HUGS}}},Bonnie **********************************************With God, ALL things are possible.********************************************** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2000 Report Share Posted May 23, 2000 Tami, how wonderful to hear that you are getting well. I have to say that your spirit is so positive during all of this. So glad that your family is doing well too. Now get off this computer and go rest! > What a wonderful and extremely warm May we are having here lately! I > have been reading the posts, not receiving any mail, but reading the > from the site and was so touched to see a question raised in regard > to my welfare. I am so pleased to report that I am doing better. > Today, it was necessary that I under go another minor surgery, and am > very glad to have that past me. > > My heart is still a cause of major concern, since the entire first > surgery has been considered invalid, due to some major errors on the > part of the team preforming the angiogram and angioplasty. > Unfortuneatly, I am bound to the bed, for the majority of the days, > but have found that the wonders and healing power of oxygen can most > definately cross over any such bounderies! > > I am so very sorry to have been forced to abandoned ship in this time > of many leaving. It was never my intention to cast such a burden on > the rest of you faithful listers, sometimes things happen though, > that are beyond our control. > > It is so fabulous to have the benefit of learning such a marvelous > means of exercise and toning, that it can even be extremely effective > done from the bed is extrodinary! It amazes me to see my body > remaining so very lean and trim, when it is nearly impossible for me > to walk farther than to the next room. Gals, this program really > does work, we must remember not to give up and to continue to breath, > even when we don't feel like it. No, let me change that, especially > when we don't feel like it! > > I will try to post again soon, and please know that I have thought > about you all and this list very often. Also, the children are doing > well and progressing with amazing ease, through the various trials > that life has set before them, as well as us all. My son is > performing with such beauty and skill as he endevours to perfect the > martials arts and my daughter is growing more and more beautiful by > the day, both inside and out. My incredible husband has been there > every step of the way for me and has yet to complain or leave my side > if I should need him there. What wonderful gifts I have been blessed > with, both with my children and husband. > > Well, that's about all for now. Please know that all is well and I > truly believe myself to be among the most fortunate and fulfilled > people alive. Life is great, remember to go out and live it to it's > fullest, sharing a smile along the way! > > Sincerely, > Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2000 Report Share Posted May 23, 2000 Hi Tami, It is good to hear from you but please do get some rest! We will be here when you are ready to come back. Your body needs time to heal. Our prayers are with you still :-). Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2000 Report Share Posted May 23, 2000 Oh Tami, how good it is to hear from you. And don't think for a minute that you let anyone down or jumped ship. You are very much in all our prayers and our only hope is for you to get your health back. We miss you teribly but want you to think of yourself for a change and build your strength up. God bless you and your wonderful family. Saying hello > What a wonderful and extremely warm May we are having here lately! I > have been reading the posts, not receiving any mail, but reading the > from the site and was so touched to see a question raised in regard > to my welfare. I am so pleased to report that I am doing better. > Today, it was necessary that I under go another minor surgery, and am > very glad to have that past me. > > My heart is still a cause of major concern, since the entire first > surgery has been considered invalid, due to some major errors on the > part of the team preforming the angiogram and angioplasty. > Unfortuneatly, I am bound to the bed, for the majority of the days, > but have found that the wonders and healing power of oxygen can most > definately cross over any such bounderies! > > I am so very sorry to have been forced to abandoned ship in this time > of many leaving. It was never my intention to cast such a burden on > the rest of you faithful listers, sometimes things happen though, > that are beyond our control. > > It is so fabulous to have the benefit of learning such a marvelous > means of exercise and toning, that it can even be extremely effective > done from the bed is extrodinary! It amazes me to see my body > remaining so very lean and trim, when it is nearly impossible for me > to walk farther than to the next room. Gals, this program really > does work, we must remember not to give up and to continue to breath, > even when we don't feel like it. No, let me change that, especially > when we don't feel like it! > > I will try to post again soon, and please know that I have thought > about you all and this list very often. Also, the children are doing > well and progressing with amazing ease, through the various trials > that life has set before them, as well as us all. My son is > performing with such beauty and skill as he endevours to perfect the > martials arts and my daughter is growing more and more beautiful by > the day, both inside and out. My incredible husband has been there > every step of the way for me and has yet to complain or leave my side > if I should need him there. What wonderful gifts I have been blessed > with, both with my children and husband. > > Well, that's about all for now. Please know that all is well and I > truly believe myself to be among the most fortunate and fulfilled > people alive. Life is great, remember to go out and live it to it's > fullest, sharing a smile along the way! > > Sincerely, > Tami > > > ------------------------------------------------------------------------ > Best friends, most artistic, class clown Find 'em here: > 1/4054/1/_/812636/_/959063489/ > ------------------------------------------------------------------------ > > Please use our list bookstore In Association with Amazon.com If you are looking for anything, please click on this link first! Thanks! http://www.amazon.com/exec/obidos/redirect-home/karmasrecommerea > > If you choose to read the messages from the web, then you might be interested in getting paid to do it. http://www.alladvantage.com/go.asp?refid=ICA-586 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 Hi Karyn, I too, have a 2 yo daughter with asd. Maybe you could list some of your daughters symptoms so we could offer some suggestions. Olivia is in IEP right now, twice a week. We are currently focusing on brushing to lessen her sensory issues. Also working on muscle tone as she's still not walking but scootches on her bum to get around. Welcome aboard. Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 > Hi is 2, will be 3 end of December. She was the perfect typical developing little angel, until around 10-11 months old. She started getting sick, had several ear infections,rounds and rounds of anti-biotics,chronic sinus probs, etc. I I have since learned that her old ped vaccinated her while she still had snti-biotics in her system!!!! I have also learned a great deal as far as what all else went wrong in the poor kids life with all this stuff. She is nonverbal, doesn't point, no way of making contact and doesn't like to. I quit my job last month, before I quit I went on Rimlands site, and took the ATEC questionaire. She scored a whopping 137. Since that time I have made it my mission to attack the problems that she has and I can honestly say it's working. In the month that I have been at home, we have implemented the GF/CF diet, started working on healing her gut and getting rid of yeasties, buggies, etc., ST, OT, and a home based ABA program. In one month she retested and scored a 73. We have a long way to go, but she is making progress everyday. That's where we are, and I guess I just wanted more feedback from those who have female children w/ASD. Everyone I know has a son, and most people on listserves that I'm a member of have sons. At some point the issues that we deal with will be different than it will be dealing with a boy. Just wanted to be able to have my hands in the cookie jar, so that I will get a little more than the crumbs. So to speak!!!! Thanks. Karyn > From: rhonda m pineau <scottron2@...> > Date: 2002/11/20 Wed AM 09:11:19 EST > Autism_in_Girls > Subject: Re: Saying " Hello " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 Welcome Karyn and Debi My name is Tracey and I have two daughters. Our oldest is Coral (nt), she is 12 and our youngest is Skylar age 10 and she was diagnosed as autistic and the age of 3. This is a great list full of support and advice. Its nice to have you with us. Tracey kleslie74 wrote: > Hi! > > My name is Karyn and I am a mother to a 2 yr old daughter with Autism > Spectrum Disorder. Right now, I am in the process of trying to > gather information on this disorder and decide what therapies would > best help her. I am leaning towards ABA, but am still open to any > suggestions or input any of you may have. > > Thanks in advance! > > Karyn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 Karyn, I very much recommend you also join the enzyme group. This is the most informative group I've come across so far. The people are extremely patient and unbelievable knowledgeable. I would also check out Andy Cutler's leaky gut protocol at www.kirkmanlabs.com sounds like your little one would apply to this study. Here's the enzyme group address: autism treatment@groups They have been so helpful for us. As for ABA, my OT also thinks this might be a bit too much for such young children. Good luck to you. Rhonda PS- As for the gf diet, please read the 7 month report on the enzymes group. Some people (lots in fact) seem to be able to toss the diet with the use of digestive enzymes. Not all, mind you, but enough that it's worth a try. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 You are definately starting off on the right track... starting early and exploring the different types of interventions and educational approaches is a smart thing.... sometimes the diets work....other times they have no effect....alot of parents try DMG first.,... it helps some kids makes other crawl the walls... The best advice I can give is to keep looking for information online...you'll get alot.... and try different approaches for education.....no one approach is 'right' for all kids with ASD's. Stay on top of the Schools....learn IDEA...and be prepared to make a firm stance on your educational requests.....Good luck to you.... I look forward to hearing more from you ! Mike ********************************************* The Office Of Advocacy for Autistic Children ********************************************* ----- We Need Your help to stay open ------- ********************************************** E. , Reg. U.S. Civil Rights Lobbyist Dir, OAAC Dir, C.O.P.S. <inquire about this> Lil Mikey's Daddy ============================ " We Speak for those who can not, we will fight relentlessly for the Civil Rights of all Children....disabled or not .. Globally " ============================ Contact Mike for free online advocacy here at this email address or call if you need immediate assistance at 808-845-7841 in Honolulu at my home office.......1659 Meyers Street Monolulu, HI 96819(send any doc's/donations here please)....... We offer parents up to 1 hour of free teleconference or phone advice. Due to increasing costs and lack of outside funding/donations(if you can send us either long distance phone cards or a small monetary donation to help cover office supplies and other costs..we would realy appreciate it), we are now asking for a min. donation of $300.00 to cover the costs of initiating the case and preparing the due process documents/discovery... for cases that go beyond the need of a phone conference or teleconferece with the district and require more than 1 hour of teleconference time, we ask for a donation based on the current situation. This is to cover the cost only... of the services we provide... we are a not for profit entity and work for children, not money. For informal help you can also call , our Chicago area rep at 217-586-7504, for free phone advocacy anytime. In person professional advocacy available on a case by case basis nationwide. We will be partnering up with a new attorney soon here in Hawaii where our office will be located, until then please call me at the 808 # if you need to.... don't hesitate. " Peace to the Children " - Mike ----------------------- >From: " kleslie74 " <kleslie74@...> >Reply-Autism_in_Girls >Autism_in_Girls >Subject: Saying " Hello " >Date: Wed, 20 Nov 2002 05:07:40 -0000 > >Hi! > >My name is Karyn and I am a mother to a 2 yr old daughter with Autism >Spectrum Disorder. Right now, I am in the process of trying to >gather information on this disorder and decide what therapies would >best help her. I am leaning towards ABA, but am still open to any >suggestions or input any of you may have. > >Thanks in advance! > >Karyn > _________________________________________________________________ Tired of spam? Get advanced junk mail protection with MSN 8. http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 Karyn, Hello !! My name is . I have 5 children (ages 14-19mos). My 4yr old daughter is autistic. We got her diagnosis @ 22mos. We have been doing ABAwith her since she was 2 1/2yrs old. We have recently increased her ABA hours to 25hrs in addition to getting speech, ot, music therapy & equistran therapy. She also attends a school that is geared for autistic children. The school has typical developmental peers as role models. We love the school because it provides the school environment & social skills that our home based ABA program cannot. We have noticed alot of improvements since we started the ABA. We have less behavioral problems when its time for her to work now compared to where she was when we started the program. In the past few months, her rate of mastering as rapidly taken off. It used to take her couple of weeks before she would learn a new program but now its taking her just a couple of days. Now don't get me wrong, we still have alot of days where she doesn't want to work or that we don't have her attention span. But the way I look at my daughter's therapies is that every therapy is one link to a chain & without every link the chain wouldn't be as strong. Saying " Hello " > Hi! > > My name is Karyn and I am a mother to a 2 yr old daughter with Autism > Spectrum Disorder. Right now, I am in the process of trying to > gather information on this disorder and decide what therapies would > best help her. I am leaning towards ABA, but am still open to any > suggestions or input any of you may have. > > Thanks in advance! > > Karyn > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 Karyn, I have a 3 yr old autistic daughter. We found that the gluten/casein free diet made a tremendous difference in her. In fact, she was non-verbal and within a week of removing dairy she said her first word she didn't lose, within 2 months she had over a 100 word vocab. We also do Super Nu-Thera and zinc vitamins from www.kirkmanlabs.com Discrete trials seems to be the way to go to teach Allie, but until we got her biological issues taken care of it didn't help much. Now she learns very quickly with discrete trials. One example was her occupational therapist trying to teach her to ride a trike. After two months of no success (I thought she was using discrete trials all along!) she took a d.t. seminar and within two weeks Allie was pedaling up and down the hallway. The final thing we have done for Allie is a tiny amount of paxil. She became very obsessive and anxious after a long period of development. For her these were debilitating. The paxil has taken the edges off in a big way and help her to function MUCH better. I'm also going to chelate in the next few months, still educating myself on that. HTH, Debi > Hi! > > My name is Karyn and I am a mother to a 2 yr old daughter with Autism > Spectrum Disorder. Right now, I am in the process of trying to > gather information on this disorder and decide what therapies would > best help her. I am leaning towards ABA, but am still open to any > suggestions or input any of you may have. > > Thanks in advance! > > Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 Rhonda, Allie didn't walk until about 17 mos, but after that she still preferred the floor and would crawl or scoot down steps at 22 mos. She also had very low muscle tone, but for Allie it seemed to be very vestibular. She also from birth would cry when she was placed on a changing table or diaper deck and prefered lying on the floor than being held. We found the therapy swing to have a major impact on her. When she first began we had to wrap her in her favorite quilt, play Accapella CD (very calming music), turn off the florescent lights, and I had to stay where she could see me (she still screamed the first few visits). We had occupational therapy 2 times/week, but my hubbie built a platform swing that we hang in our den. There were days that it seemed as if we were swinging all day long, but it made a huge difference in her. She hardly needs it at 3 yrs 4 mos, but it's an attraction for family/friends' kids who visit, lol. hope I've helped! Debi > Hi Karyn, > I too, have a 2 yo daughter with asd. Maybe you could list some of your > daughters symptoms so we could offer some suggestions. Olivia is in IEP > right now, twice a week. We are currently focusing on brushing to lessen > her sensory issues. Also working on muscle tone as she's still not > walking but scootches on her bum to get around. Welcome aboard. > Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Hello Everyone, It's been a while since I posted and I wanted to welcome our new members! Sounds like lots of fun being had out there learning how to Lifelift. Someone asked about the various Body Wrap products used on the breasts for reduction. I am very large breasted; I think by the age of 12 I was already a C Cup and they kept on growing. I do use all of Rashelle's body wrap products and will notice that my breasts don't feel quite as heavy as they used to. And the products do seem to help firm them a little too. As I lose weight; eventually the breast will get a bit smaller; but I do stay in the same cup size. Bonnie, you mentioned breast reduction; my little sister had that done a few years ago and she too said it was the best thing she did for herself; she is short and small framed and just couldn't hold them up any longer. LOL Thankfully, I'm taller and large framed so I carry my breasts better than she did. Someone asked about the Body Wrap products; how long they last, etc. That definately varies as to how often you use the products. When I'm able, I use them daily and they last about a month. I do use them from my face on down to the top of my feet. I never wrap my body when I use the products; so I cannot compare the difference in the inch loss. I love the convenience of using these products when getting dressed for the day; throw on support pantihose under my clothes and that keeps me warm and helps the product penetrate as well. I also sometimes use the product and then dress normally. No matter how you choose to use them; they are wonderful; all of them! As for the Comfrey Gel; this stuff is amazing. It helps wish skin rashes; and I have an allergy to the sun; any part of my body that is exposed to the sun gets an awful looking bumpy rash; I now use the Comfrey Gel on that and it helps the healing be a lot quicker. As for it being moisturizing; since it's Aloe vera I would assume it is; but Rashelle would be the one to answer that. I hope everyone is doing well and I will check in again hopefully sooner than later. : ) Take care all, Wanda. http://www.lifelift.net/cgi-bin/affiliates/clickthru.cgi?id=WinWithLifeLift --------------------------------- Discover Stay in touch with email, IM, photo sharing & more. Check it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 HI SWEETIE.. EVERYONE say hi to Colleen,, she is one of the good ppl out there,, IM so glad you came to the room,, you will like everyone in here..Its been a little slow lately but it will pick up,, so give it plenty of time,, and Liz will pop in soon to say hi,, You can reach me via email anytime too,, you know that! hugs jax"last.colleen" <last.colleen@...> wrote: Hi to all, I am Colleen and have come in upon the advice of Jackie (who is one of my heroes)Telling me that the people here are kind and "true". is in that "hero" category as they got me through tx last year. So hello to all.I hope to pass on the support to anyone who needs it as I know how badly I did when I was filled with fears and bad information when I first entered rooms like this in need of information and support. Sincerely, Colleen Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 Welcome Colleen! So nice to meet you. You are very welcome here! anne (moderator and Mother Hen) From: Hepatitis C [mailto:Hepatitis C ] On Behalf Of last.colleen Sent: Wednesday, 5 April 2006 1:22 PM To: Hepatitis C Subject: Saying Hello Hi to all, I am Colleen and have come in upon the advice of Jackie (who is one of my heroes)Telling me that the people here are kind and " true " . is in that " hero " category as they got me through tx last year. So hello to all.I hope to pass on the support to anyone who needs it as I know how badly I did when I was filled with fears and bad information when I first entered rooms like this in need of information and support. Sincerely, Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2006 Report Share Posted April 5, 2006 Welcome Colleen, I am super glad that Jackie invited you here. Yes Jackie and are my heroes too. As many of the members here are. You will come to appreciate and love them as much as I do. We are truly blessed to have members that are so wonderful and helpful to all that enter. Thank you for joining and I hope this is a beginning of a wonderful friendship with all the members here. Love Janet "last.colleen" <last.colleen@...> wrote: Hi to all, I am Colleen and have come in upon the advice of Jackie (who is one of my heroes)Telling me that the people here are kind and "true". is in that "hero" category as they got me through tx last year. So hello to all.I hope to pass on the support to anyone who needs it as I know how badly I did when I was filled with fears and bad information when I first entered rooms like this in need of information and support. Sincerely, Colleen There are souls in this world which have the gift of finding joy everywhere and of leaving it behind them when they go." -Frederick Faber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2006 Report Share Posted April 5, 2006 HI honey welcome to the group !! Glad to see you .. Saying Hello Hi to all, I am Colleen and have come in upon the advice of Jackie (who is one of my heroes)Telling me that the people here are kind and "true". is in that "hero" category as they got me through tx last year. So hello to all.I hope to pass on the support to anyone who needs it as I know how badly I did when I was filled with fears and bad information when I first entered rooms like this in need of information and support. Sincerely, Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2006 Report Share Posted April 5, 2006 Welcome Colleen...how'd your tx go? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2006 Report Share Posted April 5, 2006 > > Welcome Colleen...how'd your tx go? > > > Hi , I was txed for 6 months,finishing Nov.30.Unfortunately, I have a HUGE amount of unHEP related other medical problems which did really came out while I was treating. I did find that it wasn't 1/2 as bad as I was expecting though.I do think a big part of that was due to the great support I had at home and online and trying my best to remain positive in attitude as much as possible.I think fear and " expecting " everything to be bad makes it far worse for many people.Yes, I was very sick and had so many nasty sides but to me it was just a small part of the big picture and I think because I am used to illness I was able to endure it easier than some others are. I am very happy to say, I did clear and to date, remain so. My biggest complaint was that most doctors do not tell what to expect both during and post tx. I am still having some vision problems and some agoraphobia but each day I feel it easing more and more.I really think there should be more info given by the doctors so we are not freaked out when some of the stranger sides show up but I was very lucky to have online friends and between us we came up with some pretty good solutions to some problems the doctotrs were useless with. Are you txing now/have txed or will be in the future? Thank you for asking and I hope to hear how you are doing in your journey as well. Sincerley, Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2011 Report Share Posted December 14, 2011 Hi, I'm a newcomer to this forum, and I believe its usual to give a little information about one's thyroidal issues . Im 55 and live in Ireland and have been diagnosed hypothyroidal for about 4 years, but have been in trouble probably for 17 years. Looking back, I put the tiredness and other symptoms down to having small kids, general stressful life changes and getting older. By the time I was diagnosed I was having problems standing up and/or walking and was thought to have some sort of neurological disorder - MS or motor neurone. The diagnosis of hypo was seen as being a side-issue to the other problems (the GP prescribed 50mcg levo, rising to 100mcg eventually). Scans showed no signs of MS but the neurologist felt that I could be in the early stages of Motor Neurone and that a wait and see approach was the only route open to me - so I did what I could to make myself safe. I didn't go out without my husband, I made sure that wherever I went I didn't have to negotiate stairs or deal with crowds and I prepared to end up in a wheelchair - I actually would have welcomed that as at least I couldn't fall over! I then began to have panic attacks and this was kind of rock-bottom for me. I had been searching the internet for help but had been looking at neurological issues and hadn't found anything which confirmed, to my mind, that my problems were neurological. My feeling had been from the early stages of the balance issues that there was a strong emotional component to the problems (adrenals). I work as a psychotherapist so I would think that wouldn't I! I started to look at sites for thyroid sufferers and found that a lot of my balance symptoms could be attributed to the under active thyroid - muscles locking up, myasthenia. But the levo wasn't helping much, I was less tired but started to get chest pains on exercising. I asked my GP to send me for tests on my adrenals as it seemed that my panic attacks and dizziness were related to some sort of fatigue, which she duly did, but those tests came back negative. They did tell me that my iron was 'quite' low but as noone made a fuss about it I didn't bother either. I introduced Magnesium and B12 and felt much better very quickly, the muscle cramps went. I then asked my GP to prescribe armour for me as I had read good things about it. she knew nothing about it but the local pharmacist was already supplying armour to people in the area so she was willing to give me the prescription and I started taking it. Again I experienced a big improvement across the board but was still apt to get anxious and panicky and had balance problems. I also strated taking iron supplements and realised that when I took iron I felt much better - less gasping for air, no asthma, more energy. I eventually contacted Dr P in September this year and he told me to get Adrenal support and Progesterone along with the Armour and various vits and mins. The difference the introduction of those two made was miraculous really. I am 85% better but am now introducing T3 as I cannot get my Armour dose above 2 grains without chest pains. I feel tired/sleepy, lacking in physical vitality and am very overweight but things are good. I am looking for a little help with the T3 (I have ordered 's book but won't have it for another week). Dr P told me to cut the Armour to 1.5 grains and taking initially 10mcg T3 and over the next couple of weeks to raise the T3 to 20mcg and lower the armour. Now I realise that this is going to be a 'suck it and see' exercise and I'm fine with that, but I am feeling a little woosy with the T3. I started taking it yesterday so initially I had 1 grain of armour and then 10mcg T3. I didn't take any more armour yesterday as I ws feeling a bit jittery and hot. Today I have taken just the 10mcg T3 and no armour yet and I feel woosy and hottish. I need to add that for years now I have hardly sweated or felt hungry so the hot feeling may be actually normal and I tend not to eat much in the morning, as I don't feel hungry. Anyway, sorry for blathering on. It has been very useful for me to write this as I can see my progression to relative wellness pretty clearly and I hope I haven't put you all to sleep but any suggestions as to a sensible protocol for the T3 and Armour combination would be very welcome and I am looking for an iron supplement which works well and a reputable (and cheap) supplier of good vits and mins. The iron supplement which I found worked best for me was Lennons irondrops - ferric citrate - it is from South Africa and is a kind of old fashioned remedy for low iron, and I wondered if anyone else has heard of it and whether it is obtainable in uk/Europe? I will stop now. Thanks for reading Finola Quote Link to comment Share on other sites More sharing options...
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