Mitral Valve Prolapse

[Guest guest]

Dear ,

I think any Lyme specialist would probably diagnose you with tick-borne

diseases and start treating you based on your clinical history. But I think

it would help you more to get some really good testing done for tick-borne

diseases, and again, a Lyme specialist would be the person to see.

If you can amass a group of positive tests (preferably by labs licensed in

your state) then perhaps your local doctor would be willing to work with one

of the doctors who have treated thousands. The Lyme specialists would know

which labs and which tests to use, and would know how to interpret them.

Or perhaps you don't have a tick-borne disease, and again, a Lyme specialist

could help you pursue other diagnoses.

I don't know what state you live in or what kind of insurance you have, but

if you do visit one of these good doctors the testing alone could cost a

lot.

Please e-mail me if you want information about doctors.

Sue B.

Upstate New York

[Guest guest]

>

> Does Achalasia or pneumatic dilatation contribute to Mitral valve

> prolapse?

>

> Any information would be appreciated.

>

Not that I know of but be sure to premed before dental appts

[Guest guest]

I don’t see how it could. Mitral

valve prolapse is the valve in your heart between the left atrium and left

ventricle and there are problems with it closing completely which leads to the

backflow of blood as the heart pumps. This has nothing to do with Achalasia at

all, and dilatation would not cause it.

From: achalasia [mailto:achalasia ] On Behalf Of scent4u18

Sent: Saturday, January 21, 2006

7:02 PM

achalasia

Subject: Mitral valve

prolapse

Does Achalasia or pneumatic

dilatation contribute to Mitral valve

prolapse?

Any information would be appreciated.

[Guest guest]

Dear Alice,

If you don't have the MVP then why are you still on this med. in particular. I

don't remember which medication I was on, but I was able to get off it without

any trouble. I think that the name started with an " L " . I will never forget the

family doctor who told that once I get off the medication, that I am vulnerable

to a heart attack! Nothing like that happened. I am almost a vegan and I have

low blood pressure, so that threat was not serious at least in my case. My heart

races when I am overtired to let me know that I have done too much and that I

should lie down.

As to the asthma, I had it as a child and it luckily went away when I was 21

years old. Asthma is nothing but allergies, and I sometimes wonder why the lung

specialists keep on giving people pump medications without sending them to an

allergist to get their allergies under some control. If we are less allergic

then we will have fewer asthma episodes; its that simple and easy to understand.

[MODERATOR: " This study suggests that positive results of C. pneumoniae culture

are associated with both chronic stable and acute exacerbation of asthma. It

could be concluded that C. pneumoniae is a risk factor for either development or

exacerbation of asthma. " PMID: 18322313 -- Several of the CFIDS infections are

associated with asthma as a risk factor. It is not just allergies -- in the same

family, one may get asthma, one may be CFIDS and one may get both -- the result

of the random role of the genetic dice]

I understand how difficult it is to live with all those medications for our

illness. I think that standard medicine exists to treat the symptoms and not to

get to the bottom of the illness.

I am doing a treatment using homeopathy in Poland, where I live now. It can be

strenuous at times, but there is a good chance that I am going to be well when

it is all over. Are you interested in reading about the treatment? Just to peak

your interest, I got a medication that at first that made me go backwards in my

life and relive some of the most chronic illnesses that I had. One of them was

asthma which came back for about six weeks and now it is almost gone never to

come back into my life.

Mira

[Guest guest]

Hi Mira,  One of the first things I got with my Chronic Fatigue Syndrome was

severe panic disorder.  I felt like I was having a heart attack quite often.  It

was horrible beyond description and I went on suffering for years as no one

would give me a beta blocker to slow down my racing heart.  The reason they

would not is that beta blockers are contrandicated in asthma.  Finally my GP who

treated me for years put me on this one and it was SUCH A RELIEF.  If you have

never suffered with panic disorder you cannot imagine.  I am quite convinced

there is something more wrong with my heart but of course no cardiologist

agrees.  I truly believe Dr. Cheney about this and I am glad to hear it as I got

extremely tired of being told I was a hypochrondriac and having to go to the

phobia clinic. Then an environmental illness Dr. put me on GABA and I got off

of xanax which did absolutely nothing for my " panic disorder " .  GABA helped but

IMO xanax is

just poison for the liver.

    I may have been running on adrenaline as they are discussing here..  I

believe it is a distinct possibility.  I did develop what I now feel was adrenal

exhaustion.  I thought at the time it was a kidney stone but it was not.

   Lopressor is somehow helping my heart altho I do have all the side effects. 

When it starts to race PAINFULLY I experience fear and therefor I quickly take a

Lopressor.  What else can I do?

   My EI Dr. just laughed and laughed when she heard how obstinate most all the

doctors were who refused to give me Lopressor for years.  They didn't care about

my suffering. They were just following the rules. 

   So I hope from this you can understand why I am still on it.

   I have used homeopathy which was a great help from my EI Dr.

There is one in Colorado Springs who also does work with this but I am extremely

distrustful of doctors in general and it takes lots of courage for me to see a

new one.  For this reason I have dropped using much of it.   I still take HEEL

and BHI on occasion from the health food store.

   A Dr. in ABQ told me that I have already had a heart attack and been ignored

by male doctors. I do not know.  I did go temporarily blind there which I felt

was a mild stroke but it was also ignored by the ER there at Kaseman.  I

was told it was classic migraine which I do have but I never had a headache with

that episode of blindness.

  I have hundreds of allergies and have had endless testing.  That is the main

cause of my asthma and also chemicals like hair spray.  Sprays also affect my

heart rhythm.  I have passed out.

  Good luck with the homeopathy.  I am sure it will help you lots.  I am not

interested at this time. thanks,

Alice         

 

www.childrensbooksbykarenandrobyn.com

 

 

[Guest guest]

Dear Alice,

I am so sorry that you have such a hard time with your illness. I had panic

attacks as well as depression, along with anxiety. I had never had such severe

symptoms in my life. The worse of it all is that the medical profession shoved

me between cardiology and psychiatry and no one wanted to see the whole picture.

I was led to the right doctor by...my college music history professor whose son

got sick. She is turn was told about CFS by her graduate student. Anyway, I was

on over 20 pills a day, mostly for the depression, panic attacks and anxiety. My

panic attacks were not as hard on my heart as were yours; my heart palpitations

came in the middle of the day, between 11:30 am and 1:30 pm. I got rid of my

depression, panic attacks and anxiety using neurofeedback. I still have the

immune system disorder, but I am working on that with the homeopathy specialist.

I am going to stay in touch with you and let you how I am doing.

Mira

[Guest guest]

Thanks Mira!  Neurofeedback sounds wonderful!  An environmental illness Dr.

cleared up most of my symptoms.  Please do let me know how you do.  Back channel

me if you wish.  I have had problems with my immune system since age 4.

Thanks, Alice  

[Guest guest]

Hello:

I have a friend with Mitral Valve Prolapse and asked me if it would be okay for her to take Iodine. I'm afraid I don't know anything about MVP so didn't know what to say.

Anyone know?

Thanks,

Bonnie

[Guest guest]

FYI, had a friend with MVP improve a little within a short time by taking

ubiquinol (only like 50mg). 2 capsules a day of 200mg Swanson Ubiquinol is the

best deal.

D-ribose, liposomal colostrum, MAP amino acids, liposomal vitamin C, magnesium

oil, liposomal B vitamins all can also play a role.

>

> Hello:

>

> I have a friend with Mitral Valve Prolapse and asked me if it would be okay

> for her to take Iodine. I'm afraid I don't know anything about MVP so didn't

> know what to say.

>

> Anyone know?

>

> Thanks,

> Bonnie

>