hair

July 25, 2005

, Dr. Hicks says the ONLY good way to test for Mercury is through a brain biopsy, so if you get a negative result with any of the safe testing methods, it doesn't mean your child does NOT have high levels of mercury.

By the way, I've heard of the vaccine compensation program, but I know nothing about it. Who do you contact to see if the program will apply with your child?

hair

Has anyone ever had the baby hair test for mercury come back negative , but then chelate and have mercury come out? I am sending Tyler's hair out today for testing and I was just wondering if it comes back negative if I should consider that to mean he didn't get any mercury or could he have just held on to all of it? Would he excrete some (even a little bit) if he got some? I know I am jumping the gun here before even getting the test results. It's just that I am so anxious. This will help so much in his treatment if he does show mercury because we would have a place to start. Plus, we can do the vaccine compensation case. If there is no mercury in the hair, then we won't be able to because we have to file before June of 2006 before our 36 months runs out. That wouldn't give us time to heal the gut and do chelation.

Thanks in advice for all the help!

No virus found in this outgoing message.Checked by AVG Anti-Virus.Version: 7.0.338 / Virus Database: 267.9.4/57 - Release Date: 7/22/2005

July 25, 2005

> You can go to 909shot.com and they will have the info there on the VICP. You

can also add up how much mercury your child received with their mercury

calculator. I am just worried with when they updated the calculator as many of

the vaccines do not contain mercury now or they will contain a trace which

wasn't the case when my son's vaccines were manufactured in 1998.

Hope this helps you. You have 36 months from your child's first symptom (loss of

language, etc) to file with them. That only leaves me until June of 2006 which

isn't really long when I think of all the things I would have to do to show that

he received mercury.

> From: " Lanae Collier " <lanaecollier@...>

> Date: 2005/07/25 Mon AM 11:36:03 CDT

> <autism >

> Subject: Re: hair

>

, Dr. Hicks says the ONLY good way to test for Mercury is through a brain biopsy, so if you get a negative result with any of the safe testing methods, it doesn't mean your child does NOT have high levels of mercury.

By the way, I've heard of the vaccine compensation program, but I know nothing about it. Who do you contact to see if the program will apply with your child?

hair

Has anyone ever had the baby hair test for mercury come back negative , but then chelate and have mercury come out? I am sending Tyler's hair out today for testing and I was just wondering if it comes back negative if I should consider that to mean he didn't get any mercury or could he have just held on to all of it? Would he excrete some (even a little bit) if he got some? I know I am jumping the gun here before even getting the test results. It's just that I am so anxious. This will help so much in his treatment if he does show mercury because we would have a place to start. Plus, we can do the vaccine compensation case. If there is no mercury in the hair, then we won't be able to because we have to file before June of 2006 before our 36 months runs out. That wouldn't give us time to heal the gut and do chelation.

Thanks in advice for all the help!

No virus found in this outgoing message.Checked by AVG Anti-Virus.Version: 7.0.338 / Virus Database: 267.9.4/57 - Release Date: 7/22/2005

July 25, 2005

I think that if the child is on a mercury free diet and distilled water

during the time of the testing, a 12hour challenge with DMPS,DMSA looking

at the urine, stool and hair, a 99percent confidence level exists that a

negative result means just that- a body free of mercury of any significant

amount. This is based on 12 years of studying autistic children. SBE

B. Edelson, M.D., F.A.A.E.M.

P.O. Box 566863

Atlanta, Georgia 31156

>

>> You can go to 909shot.com and they will have the info there on the

>> VICP. You can also add up how much mercury your child received with

>> their mercury calculator. I am just worried with when they updated the

>> calculator as many of the vaccines do not contain mercury now or they

>> will contain a trace which wasn't the case when my son's vaccines were

>> manufactured in 1998.

> Hope this helps you. You have 36 months from your child's first symptom

> (loss of language, etc) to file with them. That only leaves me until

> June of 2006 which isn't really long when I think of all the things I

> would have to do to show that he received mercury.

>> From: " Lanae Collier " <lanaecollier@...>

>> Date: 2005/07/25 Mon AM 11:36:03 CDT

>> <autism >

>> Subject: Re: hair

>>

>

July 25, 2005

Thanks!

hair

Has anyone ever had the baby hair test for mercury come back negative , but then chelate and have mercury come out? I am sending Tyler's hair out today for testing and I was just wondering if it comes back negative if I should consider that to mean he didn't get any mercury or could he have just held on to all of it? Would he excrete some (even a little bit) if he got some? I know I am jumping the gun here before even getting the test results. It's just that I am so anxious. This will help so much in his treatment if he does show mercury because we would have a place to start. Plus, we can do the vaccine compensation case. If there is no mercury in the hair, then we won't be able to because we have to file before June of 2006 before our 36 months runs out. That wouldn't give us time to heal the gut and do chelation.

Thanks in advice for all the help!

No virus found in this outgoing message.Checked by AVG Anti-Virus.Version: 7.0.338 / Virus Database: 267.9.4/57 - Release Date: 7/22/2005

July 25, 2005

Dear Dr. Edelson,

You seem to have taken over this site with responses to just about

everything. You always preface it with your 12 years of experience treating

autism.

I am a nurse and a lawyer. My husband is a scientist and a neurologist

trained at s Hopkins. We have a daughter with mitochondrial disease and

autism who is improving in leaps and bounds after several years of treatment

which is SPECIFICALLY intended to treat her condition. We are at this

point, well versed in the many treatments of autism but refrain from putting

in opinions because every child and situation is incredibly different.

I am not interested in the arguments that i have read over and over on this

list serv as it pertains to your background. However I do want to say this;

You seem to spend a lot of time on this site giving out advise. You might

want to consider that you are essentially continuing to practice medicine

on the internet. I say this because you always mention your authority and

credentials when you give your advise. terry poling

Re: hair

>>>

>>

July 26, 2005

My son did not show any mercury coming out in any initial testing and he had it all. Other metals were elevated but no mercury at all. It has finally started coming out after 4 months on td-dmps and addition of td-ALA. Urine toxic metals test from Doctor's Data.

mom to Owen, 4, ASD, & Jordyn, 20 mos.

In a message dated 7/26/2005 5:18:16 AM Eastern Standard Time, autism writes:

Message: 11 Date: Mon, 25 Jul 2005 14:21:13 -0400 (EDT) From: <sbedelson@...>Subject: Re: Re: hairI think that if the child is on a mercury free diet and distilled waterduring the time of the testing, a 12hour challenge with DMPS,DMSA lookingat the urine, stool and hair, a 99percent confidence level exists that anegative result means just that- a body free of mercury of any significantamount. This is based on 12 years of studying autistic children. SBE B. Edelson, M.D., F.A.A.E.M.P.O. Box 566863Atlanta, Georgia 31156

February 8, 2007

In a message dated 2/8/2007 2:47:25 A.M. Eastern Standard Time,

mzdaisee@... writes:

BTW, my daughter cut her bangs to the scalp twice and she was 9 the

second time!

-

Our DD also scalped herself (well... a chunk out of her bangs, nearly to the

skin). There was just enough hair left to stick straight out so she REALLY

looked goofy. She was probably not quite 3 at the time (ya, I know, where

was I keeping my scissors so that my 3 year old could get them.... I honestly

do NOT remember!! Could have been kids scissors too - I don't recall) After

she butched herself, she went after our poor kitty.... HA.. little tufts of

black fur all over the floor in the hallway leading to her room. I'm just

glad she didn't cut his little ear off in the process!!!

Awwwww... kids.

LT

February 8, 2007

Thank you. I have NO clue how to make a doll, but love that idea! I may look

into having one made. That would be sooo neat!

I got her a glittery, sequined headband at Target yesterday. Looks kind of like

a flapper head band! She LOVES it! At bed time, gave me a HUGE hug and said

she loves and thanked me for getting it for her. She slept with it, holding it

in her hand! SUCCESS!!!!!!!!!!!!!! I tried so many head/hair things, she

picked a bunch out, too. WHY this one, I dont know! LOL!

Sharon

Hair

Instead of a wig for the sister-barbered little one, maybe you or

someone else could make her a doll and use her saved hair for the

doll's hair. If the doll looks similar to your daughter maybe that

would comfort her while her hair grows back. Just a thought.

BTW, my daughter cut her bangs to the scalp twice and she was 9 the

second time! My sister cut a neighbor boy's hair off the day before

picture day when she was 4! Kid inflicted haircuts happen all the

time. :<(

I really hope your wee one feels less violated soon. There must be a

children's book out there somewhere about the situation. If I hear of

one I'll post it.

P.

February 8, 2007

who cares why right?? glad you found something!!!

a doll is a great idea

eileen

Quoting kidsnpets <kidsnpets@...>:

> Thank you. I have NO clue how to make a doll, but love that idea!

> I may look into having one made. That would be sooo neat!

>

> I got her a glittery, sequined headband at Target yesterday. Looks

> kind of like a flapper head band! She LOVES it! At bed time, gave

> me a HUGE hug and said she loves and thanked me for getting it for

> her. She slept with it, holding it in her hand!

> SUCCESS!!!!!!!!!!!!!! I tried so many head/hair things, she picked

> a bunch out, too. WHY this one, I dont know! LOL!

> Sharon

> Hair

>

> Instead of a wig for the sister-barbered little one, maybe you or

> someone else could make her a doll and use her saved hair for the

> doll's hair. If the doll looks similar to your daughter maybe that

> would comfort her while her hair grows back. Just a thought.

>

> BTW, my daughter cut her bangs to the scalp twice and she was 9 the

> second time! My sister cut a neighbor boy's hair off the day before

> picture day when she was 4! Kid inflicted haircuts happen all the

> time. :<(

>

> I really hope your wee one feels less violated soon. There must be a

> children's book out there somewhere about the situation. If I hear of

> one I'll post it.

>

> P.

>

February 8, 2007

OH NO! LOL!

My dd did it with a kids' scissors. They had been pretending to wrap presents.

This was right after Xmas. They were wrapping up household objects, toys, etc,

and giving them to each other. Very sweet. Never thought it would turn into

such a mess!

Sharon

Re: Hair

In a message dated 2/8/2007 2:47:25 A.M. Eastern Standard Time,

mzdaisee@... writes:

BTW, my daughter cut her bangs to the scalp twice and she was 9 the

second time!

-

Our DD also scalped herself (well... a chunk out of her bangs, nearly to the

skin). There was just enough hair left to stick straight out so she REALLY

looked goofy. She was probably not quite 3 at the time (ya, I know, where

was I keeping my scissors so that my 3 year old could get them.... I honestly

do NOT remember!! Could have been kids scissors too - I don't recall) After

she butched herself, she went after our poor kitty.... HA.. little tufts of

black fur all over the floor in the hallway leading to her room. I'm just

glad she didn't cut his little ear off in the process!!!

Awwwww... kids.

LT

February 8, 2007

Dh thinks it is creepy. Is it?? Would that doll's hair be at risk of getting

cut, too???? Where would I find someone to do this??

Sharon

Hair

>

> Instead of a wig for the sister-barbered little one, maybe you or

> someone else could make her a doll and use her saved hair for the

> doll's hair. If the doll looks similar to your daughter maybe that

> would comfort her while her hair grows back. Just a thought.

>

> BTW, my daughter cut her bangs to the scalp twice and she was 9 the

> second time! My sister cut a neighbor boy's hair off the day before

> picture day when she was 4! Kid inflicted haircuts happen all the

> time. :<(

>

> I really hope your wee one feels less violated soon. There must be a

> children's book out there somewhere about the situation. If I hear of

> one I'll post it.

>

> P.

>

February 8, 2007

In a message dated 2/8/2007 10:53:19 A.M. Eastern Standard Time,

kidsnpets@... writes:

Dh thinks it is creepy. Is it?? Would that doll's hair be at risk of

getting cut, too???? Where would I find someone to do this??

Sharon -

I have no idea. Although I don't even want to guess at what something like

that would cost. Did you actually keep her hair? How much of it is there?

You know, you could always try & locate one of those charities that accepts

donations of human hair to make wigs for kids with cancer......

just a thought.

LT

February 8, 2007

Thanks for the laugh. I know it isn't really funny, but just picturing that poor

cat ... (Oh, and I forget the details, but I know my mom has said something

about my sisters and me once cutting each other's hair.)

P.

jtlt@... wrote:

she went after our poor kitty.... HA.. little tufts of

black fur all over the floor in the hallway leading to her room. I'm just

glad she didn't cut his little ear off in the process!!!

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February 8, 2007

yes, i kept as much as i could. not sure why. it is in a bag. none is long

enough to donate, or we would do that.

sharon

Re: Hair

In a message dated 2/8/2007 10:53:19 A.M. Eastern Standard Time,

kidsnpets@... writes:

Dh thinks it is creepy. Is it?? Would that doll's hair be at risk of

getting cut, too???? Where would I find someone to do this??

Sharon -

I have no idea. Although I don't even want to guess at what something like

that would cost. Did you actually keep her hair? How much of it is there?

You know, you could always try & locate one of those charities that accepts

donations of human hair to make wigs for kids with cancer......

just a thought.

LT

February 11, 2007

I never had to worry about dollmaking since my great aunt was a wonderful

dollmaker and taught me. If there is a senior center in your community you

might connect with them. My great aunt never charged for making a doll. Lots

of senior women would jump at the chance to make a doll for your little

girl, especially under the circumstances. If you do find a dollmaker be sure

to ask your daughter if she would like that. Kids see things in their own

way, as you know! Good luck and I'm glad the flapper headband was a success!

P.

February 11, 2007

I never had to worry about dollmaking since my great aunt was a wonderful

dollmaker and taught me. If there is a senior center in your community you

might connect with them. My great aunt never charged for making a doll. Lots

of senior women would jump at the chance to make a doll for your little

girl, especially under the circumstances. If you do find a dollmaker be sure

to ask your daughter if she would like that. Kids see things in their own

way, as you know! Good luck and I'm glad the flapper headband was a success!

P.

February 12, 2007

Yes, the flapper headband went over very well. I talked to her about her hair

yesterday, I dont think she really understood. She did not want it on a doll.

Then I suggested going to Build A Bear and having the hair made IN the bear,

with the stuffing, she said no. Then she said she just wanted to keep it like

this (patted her head) until it grows long again. So I dont think she

understood I meant the cut off hair in the bag! We dropped the idea. I asked

her what she wanted to do with the hair in the bag and she said keep it in

there. Now I cant even find it!!!!!!!!!!

Sharon

Re: Hair

I never had to worry about dollmaking since my great aunt was a wonderful

dollmaker and taught me. If there is a senior center in your community you

might connect with them. My great aunt never charged for making a doll. Lots

of senior women would jump at the chance to make a doll for your little

girl, especially under the circumstances. If you do find a dollmaker be sure

to ask your daughter if she would like that. Kids see things in their own

way, as you know! Good luck and I'm glad the flapper headband was a success!

P.

February 12, 2007

Yes, the flapper headband went over very well. I talked to her about her hair

yesterday, I dont think she really understood. She did not want it on a doll.

Then I suggested going to Build A Bear and having the hair made IN the bear,

with the stuffing, she said no. Then she said she just wanted to keep it like

this (patted her head) until it grows long again. So I dont think she

understood I meant the cut off hair in the bag! We dropped the idea. I asked

her what she wanted to do with the hair in the bag and she said keep it in

there. Now I cant even find it!!!!!!!!!!

Sharon

Re: Hair

I never had to worry about dollmaking since my great aunt was a wonderful

dollmaker and taught me. If there is a senior center in your community you

might connect with them. My great aunt never charged for making a doll. Lots

of senior women would jump at the chance to make a doll for your little

girl, especially under the circumstances. If you do find a dollmaker be sure

to ask your daughter if she would like that. Kids see things in their own

way, as you know! Good luck and I'm glad the flapper headband was a success!

P.

February 12, 2007

oh dear!! at least she doesn't want it right now!! - great idea about

the bear though! good luck

eileen

Quoting kidsnpets <kidsnpets@...>:

> Yes, the flapper headband went over very well. I talked to her

> about her hair yesterday, I dont think she really understood. She

> did not want it on a doll. Then I suggested going to Build A Bear

> and having the hair made IN the bear, with the stuffing, she said

> no. Then she said she just wanted to keep it like this (patted her

> head) until it grows long again. So I dont think she understood I

> meant the cut off hair in the bag! We dropped the idea. I asked

> her what she wanted to do with the hair in the bag and she said keep

> it in there. Now I cant even find it!!!!!!!!!!

> Sharon

> Re: Hair

>

> I never had to worry about dollmaking since my great aunt was a wonderful

> dollmaker and taught me. If there is a senior center in your community you

> might connect with them. My great aunt never charged for making a

> doll. Lots

> of senior women would jump at the chance to make a doll for your little

> girl, especially under the circumstances. If you do find a

> dollmaker be sure

> to ask your daughter if she would like that. Kids see things in their own

> way, as you know! Good luck and I'm glad the flapper headband was

> a success!

> P.

>

February 12, 2007