Hi All

October 10, 2000

Dear

Congrats on finding this group. This will really help

you in lots of ways. Since you didn't get much relief

from botox and dilation, are you thinking of surgery

now? I've come to know that surgery is an option for

those who've tried dilation or other ways. I'm

thinking about surgery and doing researches on that

(finding articles on achalasia and its treatment).

This site can give you a lot of info on whatever you

need to ask. Besides, sharing your experience with

others and reading theirs will give you a good boost.

Hope you're able to find something useful.

With best wishes

Chitra

--- Rhiannon Tello <SC7Hannah@...> wrote:

> hi all. i have had achalasia for 12 years. i just

> had the botox shots

> and they didn't seem to do too much good. i'm not

> planning on

> anymore. i justt go and get dilated every now and

> then, and i have

> never had surgery. i have trouble with the meats and

> breads too and

> find the snack foods easier to eat! it was nice to

> find others with

> this same problem.

>

__________________________________________________

October 14, 2000

Hi, Rhiannon! (I'm guessing your parents were Fleetwood Mac fans?)

Thanks for joining this group and sharing your experiences. I'm sorry to

hear the botox shots didn't help you, but if you've been reading the other

postings, you've probably discovered that you're not alone in this. How

often do you have the dilations? Have your doctors ever discussed the pros

and cons of repeated dilations? If they're working so far, that's great!

Keep in touch and take care!

Carol

hi all

> hi all. i have had achalasia for 12 years. i just had the botox shots

> and they didn't seem to do too much good. i'm not planning on

> anymore. i justt go and get dilated every now and then, and i have

> never had surgery. i have trouble with the meats and breads too and

> find the snack foods easier to eat! it was nice to find others with

> this same problem.

>

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November 10, 2001

Hi Shirley! If spinal touch is anything like cranial

sacral manipulation - and it sounds like it is - it

has turned our lives around! My daughter had a stroke

at 10 months and was totally paralyzed on one side for

another 6 months and nonverbal for almost a year. CSM

had her babbling while still on the table! She is now

3 1/2 and continues to enjoy therapy, along with her

brother who was able to pull out of chronic ear

infections with CSM. I must admit I enjoy a treatment

now and then as a treat, myself. Much less invasive

than chiropractic, which we also enjoy when necessary.

I have learned a great many techniques we use at home

and hope to become trained/certified myself someday.

Any ideas?

a in MA

mommy to Baraq '95 and Yael '98

fb,xbf,cd,hs,ap,no-vax, no-circ

--- shirley poulton <shirleypoulton@...> wrote:

> sorry for being so slow in answering, im still

> trying to read all the

> messages here so ive skipped a few hundred in order

> to reply to u !!

> thanks for the welcome rachelle, spinal touch is a

> natural, no force

> or manipulation type of chiropractics, treating the

> body as a whole

> by correcting posture and therefore getting rid of

> pain. a good

> website for info is www.spinaltouch.org.....and a

> small amount on

> www.bcma.co.uk. Indian head massage is a massage u

> hav sitting in a

> chair, fully clothed, no oils unless u want a

> special one specialyfor

> the head. it is a neck, shoulder, and head n face

> massage. oh yeh

> mature as in old n wrinkly!!! :o/ shirl x

>

__________________________________________________

December 18, 2001

Oooohhhhh!!

Are we going to London Sheri!?!??!?!?!

How sweet to call me a good friend....:-P

Hehehheehee.

Let us know what Lord of the Rings is like!! Ive heard great reviews!

Sue

SAHM

dd Ruby 2.6 yrs

Wales, UK

January 1, 2002

I, for one, can hardly wait until the next class. Took hubby and 9 yo ds to see

Lord of the Rings. Excellent.

Laurie>oh

Hi all,

off to London for a few days for a little fun! Christmas decorations and

Lord of the Rings and seeing my good friend Sue!

Back on Thursday!

Happy studying

July 31, 2003

Thank You Paige;

I sure hope we don't lose a lot of important links. I often refer new members to our database. Thanks for sharing this.

.

-- Hi all

I am a moderator for another group and this came in my email today. Seems like is changing the rules on attachments. I know we all have priceless information here so I decided to share.PaigeDear Moderator,IMPORTANT NOTICE:You are receiving this notice because you are a moderator of one ormore groups. As part of our efforts to ensure that all users enjoy the same high-quality service, we will implement thefollowing service changes on Aug. 7, 2003:- Message Attachments: will continue to deliver allattachments sent via email, however, the attachments will no longer bearchived within the Messages area. You may continue to upload filesand images to the Files and Photos areas of your groups. Pleasere-upload any attachments you would like to preserve to the Photos orFiles areas of your group. On Aug. 7, all attachments in the Messagesarea will be removed, and will be unable to retrieve such data.- Add Members: The "Add Members" feature will now allow you to add 10new members per day (e.g., the ability to directly add your friendsand family to your group). You may still use the "Invite Members"feature to invite others to join your group.- Files and Photos: Groups web membership will be required to access agroup's Files and Photos areas.Thank you for your support as we make these changes that will allow usto continue offering a compelling, high quality, free service.For more details on the service changes described above, please visitour help section http://help./groups/groups-56.html. Please do not reply to this message via email, as responses will not be read.Sincerely,The Team

March 8, 2007

, do not be nervous, the worst part is the

worrying. Once the anesthesia wears off you will

notice results right away. Piece of cake. Let me

know how it goes.

Vinnie

--- rachelcovill <rachelcovill@...> wrote:

> Hi it's just wanted to let you all know that

> I've got the

> heller's next Friday (16th March). All at very

> short notice so I

> haven't got too long to worry about it. I'm really

> nervous but I hope

> it will all be worth it!! Had my pre-assesment today

> and that went

> well. I'll keep you posted on how it all goes!

>

________________________________________________________________________________\

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March 8, 2007

Wishing you the best of Good Luck, . You are right - it's best not to have too long to think about it it and just get on with it. And you might even be able to come to the UK meet-up on the 28th April. Do you think? Best Wishes from Ann XXrachelcovill <rachelcovill@...> wrote: Hi it's just wanted to let you all know that I've got the heller's next

Friday (16th March). All at very short notice so I haven't got too long to worry about it. I'm really nervous but I hope it will all be worth it!! Had my pre-assesment today and that went well. I'll keep you posted on how it all goes!

New is the ultimate force in competitive emailing. Find out more at the Championships. Plus: play games and win prizes.

March 8, 2007

Dear , I wish you all the best for your Heller's! Please try not to be to nervous. We all here on the forum know what you are going through. I can only wish you good luck, please let us know how things went! Isabellarachelcovill <rachelcovill@...> wrote: Hi it's just wanted to let you all know that I've got the heller's next Friday (16th March). All at very short notice

so I haven't got too long to worry about it. I'm really nervous but I hope it will all be worth it!! Had my pre-assesment today and that went well. I'll keep you posted on how it all goes!

Get your own web address. Have a HUGE year through Small Business.

May 11, 2007

lace,

As Tonia just said, you probably could not do better than having Dr. Rice take care of you. But, in the event that the distance to Cleveland is too great or that there are insurance factors involved, the next best choice would probably be Dr. Richter and Dr. Dempsey, both at Temple University Hospital in Philadelphia. Dr. Richter is the gastroenterologist; Dr. Dempsey is the surgeon. Speak with Dr. Richter first.

In a message dated 5/11/2007 8:59:00 P.M. Eastern Daylight Time, toniasdogsandi@... writes:

Hello- Welcome,sorry your having problemsWe did surgery first off cause it was the better/ fix.(my opinion)You need a experienced surgeon who has done many of these.I reccomend Dr Rice in Clevland Ohio.Several of us here have used him and he has done over 300 of these surgeries He is one of the best out there.wE DROVE OVER 8 HOURS FOR HIMMy son has gained 35 pounds since Oct when he had surgery by him.I f you would like more info just let me know and i will help as Much as I CAN.Do know things dont get better with time and surgery is a must if you want to get better.Tonia>> I would like to introduce myself and ask for some help as I'm facing > a future Heller Myotomy or balloon procedure.> > I've had two Botox treatments since the first of the year and was > told after the second treatment that it would be the last Botox > treatment. Does anyone have any suggestions on which treatment is > preferable, the balllon treatment or the myotomy. I am somewhat gun> shy about the balloon treatment as I fear perforation.> > The first treatment wasn't very successful but fortunately the second > time seems to be more effective. I still ocassionaly have hiccups or > problems swallowing as I have a long history of spasms of the > esophagus. Little did I realize the end result of this could be > Alchasia. > > I've lost several pounds but my weight seems to have stabilized. I > do worry about drinking water as a small amount goes into my lungs. > I was told to drink distilled water.> > > I would also appreciate knowing if their are any surgeons in PA that > are highly qualified to perform Heller Myotomies. Any information > would be helpful.> > lace>

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May 12, 2007

Hello- Welcome,sorry your having problems

We did surgery first off cause it was the better/ fix.(my opinion)

You need a experienced surgeon who has done many of these.I

reccomend Dr Rice in Clevland Ohio.Several of us here have

used him and he has done over 300 of these surgeries He is one of

the best out there.wE DROVE OVER 8 HOURS FOR HIM

My son has gained 35 pounds since Oct when he had surgery by him.I f

you would like more info just let me know and i will help as Much as

I CAN.Do know things dont get better with time and surgery is a must

if you want to get better.

Tonia

>

> I would like to introduce myself and ask for some help as I'm

facing

> a future Heller Myotomy or balloon procedure.

>

> I've had two Botox treatments since the first of the year and was

> told after the second treatment that it would be the last Botox

> treatment. Does anyone have any suggestions on which treatment

is

> preferable, the balllon treatment or the myotomy. I am somewhat gun

> shy about the balloon treatment as I fear perforation.

>

> The first treatment wasn't very successful but fortunately the

second

> time seems to be more effective. I still ocassionaly have hiccups

or

> problems swallowing as I have a long history of spasms of the

> esophagus. Little did I realize the end result of this could be

> Alchasia.

>

> I've lost several pounds but my weight seems to have stabilized.

I

> do worry about drinking water as a small amount goes into my

lungs.

> I was told to drink distilled water.

>

> I would also appreciate knowing if their are any surgeons in PA

that

> are highly qualified to perform Heller Myotomies. Any information

> would be helpful.

>

> lace

>

May 12, 2007

Hi there and welcome. Just so you know, I have had 3 dilitations and they all worked well. The chances of perferations is very slim. From what I hear the preferred treatment is heller myotomy, but that's between you and your dr. I have had achalasia for over 20 years and am going for first heller hopefully this month. There are many people on this site that can give you further info. Keep us updated on what's happening. annahlace <annahlace@...> wrote: I would like to introduce myself and ask for some help as I'm facing a future Heller Myotomy or balloon procedure.I've had two Botox treatments since the first of the year and was told after the second treatment that it would be the last Botox treatment. Does anyone have any suggestions on which treatment is preferable, the balllon treatment or the myotomy. I am somewhat gunshy about the balloon treatment as I fear perforation.The first treatment wasn't very successful but fortunately the second time seems to be more effective. I still ocassionaly have hiccups or problems swallowing as I have a long history of spasms of the esophagus. Little did I realize the end result of this could be Alchasia. I've lost several pounds but my weight seems to have stabilized. I do worry about drinking water as a

small amount goes into my lungs. I was told to drink distilled water.I would also appreciate knowing if their are any surgeons in PA that are highly qualified to perform Heller Myotomies. Any information would be helpful.lace

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May 12, 2007

Hi.

I am having a Myotomy in June..several have just had one. I had a Botox injection in March and it did help following a week of HORRIBLE spasms, but now have been able to eat small amounts without regurgitating. As far as the dilitation - many here have had them but the surgeon I go to prefers the myotomy - it is a longer fix, there can be preferations with either - i think more of a risk with the balloon. Anyway, just find the BEST surgeon who has done MANY myotomies and is very familiar with Achalasia.

i too suffer from spasms, haven't had as many following botox but that does wear off.

With respect to your aspiration, just make sure you have good mouth care - the less bacteria in your mouth the better. Stay upright following meals for 30-45 minutes to let E. empty - if it is really slow at emptying you may have to stay upright longer. These are just suggestions. There are many more on this site.

Good luck

Tammy FL

Hi All

I would like to introduce myself and ask for some help as I'm facing a future Heller Myotomy or balloon procedure.I've had two Botox treatments since the first of the year and was told after the second treatment that it would be the last Botox treatment. Does anyone have any suggestions on which treatment is preferable, the balllon treatment or the myotomy. I am somewhat gunshy about the balloon treatment as I fear perforation.The first treatment wasn't very successful but fortunately the second time seems to be more effective. I still ocassionaly have hiccups or problems swallowing as I have a long history of spasms of the esophagus. Little did I realize the end result of this could be Alchasia. I've lost several pounds but my weight seems to have stabilized. I do worry about drinking water as a small amount goes into my lungs. I was told to drink distilled water.I would also appreciate

knowing if their are any surgeons in PA that are highly qualified to perform Heller Myotomies. Any information would be helpful.lace

Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.

May 13, 2007

Thanks for the suggestions Tammy, I did find doctors in Pa at this

site and found one listed that performed a Botox procedure although

it had to be redone in about 6 weeks or so. I will start using

mouthwash more often. I didn't give mouth bacteria a thought but

practice healthy dental habits.

I feel somewhat better now that I see the listing for Hershey Medical

Center on this site.

Good luck with your Myotomy in June and I daresay you are relived to

be rid of those horrible spasms. I seldom have them or reflux due to

the last Botox but I can feel there are still problems. I can often

heard gurgling noises when I drink and I think of this as

the " Waterworks " .

Ruth

>

> Hi.

> I am having a Myotomy in June..several have just had one. I had a

Botox injection in March and it did help following a week of HORRIBLE

spasms, but now have been able to eat small amounts without

regurgitating. As far as the dilitation - many here have had them

but the surgeon I go to prefers the myotomy - it is a longer fix,

there can be preferations with either - i think more of a risk with

the balloon. Anyway, just find the BEST surgeon who has done MANY

myotomies and is very familiar with Achalasia.

> i too suffer from spasms, haven't had as many following botox but

that does wear off.

> With respect to your aspiration, just make sure you have good mouth

care - the less bacteria in your mouth the better. Stay upright

following meals for 30-45 minutes to let E. empty - if it is really

slow at emptying you may have to stay upright longer. These are just

suggestions. There are many more on this site.

> Good luck

> Tammy FL

>

> Hi All

>

> I would like to introduce myself and ask for some help as I'm

facing

> a future Heller Myotomy or balloon procedure.

>

> I've had two Botox treatments since the first of the year and was

> told after the second treatment that it would be the last Botox

> treatment. Does anyone have any suggestions on which treatment is

> preferable, the balllon treatment or the myotomy. I am somewhat gun

> shy about the balloon treatment as I fear perforation.

>

> The first treatment wasn't very successful but fortunately the

second

> time seems to be more effective. I still ocassionaly have hiccups

or

> problems swallowing as I have a long history of spasms of the

> esophagus. Little did I realize the end result of this could be

> Alchasia.

>

> I've lost several pounds but my weight seems to have stabilized. I

> do worry about drinking water as a small amount goes into my lungs.

> I was told to drink distilled water.

>

> I would also appreciate knowing if their are any surgeons in PA

that

> are highly qualified to perform Heller Myotomies. Any information

> would be helpful.

>

> lace

>

______________________________________________________________________

______________Be a better Heartthrob. Get better relationship answers

from someone who knows. Answers - Check it out.

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>

July 19, 2007

oh no rachel, sorry to hear youre struggling again. what did your

gp say was causing it?

i've been doing ok but today my dinner got stuck again so feeling a

bit down about things.

>

> I'm now 3 months post Heller's and seem to be doing ok. I didn't

have

> any problems going onto a normal diet after aound 2-3 weeks. In

the

> last couple of weeks I've suffered acis problems and went to my

GP.

> She gave me some tablets and alothough the acis has gone (I think)

I'm

> getting pains where my food used to get stuck? Although food is

passing

> through it seems slow and it hurts. Pre-surgery I didn't suffer

with

> any pain relating to Achalasia so to me it's a little odd!

>

> Has anyone suffered the same at all?

>

> Thanks

>

July 19, 2007

Dear Joanne, Was it just today that food got stuck? Maybe it's just an incident that happened. As you know, surgery is not a cure, it's just a way to make us cope better, to improve our quality of life. Achalasia will always stay. Swallowing might be better one day than another and some foods may cause more trouble than others. Maybe today you just chose the wrong type of food for you. Maybe you just learned a little personal achalasia lesson... Don't let this get you down. I understand your fears and worries, more than you can imagine, but I would say try to look at the bright side of things. I guess you've been able to eat quite some things already that you didn't have for a long time, or am I wrong? Take it slow and don't push things. Take it easy and you''ll do fine (well, that's easy for me to say, eh? Me not being in your shoes...). Wishing you lots of strength and

many great meals without any problems! You'll do fine. Love, Isabella star_jof <jefield@...> wrote: oh no rachel, sorry to hear youre struggling again. what did your gp say was causing it?i've been doing ok but today my dinner got stuck again so feeling a bit down about things.>> I'm

now 3 months post Heller's and seem to be doing ok. I didn't have > any problems going onto a normal diet after aound 2-3 weeks. In the > last couple of weeks I've suffered acis problems and went to my GP. > She gave me some tablets and alothough the acis has gone (I think) I'm > getting pains where my food used to get stuck? Although food is passing > through it seems slow and it hurts. Pre-surgery I didn't suffer with > any pain relating to Achalasia so to me it's a little odd! > > Has anyone suffered the same at all?> > Thanks> > >

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January 5, 2008

Andy- Wishing you all the best! You stay strong and just remember we

are all here for you.Keep us posted

Tonia

> >

> > Hi

> >

> > Hope everybody has had a good holiday and looking forward to

their

> impending

> > surgery. I myself have got a myotomy scheduled for the 18

January

> which is a

> > bit nerve racking considering I have never really had any

surgery

> so to

> > speak and I lost my Son just before Christmas during/after

surgery

> so my

> > mind will be on overtime as it gets nearer.

> >

> > Had a call from the hospital yesterday just to check some

medical

> details

> > and to confirm my MRSA swabs were clear so it's all systems go...

> >

> > Just a quick request - what should I expect short term in the

way

> of eating

> > - mine is the keyhole method and I am expected to be discharged

> after 2

> > nights all being well.

> >

> > Thanks again for all the kind comments regarding my Son, -

> it's still

> > pretty difficult but I am trying to look to the future as at the

> end of the

> > day that's all I can do! As the Father said at the funeral,

> `lived'

> > his short 21 years whereas he `sees' many people who are 80+ and

> have just

> > existed for most of their life - I think you will know what I

mean.

> For

> > example had never been out of this country (UK) but there

> weren't many

> > place within it where he hadn't been whereas some kids have

their

> annual 2

> > week holiday in the sun but have never been 200 miles down the

road

> to their

> > countries Capital (London) - he loved exploring.

> >

> > Andy

> >

> > Yorkshire - England

> >

> > From: scent4u18 [mailto:honey- les@]

> > Sent: 05 January 2008 11:08

> > achalasia@grou <mailto:achalasia%40>

ps.com

> > Subject: hey ectomy girls

> >

> > Dear a:

> > My thoughts and prayers for a successful surgery and a speedy

> > recovery. You are in my prayers.

> > Hugs,

> > Anita from Pa.

> >

>

> _____

>

> Be a better friend, newshound, and know-it-all with Mobile.

Try

>

<http://us.rd./evt=51733/*http:/mobile./;_ylt=Ahu06

i62sR8H

> DtDypao8Wcj9tAcJ%20> it now.

>

January 11, 2008

Hi Andy Just read your note. I had my Myotomy on December 5, 2007, stayed one night in the hospital and drove home 2 days later (467 miles). I had soft foods like mashed potatoes, meat loaf with gravy, applesauce, mushy cooked veggies (no raw), mushy canned fruits (no raw). As Dr. Rice told me mushy stuff. I am now advancing into other areas and hope to be eating most anything by the time I go back on Feb. 5 & 6 for check-up. Now your Drs might want something else but I ate soft stuff with gravy on it. I had no pain medication after day of surgery, was out of surgery at 1:30 and in my room by 4 pm and up and walking by 7 pm that night. Sleep all night and have been moving every since. So be a little concerned because of your knowledge but it will go fast. Here's wishing you God luck on the 18th and hoping you come out in good shape.

Millie - Virginia - USA Haigh <andy.haigh@...> wrote: Hi Hope everybody has had a good holiday and looking forward to their impending surgery. I myself have got a myotomy scheduled for the 18 January which is a bit nerve racking considering I have never really had any surgery so to speak and I lost my Son just before Christmas

during/after surgery so my mind will be on overtime as it gets nearer. Had a call from the hospital yesterday just to check some medical details and to confirm my MRSA swabs were clear so it’s all systems go... Just a quick request – what should I expect short term in the way of eating – mine is the keyhole method and I am expected to be discharged after 2 nights all being well. Thanks again for all the kind comments regarding my Son, – it’s still pretty difficult but I am trying to look to the future as at the end of the day that’s

all I can do! As the Father said at the funeral, ‘lived’ his short 21 years whereas he ‘sees’ many people who are 80+ and have just existed for most of their life – I think you will know what I mean. For example had never been out of this country (UK) but there weren’t many place within it where he hadn’t been whereas some kids have their annual 2 week holiday in the sun but have never been 200 miles down the road to their countries Capital (London) – he loved exploring. Andy Yorkshire - England From: scent4u18 [mailto:honey-les@...] Sent: 05 January 2008 11:08achalasia Subject: hey ectomy girls Dear a:My thoughts and prayers for a successful surgery and a speedy recovery. You are in my prayers.Hugs,Anita from Pa.

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April 17, 2009

Was your PM the one that put in your SCS? I ask as you said you saw him last

week. I would have concerns about the placement as well as about infection

setting in. If your PM did not place the SCS then you need to get with your

surgeon and have them take a look at that ASAP!

I had some pain in my incision site at about 5 weeks post op and my NP at the

PM's office told me to schedule a visit with the surgeon as it could be a sign

of infection. Mine went away it was only the sutures working out but yours

sounds much more serious.

I don't want to scare you but you dont need to fool around with this until next

Thursday.

Kim

Hi all

I just wanted to take a quickie to let everyone know I am stil alive, I have

been having some problems with my device so I am on kinda bed rest this weekend

to help ease my pain.Not sure what is happening, I am not jumping to anything I

am just in a state of mind that after I have an adjustment next week everything

will be fine. However I did want to ask for some prayers for the next week.

Last week I was just having a horrible time getting my device above 60. I

tried all sorts of stuff, finally got in touch with rep who said we need to

meet. OK Then on wed I started having terrible I mean terrible pain in my back.

I was not able to function.

Thur see PM who says rest lidoderm patch called my rep they said if still

unbearable on Monday then I will go in. Since Sheryl and I have the same rep and

live in same town I could be there when she is getting hers.. However I missed 2

days of work last week unpaid and unless i am bawling again I am going to try to

hold out until Thursday on my day off. I have the device off if nothing touches

where the leads are then I am ok,, but it hurts like he** to drive to sit to

move. I only work Mon Tues so I am going to try to make it.

Anyway there is a short snip..

Hugs

Mair

April 17, 2009

Kim

Yes my PM along with surgeon both placed scs. I saw the PM. He is also very

concerned at this point and is watching me. My mom is an RN/minister 9she states

my teen years sent her running for god) and she has been keeping an eye for

anything abnormal. I am again not getting freaked yet. My pain is there I am

taking a bit more morphine and tylenol but thats also for my hands and arm.

Right now im more upset my cholesterol is high along with hdl and triglycerids

and then my ldl was low....and also see next post about next question...

>

> Was your PM the one that put in your SCS? I ask as you said you saw him last

week. I would have concerns about the placement as well as about infection

setting in. If your PM did not place the SCS then you need to get with your

surgeon and have them take a look at that ASAP!

> I had some pain in my incision site at about 5 weeks post op and my NP at the

PM's office told me to schedule a visit with the surgeon as it could be a sign

of infection. Mine went away it was only the sutures working out but yours

sounds much more serious.

> I don't want to scare you but you dont need to fool around with this until

next Thursday.

> Kim

> Hi all

>

> I just wanted to take a quickie to let everyone know I am stil alive, I have

been having some problems with my device so I am on kinda bed rest this weekend

to help ease my pain.Not sure what is happening, I am not jumping to anything I

am just in a state of mind that after I have an adjustment next week everything

will be fine. However I did want to ask for some prayers for the next week.

>

> Last week I was just having a horrible time getting my device above 60. I

tried all sorts of stuff, finally got in touch with rep who said we need to

meet. OK Then on wed I started having terrible I mean terrible pain in my back.

I was not able to function.

> Thur see PM who says rest lidoderm patch called my rep they said if still

unbearable on Monday then I will go in. Since Sheryl and I have the same rep and

live in same town I could be there when she is getting hers.. However I missed 2

days of work last week unpaid and unless i am bawling again I am going to try to

hold out until Thursday on my day off. I have the device off if nothing touches

where the leads are then I am ok,, but it hurts like he** to drive to sit to

move. I only work Mon Tues so I am going to try to make it.

>

> Anyway there is a short snip..

>

> Hugs

> Mair

>

May 4, 2009

I hope you get pain under control missed you mike group owner

>

> Howdy all

> Thank you to all of you for the prayers and keeping me in your thoughts.

Thanks for posting for me.

>

> Yesterday and Today have been rough day's. We have storms moving in and of

course my foot and hands have been feeling the pain.I am on some pretty high

doses of morphine and it is not even touching my pain.

>

> As mentioned my surgery was long but I am having awesome stim sensations

now. I told one of my friends the other day when she asked what it felt like..

ITS ONE AWESOME BUTT MASSAGE.. wow I am loving it.

>

> There was a bad lead and after talking with my rep and doc was determined that

it was bad from day one. Not knowing what to expect in the feeling I was

clueless I thought it was right I had some relief the first week and then when

the fall came was still having some but was having nasty back pain again just

thought I needed time for all to settle in. When I went back for 6 week check

and the rep was there she did a bunch of stuff with her lil computer and when

she said WOW I have never seen that...(WHAT THE HELL DONT SAY THAT TO ME) I knew

things were way wrong. No matter what she did my foot/leg would shoot straight

out.

>

> They looked at my back under floroscopy and could not see anything next was

into surgery. They found once they got in there that my lead was worthless and

after chatting with them again determined that it was bad from day one. They

also found my lead had moved anteriorly(sp)(from the fall) and so they put it

back in its spot.

>

> has been with my mom since surgery and will return on Mothers day. That

week he will go to school in the am then ride the bus to day care then I will

get him around 3ish. That way I will still get my rest and he will be able to

play with his friends.

>

> I should return to half days on May 18th for 2 weeks. Then he will decide if I

can go full days or not.

>

> I have set myself a few goals

> 1. NO stepping on legos

> 2. Walk to park by June 8th

>

> Those are first 2 goals.

>

> Hope everyone is having pain free days I am off to read back posts and get

caught up.

>

> Hugs and Kisses

>

May 4, 2009

,

I'm so happy to see you back on line.. We have missed you. I'm so sorry to

hear that the last few days have been so bad. I was wondering why I hadn't heard

from you.. Well I sure hope better days are coming soon for you my friend. I do

believe you will be ready for the park by then. I think I know your will to do

things.. You will reach your goal !!! And I'm sure you and Lil will have

a wonderful time at the park.. Please don't over do it.. don't think pushing a

merry-go -round would be a good idea..lol...

Well sweetie,, get some rest.. I'm here if ya need to talk....

love and soft hugs

T

group moderator

lisa

From: fpddcso <fpddcso@...>

Subject: Hi all

Stimulator

Date: Monday, May 4, 2009, 11:41 AM

Howdy all

Thank you to all of you for the prayers and keeping me in your thoughts. Thanks

for posting for me.

Yesterday and Today have been rough day's. We have storms moving in and of

course my foot and hands have been feeling the pain.I am on some pretty high

doses of morphine and it is not even touching my pain.

As mentioned my surgery was long but I am having awesome stim sensations

now. I told one of my friends the other day when she asked what it felt like..

ITS ONE AWESOME BUTT MASSAGE.. wow I am loving it.

There was a bad lead and after talking with my rep and doc was determined that

it was bad from day one. Not knowing what to expect in the feeling I was

clueless I thought it was right I had some relief the first week and then when

the fall came was still having some but was having nasty back pain again just

thought I needed time for all to settle in. When I went back for 6 week check

and the rep was there she did a bunch of stuff with her lil computer and when

she said WOW I have never seen that...(WHAT THE HELL DONT SAY THAT TO ME) I knew

things were way wrong. No matter what she did my foot/leg would shoot straight

out.

They looked at my back under floroscopy and could not see anything next was into

surgery. They found once they got in there that my lead was worthless and after

chatting with them again determined that it was bad from day one. They also

found my lead had moved anteriorly(sp) (from the fall) and so they put it back

in its spot.

has been with my mom since surgery and will return on Mothers day. That

week he will go to school in the am then ride the bus to day care then I will

get him around 3ish. That way I will still get my rest and he will be able to

play with his friends.

I should return to half days on May 18th for 2 weeks. Then he will decide if I

can go full days or not.

I have set myself a few goals

1. NO stepping on legos

2. Walk to park by June 8th

Those are first 2 goals.

Hope everyone is having pain free days I am off to read back posts and get

caught up.

Hugs and Kisses

May 4, 2009

So sorry you are experiencing so much pain and the Morphine is not touching it.

Have you talked to your surgeon about this? If not then you need to! They need

to know you are not getting pain control with the meds that they gave you.

I am glad that they found the problem and that you are getting better stim

control now. LOL I know what you mean about Butt massage. It is funny how you

get used to something. All you have to do is turn your unit off for some reason

and then turn it back on WOAH!

I will keep you in my thoughts and prayers for healing. You just make sure you

keep yourself from doing too much!

And avoid LEGOS at all costs!!!

Kim

Hi all

Howdy all

Thank you to all of you for the prayers and keeping me in your thoughts.