Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 Spiro has been on the market at least 45 years. The major " side effects " (desired) are normal BP is the cause is excess MC production (Conn's) or ingestion (licorice), normal K, loss of fatigue, cramps, getting up at night to pee, irregular heart beats and many of the symptoms you and others here have described-perhaps even depression and hot flashes. You would also stop swelling and not need Norvasc. Other side effects (not desired) are gynecomastia and -dynia, irregular menses, some diarrhea or upset stomach. DASHing will minimize the need for any meds and some that is all they will need depending on the stage one is in in the evolution of PA. I will be happy to work with your Endo by email. Please take my article to them after you have read it. In our files. Get the DASH book and start it NOW! Please send all your renin and aldo results so we can help interpret them. May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. On Jan 5, 2009, at 7:52 PM, flowerspy1 wrote: > My story is not unlike w4jdc's. I was diagnosed with high BP 4 years > ago. I own a business and was in a very stressful relationship, so I > passed it off as emotional overload, I would get over in time. But my > BP didn't lower and in March of this year, after thinking I was having > a heart attack (palpitations, migraines, fatigue and this weird hot > flash I'd get right before going to sleep) I decided to go to a > cardiologist. After a random CT scan, an adrenal adenoma was > discovered and my journey began. I have been to 3 endo's, had an MRI, > taken the AVS, done tons of urine tests, had a saline suppression, had > so many blood tests that a vampire would shiver, and now my last stop > is the ever dreaded urine jug collection. I have been taken off spiro > for the tests and never put back on. I take potassium supplements 3x > daily which has literally saved my life. I still take nipedifine but > no diurectic, so I bloat with the sodium foods. Do I still feel > fatigued and like zombie has invaded my body? Yes. > > I read so many of you that are happy taking spiro and this makes me > happy. Maybe I should go on it again, my endo still hasn't pushed it > yet. However, I must be honest (this is my first entry with this > group), I am not an advocate of a lot of meds because I feel like a > slave to them as it is. I have asthma and already take advair, > singulair, homepathic nasal spray (because the flonase is like > nose-heroine). I also take some girl stuff and now welbutron (sp?) > cause my hormones are completely off. Adding another drug such as > spiro scares me. Why? Because I read too much. Prednisone, a drug I've > taken more times than I can remember, mimics the function of the > natural hormones produced by the adrenal glands. When you're on it for > long periods of time, the production of natural adrenal hormones > decreases because of prednisones effect on the pituitary, the master > gland that controls the adrenals. So there you have it. I am afraid to > put something else in my body for long periods of time because of the > long term consequences such as what I'm dealing with now-this thing > called Conns. Is it just going to create another chain of major organ > (d)effects? And please, Dr. Grim or anybody.. could you please tell me > the long term effects of spironolactone? Also, how long has it been on > the market? > Thank you in advance for any responses. Good luck to all of you with > this insideous disease. > > w4jdc- I send you good energy that no one ever discredits you based on > your difficult journey. > F.S. > > > > > > I was first diagnosed with hypertension about 1997. I got the > lectures > > about being so young and how important it was to take my medication > > because my blood pressure was not under control. At one point I was > > put on a beta blocker and going to the doctor (GP) about every > month. > > I was told my potassium was low and that I should eat bananas and > > oranges. I was told to exercise and I wouldn't even need BP > > medication. > > > > I started having some life changing symptoms. I always felt like > crap. > > My legs cramped, I had difficulty concentrating, couldn't sleep, > I had > > chest pains and went to the hospital a few times thinking I was > having > > a heart attack. I ended up drinking some concoction to get my > > potassium level up in the ER and being told to follow up with my > > doctor. My doctor had put me on anti-depressants (which didn't work) > > and was treating me for depression. > > > > I finally changed my doctor in late 2001. My father had just been > > diagnosed with hyperaldosteronism and I told the new doctor. She > > referred me to a Cardiologist who was researching hyperaldosteronism > > and spiro. I was diagnosed and began taking spiro in early 2002. It > > wasn't long before I was telling my doctor how great I felt. She > sent > > me to a psychiatrist for evaluation of the depression. The > > psychiatrist got me off of anti-depressants and I have not taken any > > since I was diagnosed with hyperaldosteronism. > > > > I have always been employed in a position of trust and the treatment > > for depression is always questioned. When I tell even doctors about > > the hyperaldosteronism they always ask me how to spell it and ask me > > to describe the tests I was given to diagnose it. There is a lot of > > ignorance about this condition and being treated for a mental health > > condition. I always tell the truth about what I have been through > and > > hope they have the intelligence to do a little research, but I will > > not be surprised when the day comes that I will be disqualified from > > something, or a job, or a clearance because of my disorder. > > > > I have responded very well to treatment and have no symptoms. I > take: > > > > Spironolactone 50mg once a day > > Benicar HCT 40-25mg once a day > > Norvasc 10mg once a day > > > > I went from 25 to 50mg spiro about two years ago when my BP was a > > little high and I was having some chest pains again. > > > > My BP runs 108-120/75-85. Prior to spiro it was so bad that they've > > held me at my doctor's office until they could get it down while > I was > > going through the process of being diagnosed. > > > > My father is in his early 60s and he takes 50mg a day. He is symptom > > free as well. > > > > w4jdc > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 If you can send us lab details we will add your story to our Conn's stories. We will call it flowerspy's story if that is OK. May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. On Jan 5, 2009, at 7:52 PM, flowerspy1 wrote: > My story is not unlike w4jdc's. I was diagnosed with high BP 4 years > ago. I own a business and was in a very stressful relationship, so I > passed it off as emotional overload, I would get over in time. But my > BP didn't lower and in March of this year, after thinking I was having > a heart attack (palpitations, migraines, fatigue and this weird hot > flash I'd get right before going to sleep) I decided to go to a > cardiologist. After a random CT scan, an adrenal adenoma was > discovered and my journey began. I have been to 3 endo's, had an MRI, > taken the AVS, done tons of urine tests, had a saline suppression, had > so many blood tests that a vampire would shiver, and now my last stop > is the ever dreaded urine jug collection. I have been taken off spiro > for the tests and never put back on. I take potassium supplements 3x > daily which has literally saved my life. I still take nipedifine but > no diurectic, so I bloat with the sodium foods. Do I still feel > fatigued and like zombie has invaded my body? Yes. > > I read so many of you that are happy taking spiro and this makes me > happy. Maybe I should go on it again, my endo still hasn't pushed it > yet. However, I must be honest (this is my first entry with this > group), I am not an advocate of a lot of meds because I feel like a > slave to them as it is. I have asthma and already take advair, > singulair, homepathic nasal spray (because the flonase is like > nose-heroine). I also take some girl stuff and now welbutron (sp?) > cause my hormones are completely off. Adding another drug such as > spiro scares me. Why? Because I read too much. Prednisone, a drug I've > taken more times than I can remember, mimics the function of the > natural hormones produced by the adrenal glands. When you're on it for > long periods of time, the production of natural adrenal hormones > decreases because of prednisones effect on the pituitary, the master > gland that controls the adrenals. So there you have it. I am afraid to > put something else in my body for long periods of time because of the > long term consequences such as what I'm dealing with now-this thing > called Conns. Is it just going to create another chain of major organ > (d)effects? And please, Dr. Grim or anybody.. could you please tell me > the long term effects of spironolactone? Also, how long has it been on > the market? > Thank you in advance for any responses. Good luck to all of you with > this insideous disease. > > w4jdc- I send you good energy that no one ever discredits you based on > your difficult journey. > F.S. > > > > > > I was first diagnosed with hypertension about 1997. I got the > lectures > > about being so young and how important it was to take my medication > > because my blood pressure was not under control. At one point I was > > put on a beta blocker and going to the doctor (GP) about every > month. > > I was told my potassium was low and that I should eat bananas and > > oranges. I was told to exercise and I wouldn't even need BP > > medication. > > > > I started having some life changing symptoms. I always felt like > crap. > > My legs cramped, I had difficulty concentrating, couldn't sleep, > I had > > chest pains and went to the hospital a few times thinking I was > having > > a heart attack. I ended up drinking some concoction to get my > > potassium level up in the ER and being told to follow up with my > > doctor. My doctor had put me on anti-depressants (which didn't work) > > and was treating me for depression. > > > > I finally changed my doctor in late 2001. My father had just been > > diagnosed with hyperaldosteronism and I told the new doctor. She > > referred me to a Cardiologist who was researching hyperaldosteronism > > and spiro. I was diagnosed and began taking spiro in early 2002. It > > wasn't long before I was telling my doctor how great I felt. She > sent > > me to a psychiatrist for evaluation of the depression. The > > psychiatrist got me off of anti-depressants and I have not taken any > > since I was diagnosed with hyperaldosteronism. > > > > I have always been employed in a position of trust and the treatment > > for depression is always questioned. When I tell even doctors about > > the hyperaldosteronism they always ask me how to spell it and ask me > > to describe the tests I was given to diagnose it. There is a lot of > > ignorance about this condition and being treated for a mental health > > condition. I always tell the truth about what I have been through > and > > hope they have the intelligence to do a little research, but I will > > not be surprised when the day comes that I will be disqualified from > > something, or a job, or a clearance because of my disorder. > > > > I have responded very well to treatment and have no symptoms. I > take: > > > > Spironolactone 50mg once a day > > Benicar HCT 40-25mg once a day > > Norvasc 10mg once a day > > > > I went from 25 to 50mg spiro about two years ago when my BP was a > > little high and I was having some chest pains again. > > > > My BP runs 108-120/75-85. Prior to spiro it was so bad that they've > > held me at my doctor's office until they could get it down while > I was > > going through the process of being diagnosed. > > > > My father is in his early 60s and he takes 50mg a day. He is symptom > > free as well. > > > > w4jdc > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 I was just wondering where would be the best place to review material about the different stages of PA? From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim Sent: Wednesday, 7 January 2009 9:03 AM hyperaldosteronism Subject: Re: Re: My Story Spiro has been on the market at least 45 years. The major " side effects " (desired) are normal BP is the cause is excess MC production (Conn's) or ingestion (licorice), normal K, loss of fatigue, cramps, getting up at night to pee, irregular heart beats and many of the symptoms you and others here have described-perhaps even depression and hot flashes. You would also stop swelling and not need Norvasc. Other side effects (not desired) are gynecomastia and -dynia, irregular menses, some diarrhea or upset stomach. DASHing will minimize the need for any meds and some that is all they will need depending on the stage one is in in the evolution of PA. I will be happy to work with your Endo by email. Please take my article to them after you have read it. In our files. Get the DASH book and start it NOW! Please send all your renin and aldo results so we can help interpret them. May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. On Jan 5, 2009, at 7:52 PM, flowerspy1 wrote: > My story is not unlike w4jdc's. I was diagnosed with high BP 4 years > ago. I own a business and was in a very stressful relationship, so I > passed it off as emotional overload, I would get over in time. But my > BP didn't lower and in March of this year, after thinking I was having > a heart attack (palpitations, migraines, fatigue and this weird hot > flash I'd get right before going to sleep) I decided to go to a > cardiologist. After a random CT scan, an adrenal adenoma was > discovered and my journey began. I have been to 3 endo's, had an MRI, > taken the AVS, done tons of urine tests, had a saline suppression, had > so many blood tests that a vampire would shiver, and now my last stop > is the ever dreaded urine jug collection. I have been taken off spiro > for the tests and never put back on. I take potassium supplements 3x > daily which has literally saved my life. I still take nipedifine but > no diurectic, so I bloat with the sodium foods. Do I still feel > fatigued and like zombie has invaded my body? Yes. > > I read so many of you that are happy taking spiro and this makes me > happy. Maybe I should go on it again, my endo still hasn't pushed it > yet. However, I must be honest (this is my first entry with this > group), I am not an advocate of a lot of meds because I feel like a > slave to them as it is. I have asthma and already take advair, > singulair, homepathic nasal spray (because the flonase is like > nose-heroine). I also take some girl stuff and now welbutron (sp?) > cause my hormones are completely off. Adding another drug such as > spiro scares me. Why? Because I read too much. Prednisone, a drug I've > taken more times than I can remember, mimics the function of the > natural hormones produced by the adrenal glands. When you're on it for > long periods of time, the production of natural adrenal hormones > decreases because of prednisones effect on the pituitary, the master > gland that controls the adrenals. So there you have it. I am afraid to > put something else in my body for long periods of time because of the > long term consequences such as what I'm dealing with now-this thing > called Conns. Is it just going to create another chain of major organ > (d)effects? And please, Dr. Grim or anybody.. could you please tell me > the long term effects of spironolactone? Also, how long has it been on > the market? > Thank you in advance for any responses. Good luck to all of you with > this insideous disease. > > w4jdc- I send you good energy that no one ever discredits you based on > your difficult journey. > F.S. > > > > > > I was first diagnosed with hypertension about 1997. I got the > lectures > > about being so young and how important it was to take my medication > > because my blood pressure was not under control. At one point I was > > put on a beta blocker and going to the doctor (GP) about every > month. > > I was told my potassium was low and that I should eat bananas and > > oranges. I was told to exercise and I wouldn't even need BP > > medication. > > > > I started having some life changing symptoms. I always felt like > crap. > > My legs cramped, I had difficulty concentrating, couldn't sleep, > I had > > chest pains and went to the hospital a few times thinking I was > having > > a heart attack. I ended up drinking some concoction to get my > > potassium level up in the ER and being told to follow up with my > > doctor. My doctor had put me on anti-depressants (which didn't work) > > and was treating me for depression. > > > > I finally changed my doctor in late 2001. My father had just been > > diagnosed with hyperaldosteronism and I told the new doctor. She > > referred me to a Cardiologist who was researching hyperaldosteronism > > and spiro. I was diagnosed and began taking spiro in early 2002. It > > wasn't long before I was telling my doctor how great I felt. She > sent > > me to a psychiatrist for evaluation of the depression. The > > psychiatrist got me off of anti-depressants and I have not taken any > > since I was diagnosed with hyperaldosteronism. > > > > I have always been employed in a position of trust and the treatment > > for depression is always questioned. When I tell even doctors about > > the hyperaldosteronism they always ask me how to spell it and ask me > > to describe the tests I was given to diagnose it. There is a lot of > > ignorance about this condition and being treated for a mental health > > condition. I always tell the truth about what I have been through > and > > hope they have the intelligence to do a little research, but I will > > not be surprised when the day comes that I will be disqualified from > > something, or a job, or a clearance because of my disorder. > > > > I have responded very well to treatment and have no symptoms. I > take: > > > > Spironolactone 50mg once a day > > Benicar HCT 40-25mg once a day > > Norvasc 10mg once a day > > > > I went from 25 to 50mg spiro about two years ago when my BP was a > > little high and I was having some chest pains again. > > > > My BP runs 108-120/75-85. Prior to spiro it was so bad that they've > > held me at my doctor's office until they could get it down while > I was > > going through the process of being diagnosed. > > > > My father is in his early 60s and he takes 50mg a day. He is symptom > > free as well. > > > > w4jdc > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 As far as I know my article is the only one that discusses it in a systematic fashion. The Endo guidelines dont even mention it. You would think they would know better. May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. On Jan 6, 2009, at 8:13 PM, megra0409 wrote: > I was just wondering where would be the best place to review > material about the different stages of PA? > > From: hyperaldosteronism > [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim > Sent: Wednesday, 7 January 2009 9:03 AM > hyperaldosteronism > Subject: Re: Re: My Story > > Spiro has been on the market at least 45 years. > > The major " side effects " (desired) are normal BP is the cause is > excess MC production (Conn's) or ingestion (licorice), normal K, loss > of fatigue, cramps, getting up at night to pee, irregular heart beats > and many of the symptoms you and others here have described-perhaps > even depression and hot flashes. You would also stop swelling and not > need Norvasc. > > Other side effects (not desired) are gynecomastia and -dynia, > irregular menses, some diarrhea or upset stomach. > > DASHing will minimize the need for any meds and some that is all they > will need depending on the stage one is in in the evolution of PA. > > I will be happy to work with your Endo by email. Please take my > article to them after you have read it. In our files. > > Get the DASH book and start it NOW! > > Please send all your renin and aldo results so we can help interpret > them. > > May your pressure be low! > >  > > CE Grim BS, MS, MD > > High Blood Pressure Consulting > > Senior Consultant to Shared Care Research and Education Consulting > Inc.(sharedcareinc.com) > > Clinical Professor of Internal Medicine Medical and Cardiology > Medical College of Wisconsin > > Board certified in Internal Med, Geriatrics and Hypertension. > > Interests: > 1. Difficult to control high blood pressure. > 2. The effect of recent evolutionary forces on high blood pressure > in human populations. > 3. Improving blood pressure measurement in the office and out. > > On Jan 5, 2009, at 7:52 PM, flowerspy1 wrote: > > > My story is not unlike w4jdc's. I was diagnosed with high BP 4 years > > ago. I own a business and was in a very stressful relationship, so I > > passed it off as emotional overload, I would get over in time. > But my > > BP didn't lower and in March of this year, after thinking I was > having > > a heart attack (palpitations, migraines, fatigue and this weird hot > > flash I'd get right before going to sleep) I decided to go to a > > cardiologist. After a random CT scan, an adrenal adenoma was > > discovered and my journey began. I have been to 3 endo's, had an > MRI, > > taken the AVS, done tons of urine tests, had a saline > suppression, had > > so many blood tests that a vampire would shiver, and now my last > stop > > is the ever dreaded urine jug collection. I have been taken off > spiro > > for the tests and never put back on. I take potassium supplements 3x > > daily which has literally saved my life. I still take nipedifine but > > no diurectic, so I bloat with the sodium foods. Do I still feel > > fatigued and like zombie has invaded my body? Yes. > > > > I read so many of you that are happy taking spiro and this makes me > > happy. Maybe I should go on it again, my endo still hasn't pushed it > > yet. However, I must be honest (this is my first entry with this > > group), I am not an advocate of a lot of meds because I feel like a > > slave to them as it is. I have asthma and already take advair, > > singulair, homepathic nasal spray (because the flonase is like > > nose-heroine). I also take some girl stuff and now welbutron (sp?) > > cause my hormones are completely off. Adding another drug such as > > spiro scares me. Why? Because I read too much. Prednisone, a drug > I've > > taken more times than I can remember, mimics the function of the > > natural hormones produced by the adrenal glands. When you're on > it for > > long periods of time, the production of natural adrenal hormones > > decreases because of prednisones effect on the pituitary, the master > > gland that controls the adrenals. So there you have it. I am > afraid to > > put something else in my body for long periods of time because of > the > > long term consequences such as what I'm dealing with now-this thing > > called Conns. Is it just going to create another chain of major > organ > > (d)effects? And please, Dr. Grim or anybody.. could you please > tell me > > the long term effects of spironolactone? Also, how long has it > been on > > the market? > > Thank you in advance for any responses. Good luck to all of you with > > this insideous disease. > > > > w4jdc- I send you good energy that no one ever discredits you > based on > > your difficult journey. > > F.S. > > > > > > > > > > I was first diagnosed with hypertension about 1997. I got the > > lectures > > > about being so young and how important it was to take my > medication > > > because my blood pressure was not under control. At one point I > was > > > put on a beta blocker and going to the doctor (GP) about every > > month. > > > I was told my potassium was low and that I should eat bananas and > > > oranges. I was told to exercise and I wouldn't even need BP > > > medication. > > > > > > I started having some life changing symptoms. I always felt like > > crap. > > > My legs cramped, I had difficulty concentrating, couldn't sleep, > > I had > > > chest pains and went to the hospital a few times thinking I was > > having > > > a heart attack. I ended up drinking some concoction to get my > > > potassium level up in the ER and being told to follow up with my > > > doctor. My doctor had put me on anti-depressants (which didn't > work) > > > and was treating me for depression. > > > > > > I finally changed my doctor in late 2001. My father had just been > > > diagnosed with hyperaldosteronism and I told the new doctor. She > > > referred me to a Cardiologist who was researching > hyperaldosteronism > > > and spiro. I was diagnosed and began taking spiro in early > 2002. It > > > wasn't long before I was telling my doctor how great I felt. She > > sent > > > me to a psychiatrist for evaluation of the depression. The > > > psychiatrist got me off of anti-depressants and I have not > taken any > > > since I was diagnosed with hyperaldosteronism. > > > > > > I have always been employed in a position of trust and the > treatment > > > for depression is always questioned. When I tell even doctors > about > > > the hyperaldosteronism they always ask me how to spell it and > ask me > > > to describe the tests I was given to diagnose it. There is a > lot of > > > ignorance about this condition and being treated for a mental > health > > > condition. I always tell the truth about what I have been through > > and > > > hope they have the intelligence to do a little research, but I > will > > > not be surprised when the day comes that I will be disqualified > from > > > something, or a job, or a clearance because of my disorder. > > > > > > I have responded very well to treatment and have no symptoms. I > > take: > > > > > > Spironolactone 50mg once a day > > > Benicar HCT 40-25mg once a day > > > Norvasc 10mg once a day > > > > > > I went from 25 to 50mg spiro about two years ago when my BP was a > > > little high and I was having some chest pains again. > > > > > > My BP runs 108-120/75-85. Prior to spiro it was so bad that > they've > > > held me at my doctor's office until they could get it down while > > I was > > > going through the process of being diagnosed. > > > > > > My father is in his early 60s and he takes 50mg a day. He is > symptom > > > free as well. > > > > > > w4jdc > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2009 Report Share Posted May 18, 2009 So, you're going to get a renin test without an aldosterone too? Stupid doc if that is true. Your heart symptoms could be related to low potassium. We'd like to see your tests for potassium, aldosterone, renin. I trust you get copies of all your tests. You have an adrenal adenoma and no one has suspected primary aldosteronism? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of joyce jensen I am new to the list. I am 63 year old woman. Twelve years ago they found 2 cm x 2 cm adenoma with CT. They were looking for kidney stones because I had RBC in urine. My symptoms were low back pain. Blood tests, 24 hr urine all negative. I take advil for the intermitent low back pain. I had one episode in about 1999 of chest pain, did stress test and all blood work was negative for cardiac event. During all of these years I had white coat hypertension, i.e. 145/90 but I could get consistent normal readings at home. In 2008 I had headaches and general unwell feelings and palpitations that were troubling. I had my bp checked and it was 200/110. They did ekg and gave me norvasc in the office. It came down. Back to nephrologist who ordered renin test, holter monitor (which did find an arrythmia), IVP/CT to determine if any changes in adenoma. According to nephrologist all tests normal. About two weeks ago I developed chest pain radiating to shoulder. Hospitalized overnight. Only findings were high BP about 165/95, rapid pulse. They did cardiac monitoring, stress test etc. All normal, acid reflux? I have found a new endo who has ordered various blood and 24 hr urine and she also wants me to have a repeat CT. She seemed to listen, but reiterated that I need to trust the test? I don't. It seems that if they can't measure something it doesn't exist. At every turn I have been sent away with no explaination for my admittedly " subjective " symptoms. I feel neurotic but I KNOW that there are great hunks of time that I feel just fine and I don't go looking for trouble. I'd like to believe that this thing is a red herring and I just need a nice meditation class. Will the renin test remain consistent? I have this idea that this thing only acts up episodically as I have blocks of time where I feel pretty well. Sort of how your child becomes instantly well when you take him into the Dr. office! I currently take 165 mg of diovan which seems to control BP. Also, any recommendations for endo in the Seattle area? I haven't quite figured out how to navigate the list and I have dial up so things are slow. Any guidance will be welcome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 I notice stress makes it's way right to my 'E'. That is no way to spend vacation The board's page may contain a reference on the docs list. Best wishes with everything. Dan -- Sent from Phone. Ottenheimer wrote:  I am a 66 year old male who was diagnosed over 10 years ago with achalasia. The first symptom was that I kept spitting up salads that I had eaten the night before. I still have trouble with leafy greens of any kind. Anyhow, that was when I had my first dilation. My second dilation occurred after my divorce and move to another city. The stress seemed to play a significant role. I thought I figured out successful eating behavior that worked so I could avoid surgery. And I lived with it for several years. This past Christmas holiday I was traveling through Guatemala having trouble with bus connections and finding lodging. It was stressful and I found that my LES became so tight I couldn't swallow water. By the time I got home I was dehydrated and had to be hospitalized. I had a dilation and botox injections and right now it seems to be working fairly well, although today I had trouble and had to spit up my dinner from last night. I have decided to have a miotomy and a Dr. Reginald Bell in Denver has been recommended. Has anyone heard of him? What questions should I be asking when I meet with him? Santa Fe, New Mexico ________________________________ MARKETPLACE Going Green: Your resource for green living Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 , do I not remember you from this board, maybe about 6 years ago? You can just go to /groups and click on " database " on the left hand side of the page. Then find Doctor's referral list. Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 Dan, How do I access the board's page? ________________________________ From: Hoffman <rp518dan@...> " achalasia " <achalasia > Sent: Mon, January 18, 2010 11:51:21 AM Subject: Re: My story  I notice stress makes it's way right to my 'E'. That is no way to spend vacation The board's page may contain a reference on the docs list.. Best wishes with everything. Dan -- Sent from Phone. Ottenheimer wrote:  I am a 66 year old male who was diagnosed over 10 years ago with achalasia. The first symptom was that I kept spitting up salads that I had eaten the night before. I still have trouble with leafy greens of any kind. Anyhow, that was when I had my first dilation. My second dilation occurred after my divorce and move to another city. The stress seemed to play a significant role. I thought I figured out successful eating behavior that worked so I could avoid surgery. And I lived with it for several years. This past Christmas holiday I was traveling through Guatemala having trouble with bus connections and finding lodging. It was stressful and I found that my LES became so tight I couldn't swallow water. By the time I got home I was dehydrated and had to be hospitalized. I had a dilation and botox injections and right now it seems to be working fairly well, although today I had trouble and had to spit up my dinner from last night. I have decided to have a miotomy and a Dr. Reginald Bell in Denver has been recommended. Has anyone heard of him? What questions should I be asking when I meet with him? Santa Fe, New Mexico ____________ _________ _________ __ MARKETPLACE Going Green: Your resource for green living Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 Go to this page: achalasia/ All along the left-hand margin there are all kinds of links to files, databases, polls, etc. Debbi in Michigan > > Dan, > How do I access the board's page? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 Hi , If your emai is HTML, somewhere on this message there should be a link that takes you there. It says: " Visit your group " and is near the bold " Recent Activity " heading. Dan -- Sent from Phone. Ottenheimer wrote:  Dan, How do I access the board's page? ________________________________ From: Hoffman & lt;rp518dan@...> " achalasia " & lt;achalasia > Sent: Mon, January 18, 2010 11:51:21 AM Subject: Re: My story  I notice stress makes it's way right to my 'E'. That is no way to spend vacation The board's page may contain a reference on the docs list.. Best wishes with everything. Dan -- Sent from Phone. Ottenheimer wrote:  I am a 66 year old male who was diagnosed over 10 years ago with achalasia. The first symptom was that I kept spitting up salads that I had eaten the night before. I still have trouble with leafy greens of any kind. Anyhow, that was when I had my first dilation. My second dilation occurred after my divorce and move to another city. The stress seemed to play a significant role. I thought I figured out successful eating behavior that worked so I could avoid surgery. And I lived with it for several years. This past Christmas holiday I was traveling through Guatemala having trouble with bus connections and finding lodging. It was stressful and I found that my LES became so tight I couldn't swallow water. By the time I got home I was dehydrated and had to be hospitalized. I had a dilation and botox injections and right now it seems to be working fairly well, although today I had trouble and had to spit up my dinner from last night. I have decided to have a miotomy and a Dr. Reginald Bell in Denver has been recommended. Has anyone heard of him? What questions should I be asking when I meet with him? Santa Fe, New Mexico ____________ _________ _________ __ MARKETPLACE Going Green: Your resource for green living Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 Thanks Debbie. It also has been very helpful to read some of the old messages. ________________________________ From: bigbrillohead <imahockeymom@...> achalasia Sent: Tue, January 19, 2010 8:38:35 AM Subject: Re: My story  Go to this page: http://health. groups.. com/group/ achalasia/ All along the left-hand margin there are all kinds of links to files, databases, polls, etc. Debbi in Michigan > > Dan, > How do I access the board's page? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 What area of the country are you in? T. On 8/17/2010 5:06 PM, caroltoth73 wrote: > > 14 yrs ago I was diagnosed with cmp. I did'ent take it seriously and I > asked dr what could I do to stop it and he said don't run anymore. > That's when I invented dancing on the treadmill a good core excercise > and started biking long distances. I had pain after that slowly got > worse. I grew up with rocky and jane fonda idols. You know no pain no > gain and I was willing to pay the price. I'm a nurse and stand and > push large people on carts in and out every half hr for a 10 hrs > shift. finally pain started spreading from the knees into the thighs > and down into the calf, after a day at work my legs were so painfull I > would just lay on the couch. I could only work and that was painfull. > Finally got someone to do an mri showing grade II/III with some bone > marrow changes. I have tryed synvisc inj's and steriod inj's. Saw 2 > surgeons that really did'ent want to do surgery and gave me zip info > and pain meds and a glad to meet you goodbye..... > > I've searched the web and finally found your web site. I coulden't > even get a doc to do a scope? I'm so frustrated. I changed my job to > one that sits and walks. I can't even ride a bike. Being on my feet > for 4hrs at a time is all I can tolerate and I can't tolerate heels at > all. I'm gaining wt and self concept is wearing away like whats left > of my pattella. The worst part is not knowing where I'm going cause of > lack of info. I feel like all my self discipline in staying fit has > been rewarded with a big splap in the face. Can anyone tell me what's > down the road? I'm stuck here in the pain and living just to work. I > need a 101 cpm from overuse. Carol > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Scopes are not necessarily good things. Some insurance companies said they were going to stop paying for them because they are not helpful to most patients and it tends to make the pain worse in far to many patients. Tara On Aug 17, 2010, at 6:06 PM, caroltoth73 wrote: > 14 yrs ago I was diagnosed with cmp. I did'ent take it seriously and I asked dr what could I do to stop it and he said don't run anymore. That's when I invented dancing on the treadmill a good core excercise and started biking long distances. I had pain after that slowly got worse. I grew up with rocky and jane fonda idols. You know no pain no gain and I was willing to pay the price. I'm a nurse and stand and push large people on carts in and out every half hr for a 10 hrs shift. finally pain started spreading from the knees into the thighs and down into the calf, after a day at work my legs were so painfull I would just lay on the couch. I could only work and that was painfull. Finally got someone to do an mri showing grade II/III with some bone marrow changes. I have tryed synvisc inj's and steriod inj's. Saw 2 surgeons that really did'ent want to do surgery and gave me zip info and pain meds and a glad to meet you goodbye..... > > I've searched the web and finally found your web site. I coulden't even get a doc to do a scope? I'm so frustrated. I changed my job to one that sits and walks. I can't even ride a bike. Being on my feet for 4hrs at a time is all I can tolerate and I can't tolerate heels at all. I'm gaining wt and self concept is wearing away like whats left of my pattella. The worst part is not knowing where I'm going cause of lack of info. I feel like all my self discipline in staying fit has been rewarded with a big splap in the face. Can anyone tell me what's down the road? I'm stuck here in the pain and living just to work. I need a 101 cpm from overuse. Carol > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 I'm from south bend in and i live only an hour and a half from chicago. What is Dr Minas's speciality ? > > > > 14 yrs ago I was diagnosed with cmp. I did'ent take it seriously and I > > asked dr what could I do to stop it and he said don't run anymore. > > That's when I invented dancing on the treadmill a good core excercise > > and started biking long distances. I had pain after that slowly got > > worse. I grew up with rocky and jane fonda idols. You know no pain no > > gain and I was willing to pay the price. I'm a nurse and stand and > > push large people on carts in and out every half hr for a 10 hrs > > shift. finally pain started spreading from the knees into the thighs > > and down into the calf, after a day at work my legs were so painfull I > > would just lay on the couch. I could only work and that was painfull. > > Finally got someone to do an mri showing grade II/III with some bone > > marrow changes. I have tryed synvisc inj's and steriod inj's. Saw 2 > > surgeons that really did'ent want to do surgery and gave me zip info > > and pain meds and a glad to meet you goodbye..... > > > > I've searched the web and finally found your web site. I coulden't > > even get a doc to do a scope? I'm so frustrated. I changed my job to > > one that sits and walks. I can't even ride a bike. Being on my feet > > for 4hrs at a time is all I can tolerate and I can't tolerate heels at > > all. I'm gaining wt and self concept is wearing away like whats left > > of my pattella. The worst part is not knowing where I'm going cause of > > lack of info. I feel like all my self discipline in staying fit has > > been rewarded with a big splap in the face. Can anyone tell me what's > > down the road? I'm stuck here in the pain and living just to work. I > > need a 101 cpm from overuse. Carol > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 This is true. Scopes are like any other surgical procedure, you need to have a good reason for them. In my case, my OS said he couldn't really get a clear picture of my problem with a MRI or Xray. But, he had a really good indication as to what was going on. And he'd have to scope for the cartilage plug anyway. As it was, he did a " cleanout " at the same time he was diagnosing and pulling the cartilage plug, and I had complete pain relief for 3-4 months. So there are some people who have good results from a scope, when it's indicated and done well. T. *___________________ Fisher @...* On Tue, Aug 17, 2010 at 5:19 PM, Tara Gandy-Sanford <try2livehealthy@... > wrote: > Scopes are not necessarily good things. Some insurance companies said they > were going to stop paying for them because they are not helpful to most > patients and it tends to make the pain worse in far to many patients. > > Tara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2010 Report Share Posted August 21, 2010 Hi Ian When you said ' .. I got a far infrared unit and had about a week's worth of remission, and since then, absolutely nothing. Ian do youmean no more bite when you say absolutely nothing ? Are you free of bites now ? if so Thank God also when you said I'm fine> when I get to stay in a hotel, and suicidal when I get in my> car or go home , shouldn't you move & get a new car or bike ? Glad you are better wow , what good news , I still pick up bugs here & there. Peroxide & borax & water kills them though . See ya , Bill On Sat Aug 21st, 2010 11:29 PM EDT tenchantre@... wrote: >I have about ten reasonable theories as to how I got this - all ones that others point to. Long story short, I was exposed to a hell of a lot of contaminants. But I think the major factors that led to my susceptibility and infection were a severe depression in late 2007, and chronic constipation (and depressed immune system) from doctor prescribed painkillers, which really let these things take hold. > >It started for me with a bite on the back, I think. I remember them being on my ankles and centered around my computer chair only (where I sat a lot at night). I must have tracked them in - or so I thought at the time. I assumed it was fleas, and after a few days cleaned the area thoroughly. They stayed localized to my computer desk for about 2 months, and I just moved my computer over to the sofa. By month 3, my cat was scratching and they had started to bother me by the sofa. This began a very heavy amount of cleaning for me - cleaning for 36 hours at a stretch, at times; and THEN getting bitten after all that. I doused the apartment with tons of bug spray to zero effect. They started to hit me hard in my sleep, first on my buttocks and then harshly on my back, like being stabbed. Waking up and showering over and over. Finally my doctor said I had scabies and I did 5 different peremithyn treatments, most full-body, 24 hour treatments. I also > tried Eurax, ne, and a few others. I took one dose of Ivermectin, which seemed to help for about 8 hours. (I took 2 larger dozes later, from the farm store, with no effect.) At some point I started using sulfur soap, and I got a 2 inch cut in my neck that was quite slow to heal. Very creepy. By month four I was dousing everything with ammonia, including my car, and the symptoms (mainly harsh biting and insomnia) just kept snowballing. After MUCH research, long talks with a few " experts " I phased out the painkillers, and stopped using non-natural treatments. I began drinking and smoking, because the stress was ungodly. > >I found a great doctor, with dozens of degrees and certifications in both traditional and natural medicine. He had a lot of good ideas, but I've been beyond broke since this hell started, and haven't really been able to keep up with his many suggestions. I did the Blue Skies protocol from Lymebusters with zero effect. I did silver. I drove 800 miles to see Kolb and did many of her drugs and only her spiritual and psychological advice was valuable. I tried suicide twice and failed in both attempts. I got a far infrared unit and had about a week's worth of remission, and since then, absolutely nothing. My doctor admitted me to a mental hospital a few months ago and I felt nothing there - I wasn't heavily drugged - in fact, I was totally without caffeine or alcohol (hangovers seem to be like putting a " bring it on! " sign on my ass, so I avoid it now). I think the loving energy of the hospital staff kept me safe. > >I'm taking most of the Staninger protocol now, because I know 2 people in remission after doing it. I won't be buying anything from her again - we've had an ongoing conflict over the infra-red equipment she sent, because it is not the MPS brand I ordered. > >For my story...I'm fairly convinced that emotional blocks, low self-esteem and lack of self-love have been the greatest barriers to healing. I have heard plenty of testimonies of treating the health of the heart and coming away from terrible diseases, including Morgellons. And if I can endure the constant trauma and terror of this experience, I will be one of those stories too. > >Ian > > > > > > > > > > >> From: Zoe <zoe_z3@...> >> Subject: Re: cured of bird mites! >> bird mites >> Date: Saturday, August 21, 2010, 1:30 AM >> How did this start for you. >> >> >> > >> > > > > > > >> > >> > > > > > > I have been cured of my bird >> mites by using a zapper!! I got it >> > >> > > just >> > >> > > > > > 2 days ago and used it 3-4 times a >> day....3rd day bird mites >> > >> > > dead...even >> > >> > > > > > the eggs!! They had burrowed >> down in the creases between my legs >> > >> > > and on >> > >> > > > > > top of my private area. I had >> tried just about everything...went >> > >> > > to dr. >> > >> > > > > > and was misdiagnosed. Praise >> God!! >> > >> > > > > > > >> > >> > > > > > >> > >> > > > > >> > >> > > > >> > >> > > >> > >> >> >> >> >> ------------------------------------ >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 The remission lasted one week. I get bit about once every 15 seconds on average. It's very upsetting. I should do a lot of things I don't have the money to do. Or believe me, I'd do them. Ian > > > >> From: Zoe <zoe_z3@...> > >> Subject: Re: cured of bird mites! > >> bird mites > >> Date: Saturday, August 21, 2010, 1:30 AM > >> How did this start for you. > >> > >> > >> > > >> > > > > > > > >> > > >> > > > > > > I have been cured of > my bird > >> mites by using a zapper!! I got it > >> > > >> > > just > >> > > >> > > > > > 2 days ago and used it > 3-4 times a > >> day....3rd day bird mites > >> > > >> > > dead...even > >> > > >> > > > > > the eggs!! They had > burrowed > >> down in the creases between my legs > >> > > >> > > and on > >> > > >> > > > > > top of my private area. I > had > >> tried just about everything...went > >> > > >> > > to dr. > >> > > >> > > > > > and was misdiagnosed. > Praise > >> God!! > >> > > >> > > > > > > > >> > > >> > > > > > > >> > > >> > > > > > >> > > >> > > > > >> > > >> > > > >> > > >> > >> > >> > >> > >> ------------------------------------ > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 Hi Ian so sorry to say you should do this or that thing . I should move too for the 4th time . I will . I have to learn to fight them though , thanks to the forum I have lerned a few weapons. Thank God. What did you think of the far infared , did it hurt or was it like a sauna . Why didn't you keep doing it ? What about sulfur creme 10 perc , I used it for 1 year , it stopped the itch , then went to 16 oz peroxide / 2 tbls borax & 32 oz water , the really killed them ecept the deep ones about 5 on my back , thets when I learned about 1 cup arm & hammer powdered laundry soap in the bath for 30 mins . The deep one stooped wiggling , I still apply it 3 teasp per cup of water daily to the deep ones in my back , I haven't felt them in a whle , like 2 months , but if I le up & don't apply , I feel them itch a little. . Ian what about chelation , they fill your viens with peroxide or vitamin C ten you go to lunch , 2 hrs later they drain it out & problems dissapear . Here is my notes on it: chelation: They fill your viens with hydrogen peroxide , you go out to lunch , comeback in 2 hours , they drain it out & your veins are cleared . and then they do it with EDTA (ethyl acid ) or vitamin C or PlaqueX possible cure for: Lyme which is a bacteria This procedure saved Steve Tvedtens life by cleaning the plague out of his veins He said he went to the Dr, they filled his viens with peroxide , he then goes out to lunch for 2 hrs , then returns , they drain the peroxide out, & his viens are clear of all plague. Amazing ! ....He said it was painless. He went to China 4 days later to teach them integrated pest control. He was there for 2 month or so. He is very knowledgable of safe pest control & cleanses .He also sell products all at the average prices it costs elsewhere. I call him to get tips on pest control , he is smart and he is a Christian . His site is : Safe Solutions, Inc. toll free at 1-888-443-8738; http://www.safe2use.com Here is an intresting thing I read in his book which was 149.00 , now it is free in PDF .. Link: in html, http://66.218.69.11/search/cache?ei=UTF-8 & fr=sfp & p=kidney+stones+apple+cider+tve\ dten & u=www.safesolutionsinc.com/healthy.pdf & w=kidney+stones+apple+apples+cider+t\ vedten & d=QRPP_fmdOdZm & icp=1 & .intl=us Kidney stones calcium : newest way 8 oz of fresh squeezed lemon juice sweeten with stevia Then 1 oz in water every hour for 12 hrs Old way apple cider 1/2 tspn gravel root 1/2 tspn of Hydranga root from site: the urinary tract include uric acid and the amino acid cystine. Uric Stones: cure: surgery (aprox name) are the 2nd types off stone ,they are not soluble .. Kidney Stones To safely and effectively remove calcium kidney stones, take 30 to 40 drops of gravel root tincture and 30 to 40 drops of hydrangea root tincture in a glass of apple cider twice a day. To help prevent their formation, take 2 - 50 mg B6 tablets and 1 - 250 mg tablet of magnesium before sleeping. Drink lots of distilled water from a glass (not plastic) bottle. Well that is amazing & Steve used this to cure his stones after ultrsound stone removal failed . A he awoke with 2 ft of string tied to 3 ft of plastic tubing inside his un mentioable tract. They said it failed we will have to do it again .. He said no & searched for an easier cure Bye, Bill On Sun Aug 22nd, 2010 2:17 AM EDT tenchantre@... wrote: >The remission lasted one week. I get bit about once every 15 seconds on average. It's very upsetting. > >I should do a lot of things I don't have the money to do. Or believe me, I'd do them. > >Ian > > > >> > >> >> From: Zoe <zoe_z3@...> >> >> Subject: Re: cured of bird mites! >> >> bird mites >> >> Date: Saturday, August 21, 2010, 1:30 AM >> >> How did this start for you. >> >> >> >> >> >> > >> >> > > > > > > >> >> > >> >> > > > > > > I have been cured of >> my bird >> >> mites by using a zapper!! I got it >> >> > >> >> > > just >> >> > >> >> > > > > > 2 days ago and used it >> 3-4 times a >> >> day....3rd day bird mites >> >> > >> >> > > dead...even >> >> > >> >> > > > > > the eggs!! They had >> burrowed >> >> down in the creases between my legs >> >> > >> >> > > and on >> >> > >> >> > > > > > top of my private area. I >> had >> >> tried just about everything...went >> >> > >> >> > > to dr. >> >> > >> >> > > > > > and was misdiagnosed. >> Praise >> >> God!! >> >> > >> >> > > > > > > >> >> > >> >> > > > > > >> >> > >> >> > > > > >> >> > >> >> > > > >> >> > >> >> > > >> >> > >> >> >> >> >> >> >> >> >> >> ------------------------------------ >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 To answer your question, I used a version of the " Rainbow " FIR unit. As I mentioned, it gave me a week of relief. In 6 months I've used it an average of 6 hours a night, and sometimes as long as 30 hours straight. It's totally painless, though cumbersome to keep stable on an air matress. I'd never recommend it to anyone. I plan to purchase an MPS pad when I have the cash. Almost everything I've had success with has lasted about a week, so the FIR is no surprise. I'm sticking with the Staninger protocol till the end. We'll see if I'm any better then. The Arm & Hammer powdered detergent didn't do anything for me. Environmentally, a heavy mopping of Borax and constant Hydrogen Peroxide in a cool mist vaporizer seem to work the best. Of course, sometimes nothing works, no matter what. My doctor is a big believer in chelation. It's about $200 a pop, and I'm ALWAYS broke, but I may consider it. Really wish I had some rich relatives! Thank you for writing. > >> > > >> >> From: Zoe <zoe_z3@...> > >> >> Subject: Re: cured of bird > mites! > >> >> bird mites > >> >> Date: Saturday, August 21, 2010, 1:30 AM > >> >> How did this start for you. > >> >> > >> >> > >> >> > > >> >> > > > > > > > >> >> > > >> >> > > > > > > I have been > cured of > >> my bird > >> >> mites by using a zapper!! I got it > >> >> > > >> >> > > just > >> >> > > >> >> > > > > > 2 days ago and > used it > >> 3-4 times a > >> >> day....3rd day bird mites > >> >> > > >> >> > > dead...even > >> >> > > >> >> > > > > > the eggs!! > They had > >> burrowed > >> >> down in the creases between my legs > >> >> > > >> >> > > and on > >> >> > > >> >> > > > > > top of my > private area. I > >> had > >> >> tried just about everything...went > >> >> > > >> >> > > to dr. > >> >> > > >> >> > > > > > and was > misdiagnosed. > >> Praise > >> >> God!! > >> >> > > >> >> > > > > > > > >> >> > > >> >> > > > > > > >> >> > > >> >> > > > > > >> >> > > >> >> > > > > >> >> > > >> >> > > > >> >> > > >> >> > >> >> > >> >> > >> >> > >> >> ------------------------------------ > >> >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 Thanks for your support, Lynn. Religious belief would be a wonderful thing but I fear Morgellons has destroyed any hope in a caring god I might have once considered. > From: Lynn <torpedolynn@...> > Subject: Re: my story > bird mites > Date: Sunday, August 22, 2010, 4:17 AM > Keep on fighting Ian. You can win and > if I am wroung than you can get a new body in the next life. > I have alot of simular things with you. The stinging use to > get my buttocks and than my back. I use to have fleas > and thought it was just the stages of fleas. I went through > bad depression when I went into Menopause and am Bi-Polar on > top of that. > > In Light Lynn > > > > > > > > > > > > > > > > > > > > > > > > > > > > I have been cured > of my bird > > > mites by using a zapper!! I got it > > > > > > > > > just > > > > > > > > > > > > 2 days ago and used it > 3-4 times a > > > day....3rd day bird mites > > > > > > > > > dead...even > > > > > > > > > > > > the eggs!! They had > burrowed > > > down in the creases between my legs > > > > > > > > > and on > > > > > > > > > > > > top of my private area. > I had > > > tried just about everything...went > > > > > > > > > to dr. > > > > > > > > > > > > and was misdiagnosed. > Praise > > > God!! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2010 Report Share Posted August 23, 2010 It sure did make my knees worse. I had scopes done on both knees at the same time some 3 years ago and the left knee cap actually goes too far to the outside of the joint frequently...so much so that I have to literally push it toward the center so I can bend my knee! My right knee has had a procedure similar to a TTT (Maquet procedure) done back in 1989 and it helped TONS until recently. It bought me a lot of time. Joi Re: My Story Scopes are not necessarily good things. Some insurance companies said they were going to stop paying for them because they are not helpful to most patients and it tends to make the pain worse in far to many patients. Tara On Aug 17, 2010, at 6:06 PM, caroltoth73 wrote: > 14 yrs ago I was diagnosed with cmp. I did'ent take it seriously and I asked dr what could I do to stop it and he said don't run anymore. That's when I invented dancing on the treadmill a good core excercise and started biking long distances. I had pain after that slowly got worse. I grew up with rocky and jane fonda idols. You know no pain no gain and I was willing to pay the price. I'm a nurse and stand and push large people on carts in and out every half hr for a 10 hrs shift. finally pain started spreading from the knees into the thighs and down into the calf, after a day at work my legs were so painfull I would just lay on the couch. I could only work and that was painfull. Finally got someone to do an mri showing grade II/III with some bone marrow changes. I have tryed synvisc inj's and steriod inj's. Saw 2 surgeons that really did'ent want to do surgery and gave me zip info and pain meds and a glad to meet you goodbye..... > > I've searched the web and finally found your web site. I coulden't even get a doc to do a scope? I'm so frustrated. I changed my job to one that sits and walks. I can't even ride a bike. Being on my feet for 4hrs at a time is all I can tolerate and I can't tolerate heels at all. I'm gaining wt and self concept is wearing away like whats left of my pattella. The worst part is not knowing where I'm going cause of lack of info. I feel like all my self discipline in staying fit has been rewarded with a big splap in the face. Can anyone tell me what's down the road? I'm stuck here in the pain and living just to work. I need a 101 cpm from overuse. Carol > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2010 Report Share Posted August 24, 2010 Hi Ian When you are down , that's when God comes to help , Bill On Mon Aug 23rd, 2010 1:48 AM EDT tenchantre@... wrote: >Thanks for your support, Lynn. Religious belief would be a wonderful thing but I fear Morgellons has destroyed any hope in a caring god I might have once considered. > > > > > >> From: Lynn <torpedolynn@...> >> Subject: Re: my story >> bird mites >> Date: Sunday, August 22, 2010, 4:17 AM >> Keep on fighting Ian. You can win and >> if I am wroung than you can get a new body in the next life. >> I have alot of simular things with you. The stinging use to >> get my buttocks and than my back. I use to have fleas >> and thought it was just the stages of fleas. I went through >> bad depression when I went into Menopause and am Bi-Polar on >> top of that. >> >> In Light Lynn >> >> >> > > > >> > > > > > > > > >> > > > >> > > > > > > > > I have been cured >> of my bird >> > > mites by using a zapper!! I got it >> > > > >> > > > > just >> > > > >> > > > > > > > 2 days ago and used it >> 3-4 times a >> > > day....3rd day bird mites >> > > > >> > > > > dead...even >> > > > >> > > > > > > > the eggs!! They had >> burrowed >> > > down in the creases between my legs >> > > > >> > > > > and on >> > > > >> > > > > > > > top of my private area. >> I had >> > > tried just about everything...went >> > > > >> > > > > to dr. >> > > > >> > > > > > > > and was misdiagnosed. >> Praise >> > > God!! >> > > > >> > > > > > > > > >> > > > >> > > > > > > > >> > > > >> > > > > > > >> > > > >> > > > > > >> > > > >> > > > > >> > > > >> > > >> > > >> > > >> > > >> > > ------------------------------------ >> > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2010 Report Share Posted August 26, 2010 Joi, What is a maquet procedure? Carol > > > 14 yrs ago I was diagnosed with cmp. I did'ent take it seriously and I > asked dr what could I do to stop it and he said don't run anymore. That's > when I invented dancing on the treadmill a good core excercise and started > biking long distances. I had pain after that slowly got worse. I grew up > with rocky and jane fonda idols. You know no pain no gain and I was willing > to pay the price. I'm a nurse and stand and push large people on carts in > and out every half hr for a 10 hrs shift. finally pain started spreading > from the knees into the thighs and down into the calf, after a day at work > my legs were so painfull I would just lay on the couch. I could only work > and that was painfull. Finally got someone to do an mri showing grade II/III > with some bone marrow changes. I have tryed synvisc inj's and steriod inj's. > Saw 2 surgeons that really did'ent want to do surgery and gave me zip info > and pain meds and a glad to meet you goodbye..... > > > > I've searched the web and finally found your web site. I coulden't even > get a doc to do a scope? I'm so frustrated. I changed my job to one that > sits and walks. I can't even ride a bike. Being on my feet for 4hrs at a > time is all I can tolerate and I can't tolerate heels at all. I'm gaining wt > and self concept is wearing away like whats left of my pattella. The worst > part is not knowing where I'm going cause of lack of info. I feel like all > my self discipline in staying fit has been rewarded with a big splap in the > face. Can anyone tell me what's down the road? I'm stuck here in the pain > and living just to work. I need a 101 cpm from overuse. Carol > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2010 Report Share Posted August 26, 2010 Carol: You can Google up information about just about every procedure and treatment available: http://www.kneeguru.co.uk/KNEEnotes/maquet-procedure There is an amazing amount of information out there. A lot of crap too! Hahaha... But you'll learn to distinguish the good from the bad. Keep doing your homework, Doug > > > > > 14 yrs ago I was diagnosed with cmp. I did'ent take it seriously and I > > asked dr what could I do to stop it and he said don't run anymore. That's > > when I invented dancing on the treadmill a good core excercise and started > > biking long distances. I had pain after that slowly got worse. I grew up > > with rocky and jane fonda idols. You know no pain no gain and I was willing > > to pay the price. I'm a nurse and stand and push large people on carts in > > and out every half hr for a 10 hrs shift. finally pain started spreading > > from the knees into the thighs and down into the calf, after a day at work > > my legs were so painfull I would just lay on the couch. I could only work > > and that was painfull. Finally got someone to do an mri showing grade II/III > > with some bone marrow changes. I have tryed synvisc inj's and steriod inj's. > > Saw 2 surgeons that really did'ent want to do surgery and gave me zip info > > and pain meds and a glad to meet you goodbye..... > > > > > > I've searched the web and finally found your web site. I coulden't even > > get a doc to do a scope? I'm so frustrated. I changed my job to one that > > sits and walks. I can't even ride a bike. Being on my feet for 4hrs at a > > time is all I can tolerate and I can't tolerate heels at all. I'm gaining wt > > and self concept is wearing away like whats left of my pattella. The worst > > part is not knowing where I'm going cause of lack of info. I feel like all > > my self discipline in staying fit has been rewarded with a big splap in the > > face. Can anyone tell me what's down the road? I'm stuck here in the pain > > and living just to work. I need a 101 cpm from overuse. Carol > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2010 Report Share Posted September 8, 2010 Allie wrote: > I have no insurance and I don't think that state is going to cover me for insurance because I have no children. > If you are in the US there is now insurance for people who can not get insurance because of a preexisting condition. You have to have tried to get it and have been rejected and you have to have a doctor confirm that you have a condition that causes you to be rejected. The premiums, depending on your state and age, are going to be hundreds of dollars a month possibly as much as $700 and the deductible may be as much as 6,000 a year. It is not a family plan. I could be wrong but that is what I seem to remember. notan Quote Link to comment Share on other sites More sharing options...
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