Guest guest Posted November 17, 2011 Report Share Posted November 17, 2011 I'm hoping to get a bit more advice and also encouragement. I found that I had Hashimoto's in April 2010 and later in the year found that I had very high Reverse T3. My Hashimoto's antibodies were only 58 in April 2010 but have now jumped to nearly 500. I'd like to check what else I should be doing. I started the iodine protocol in about June 2010. I had trouble increasing my dose because of detox symptoms but slowly worked up to 150mgs and stayed there for about three or four months. I'm currently on 62.5mgs per day and take all the companion nutrients. My symptoms improved dramatically once I started T3 only. (Natural Dessicated Thyroid did nothing for me). I never noticed any change (apart from detox symptoms) with taking iodine but did stop it for a week or two earlier this year and noticed a lot more fatigue so went back to taking it again and realised that it must have been doing something. Overall I'm feeling much, much better, but do have a bit of discomfort around the area of my thyroid, apart from a recent stint on the HCG diet, I haven't naturally lost any of the weight I put on over the last three years and no diet apart from HCG has worked for me. I have some fatigue but really it's pretty good. I haven't had all my hair grow back yet, but then I lost all my body hair, so I'm pretty happy with what I do have back. I've been totally gluten-free for some time now apart from a couple of episodes in April 2010 when an ice cream changed and I unknowingly ate glucose from wheat on three or four occasions. My diet is very good. Organic. No chemicals, and very, very little processed food e.g. I use a jar of curry sauce once a week but it has no additives, preservatives etc. I live in a remote area and we have rainwater and not the normal exposure to chemicals in everyday life that you would expect in a city. I'm feeling a bit despondent that my antibodies have risen so dramatically and would like to know what else I should be doing, please. I really believe that I can heal by Hashimoto's but it seems that there is something else I need to be doing that I'm not currently doing. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2011 Report Share Posted November 21, 2011 I haven't had a reply yet and am keen to try and work out what I should do for my Hashimoto's.I guess I hadn't really considered that the iodine might be responsible for my antibodies rising so dramatically but am wondering??? Should I lower my iodine and, if so, what to? I thought I'd read here that too little iodine can be worse than none at all, but perhaps I remember that wrongly.Should I try lowering to 12.5mgs per day? Should I try cutting it out altogether for three months and re-test?I have celtic sea salt every day so I would get small amounts of iodine through that but am reluctant to cut it out altogether. On Fri, Nov 18, 2011 at 7:15 AM, Cochrane <juliemc9@...> wrote: I'm hoping to get a bit more advice and also encouragement. I found that I had Hashimoto's in April 2010 and later in the year found that I had very high Reverse T3. My Hashimoto's antibodies were only 58 in April 2010 but have now jumped to nearly 500. I'd like to check what else I should be doing. I started the iodine protocol in about June 2010. I had trouble increasing my dose because of detox symptoms but slowly worked up to 150mgs and stayed there for about three or four months. I'm currently on 62.5mgs per day and take all the companion nutrients. My symptoms improved dramatically once I started T3 only. (Natural Dessicated Thyroid did nothing for me). I never noticed any change (apart from detox symptoms) with taking iodine but did stop it for a week or two earlier this year and noticed a lot more fatigue so went back to taking it again and realised that it must have been doing something. Overall I'm feeling much, much better, but do have a bit of discomfort around the area of my thyroid, apart from a recent stint on the HCG diet, I haven't naturally lost any of the weight I put on over the last three years and no diet apart from HCG has worked for me. I have some fatigue but really it's pretty good. I haven't had all my hair grow back yet, but then I lost all my body hair, so I'm pretty happy with what I do have back. I've been totally gluten-free for some time now apart from a couple of episodes in April 2010 when an ice cream changed and I unknowingly ate glucose from wheat on three or four occasions. My diet is very good. Organic. No chemicals, and very, very little processed food e.g. I use a jar of curry sauce once a week but it has no additives, preservatives etc. I live in a remote area and we have rainwater and not the normal exposure to chemicals in everyday life that you would expect in a city. I'm feeling a bit despondent that my antibodies have risen so dramatically and would like to know what else I should be doing, please. I really believe that I can heal by Hashimoto's but it seems that there is something else I need to be doing that I'm not currently doing. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2011 Report Share Posted November 21, 2011 I too have TPO antibodies that were uncovered during prolonged, strong unmanageable 'detox' symptoms that weren't managed with salt loading or support supplements, no matter how much I did. This was after being on lugols 2% for nearly a year and had been at 50mg for at least 6 months with no real issues but once I raised my iodine levels to 65mg daily I got the heavy duty dark thoughts, cold hot and flip flopping temps that showed adrenal fatigue. I've also been trying to get my thyroid balance right and have spent the last 8 or so months working on adrenals, with a good amount of success. I'd decided to go back to iodine as it is necessary for adrenal health but want to avoid any of the past issues. I went to the starter files last night after so long off to make sure I was doing everything possible to enable me to get back on the protocol without the same issues. I read into the wee hours last night/morning about the TPO antibodies, glutathione levels, N Acetyl Cysteine ( which I've used for over a year) and oxidative stress beginning with the QA new member iodine file and the links within, and other files there. Most of the questions asked in the group are answered there by the way but this particular info was so great to find. It's number 14 and discusses the cause of antibodies and how to correct it. There's a list of things to do for treatment of autoimmune thyroid disorders 1 ingest enough iodine to provide adequate substrate to iodinate lipids 2 Take vitamins b2 riboflavin and b3 niacin 3. Correct oxidant stress in thyroid gland and mitochondria with antioxidants (here's a link to a list of great antioxidants 4 ensure adequate magnesium levels 5 minimize oxidative stress in the body I further read when following a link in the files the info on how NAC and increased Glutathione levels can help heal hashimotos http://sarah-tomley.suite101.com/how-nac-and-glutathione-can-help-to-heal-hashimotos-disease-a267201 in the comment section the author offers more complete info on dose; I've updated the link for the dosage/safety levels. This is not comprehensive, but gives you an idea of the ranges being used for different conditions. The Cambridge microbiologist Wheldon (http://www.davidwheldon.co.uk/supplement_rationale.html) is the best source for advice on supplements to take with NAC, and why (he gives an authoritative, referenced reasons). low levels of glutathione found in autoimmune disorders and disease ; How Glutathione Becomes Depleted The body's stores of glutathione can become depleted through alcoholism, HIV infection, cirrhosis, diabetes, surgical trauma, fasting, toxins (such as organophosphates or solvents), overuse of acetaminophen (paracetamol), chronic stress, inadequate diet, elevated adrenaline release, extensive strenuous exercise, or infection. It is also associated with cigarette smoking, as smoking increases the rate at which the body uses glutathione. I found this info incredibly helpful and informative for the correction of antibodies and am making adjustments accordingly. It's worth the time to read and answers a myriad of questions I've had for a while. I've just tried to cut to summary but recommend the full read. I thought it might be helpful for your situation. Val in OC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2011 Report Share Posted November 21, 2011 Hi , I read your posting with interest. I can't respond with any level of knowledge about the iodine/antibody connection but was very intrigued by your "clean" living environment yet the Hashi's situation. I'm far from an expert but from all the years of reading and researching I've done you, unless your current situation is recent, would be least likely to get an autoimmune disease. In the book The Autoimmune Epidemic (a fabulous book fyi) the author, Donna Nakazawa puts together the latest scientific/medical research. It all points to one being "predisposed" genetically and then having environmental (toxins, etc) or infectious exposure that triggers the autoimmune situation initially. I'm curious as to your age. My Hashi's showed up at age 52, peri menopause time for me, along with severe adrenal fatigue. I've often wondered if my hashi's was my body's wisdom slowing me down at a time when my adrenals were being called on to produce hormones that the ovaries were "retiring" from : ) By the way, my antibodies decreased recently to 171 from the 4-500s over the last 1.5 years. I started iodine (up to 25mg/daily now) in February last year. I was, in addition, treated over the last 9 months with homeopathics for lyme which my homeopathic doctor suspects was the reason for my hashi's. He feels lyme is the culprit in many autoimmune cases. He could be on to something. Janetiodine From: juliemc9@...Date: Mon, 21 Nov 2011 21:00:03 +1100Subject: Re: Hashimoto's Antibodies Up I haven't had a reply yet and am keen to try and work out what I should do for my Hashimoto's.I guess I hadn't really considered that the iodine might be responsible for my antibodies rising so dramatically but am wondering??? Should I lower my iodine and, if so, what to? I thought I'd read here that too little iodine can be worse than none at all, but perhaps I remember that wrongly.Should I try lowering to 12.5mgs per day? Should I try cutting it out altogether for three months and re-test?I have celtic sea salt every day so I would get small amounts of iodine through that but am reluctant to cut it out altogether. On Fri, Nov 18, 2011 at 7:15 AM, Cochrane <juliemc9@...> wrote: I'm hoping to get a bit more advice and also encouragement. I found that I had Hashimoto's in April 2010 and later in the year found that I had very high Reverse T3. My Hashimoto's antibodies were only 58 in April 2010 but have now jumped to nearly 500. I'd like to check what else I should be doing. I started the iodine protocol in about June 2010. I had trouble increasing my dose because of detox symptoms but slowly worked up to 150mgs and stayed there for about three or four months. I'm currently on 62.5mgs per day and take all the companion nutrients. My symptoms improved dramatically once I started T3 only. (Natural Dessicated Thyroid did nothing for me). I never noticed any change (apart from detox symptoms) with taking iodine but did stop it for a week or two earlier this year and noticed a lot more fatigue so went back to taking it again and realised that it must have been doing something. Overall I'm feeling much, much better, but do have a bit of discomfort around the area of my thyroid, apart from a recent stint on the HCG diet, I haven't naturally lost any of the weight I put on over the last three years and no diet apart from HCG has worked for me. I have some fatigue but really it's pretty good. I haven't had all my hair grow back yet, but then I lost all my body hair, so I'm pretty happy with what I do have back. I've been totally gluten-free for some time now apart from a couple of episodes in April 2010 when an ice cream changed and I unknowingly ate glucose from wheat on three or four occasions. My diet is very good. Organic. No chemicals, and very, very little processed food e.g. I use a jar of curry sauce once a week but it has no additives, preservatives etc. I live in a remote area and we have rainwater and not the normal exposure to chemicals in everyday life that you would expect in a city. I'm feeling a bit despondent that my antibodies have risen so dramatically and would like to know what else I should be doing, please. I really believe that I can heal by Hashimoto's but it seems that there is something else I need to be doing that I'm not currently doing. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2011 Report Share Posted November 22, 2011 Thank but I did eliminate gluten a couple of years ago.On Tue, Nov 22, 2011 at 10:22 PM, JULIE GRIFFITHS <moppett1@...> wrote: You should visit the natural thyroid list. I have Hashi's and saw quite a few people there eliminating gluten. This helped to lower the antibodies. best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2011 Report Share Posted November 22, 2011 Hi Janet,I'm 48. I lived in a capital city until early 2007 then moved to the country. We don't have any industry nearby, no crop spraying or anything else that I can think of. We collect rainwater but still filter it. There will be some exposure to toxins from the house that we built but we tried to use non-toxic products where possible, made sure there was no MDF/outgassing, used paints that were non-toxic or very low in toxicity, built from strawbales. Some things were almost unavoidable - e.g. we had a floor sealed conventionally for greater durability, but we choose wood that had been pre-sealed i.e. allowing some time for outgassing. It's not hard to build a house that will release no chemicals but some of the products were more expensive and sometimes I did make choices that were about convenience because I had no electricity/internet access while building and it was sometimes hard to research the alternatives, or they were just way more expensive and my budget couldn't manage them at the time. My diet is very clean. I do have to use the car a few times a week. However, my hashis/hypo became very evident six months after I moved here, so I could have had lots of toxins from living in a city - despite having tried to reduce exposure while living in the city in that we had a clean diet, filtered water, used organic cotton for our underwear. I've wondered about trying homoeopathics - I've used Traditional Chinese Medicine but not anything else alternative.On Tue, Nov 22, 2011 at 9:48 AM, Janet A <seaofqi@...> wrote: Hi , I read your posting with interest. I can't respond with any level of knowledge about the iodine/antibody connection but was very intrigued by your " clean " living environment yet the Hashi's situation. I'm far from an expert but from all the years of reading and researching I've done you, unless your current situation is recent, would be least likely to get an autoimmune disease. In the book The Autoimmune Epidemic (a fabulous book fyi) the author, Donna Nakazawa puts together the latest scientific/medical research. It all points to one being " predisposed " genetically and then having environmental (toxins, etc) or infectious exposure that triggers the autoimmune situation initially. I'm curious as to your age. My Hashi's showed up at age 52, peri menopause time for me, along with severe adrenal fatigue. I've often wondered if my hashi's was my body's wisdom slowing me down at a time when my adrenals were being called on to produce hormones that the ovaries were " retiring " from : ) By the way, my antibodies decreased recently to 171 from the 4-500s over the last 1.5 years. I started iodine (up to 25mg/daily now) in February last year. I was, in addition, treated over the last 9 months with homeopathics for lyme which my homeopathic doctor suspects was the reason for my hashi's. He feels lyme is the culprit in many autoimmune cases. He could be on to something. Janetiodine From: juliemc9@... Date: Mon, 21 Nov 2011 21:00:03 +1100Subject: Re: Hashimoto's Antibodies Up I haven't had a reply yet and am keen to try and work out what I should do for my Hashimoto's.I guess I hadn't really considered that the iodine might be responsible for my antibodies rising so dramatically but am wondering??? Should I lower my iodine and, if so, what to? I thought I'd read here that too little iodine can be worse than none at all, but perhaps I remember that wrongly.Should I try lowering to 12.5mgs per day? Should I try cutting it out altogether for three months and re-test?I have celtic sea salt every day so I would get small amounts of iodine through that but am reluctant to cut it out altogether. On Fri, Nov 18, 2011 at 7:15 AM, Cochrane <juliemc9@...> wrote: I'm hoping to get a bit more advice and also encouragement. I found that I had Hashimoto's in April 2010 and later in the year found that I had very high Reverse T3. My Hashimoto's antibodies were only 58 in April 2010 but have now jumped to nearly 500. I'd like to check what else I should be doing. I started the iodine protocol in about June 2010. I had trouble increasing my dose because of detox symptoms but slowly worked up to 150mgs and stayed there for about three or four months. I'm currently on 62.5mgs per day and take all the companion nutrients. My symptoms improved dramatically once I started T3 only. (Natural Dessicated Thyroid did nothing for me). I never noticed any change (apart from detox symptoms) with taking iodine but did stop it for a week or two earlier this year and noticed a lot more fatigue so went back to taking it again and realised that it must have been doing something. Overall I'm feeling much, much better, but do have a bit of discomfort around the area of my thyroid, apart from a recent stint on the HCG diet, I haven't naturally lost any of the weight I put on over the last three years and no diet apart from HCG has worked for me. I have some fatigue but really it's pretty good. I haven't had all my hair grow back yet, but then I lost all my body hair, so I'm pretty happy with what I do have back. I've been totally gluten-free for some time now apart from a couple of episodes in April 2010 when an ice cream changed and I unknowingly ate glucose from wheat on three or four occasions. My diet is very good. Organic. No chemicals, and very, very little processed food e.g. I use a jar of curry sauce once a week but it has no additives, preservatives etc. I live in a remote area and we have rainwater and not the normal exposure to chemicals in everyday life that you would expect in a city. I'm feeling a bit despondent that my antibodies have risen so dramatically and would like to know what else I should be doing, please. I really believe that I can heal by Hashimoto's but it seems that there is something else I need to be doing that I'm not currently doing. Thanks, Quote Link to comment Share on other sites More sharing options...
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