Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 Have just received the same email and came straight on here to see if there was any news. Trying not to panic ... I don't want to be forced back on to Levo! Babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 Me too I'm absolutely gutted, I was just starting to feel normal, and my doctors won't give me a prescription. I'm intolerant to levo, and the doctors were more or less just leaving me to die. I have no idea what I'm supposed to do now! > > Have just received the same email and came straight on here to see if there was any news. > Trying not to panic ... I don't want to be forced back on to Levo! > > Babs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 HI LILIAN Is this just the start, and could this happen even to T3, and would Sheila be aware of this. If GP'S will not provide a prescription on NHS then patients are being forced to have a private prescription which will add even more to the cost. Kathleen > > I have just placed an order for Erfa with Value Pharmaceuticals and have today received this email:- > > Dear Valued Customer, > Due to recent changes in regulation, Value Pharmaceuticals will no longer be able to accept a personal declaration for prescription products. We will require a prescription for all prescription medications. Prescriptions can be faxed to 1-800-234-9185 or emailed in to prescription@... > Lilian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 Hi Lilian, I think this is what the US Congress has been fighting for recently..... I didn't know it was now law but if it is, it means you will have to buy from elsewhere. We need to step up the campaign for proper treatment in this country. Sheila already contacts people all the time and is a thorn in the side of the medical establishment...... but more of us need to do the same....... unfortunately we are frequently ignored by our doctors...... DR Skinner's recent exoneration at the GMC shows that hs methods of treating patients are acceptable and there are no reasons why patients should not be treated properly..... We need to make sure we all understand why he was exonetated, what the proper protocol is for treatment and then get this message over to our doctors.... A good place to start is here: http://www.tpa-uk.org.uk/skinner_hearing_transcripts.php I know you can't get Erfa from them, but what about trying pharmacies in Vanwatu and Mexico? They sell other brands of NT. x > > HI LILIAN > Is this just the start, and could this happen even to T3, and would Sheila be aware of this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 I have just written to Value Pharmaceuticals asking if this applies to customers from the UK as we have not had to produce a prescription before. I will let you know what their response is as soon as I receive it. Luv - Sheila I have just placed an order for Erfa with Value Pharmaceuticals and have today received this email:- Dear Valued Customer, Due to recent changes in regulation, Value Pharmaceuticals will no longer be able to accept a personal declaration for prescription products. We will require a prescription for all prescription medications. Prescriptions can be faxed to 1-800-234-9185 or emailed in to prescription@... If necessary we can contact your physician directly for a new prescription, we will just require your Doctor’s name, State, Country and Phone number. This change will go into effect as of January 10th, 2012. We thank you for your continued patronage and look forward to working with you in the future. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 i don't know what'll happen now either, it's bad news though. they will likely lose a lot of customers. there are still the Thai NDTs that some take with good results? time to stock up? chris > > I have just placed an order for Erfa with Value Pharmaceuticals and have today received this email:- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 HI SHEILA You say it is legal for a GP to prescribe T3, but when I was tried on the NHS T3 I did not do very well on it. It could have been how it was prescribed or due to the different ingredients in it, but I would hate to be cut off from my Mexican T3.Dr Peatfield even says that the Mexican brand is better than the NHS supplied T3. I hope we are not going to be faced with an all round problem in obtaining drugs from abroad. Kathleen > > I do not see how or why a doctor could refuse a prescription for synthetic > T3, either alone or in combination with levothyroxine. This is legal and > available and published in the British National Formulary as prescribable > for those suffering with hypothyroidism. GP's must be made to write their > reasons why they refuse to prescribe this medication. > > Luv - Sheila > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 The problem with stocking up is that the use by dates aren't that long. The one I have just now expires on 11/2012 and will probably last me until September time. It's a big financial gamble to take to stock up and hope for 2013/2014 use by dates :-/ Thanks for following up Sheila. Keep us posted. Babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 Mine are mid 2013, bought 2 months ago. You can freeze them, too, that may extend the life... > > The problem with stocking up is that the use by dates aren't that long. The one I have just now expires on 11/2012 and will probably last me until September time. It's a big financial gamble to take to stock up and hope for 2013/2014 use by dates :-/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 So now its gonna cost me even more :-( been trying to buy but it will not let me. So now will have to get a private prescription on top. Will they stop charging us VAT if we use a prescription? Carol > > The problem with stocking up is that the use by dates aren't that long. The one I have just now expires on 11/2012 and will probably last me until September time. It's a big financial gamble to take to stock up and hope for 2013/2014 use by dates :-/ > > Thanks for following up Sheila. Keep us posted. > > Babs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 I have had the same email, just seen it and came straight on here to see if anyone else had I have just placed an order for Erfa with Value Pharmaceuticals and have today received this email:- Dear Valued Customer, Due to recent changes in regulation, Value Pharmaceuticals will no longer be able to accept a personal declaration for prescription products. We will require a prescription for all prescription medications. Prescriptions can be faxed to 1-800-234-9185 or emailed in to prescription@... If necessary we can contact your physician directly for a new prescription, we will just require your Doctor’s name, State, Country and Phone number. This change will go into effect as of January 10th, 2012. We thank you for your continued patronage and look forward to working with you in the future. So what now? Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 Hi Kathleen, I too don't do well on NHS T3. I started taking Mexican T3 and told my endo and asked if he would ask my GP to prescribe it which he did. Just a shame its not effective for me. I have no idea why? Just ordered from Mexico, if I had read all this before would have ordered more. Judy > > HI SHEILA > You say it is legal for a GP to prescribe T3, but when I was tried on the NHS T3 I did not do very well on it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 I saw this today and was worried too - I thought it might be pressure from foreign governments (mainly the US) that don't want it to be legal in other countries to sell prescription meds without prescriptions. Does anyone get erfa from another country without a prescription? I don't know what I will do without the erfa. I have extra bottles of Thyroid-s sitting around that I was going to try if erfa didn't work, and now I don't know what to do with those, but I'd really rather not switch now that I found something that is working for me. > > I have just placed an order for Erfa with Value Pharmaceuticals and have today received this email:- > > Dear Valued Customer, > Due to recent changes in regulation, Value Pharmaceuticals will no longer be able to accept a personal declaration for prescription products. We will require a prescription for all prescription medications. Prescriptions can be faxed to 1-800-234-9185 or emailed in to prescription@... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 HI JUDY The NHS T3 has got methylated spirits in it and sodium chloride which the Mexican one has not got. I have got two bottles of 100x25mcg in transit, but have ask Sheila to find out if Mexico will be doing the same, and if their 13% off is due to the fact that they want to sell them off due to these regulations. If I cannot get my supply I will stand firm and refuse any other medication,and hospitalization due to the cruelty that is going on. Kathleen > > Hi Kathleen, > I too don't do well on NHS T3. I started taking Mexican T3 and told my endo and asked if he would ask my GP to prescribe it which he did. Just a shame its not effective for me. I have no idea why? Just ordered from Mexico, if I had read all this before would have ordered more. > Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 Hi I managed to make a payment, hopefully the dates will be good and last me quite a time.Will have to look up freezing them. Carol > > > > The problem with stocking up is that the use by dates aren't that long. The one I have just now expires on 11/2012 and will probably last me until September time. It's a big financial gamble to take to stock up and hope for 2013/2014 use by dates :-/ > > > > Thanks for following up Sheila. Keep us posted. > > > > Babs > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 Sheila All these tests you mention are they all available on NHS. I already know that VIT D is deficient, but no further tests have been done, but D3 is no good for me and the reason I take VIT D2. I have put off having my tooth crowned until my health improves, and that it can be crowned in a safe way. Should I wait to see what the full blood count results are first, before asking if he has ever done any of the mentioned tests, and can they be carried out by a GP or does one have to be referred to a specialist. If this is the case he has to have a reason from the tests he can do to be able to refer me. Whatever happens I will not be prepared to go into a hospital and risk an infection as happened before. Kathleen > > Probably the NHS doctor didn't know how to prescribe the T3 for you, or more > realistically, was not aware of any of the associated conditions that can > stop thyroid hormone from being properly absorbed at the cellular level. > Luv - Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 Hi Sheila I can get private prescription for erfa, but my dr thinks it will cost me more than just buying and importing it myself, i have just bought quite a lot, will have to freeze some of it. Can it be frozen in the tub? I always thought it would cost me more and not only that someone else has control over MY health when no one has made me feel better than me myself. I take what i need and have not ever felt hyper, like they like to keep you on thyroxine. Thank heavens for savings i bought 2 x 500 125mg and hope freezing them will help, I shall also take my dr up on prescriptions long before these run out and hope i can keep ahead of the game. 5 years ago i couldnt even think like this. Carol > > There would be no point in buying NDT from abroad if we can get a > prescription for it in the UK Carol. With a prescription, either NHS or > private, we can buy NDT from the UK pharmacies..so you wouldn't have to > worry about VAT. > > Luv - Sheila > > So now its gonna cost me even more :-( been trying to buy but it will not > let me. > So now will have to get a private prescription on top. Will they stop > charging us VAT if we use a prescription? > > Carol > > --- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 Hi Kathleen Mexican often have offers of discount so don't think that is the case. So these additives stop absorption in some way then? Judy > > HI JUDY > The NHS T3 has got methylated spirits in it and sodium chloride which the Mexican one has not got. I have got two bottles of 100x25mcg in transit, but have ask Sheila to find out if Mexico will be doing the same, and if their 13% off is due to the fact that they want to sell them off due to these regulations. > If I cannot get my supply I will stand firm and refuse any other medication,and hospitalization due to the cruelty that is going on. > Kathleen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2011 Report Share Posted December 31, 2011 Sheila, This is like looking through a minefield. I think whatever is wrong is causing cloudy urine every morning with at time two specimens being cloudy. I am on Prednisolone which in turn may be causing problems as it can lower potassium, but tests last time did not indicate a problem,unless this is why he is repeating them. I feel cross about the urine specimen as I did not feel that it was due to a water infection, and that is what they tested for. Any ideas as to what else could be causing this and in turn causing a problem with thyroid meds. The only things that I have located that could cause it is what is called CHYLURIA AND PHOSPATURIA. Too much zinc can also cause the hair to fall out, but I am not on any Zinc supps. I do not think it is due to protein as it does not cause frothing. I will wait to see what the tests already planned for next week reveal, and then take the list you give with me to see if any are of benefit for me to get done privatley. I am also wondering if to increase the T3 again by another half a pill, and to start taking Selenium. What would be the most likely vitamin apart from Vitamin D that is more likely to be low in the winter months that would cause problems to absorbing Thyroxine or T3. Kathleen > > Hi Kathleen, > > Yes, many of these tests are available within the NHS but whether your > doctor will be happy to do them for you in the light of severe cut-backs or > not is up to the individual doctor. Many GP's are referring their patients > to specialists so the cost of such required testing comes out of their > budget and not the GP's. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2011 Report Share Posted December 31, 2011 Hi Carol, I have a stash in the freezer after seeing that storage method suggested on Stop the thyroid madness website. If you have a cold freezer ie. -16 to -32 then they should be good for ages. I keep all of mine in the freezer and take a couple of weeks out a time to keep them fresh. Hope this helps. Kind regards, Tina. > > Hi I managed to make a payment, hopefully the dates will be good and last me quite a time.Will have to look up freezing them. > Carol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2012 Report Share Posted January 1, 2012 Hi there, might i suggest cutting thyroid-S or crushing and trying this for 5 days. thyroid-s has a hard coating (slow release) this may put of some from trying them.if after 5 days you get a return of symptoms then go back to the efra. i would try and order the other one`s you can get from international-pharmacy.these are the same as the old Armour. Angel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2012 Report Share Posted January 2, 2012 Yes, but it will still be a massive amount more to buy in the UK. Val Will they stop charging us VAT if we use a prescription?Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2012 Report Share Posted January 2, 2012 I think you mean a NHS prescription, as it is ridiculously expensive with a private prescription although as you say we still do not have to pay VAT. Val There would be no point in buying NDT from abroad if we can get aprescription for it in the UK Carol. With a prescription, either NHS orprivate, we can buy NDT from the UK pharmacies..so you wouldn't have toworry about VAT.Luv - Sheila Quote Link to comment Share on other sites More sharing options...
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