Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 I lived in Billings for a few years before moving to CA. Actually I grew up between Ekalaka and Baker close to the SD,ND and WY border. Really in the sticks, the pavements ended/changed to gravel only about 20 miles away. There is a lot of hope, don't give up! Congratulation on the pregnancy! There are some women here that have gone through pregnancy with achalasia. When you are up to it, you will probably want to explore doctors outside of Montana, if you went to the most recommended one in Billings, you have probably reached the limit of expertise already. There are several going through this right now. There is a lot of hope so don't give up. You can live a normal life. Maybe you can hook up w/ Jeannie and get a 2 for one deal somewhere? How far along are you w/ the pregnancy? Any more kids? Sandy> >> > > > Hi ,> > > > Wow, did you mistakenly type MT? I'm originally from Montana, the > SE> > part. Jeannie is from close to Kalispell and there is another guy > Jim> > that doesn't post anymore also close to Kalispell. I'm in CA now.> > > > Hmmmm I think Jeannie is going to Washington, who are you seeing? > I'm> > sure you have read the other posts and realize it is usually better > to> > do something sooner than later, especially since you are so young. > But> > honestly, I doubt there is anyone in MT that has much experience w/> > achalasia. Jeannie has already used them up I think.> > > > You'll find lots of support here, and a few younger ones, many of > us are> > kind of over the hill. Some of us are over the hill and onto the > next> > mountain range. But your age doesn't matter.> > > > Sandy> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Hey Sandy. Ekalaka isn't really a town; just a fun word to say. JK But it is tiny. I drove through there at night once, and I'm sure the deer out number the people. Anyway, the pregnancy I mentioned was very complicated, but it ended with a now healthy, one year-old-girl. I also have a three-year- old girl. My first pregnancy was perfect, or " textbook " as my doctor called it. My A actually started just a few weeks before my first daughter was born. It got a lot worse after she was born, but it's hard to tell how much weight I lost due to A, because I would have lost a lot of the pregnancy weight without the A. During my second pregnancy(with A), I had heavy bleeding in the first trimester, and my water broke at the end of the second trimester. I had to be hospitalized on bed rest for five weeks, and my daughter was born six weeks early. My doctor told me that he didn't know what caused my water to break, but I think he might have just said that to keep me from blaming myself. I read in a pregnancy book that the most common cause of PROM(preterm rupture of membranes) is vitamin deficiancy. I believe A had a very big effect on that pregnancy, but my daughter is fine, so I can get over it. > > > I lived in Billings for a few years before moving to CA. Actually I > grew up between Ekalaka and Baker close to the SD,ND and WY border. > Really in the sticks, the pavements ended/changed to gravel only about > 20 miles away. There is a lot of hope, don't give up! Congratulation > on the pregnancy! There are some women here that have gone through > pregnancy with achalasia. > > When you are up to it, you will probably want to explore doctors outside > of Montana, if you went to the most recommended one in Billings, you > have probably reached the limit of expertise already. There are several > going through this right now. > > There is a lot of hope so don't give up. You can live a normal life. > Maybe you can hook up w/ Jeannie and get a 2 for one deal somewhere? > > How far along are you w/ the pregnancy? Any more kids? > > Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 I was pregnant about 5 years after I had surgery on my esophagus. No problems with the achalasia or esophagus during the pregnancy. My uncle (who was a doctor) was concerned about the pregnancy & achalasia; so we were all happy that I did not have any new problems during the pregnancy. Other than talking to my uncle & of course my OB doc, I did not see a GI doc at that time. However, it would be good if you could consult a GI doc and also that your OB doc is educated about achalasia. BTW, my daughter is now 28 years old and never has exhibited any signs of having achalasia. Jan D - Portland Re: new here I lived in Billings for a few years before moving to CA. Actually I grew up between Ekalaka and Baker close to the SD,ND and WY border. Really in the sticks, the pavements ended/changed to gravel only about 20 miles away. There is a lot of hope, don't give up! Congratulation on the pregnancy! There are some women here that have gone through pregnancy with achalasia. When you are up to it, you will probably want to explore doctors outside of Montana, if you went to the most recommended one in Billings, you have probably reached the limit of expertise already. There are several going through this right now. There is a lot of hope so don't give up. You can live a normal life. Maybe you can hook up w/ Jeannie and get a 2 for one deal somewhere? How far along are you w/ the pregnancy? Any more kids? Sandy > > > > > > Hi , > > > > Wow, did you mistakenly type MT? I'm originally from Montana, the > SE > > part. Jeannie is from close to Kalispell and there is another guy > Jim > > that doesn't post anymore also close to Kalispell. I'm in CA now. > > > > Hmmmm I think Jeannie is going to Washington, who are you seeing? > I'm > > sure you have read the other posts and realize it is usually better > to > > do something sooner than later, especially since you are so young. > But > > honestly, I doubt there is anyone in MT that has much experience w/ > > achalasia. Jeannie has already used them up I think. > > > > You'll find lots of support here, and a few younger ones, many of > us are > > kind of over the hill. Some of us are over the hill and onto the > next > > mountain range. But your age doesn't matter. > > > > Sandy > No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.5/1357 - Release Date: 4/3/2008 10:48 AM No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.5/1359 - Release Date: 4/4/2008 8:23 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2008 Report Share Posted April 5, 2008 Where in the world were you going to go "through" Ekalaka? Alzada to the Black Hills? It is truly the end of the road there, although they have tried to pave more... The rattlesnakes probably outnumber the people. Except at the Old Stand Bar.... To give it its due, there is beautiful land there also, if any of you ever get to that part of the world. I misunderstood, thought you were pregnant now. That is kind of a relief. Possibly the pregnancy hormones that can cause heartburn actually help someone with achalasia, just a thought. Congratulations on the good health of your girls! Do you have desire to try to come up with something to treat achalasia now, or are you going to try to just "live with it" for a while longer? There have been some people who went to Denver, but no names are coming to mind, otherwise that pretty much leaves Seattle or Minneapolis it seems like for possible driving distance. That distance takes more motivation and a little further down the tolerance line to reach. Let alone the expense and time away from your family and job and everything else. Many hospitals and doctors are accustomed to people travelling and bring you in on a Monday and try to have you treated and possibly even home or to a hotel room by the weekend. Some then stay a few more days just to be safe. If you go to any major city, at least one of us should be around to help you some, that is one advantage. But I totally understand the delay in getting treatment until you reach the absolute end and are emotionally ready. You would have driven right past where I grew up, about half way between Baker and Ekalaka... that doesn't sound like a big deal to many in this group, perhaps the Australians, but really it is about the end of the civilized world as you all know it. The closest neighbors were about 3 miles away, as a plane flies. It is pretty rare, even for someone in Montana to make it to Ekalaka. Actually dinosaurs were found in that area and there is a little tiny, gorgeous museum in Ekalaka with several great skeletons of dinosaurs on display. Also great Indian artifacts. Here is a link to the museum.. there are some home schoolers here and lots of other parents... really it is quite impressive. That part of Eastern Montana and going North is one of the most active areas for archaeological digs in the US. This link doesn't have a pictue of the displays, but even for a large city it is a very highly regarded museum. Actually Ekalaka was the name of an Indian princess.... and princess is in your id. http://www.cartercountymuseum-ekalaka.org/ Sandy> >> > > > I lived in Billings for a few years before moving to CA. Actually I> > grew up between Ekalaka and Baker close to the SD,ND and WY border. > > Really in the sticks, the pavements ended/changed to gravel only > about> > 20 miles away. There is a lot of hope, don't give up! > Congratulation> > on the pregnancy! There are some women here that have gone through> > pregnancy with achalasia.> > > > When you are up to it, you will probably want to explore doctors > outside> > of Montana, if you went to the most recommended one in Billings, you> > have probably reached the limit of expertise already. There are > several> > going through this right now.> > > > There is a lot of hope so don't give up. You can live a normal > life.> > Maybe you can hook up w/ Jeannie and get a 2 for one deal somewhere?> > > > How far along are you w/ the pregnancy? Any more kids?> > > > Sandy> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2008 Report Share Posted June 14, 2008 Where are you in California? I'm in Long Beach, there are some of us scattered all over the state. You mentioned botox, you will find in this group, especially for younger patients, in general, (always exceptions) botox isn't usually the first step of preferred treatment. Where did you have your surgery? Which surgeon? Are you going back to him/her? To have another surgery relatively soon is more complicated, make sure you are seeing a top surgeon. Often they do a dialation after surgery before they do another surgery. Is that what you meant by endoscopies? In California, there are probably fewer than 5 surgeons that would be experienced in this type of operation, one at each of the major hospitals in Los Angeles or San Francisco. At your age, and after previous procedures you must research for yourself and make a choice of where to go. If you are still going to the doctors who gave you botox, then I'd suggest finding other doctors. If you have an HMO, they do refer out of network for rare diseases. Likely you have already done this research, but if not we are all happy to overwhelm you with doctors names and papers. You will be called back and emailed and responded to, usually within hours because you have such a rare disease. Promise you! Call the surgeons or gi's and pump them for all the information you can get. Sandy>> Hello All,> > I'm new to this message board. I am a 25yr old female from> California. I was diagnosed with Achalasia about 4 years ago.> I've had several botox treatments, a few endoscopys, motility> test, and surgery about 2 yrs ago. I just discovered this group> about 3 weeks ago. There are soooo many topics and messages to> read that I don't even know where to begin! I had all the symptoms> that I've read in a few posts. Regurgitation of food, heartburn,> feeling like food is stuck in your throat, etc. I'm still going> through the same symptoms today as I was when I was first diagnosed.> > We I first realized something was wrong, I was losing a lot of > weight. I couldn't even hold down water. I lost about 35lbs in about > 2 months or so. At first the doctors didn't know what I had. They > said a stomach virus or ulcer, maybe a bug. And, since the feeling > was so horrible I didn't eat, which I think had a huge impact on the > rapid weight loss. Today, I've gained the weight back and I'm eating > whatever I want. But, I'm still regurgitating daily at every meal. I > don't know if I have any specific questions, but I'll listen to any > advice that someone may have to offer. I'm gonna start the whole > process again and I have an UPPER GI next Saturday.> > Thanks,> LT> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2009 Report Share Posted April 9, 2009 Hey Sheryl! so glad that you are a member with us...you are so sweet! It is great that you have become close friends with ,,,,and that you share the same town!! If you need anything....... I have had RSD now for quite a long time... 215 783-9066 take great care! Kathy G **************New Deals on Dell Netbooks – Now starting at $299 (A HREF=http://pr.atwola.com/promoclk/100126575x1220635155x1201407495/aol?redir=htt\ p:%2F%2Fa d.doubleclick.net%2Fclk%3B213771973%3B35379628%3Bw) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2011 Report Share Posted November 17, 2011 I am hypothyroid ( non-hashi - at least it hasn't been found yet) I plan on going to our local vitamin cottage to see what they have in iodine. I need an iodine/iodide combination, is that correct? I have Dr. B's book and maybe I don't remember but are there warning signs that your body doesn't need iodine once you start taking it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2011 Report Share Posted November 17, 2011 Hello and Welcome! Please read the New Member doc. you were sent when you joined. If you didn’t save it, go to Files, then New Member doc. , then Commonly Asked Questions. A lot of time has gone into preparing the Questions and Answers and you will learn much there. ( I read them over every month just to refresh my memory). You will find answers to your questions there and more! As for warning signs, I think you mean detox symptoms one can have while taking iodine; these are talked about in the Questions as well and what to do about them if they happen. You will also read about the companion nutrients that are very important to include while you are taking iodine. Again welcome! Kind regards, Kathleen moderator New Here I am hypothyroid ( non-hashi - at least it hasn't been found yet)I plan on going to our local vitamin cottage to see what they have in iodine. I need an iodine/iodide combination, is that correct? I have Dr. B's book and maybe I don't remember but are there warning signs that your body doesn't need iodine once you start taking it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2011 Report Share Posted November 25, 2011 You've come to the right group. Welcome. Deborah, at the beach Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2011 Report Share Posted November 25, 2011 Thank you for all the welcomes! He slept good last night, no coughing. No dairy right now, maybe that's helping. He has heartburn, which he didn't have prior to the surgery, but he's so happy that food actually goes down and stays down now > > Hello, I was just accepted into this group, thank you for that. It's overwhelming right now and a lot of information to take in. It's my husband who has achalasia and he just had his surgery on Monday. Everything started last June. Anyway, surgery went well and we are thankful for that. We got home last night (surgery was 100 miles away). He's coughing at times still. He was having that before the surgery too, during the night while sleeping, but it's no fun when you've just had surgery. Anyway, he's obviously on a liquid diet, so I think I'll eliminate dairy products to see if that helps. Thanks for the support. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2011 Report Share Posted November 25, 2011 Good for him. I take protonix for my heartburn, it got worse after surgery, but its manageable now! Welcome to the group! , California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2011 Report Share Posted November 25, 2011 Thanks for the tip! > > Good for him. I take protonix for my heartburn, it got worse after surgery, but its manageable now! > > Welcome to the group! > > , > California > Quote Link to comment Share on other sites More sharing options...
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