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This was one child, who apparently turned out to have another issue other than the use of Speak, which has been consistently bad mouthed by since she left the company. Speak is expensive but mg for mg it works out cheaper than buying the bits seperately. often goes on about what a high dose of Vitamin K it is when its a fraction of what you give on the K protocol and the amount of Vitamin E is less than we would give for weight based on Cutler recommendations. Link to article about EFA/Vit E

http://www.apraxiaresearch.com/new-study-released

Mandi x

You might want to look up the archive (c2008) in the childrensapraxia.net a couple of years back some trialled a supp. called Speak which was v. high Vit E and Omegas some of the kids got seizures after taking this,

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Mandi,

I just googled 'vitamin e protocol autism', and it seems like there

is a protocol - but I can't get onto the website!  There also seems

to be a lot of information about vitamin e and improvements in

epilepsy.

 

I don't know what it is, do you have a link?

 

Mandi x

 

In a message dated 11/12/2010 21:01:21 GMT

Standard Time, jane_hogan@... writes:

 

I'd be really interested to hear experiences

of using the vit e protocol.  Has anyone had

improvements or side effects?

Link to comment
Share on other sites

Mandi,

I just googled 'vitamin e protocol autism', and it seems like there

is a protocol - but I can't get onto the website!  There also seems

to be a lot of information about vitamin e and improvements in

epilepsy.

 

I don't know what it is, do you have a link?

 

Mandi x

 

In a message dated 11/12/2010 21:01:21 GMT

Standard Time, jane_hogan@... writes:

 

I'd be really interested to hear experiences

of using the vit e protocol.  Has anyone had

improvements or side effects?

Link to comment
Share on other sites

Mandi,

I just googled 'vitamin e protocol autism', and it seems like there

is a protocol - but I can't get onto the website!  There also seems

to be a lot of information about vitamin e and improvements in

epilepsy.

 

I don't know what it is, do you have a link?

 

Mandi x

 

In a message dated 11/12/2010 21:01:21 GMT

Standard Time, jane_hogan@... writes:

 

I'd be really interested to hear experiences

of using the vit e protocol.  Has anyone had

improvements or side effects?

Link to comment
Share on other sites

www.ncbi.nlm.nih.gov/pubmed/19623831

  there appears to be a lot of info suggesting links between vit e

and omegas 3 6 and 9 and improvements in speech.

 

I don't know what it is, do you have a link?

 

Mandi x

 

In a message dated 11/12/2010 21:01:21 GMT

Standard Time, jane_hogan@... writes:

 

I'd be really interested to hear experiences

of using the vit e protocol.  Has anyone had

improvements or side effects?

Link to comment
Share on other sites

www.ncbi.nlm.nih.gov/pubmed/19623831

  there appears to be a lot of info suggesting links between vit e

and omegas 3 6 and 9 and improvements in speech.

 

I don't know what it is, do you have a link?

 

Mandi x

 

In a message dated 11/12/2010 21:01:21 GMT

Standard Time, jane_hogan@... writes:

 

I'd be really interested to hear experiences

of using the vit e protocol.  Has anyone had

improvements or side effects?

Link to comment
Share on other sites

www.ncbi.nlm.nih.gov/pubmed/19623831

  there appears to be a lot of info suggesting links between vit e

and omegas 3 6 and 9 and improvements in speech.

 

I don't know what it is, do you have a link?

 

Mandi x

 

In a message dated 11/12/2010 21:01:21 GMT

Standard Time, jane_hogan@... writes:

 

I'd be really interested to hear experiences

of using the vit e protocol.  Has anyone had

improvements or side effects?

Link to comment
Share on other sites

You might want to look up the archive (c2008) in the childrensapraxia.net a couple of years back some trialled a supp. called Speak which was v. high Vit E and Omegas some of the kids got seizures after taking this,

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Share on other sites

You might want to look up the archive (c2008) in the childrensapraxia.net a couple of years back some trialled a supp. called Speak which was v. high Vit E and Omegas some of the kids got seizures after taking this,

Link to comment
Share on other sites

You might want to look up the archive (c2008) in the childrensapraxia.net a couple of years back some trialled a supp. called Speak which was v. high Vit E and Omegas some of the kids got seizures after taking this,

Link to comment
Share on other sites

Just responding to the Vitamin E. Some Vitamin E is based on soy which affects the thyroid so look for supplements without this. I suspect that a lot of the bad press on Vitamin E is NOT because Vit E is itself bad but because the authors have unwittingly (or purposely) used soy based supplements.Subject: Re: Re:vitamin ETo: Autism-Biomedical-Europe Date: Sunday, 12 December, 2010, 1:00

This was one child, who apparently turned out to have another issue other than the use of Speak, which has been consistently bad mouthed by since she left the company. Speak is expensive but mg for mg it works out cheaper than buying the bits seperately. often goes on about what a high dose of Vitamin K it is when its a fraction of what you give on the K protocol and the amount of Vitamin E is less than we would give for weight based on Cutler recommendations. Link to article about EFA/Vit E

http://www.apraxiaresearch.com/new-study-released

Mandi x

You might want to look up the archive (c2008) in the childrensapraxia.net a couple of years back some trialled a supp. called Speak which was v. high Vit E and Omegas some of the kids got seizures after taking this,

Link to comment
Share on other sites

Just responding to the Vitamin E. Some Vitamin E is based on soy which affects the thyroid so look for supplements without this. I suspect that a lot of the bad press on Vitamin E is NOT because Vit E is itself bad but because the authors have unwittingly (or purposely) used soy based supplements.Subject: Re: Re:vitamin ETo: Autism-Biomedical-Europe Date: Sunday, 12 December, 2010, 1:00

This was one child, who apparently turned out to have another issue other than the use of Speak, which has been consistently bad mouthed by since she left the company. Speak is expensive but mg for mg it works out cheaper than buying the bits seperately. often goes on about what a high dose of Vitamin K it is when its a fraction of what you give on the K protocol and the amount of Vitamin E is less than we would give for weight based on Cutler recommendations. Link to article about EFA/Vit E

http://www.apraxiaresearch.com/new-study-released

Mandi x

You might want to look up the archive (c2008) in the childrensapraxia.net a couple of years back some trialled a supp. called Speak which was v. high Vit E and Omegas some of the kids got seizures after taking this,

Link to comment
Share on other sites

Just responding to the Vitamin E. Some Vitamin E is based on soy which affects the thyroid so look for supplements without this. I suspect that a lot of the bad press on Vitamin E is NOT because Vit E is itself bad but because the authors have unwittingly (or purposely) used soy based supplements.Subject: Re: Re:vitamin ETo: Autism-Biomedical-Europe Date: Sunday, 12 December, 2010, 1:00

This was one child, who apparently turned out to have another issue other than the use of Speak, which has been consistently bad mouthed by since she left the company. Speak is expensive but mg for mg it works out cheaper than buying the bits seperately. often goes on about what a high dose of Vitamin K it is when its a fraction of what you give on the K protocol and the amount of Vitamin E is less than we would give for weight based on Cutler recommendations. Link to article about EFA/Vit E

http://www.apraxiaresearch.com/new-study-released

Mandi x

You might want to look up the archive (c2008) in the childrensapraxia.net a couple of years back some trialled a supp. called Speak which was v. high Vit E and Omegas some of the kids got seizures after taking this,

Link to comment
Share on other sites

- ' son (co-author of this) was v. allergic to soy and was the main proponent of Vit E on the childrensapraxia group also i think she was one of the main scientific advisor's to the co. that developed the Speak supplement so the group were certainly aware of the Soy/E issue. As far as I recall it was quite a few more than 1 child adversely affected but I suppose that goes for any supplement - just wanted to flag up that it is a risk to be weighed when considering. I think the original amounts of Vitamin E in Speak per day amounted to well over 800iu but I haven't checked and maybe they have changed it since in response to that unofficial trial with childrensapraxia group members. To: Autism-Biomedical-Europe Sent: Sun, 12 December, 2010 11:13:15Subject: Re: Re:vitamin E

Just responding to the Vitamin E. Some Vitamin E is based on soy which affects the thyroid so look for supplements without this. I suspect that a lot of the bad press on Vitamin E is NOT because Vit E is itself bad but because the authors have unwittingly (or purposely) used soy based supplements.Subject: Re: Re:vitamin ETo: Autism-Biomedical-Europe Date: Sunday, 12 December, 2010, 1:00

This was one child, who apparently turned out to have another issue other than the use of Speak, which has been consistently bad mouthed by since she left the company. Speak is expensive but mg for mg it works out cheaper than buying the bits seperately. often goes on about what a high dose of Vitamin K it is when its a fraction of what you give on the K protocol and the amount of Vitamin E is less than we would give for weight based on Cutler recommendations. Link to article about EFA/Vit E

http://www.apraxiaresearch.com/new-study-released

Mandi x

You might want to look up the archive (c2008) in the childrensapraxia.net a couple of years back some trialled a supp. called Speak which was v. high Vit E and Omegas some of the kids got seizures after taking this,

Link to comment
Share on other sites

- ' son (co-author of this) was v. allergic to soy and was the main proponent of Vit E on the childrensapraxia group also i think she was one of the main scientific advisor's to the co. that developed the Speak supplement so the group were certainly aware of the Soy/E issue. As far as I recall it was quite a few more than 1 child adversely affected but I suppose that goes for any supplement - just wanted to flag up that it is a risk to be weighed when considering. I think the original amounts of Vitamin E in Speak per day amounted to well over 800iu but I haven't checked and maybe they have changed it since in response to that unofficial trial with childrensapraxia group members. To: Autism-Biomedical-Europe Sent: Sun, 12 December, 2010 11:13:15Subject: Re: Re:vitamin E

Just responding to the Vitamin E. Some Vitamin E is based on soy which affects the thyroid so look for supplements without this. I suspect that a lot of the bad press on Vitamin E is NOT because Vit E is itself bad but because the authors have unwittingly (or purposely) used soy based supplements.Subject: Re: Re:vitamin ETo: Autism-Biomedical-Europe Date: Sunday, 12 December, 2010, 1:00

This was one child, who apparently turned out to have another issue other than the use of Speak, which has been consistently bad mouthed by since she left the company. Speak is expensive but mg for mg it works out cheaper than buying the bits seperately. often goes on about what a high dose of Vitamin K it is when its a fraction of what you give on the K protocol and the amount of Vitamin E is less than we would give for weight based on Cutler recommendations. Link to article about EFA/Vit E

http://www.apraxiaresearch.com/new-study-released

Mandi x

You might want to look up the archive (c2008) in the childrensapraxia.net a couple of years back some trialled a supp. called Speak which was v. high Vit E and Omegas some of the kids got seizures after taking this,

Link to comment
Share on other sites

- ' son (co-author of this) was v. allergic to soy and was the main proponent of Vit E on the childrensapraxia group also i think she was one of the main scientific advisor's to the co. that developed the Speak supplement so the group were certainly aware of the Soy/E issue. As far as I recall it was quite a few more than 1 child adversely affected but I suppose that goes for any supplement - just wanted to flag up that it is a risk to be weighed when considering. I think the original amounts of Vitamin E in Speak per day amounted to well over 800iu but I haven't checked and maybe they have changed it since in response to that unofficial trial with childrensapraxia group members. To: Autism-Biomedical-Europe Sent: Sun, 12 December, 2010 11:13:15Subject: Re: Re:vitamin E

Just responding to the Vitamin E. Some Vitamin E is based on soy which affects the thyroid so look for supplements without this. I suspect that a lot of the bad press on Vitamin E is NOT because Vit E is itself bad but because the authors have unwittingly (or purposely) used soy based supplements.Subject: Re: Re:vitamin ETo: Autism-Biomedical-Europe Date: Sunday, 12 December, 2010, 1:00

This was one child, who apparently turned out to have another issue other than the use of Speak, which has been consistently bad mouthed by since she left the company. Speak is expensive but mg for mg it works out cheaper than buying the bits seperately. often goes on about what a high dose of Vitamin K it is when its a fraction of what you give on the K protocol and the amount of Vitamin E is less than we would give for weight based on Cutler recommendations. Link to article about EFA/Vit E

http://www.apraxiaresearch.com/new-study-released

Mandi x

You might want to look up the archive (c2008) in the childrensapraxia.net a couple of years back some trialled a supp. called Speak which was v. high Vit E and Omegas some of the kids got seizures after taking this,

Link to comment
Share on other sites

How important is it when chelating?

 

- ' son (co-author of this) was

v. allergic to soy and was the main proponent of Vit E

on the childrensapraxia group also i think she was one

of the main scientific advisor's to the co. that

developed the Speak supplement so the group were

certainly aware of the Soy/E issue. As far as I recall

it was quite a few more than 1 child adversely affected

but I suppose that goes for any supplement - just wanted

to flag up that it is a risk to be weighed when

considering. I think the original amounts of Vitamin E

in Speak per day amounted to well over 800iu but I

haven't checked and maybe they have changed it since in

response to that unofficial trial with childrensapraxia

group members.

From:

JULIE GRIFFITHS

To:

Autism-Biomedical-Europe

Sent:

Sun, 12 December, 2010 11:13:15

Subject:

Re: Re:vitamin E

 

Just

responding to the Vitamin E. Some Vitamin

E is based on soy which affects the

thyroid so look for supplements without

this. I suspect that  a lot of the bad

press on Vitamin E is NOT because Vit E is

itself bad but because the authors have

unwittingly (or purposely) used soy based

supplements.

From: Mum231ASD@...

Subject: Re:

Re:vitamin E

To:

Autism-Biomedical-Europe

Date: Sunday, 12 December, 2010, 1:00

 

This was one child, who

apparently turned out to have

another issue other than the use

of Speak, which has been

consistently bad mouthed by

since she left the company.

Speak is expensive but mg for mg

it works out cheaper than buying

the bits seperately. often

goes on about what a high dose

of Vitamin K it is when its a

fraction of what you give on the

K protocol and the amount of

Vitamin E is less than we would

give for weight based on Cutler

recommendations. Link to article

about EFA/Vit E

 

http://www.apraxiaresearch.com/new-study-released

 

Mandi x

 

In a message dated

11/12/2010 23:21:52 GMT

Standard Time,

catherine_castiglione@...

writes:

You might want to look

up the archive (c2008) in

the childrensapraxia.net a

couple of years back some

trialled a supp. called

Speak which was v. high

Vit E and Omegas some of

the kids got seizures

after taking this,

Geng's son was affected in

some way so you could try

contacting her through the

message board or their

page on Facebook. In the

US high d-gamma E is much

easier to get - mean't to

be better than d-alpha.

Link to comment
Share on other sites

How important is it when chelating?

 

- ' son (co-author of this) was

v. allergic to soy and was the main proponent of Vit E

on the childrensapraxia group also i think she was one

of the main scientific advisor's to the co. that

developed the Speak supplement so the group were

certainly aware of the Soy/E issue. As far as I recall

it was quite a few more than 1 child adversely affected

but I suppose that goes for any supplement - just wanted

to flag up that it is a risk to be weighed when

considering. I think the original amounts of Vitamin E

in Speak per day amounted to well over 800iu but I

haven't checked and maybe they have changed it since in

response to that unofficial trial with childrensapraxia

group members.

From:

JULIE GRIFFITHS

To:

Autism-Biomedical-Europe

Sent:

Sun, 12 December, 2010 11:13:15

Subject:

Re: Re:vitamin E

 

Just

responding to the Vitamin E. Some Vitamin

E is based on soy which affects the

thyroid so look for supplements without

this. I suspect that  a lot of the bad

press on Vitamin E is NOT because Vit E is

itself bad but because the authors have

unwittingly (or purposely) used soy based

supplements.

From: Mum231ASD@...

Subject: Re:

Re:vitamin E

To:

Autism-Biomedical-Europe

Date: Sunday, 12 December, 2010, 1:00

 

This was one child, who

apparently turned out to have

another issue other than the use

of Speak, which has been

consistently bad mouthed by

since she left the company.

Speak is expensive but mg for mg

it works out cheaper than buying

the bits seperately. often

goes on about what a high dose

of Vitamin K it is when its a

fraction of what you give on the

K protocol and the amount of

Vitamin E is less than we would

give for weight based on Cutler

recommendations. Link to article

about EFA/Vit E

 

http://www.apraxiaresearch.com/new-study-released

 

Mandi x

 

In a message dated

11/12/2010 23:21:52 GMT

Standard Time,

catherine_castiglione@...

writes:

You might want to look

up the archive (c2008) in

the childrensapraxia.net a

couple of years back some

trialled a supp. called

Speak which was v. high

Vit E and Omegas some of

the kids got seizures

after taking this,

Geng's son was affected in

some way so you could try

contacting her through the

message board or their

page on Facebook. In the

US high d-gamma E is much

easier to get - mean't to

be better than d-alpha.

Link to comment
Share on other sites

How important is it when chelating?

 

- ' son (co-author of this) was

v. allergic to soy and was the main proponent of Vit E

on the childrensapraxia group also i think she was one

of the main scientific advisor's to the co. that

developed the Speak supplement so the group were

certainly aware of the Soy/E issue. As far as I recall

it was quite a few more than 1 child adversely affected

but I suppose that goes for any supplement - just wanted

to flag up that it is a risk to be weighed when

considering. I think the original amounts of Vitamin E

in Speak per day amounted to well over 800iu but I

haven't checked and maybe they have changed it since in

response to that unofficial trial with childrensapraxia

group members.

From:

JULIE GRIFFITHS

To:

Autism-Biomedical-Europe

Sent:

Sun, 12 December, 2010 11:13:15

Subject:

Re: Re:vitamin E

 

Just

responding to the Vitamin E. Some Vitamin

E is based on soy which affects the

thyroid so look for supplements without

this. I suspect that  a lot of the bad

press on Vitamin E is NOT because Vit E is

itself bad but because the authors have

unwittingly (or purposely) used soy based

supplements.

From: Mum231ASD@...

Subject: Re:

Re:vitamin E

To:

Autism-Biomedical-Europe

Date: Sunday, 12 December, 2010, 1:00

 

This was one child, who

apparently turned out to have

another issue other than the use

of Speak, which has been

consistently bad mouthed by

since she left the company.

Speak is expensive but mg for mg

it works out cheaper than buying

the bits seperately. often

goes on about what a high dose

of Vitamin K it is when its a

fraction of what you give on the

K protocol and the amount of

Vitamin E is less than we would

give for weight based on Cutler

recommendations. Link to article

about EFA/Vit E

 

http://www.apraxiaresearch.com/new-study-released

 

Mandi x

 

In a message dated

11/12/2010 23:21:52 GMT

Standard Time,

catherine_castiglione@...

writes:

You might want to look

up the archive (c2008) in

the childrensapraxia.net a

couple of years back some

trialled a supp. called

Speak which was v. high

Vit E and Omegas some of

the kids got seizures

after taking this,

Geng's son was affected in

some way so you could try

contacting her through the

message board or their

page on Facebook. In the

US high d-gamma E is much

easier to get - mean't to

be better than d-alpha.

Link to comment
Share on other sites

Forgive for my ignorance,

but it seems very difficult to get non-soy, non-synthetic vit E if anyone knows

of such a source I would be grateful.

Kenny

>

>

> Subject: Re: Re:vitamin E

> To: Autism-Biomedical-Europe

> Date: Sunday, 12 December, 2010, 1:00

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

>

>

>

> This was one child, who apparently turned out to have another issue other

> than the use of Speak, which has been consistently bad mouthed by since

she

> left the company. Speak is expensive but mg for mg it works out cheaper than

> buying the bits seperately. often goes on about what a high dose of

Vitamin

> K it is when its a fraction of what you give on the K protocol and the amount

of

> Vitamin E is less than we would give for weight based on Cutler

recommendations.

> Link to article about EFA/Vit E

>  

> http://www.apraxiaresearch.com/new-study-released

>  

> Mandi x

>  

>

> In a message dated 11/12/2010 23:21:52 GMT Standard Time,

> catherine_castiglione@... writes:

>

> You might want to look up the archive (c2008) in the childrensapraxia.net

> a couple of years back some trialled a supp. called Speak which was v. high

> Vit E and Omegas some of the kids got seizures after taking this,

Geng's

> son was affected in some way so you could try contacting her through the

> message board or their page on Facebook. In the US high d-gamma E is much

> easier to get - mean't to be better than d-alpha.

>

>

Link to comment
Share on other sites

Forgive for my ignorance,

but it seems very difficult to get non-soy, non-synthetic vit E if anyone knows

of such a source I would be grateful.

Kenny

>

>

> Subject: Re: Re:vitamin E

> To: Autism-Biomedical-Europe

> Date: Sunday, 12 December, 2010, 1:00

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

>

>

>

> This was one child, who apparently turned out to have another issue other

> than the use of Speak, which has been consistently bad mouthed by since

she

> left the company. Speak is expensive but mg for mg it works out cheaper than

> buying the bits seperately. often goes on about what a high dose of

Vitamin

> K it is when its a fraction of what you give on the K protocol and the amount

of

> Vitamin E is less than we would give for weight based on Cutler

recommendations.

> Link to article about EFA/Vit E

>  

> http://www.apraxiaresearch.com/new-study-released

>  

> Mandi x

>  

>

> In a message dated 11/12/2010 23:21:52 GMT Standard Time,

> catherine_castiglione@... writes:

>

> You might want to look up the archive (c2008) in the childrensapraxia.net

> a couple of years back some trialled a supp. called Speak which was v. high

> Vit E and Omegas some of the kids got seizures after taking this,

Geng's

> son was affected in some way so you could try contacting her through the

> message board or their page on Facebook. In the US high d-gamma E is much

> easier to get - mean't to be better than d-alpha.

>

>

Link to comment
Share on other sites

Forgive for my ignorance,

but it seems very difficult to get non-soy, non-synthetic vit E if anyone knows

of such a source I would be grateful.

Kenny

>

>

> Subject: Re: Re:vitamin E

> To: Autism-Biomedical-Europe

> Date: Sunday, 12 December, 2010, 1:00

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

>

>

>

> This was one child, who apparently turned out to have another issue other

> than the use of Speak, which has been consistently bad mouthed by since

she

> left the company. Speak is expensive but mg for mg it works out cheaper than

> buying the bits seperately. often goes on about what a high dose of

Vitamin

> K it is when its a fraction of what you give on the K protocol and the amount

of

> Vitamin E is less than we would give for weight based on Cutler

recommendations.

> Link to article about EFA/Vit E

>  

> http://www.apraxiaresearch.com/new-study-released

>  

> Mandi x

>  

>

> In a message dated 11/12/2010 23:21:52 GMT Standard Time,

> catherine_castiglione@... writes:

>

> You might want to look up the archive (c2008) in the childrensapraxia.net

> a couple of years back some trialled a supp. called Speak which was v. high

> Vit E and Omegas some of the kids got seizures after taking this,

Geng's

> son was affected in some way so you could try contacting her through the

> message board or their page on Facebook. In the US high d-gamma E is much

> easier to get - mean't to be better than d-alpha.

>

>

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