Need help

[Guest guest]

Hi Art and Tim,

I was living in Dallas when I had my second surgery for Achalasia. I

was actually diagnosised when I was 17 and have been " going through

this for a long time " . There are several people on this board from the

great country of Texas (we know its a nation of its own...LOL) so post

away and I am sure you will find some great help. Oh and there is also

the chat room, although finding someone in there is sometimes a

challenge.

JC

[Guest guest]

Oh I feel for you! I really do!!!

I know where you’re coming from. I really do!! I haven’t kept up

on posts and I’m sorry about that!

From: achalasia [mailto:achalasia ] On Behalf Of Bartolino

Sent: Tuesday, May 16, 2006 7:23

PM

achalasia

Subject: Need help

I

have been on a fluid diet for over a year Although I have tried to eat

some solids But now it's getting less for solids to go

down Been on ensure heavy soups milk soy milk smoothies The

past few days I am having loose stools{ Lord I am

telling you this MY husband doesn't even know ]What can I do about it

??? Am taking Imoduim [spelling] I am tired No get up and go

Throat and " E " Burns I feel a mess ......

[Guest guest]

Hi ,

In the database on this website, Dr. Katz is listed. The

information is about 2 years old. All the information is copied

below. Good luck.

NY L. Katz, M.D. laparoscopic surgery (offices at Laparoscopic

Surgical Center of New York, 1010 Fith Avnue, N.Y. NY 10028) 212-879-

6677 Laparoscopic Heller Myotomy adapted for end-stage achalasia with

partial fundoplication. Eating solid food day after surgery with no

relfux at night. ginnyfamily2004@... 10 - excellent results.

No reflux. Very experienced surgeon. Group treats about 3-4 achalasia

per month at Mt. Sinai Hospital www.laparoscopicsurgeons.com August

2004

>

>

> I can't find Dr Katz of Mount Sinai's phone number Want to call

him And set up an appointment Thanks

>

[Guest guest]

and group I need some advice Now I hope I say this right About 8 years ago had Dr Salky do my Heller And Dr Katz do my lap gallbladder They were in the same office They chose to do it that way My Heller failed Dr Salky said he would do it over I never did not Tried diets Meds different Drs ETC In Oct last year I went back to Dr Salky I was not comfortable with Him I think Dr Katz was more caring Question Since they are in separate offices Can I or should I go to DR Katz Hope this makes sense Oh I am on fluids now Want to EAT FOOD

-- Re: Need help

Hi , In the database on this website, Dr. Katz is listed. The information is about 2 years old. All the information is copied below. Good luck.NY L. Katz, M.D. laparoscopic surgery (offices at Laparoscopic Surgical Center of New York, 1010 Fith Avnue, N.Y. NY 10028) 212-879-6677 Laparoscopic Heller Myotomy adapted for end-stage achalasia with partial fundoplication. Eating solid food day after surgery with no relfux at night. ginnyfamily2004@... 10 - excellent results. No reflux. Very experienced surgeon. Group treats about 3-4 achalasia per month at Mt. Sinai Hospital www.laparoscopicsurgeons.com August 2004 >> > I can't find Dr Katz of Mount Sinai's phone number Want to call him And set up an appointment Thanks >

[Guest guest]

Dr Salky first said He did not cut down far enough That was 8 years ago NOW He is saying I had a "shelf" thats why it didn't work He is talking around in circles

-- Re: Need help

Hi , In the database on this website, Dr. Katz is listed. The information is about 2 years old. All the information is copied below. Good luck.NY L. Katz, M.D. laparoscopic surgery (offices at Laparoscopic Surgical Center of New York, 1010 Fith Avnue, N.Y. NY 10028) 212-879-6677 Laparoscopic Heller Myotomy adapted for end-stage achalasia with partial fundoplication. Eating solid food day after surgery with no relfux at night. ginnyfamily2004@... 10 - excellent results. No reflux. Very experienced surgeon. Group treats about 3-4 achalasia per month at Mt. Sinai Hospital www.laparoscopicsurgeons.com August 2004 >> > I can't find Dr Katz of Mount Sinai's phone number Want to call him And set up an appointment Thanks >

[Guest guest]

He said I had a twist in the "E" and that's why the heller was not a success He is saying that now not 8 years ago Thanks I am calling Katz tomorrow Let you know what happens Thanks for your ear

-- Re: Need help

Hi , In the database on this website, Dr. Katz is listed. The information is about 2 years old. All the information is copied below. Good luck.NY L. Katz, M.D. laparoscopic surgery (offices at Laparoscopic Surgical Center of New York, 1010 Fith Avnue, N.Y. NY 10028) 212-879-6677 Laparoscopic Heller Myotomy adapted for end-stage achalasia with partial fundoplication. Eating solid food day after surgery with no relfux at night. ginnyfamily2004@... 10 - excellent results. No reflux. Very experienced surgeon. Group treats about 3-4 achalasia per month at Mt. Sinai Hospital www.laparoscopicsurgeons.com August 2004 >> > I can't find Dr Katz of Mount Sinai's phone number Want to call him And set up an appointment Thanks >

[Guest guest]

,

You may want to seriously consider another surgeon altogether, unless Dr. Katz has substantial experience with hellers. With one already under your belt that didn't work, I'd want to be sure I had the very best before going in again. Are you anywhere near any of the surgeons mentioned repeatedly on this site by others?

I hope you find relief soon.

(in Ohio)

From: achalasia [mailto:achalasia ] On Behalf Of cynmark24@...Sent: Sunday, June 04, 2006 10:21 PMachalasia Subject: Re: Re: Need help

Hi ,

I don't don't know what you mean by saying that you had a "shelf," though I could make an intelligent guess. If, as you say, that Dr. Salky is making contradictory statements, I think you have answered your own question. What remains to decide, if you are going to have the H.M. is if it will be performed by Dr. Katz or another surgeon.

In a message dated 6/4/2006 10:16:55 P.M. Eastern Daylight Time, jfbartolino@... writes:

Dr Salky first said He did not cut down far enough That was 8 years ago NOW He is saying I had a "shelf" thats why it didn't work He is talking around in circles

-- Re: Need help

Hi , In the database on this website, Dr. Katz is listed. The information is about 2 years old. All the information is copied below. Good luck.NY L. Katz, M.D. laparoscopic surgery (offices at Laparoscopic Surgical Center of New York, 1010 Fith Avnue, N.Y. NY 10028) 212-879-6677 Laparoscopic Heller Myotomy adapted for end-stage achalasia with partial fundoplication. Eating solid food day after surgery with no relfux at night. ginnyfamily2004@... 10 - excellent results. No reflux. Very experienced surgeon. Group treats about 3-4 achalasia per month at Mt. Sinai Hospital www.laparoscopicsurgeons.com August 2004 >> > I can't find Dr Katz of Mount Sinai's phone number Want to call him And set up an appointment Thanks >

[Guest guest]

Need help

I am hoping someone can help me with this. My husband was just released

from the VA hospital last Friday, he has lost it again and now is

sitting in the county jail. I told them he needed to return to the VA

hospital and they told me no he wouldn't be going there. I have total

power of attorney on him can't I do the requesting for him to be sent

back to the hospital? Or what should I do?

[Guest guest]

,

   What kind of work do you do??? Are you planning on working during your

trial??,, If its in an office you might be able to so. Plan on getting bathing

items such as no rinse shampoo and  moist clothes that you warm in microwave..

You wont be able to shower during the trial.You wont be able to do any bending

or twisting. I made sure everything I would need was on higher shelves,then

hubby kept my sodas stocked on top shelf of fridge,,Alot of people use the

grabbers to pick stuff up that the drop or need... Just a thought...

          soft hugs

               T

            group moderator

 lisa

[Guest guest]

Something else I keep forgetting when I respond to people about the trial and

recovery from the perm scs, you can't lift your arms over your head at

all......it can cause the leads to shift.......You are a brave person to

continue working during your trial. If I hadn't already been out on disability

and was still working, I think I would have gotten so caught up in my job I

would have forgotten and probably messed up my trial. You just don't realize

how much bending/twisting/reaching you do in an average day without even

thinking about it. But since you can't bathe at least you'll be able to use the

warming wipes for " batheing " and the rinse free shampoo. Could you imagine

going a week and not washing your hair or cleaning up at all??? By day 3, I

wouldn't have wanted to be around me!!!! lol

Take Care,

B. in TEXAS

________________________________

From: lisa thompson <bluejeans412003@...>

Stimulator

Sent: Monday, February 9, 2009 3:55:08 PM

Subject: Re: Need Help

,

What kind of work do you do??? Are you planning on working during your

trial??,, If its in an office you might be able to so. Plan on getting bathing

items such as no rinse shampoo and moist clothes that you warm in microwave..

You wont be able to shower during the trial.You wont be able to do any bending

or twisting. I made sure everything I would need was on higher shelves,then

hubby kept my sodas stocked on top shelf of fridge,,Alot of people use the

grabbers to pick stuff up that the drop or need... Just a thought...

soft hugs

T

group moderator

lisa

[Guest guest]

I am a dispatcher so yes I will be working. I am staying with friends

over weekend and work then mon tue I am off wed thur back in office

fri will have it removed.

I am headed tmrw to get the moist towels that you warm in micro.can I

get them at walmart or walgreens. A grapper thing is a good idea will

get that at walgreens also.

Any other tips or ideas would be awesome to have. How about sleeping?

what works best?

>

> ,

>    What kind of work do you do??? Are you planning on working

during your trial??,, If its in an office you might be able to so.

Plan on getting bathing items such as no rinse shampoo and  moist

clothes that you warm in microwave.. You wont be able to shower

during the trial.You wont be able to do any bending or twisting. I

made sure everything I would need was on higher shelves,then hubby

kept my sodas stocked on top shelf of fridge,,Alot of people use the

grabbers to pick stuff up that the drop or need... Just a thought...

>           soft hugs

>                T

>             group moderator

>

>  lisa

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

LOL You cracked me up with that. I normally only wash hair 2 times a

week so thats ok. I have long hair I plan to brush and put back in a

stretchy headband. I work in a small office so I will have help. hmm

maybe I could see about getting my hair french braided. I am a single

mom I am the only one paying the bills. I work in medical field for

many years and my office is full of medical. I have lots of help and

should be ok. My biggest questions are getting out/in of car and

sleeping...

>

> Something else I keep forgetting when I respond to people about the

trial and recovery from the perm scs, you can't lift your arms over

your head at all......it can cause the leads to shift.......You are a

brave person to continue working during your trial. If I hadn't

already been out on disability and was still working, I think I would

have gotten so caught up in my job I would have forgotten and

probably messed up my trial. You just don't realize how much

bending/twisting/reaching you do in an average day without even

thinking about it. But since you can't bathe at least you'll be able

to use the warming wipes for " batheing " and the rinse free shampoo.

Could you imagine going a week and not washing your hair or cleaning

up at all??? By day 3, I wouldn't have wanted to be around me!!!!

lol

>

>

> Take Care,

> B. in TEXAS

>

>

>

>

>

> ________________________________

> From: lisa thompson <bluejeans412003@...>

> Stimulator

> Sent: Monday, February 9, 2009 3:55:08 PM

> Subject: Re: Need Help

>

>

> ,

> What kind of work do you do??? Are you planning on working

during your trial??,, If its in an office you might be able to so.

Plan on getting bathing items such as no rinse shampoo and moist

clothes that you warm in microwave.. You wont be able to shower

during the trial.You wont be able to do any bending or twisting. I

made sure everything I would need was on higher shelves,then hubby

kept my sodas stocked on top shelf of fridge,,Alot of people use the

grabbers to pick stuff up that the drop or need... Just a thought...

> soft hugs

> T

> group moderator

>

> lisa

>

>

[Guest guest]

,

 You might want to pick up some " no rinse shampoo " ... you wont be able to bend

over to even wash hair in sink,,,you should be able to get everything at

Walgreen's...

 I was able to sleep in my bed,, but I had a Craftmatic bed,, so I slept at an

incline. I'm not real sure how it would feel laying flat. someone else might be

able to help you with that,, There should be no reason why you couldn't lay

flat, problem on your side.

 Just make sure your don't bend,twist or reach over your head. The leads can

move very easy.During mine I went shopping, I had not been able to walk though

stores for so long. It was awesome!!!

 Good luck hon. If you have any more questions please ask..

                   soft hugs

                        T

                      group moderator

 lisa

[Guest guest]

That was in my instructions when I was released......I had to lay at a certain

degree angle.......could NOT lay flat. I don't remember what it was and don't

have the paperwork anymore. But I also have an electric adjustable bed so it

wasn't a problem other than we just " eye-balled " the bed for the angle. lol!!!!

And I don't remember why I was told I could not lay flat or for how long I

couldn't. But I never lay flat anyway because it causes my upper back to start

hurting. But if you're told you can't lay flat, they sell at WalMart/Target the

wedge (looks like a long triangle) that you can put under your pillows. A

friend did that when she got her stim.

Take Care,

B. in TEXAS

________________________________

From: lisa thompson <bluejeans412003@...>

Stimulator

Sent: Tuesday, February 10, 2009 11:03:31 AM

Subject: Re: Re: Need Help

,

You might want to pick up some " no rinse shampoo " ... you wont be able to bend

over to even wash hair in sink,,,you should be able to get everything at

Walgreen's.. .

I was able to sleep in my bed,, but I had a Craftmatic bed,, so I slept at an

incline. I'm not real sure how it would feel laying flat. someone else might be

able to help you with that,, There should be no reason why you couldn't lay

flat, problem on your side.

Just make sure your don't bend,twist or reach over your head. The leads can

move very easy.During mine I went shopping, I had not been able to walk though

stores for so long. It was awesome!!!

Good luck hon. If you have any more questions please ask..

soft hugs

T

group moderator

lisa

[Guest guest]

That's a good idea since you have long hair.....french braids. I would never

have thought about that. But my hair isn't long enough and is way too thin, it

wouldn't have worked for me. But that would probably work for a week. It's

been a little over 2 years since I got my permanent scs, and it's amazing how

much I've forgotten about what we could and couldn't do. Seems I've had it a

lot longer. But I did just remember I couldn't lay flat; and I can't remember

if it was with the temp or both. I think just the trial.

Take Care,

B. in TEXAS

________________________________

From: fpddcso <fpddcso@...>

Stimulator

Sent: Tuesday, February 10, 2009 10:57:26 AM

Subject: Re: Need Help

LOL You cracked me up with that. I normally only wash hair 2 times a

week so thats ok. I have long hair I plan to brush and put back in a

stretchy headband. I work in a small office so I will have help. hmm

maybe I could see about getting my hair french braided. I am a single

mom I am the only one paying the bills. I work in medical field for

many years and my office is full of medical. I have lots of help and

should be ok. My biggest questions are getting out/in of car and

sleeping...

>

> Something else I keep forgetting when I respond to people about the

trial and recovery from the perm scs, you can't lift your arms over

your head at all......it can cause the leads to shift....... You are a

brave person to continue working during your trial. If I hadn't

already been out on disability and was still working, I think I would

have gotten so caught up in my job I would have forgotten and

probably messed up my trial. You just don't realize how much

bending/twisting/ reaching you do in an average day without even

thinking about it. But since you can't bathe at least you'll be able

to use the warming wipes for " batheing " and the rinse free shampoo.

Could you imagine going a week and not washing your hair or cleaning

up at all??? By day 3, I wouldn't have wanted to be around me!!!!

lol

>

>

> Take Care,

> B. in TEXAS

>

>

>

>

>

> ____________ _________ _________ __

> From: lisa thompson <bluejeans412003@ ...>

> Stimulator@gro ups.com

> Sent: Monday, February 9, 2009 3:55:08 PM

> Subject: Re: Need Help

>

>

> ,

> What kind of work do you do??? Are you planning on working

during your trial??,, If its in an office you might be able to so.

Plan on getting bathing items such as no rinse shampoo and moist

clothes that you warm in microwave.. You wont be able to shower

during the trial.You wont be able to do any bending or twisting. I

made sure everything I would need was on higher shelves,then hubby

kept my sodas stocked on top shelf of fridge,,Alot of people use the

grabbers to pick stuff up that the drop or need... Just a thought...

> soft hugs

> T

> group moderator

>

> lisa

>

>

[Guest guest]

Raleys carries the micro wipes.

Sent from my iPhone

On Feb 10, 2009, at 8:52 AM, " fpddcso " <fpddcso@...> wrote:

I am a dispatcher so yes I will be working. I am staying with friends

over weekend and work then mon tue I am off wed thur back in office

fri will have it removed.

I am headed tmrw to get the moist towels that you warm in micro.can I

get them at walmart or walgreens. A grapper thing is a good idea will

get that at walgreens also.

Any other tips or ideas would be awesome to have. How about sleeping?

what works best?

>

> ,

> What kind of work do you do??? Are you planning on working

during your trial??,, If its in an office you might be able to so.

Plan on getting bathing items such as no rinse shampoo and moist

clothes that you warm in microwave.. You wont be able to shower

during the trial.You wont be able to do any bending or twisting. I

made sure everything I would need was on higher shelves,then hubby

kept my sodas stocked on top shelf of fridge,,Alot of people use the

grabbers to pick stuff up that the drop or need... Just a thought...

> soft hugs

> T

> group moderator

>

> lisa

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Wow, you are in a tough position.  I think once you can show your husband the

evidence he may come around.  Here are a couple of sites to look at and

hopefully your husband can read them.  www.homefirst.com will be having a Free

vaccine webinar coming up and you can go to that website to watch..  ONce you

attend the webinar he will send you a coupon to buy his book for $10.  Sign up

for his emails.

Another good one

http://www.thedoctorwithin.com/book12/sanctity-of-human-blood-vaccination-is-not\

-immunization.htm

 

Best Wishes

Jill

From: ousa83 <ousa83@...>

Subject: need help

Vaccinations

Date: Saturday, May 2, 2009, 7:48 PM

Hello everyone,

Here is the confusion:

My baby girl is 3months I have refused to vaccinate her , my husband is pro

vaccine, I want to convince him at least to wait I really don t have enough

arguments to do so, can you give me a strong argument.

Thanks

[Guest guest]

Ask your husband if he would be willing to ask your doctor if the doctor

would be willing to sign a vaccination guarantee.

The paper will state that no harm will come to the baby if vaccinated and that

the vaccine

will prevent any and all diseases vaccinated for.

Certainly that is fair enough isn't it?

We will be glad to provide such a document.

Jim

Healthologist

Certified in CS not BS

 

________________________________

From: ousa83 <ousa83@...>

Vaccinations

Sent: Saturday, May 2, 2009 2:48:47 PM

Subject: need help

Hello everyone,

Here is the confusion:

My baby girl is 3months I have refused to vaccinate her , my husband is pro

vaccine, I want to convince him at least to wait I really don t have enough

arguments to do so, can you give me a strong argument.

Thanks

[Guest guest]

At 12:48 PM 5/2/2009, you wrote:

>Hello everyone,

>Here is the confusion:

>My baby girl is 3months I have refused to vaccinate her , my husband

>is pro vaccine, I want to convince him at least to wait I really don

>t have enough arguments to do so, can you give me a strong argument.

>Thanks

Is he willing to read info along with you?

I do have a class that gives info in an organized manner

There won't be one magic statement that will convince him, but he

needs to see the dangers

Sheri

listowner

Sheri Nakken, R.N., MA, Hahnemannian Homeopath

Vaccination Information & Choice Network, Washington State, USA

Vaccines - http://www.nccn.net/~wwithin/vaccine.htm or

http://www.wellwithin1.com/vaccine.htm

Vaccine Dangers, Childhood Disease Classes & Homeopathy Online/email

courses - next classes April 22 & 23

http://www.wellwithin1.com/vaccineclass.htm or

http://www.wellwithin1.com/homeo.htm

[Guest guest]

Get the book It's available. THE GEAT WHITE HOAX. It has everything you need

need help

Hello everyone,

Here is the confusion:

My baby girl is 3months I have refused to vaccinate her , my husband is pro

vaccine, I want to convince him at least to wait I really don t have enough

arguments to do so, can you give me a strong argument.

Thanks

[Guest guest]

Sit down and watch this video together. In the meantime, tell him that his baby

can get the same dose as an adult. That snapped my husband out of it.

http://www.vaccinenation.net/

>

> Hello everyone,

> Here is the confusion:

> My baby girl is 3months I have refused to vaccinate her , my husband is pro

vaccine, I want to convince him at least to wait I really don t have enough

arguments to do so, can you give me a strong argument.

> Thanks

>

[Guest guest]

Mother's instinct.

Winnie

need help

Vaccinations

> Hello everyone,

> Here is the confusion:

> My baby girl is 3months I have refused to vaccinate her , my

> husband is pro vaccine, I want to convince him at least to wait

> I really don t have enough arguments to do so, can you give me a

> strong argument.

> Thanks

>

>

[Guest guest]

I tried the mother's instinct reason with my other half - it

infuriated him, as if fathers lack one of their own. My best sales

pitch was to show him the CDC vax charts now versus when we were

babies 30 years ago. Then I showed him the division E legislation by

senator frist, about how pharma was all protected from anything &

everything. I didn't mention autism until he agreed with me to not vax

DD. Once he understood the special interest/lobbying aspect of the

biz, how previous vaxes like DPT & rotashield were pulled, he piqued

an interest. He still drives me nuts, tho - after watching both 'shoot

'em up' movies he says there wasn't enough pro-vax info in the movies.

He thinks I obsess over vaxes because I enjoy reading about it. He

even has a cousin that instantly (hours to a day) regressed at age 3

from mmr (says his aunt, the mother). He says it's plausible but I can

tell he's not sold on the idea that the link exists. Grrrrrrrr so

frustrating.

Good luck to you. Do your best to provide him with sensible, common

sense facts about how corrupt vaxes are. Many a reputable MD have

turned their faces against them - that's also worth noting.

You have a fantastic mother's instinct, by the way.

Good luck.

Sent from my iPhone

On May 2, 2009, at 10:33 PM, wharrison@... wrote:

>

>

> Mother's instinct.

>

> Winnie

>

> need help

> Vaccinations

>

> > Hello everyone,

> > Here is the confusion:

> > My baby girl is 3months I have refused to vaccinate her , my

> > husband is pro vaccine, I want to convince him at least to wait

> > I really don t have enough arguments to do so, can you give me a

> > strong argument.

> > Thanks

> >

> >

>

>

[Guest guest]

Hi ,

Sorry I can't offer any alt. treatment suggestions but just wanted to let you

know your family is in my thoughts and I hope he gets through this.

NJ

Need help

Hi all,

I know this is off topic but my FIL is very ill and hospitalized, Hx of non

hodgkins lympoma , was healthy/ in remission except for a " bad sinus infection "

that needed surgery per him and my MIL.which is scheduled for end of july) Sun

- admitted to ER - for multiple DVT and superficial clots, had a vena cava

filter inserted monday. Since has gone down hill FAST. - very low blood

pressure 80/50, fevers of 101 or 102 on and off - MD says kidney failure.

amongst other things - says cancer is back, recieving blood transfusion. Md

told family this am Very poor prognosis, get everything in order - organs

shutting down. |

Anyone out there have any good alt. med treatments to help? I am not giving up,

he's a strong man, I would love to get his BP under control, and try to get

kidneys moving. Or am I being to hopefuL??

thanks

LISA

[Guest guest]

Hi ,

Go to the oleander soup group. Relay all you have shared. They are an

amazing group dedicated alternative treatments for cancer and to situations such

as yours. Stay strong. I wish you all the best.

Need help

Hi all,

I know this is off topic but my FIL is very ill and hospitalized, Hx of non

hodgkins lympoma , was healthy/ in remission except for a " bad sinus infection "

that needed surgery per him and my MIL.which is scheduled for end of july) Sun -

admitted to ER - for multiple DVT and superficial clots, had a vena cava filter

inserted monday. Since has gone down hill FAST. - very low blood pressure 80/50,

fevers of 101 or 102 on and off - MD says kidney failure. amongst other things -

says cancer is back, recieving blood transfusion. Md told family this am Very

poor prognosis, get everything in order - organs shutting down. |

Anyone out there have any good alt. med treatments to help? I am not giving up,

he's a strong man, I would love to get his BP under control, and try to get

kidneys moving. Or am I being to hopefuL??

thanks

LISA