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Hi,

I just today received the last result!!! For the Reverse T3, I've tried to

convert from the unit, ug/L to what's on the STTP site, pmol/L. I think it's

399.4 pmol/L. Putting the values in the FT3:RT3 calculator on STTP, it gave a

ratio of 9.3, so it does appear that I have a thyroid problem, since this ratio

is < 20, right? Other than that, I've no idea.

If my doctor wants to put me on meds, can you suggest what I should be put on.

Also he said he thinks I'm low on Estrogen and I think he's going to suggest

prescribing that and not sure of that.

I've been on LDN for over 3 months now. I have M.E., Lyme Disease,

Fibromyalgia, Celiac, Systemic Migraine, etc :-)

So any suggestions you can make would be much appreciated. I append my results

below, tons of them!!!

Many thanks in advance & Regards,

Noreen

Here are my results (Lots of them):

They put an asterisk if a result was outside of the range.

I've laid it out in tabular form as best I can, so hopefully it'll appear that

way :-)

Range Result U.S.A.

Cholesterol 0.1 - 5.2 7.23 was 9.30 281.97 was 362.7

Triglycerides 0.1-1.71 1.21 107.69

HDL 1.68 - 4.0 1.33* 51.87

LDL 0.0 - 3.37 5.4* 210.60

Vitamin D

Total/HDL 5.44

Trig/HDL 2.08

LDL/HDL 4.06

Reverse T3 ug/L 0.09 - 0.35 0.26 399.4 pmol/L (399.4 I think)

Free T3 pmol/L 3.5 - 6.5 3.70

FT4 pmol/L 8.5 - 23 14.90

TSH mIU/L 0.35 - 5.5 1.74

Ferritin 10 - 322 68.50

Folate 2.00 - 20.00 24.00*

B12 240 - 911 470.00

Cortisol 193 - 690 444.00

DHEAS umol/L 0.89 - 5.75 1.60

Vitamin D

ESR 0.00 - 20.00 23*

Urea 2.6 - 7.3 6.75

Sodium 136 - 145 145.00

Potassium 3.7 - 4.8 4.40

Chloride 98 - 107 109*

Creatinine 44 - 84 72.00

Magnesium 0.66 - 1.07 0.84

WBC 4.0 - 11.0 7.48

RBC 3.8 - 4.8 4.70

Hgb 12.0 - 16.0 14.00

MCV 79 - 99 96.20

HCT 0.36 - 0.46 0.45

RDW 11.6 - 14.5 13.50

MCH 27 - 32 29.80 was 30.7 previously

MCHC 31.5 - 34.5 31.00 was 33.2 previously

PLT 140 - 450 224.00 was 206 previously

Neut Abs 2.0 - 7.0 4.43 was 6.25

Lymph Abs 0.1 - 4.0 2.20 was 1.75

Mono Abs 0.10 - 1.0 0.44 was 0.5

BAS Abs 0.02 - 0.10 0.06 was 0.05

EOS 0.02 - 0.5 0.12 was 0.10

Lrge Unstained Cells 0.00 - 0.40 0.23 was 0.14

Random Glucose 3.50 - 7.80 5.02 was 4.38

Lymphocyte Subsets (B,NK cells):

B Cells CD19 5.0 - 21.0 13%

B Cells (CD19) 30 - 470 287 x 10^6/L

NK Cells 10.0 - 19.0 10%

NK Cells 200 - 400 220 x 10^6/L

Lymphocyte Subsets:

T Cells (CD3) 57 - 79 74%

Helper-T (CD3+CD4+) 34 - 51 47%

Cytotoxic T (CD3+8+) 17 - 37 26%

T Cells CD3 600 - 2200 1407 x 10^6/L

Helper T (CD3+4+) 380 - 1500 902 x 10^6/L

Cytotoxic-T CD3+CD8+ 190 - 800 491 x 10^6/L

Lymphs No Range given 1906 x 10^6/L

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Sorry, it didn't post in tabular form, so here they are again, hopefully somebody can interpret them please??

I really need help, as I said in original mail, I'm not 100% sure I have converted the Reverse T3 correctly but if I did, the ratio FT3/RT3 is 9.3 which is well below 20, as per STTM.

I'd appreciate any advice/guidance anybody can give me.Many thanks x.............................Range .......Result ........U.S.A.

Reverse T3 ug/L.....(0.09 - 0.35) 0.26 ......399.4 pmol/L (399.4 I think?)Free T3 pmol/L .....(3.50 - 6.50)  3.70

FT4 pmol/L ...........(8.50 - 23.0)  14.90

TSH mIU/L ............(0.35 - 5.50) 1.74 Ferritin ....................(10 - 322) 68.50Folate ....................(2.00 - 20.00) 24.00*  [i had been on 5m Folic Acid per day for 16 months]

B12 .......................(240 - 911) 470.00 Cortisol ..................(193 - 690)  444.00

DHEAS umol/L .......(0.89 - 5.75) 1.60 Vitamin D ESR ,,,,,,,,,,,,,,,,,,,,,,,(0.00 - 20.00) 23* Urea ..........................(2.6 - 7.3) 6.75

Sodium .....................(136 - 145) 145.00

Potassium ..................(3.7 - 4.8) 4.40 Chloride ......................(98 - 107) 109* Creatinine ....................(44 - 84) 72.00 

Magnesium ..................(0.66 - 1.07) 0.84 

WBC .............................(4.0 - 11.0) 7.48 RBC .............................(3.8 - 4.8) 4.70 Hgb ..............................(12.0 - 16.0) 14.00

MCV .............................(79 - 99) 96.20 HCT ..............................(0.36 - 0.46) 0.45 RDW .............................(11.6 - 14.5) 13.50

MCH ..............................(27 - 32) 29.80 [was 30.7 previously] MCHC ............................(31.5 - 34.5) 31.00 [was 33.2 previously] 

PLT ...............................(140 - 450) 224.00 [was 206 previously] Neut Abs ........................(2.0 - 7.0) 4.43 [was 6.25] 

Lymph Abs .....................(0.1 - 4.0) 2.20 [was 1.75] Mono Abs .......................(0.10 - 1.0) 0.44 [was 0.5] 

BAS Abs .........................(0.02 - 0.10) 0.06 [was 0.05] EOS ...............................(0.02 - 0.5) 0.12 [was 0.10] 

Lrge Unstained Cells .........(0.00 - 0.40) 0.23 [was 0.14] Random Glucose ..............(3.50 - 7.80) 5.02 [was 4.38] 

Cholesterol ......................(0.1 - 5.2) 7.23 [was 9.30]  281.97 [was 362.7] Triglycerides.................... (0.1-1.71) 1.21 107.69

HDL................................ (1.68 - 4.0) 1.33* 51.87 LDL ..................................(0.0 - 3.37)  5.4* 210.60

Vitamin D Total/HDL 5.44 Trig/HDL 2.08 LDL/HDL 4.06 Lymphocyte Subsets (B,NK cells): B Cells CD19 ....................(5.0 - 21.0) 13%B Cells (CD19) ..................(30 - 470) 287 x 10^6/L

NK Cells ...........................(10.0 - 19.0) 10%NK Cells ...........................(200 - 400) 220 x 10^6/LLymphocyte Subsets:

T Cells (CD3) .....................(57 - 79) 74%Helper-T (CD3+CD4+) .........(34 - 51) 47%Cytotoxic T (CD3+8+) .........(17 - 37) 26%

T Cells CD3 .......................(600 - 2200) 1407 x 10^6/LHelper T (CD3+4+) ..............(380 - 1500)  902 x 10^6/L

Cytotoxic-T CD3+CD8+ .......(190 - 800)  491 x 10^6/LLymphs....................... No Range given 1906 x 10^6/L

-- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

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Hi Noreen - I have highlighted my comments next to your results.

is the one who will help you with your Reverse T3 results, I can never

get my head around how to convert, even though she keeps telling me how to do

it, but Maths. was always one of my weakest subjects at school, and school was

a long, long time ago.

If my doctor wants to put me on meds, can you suggest what I

should be put on. Also he said he thinks I'm low on Estrogen and I think he's

going to suggest prescribing that and not sure of that.

If your doctor wants to start prescribing thyroid hormone

replacement, he is likely to start you on 25 or 50mcgs levothyroxine. Thyroxine

works for the majority of folk, at least for a few years, and then sometimes

you need to add some form of T3, but for now, you should go along with any

prescription for thyroxine and see how that works.

> I've been on LDN for over 3 months now. I have M.E., Lyme Disease,

Fibromyalgia, Celiac, Systemic Migraine, etc :-)

Then you have certainly been through the mill. Did the LDN work

for you. ME and fibromyalgia are diagnoses given when you are suffering

symptoms (non specific) yet have normal blood test results. Both can be treated

successfully with the thyroid hormone T3. Both are caused through a lack of the

active thyroid hormone T3.

What was your oestrogen result and did they test

progesterone/testosterone?

I have highlighted only those results that need looking into

> Reverse T3 ug/L.....(0.09 - 0.35) 0.26 ......399.4 pmol/L (399.4 I think?) ,

can you help here?

> Free T3 pmol/L .....(3.50 - 6.50) 3.70 FAR too low. Your fT3 should be in

the upper third of the reference range.

> Ferritin ...................(10 - 322) 68.50 -

ferritin levels should be

oround 90 to 130, so you would benefit from supplementing with some form of

elemental iron, such as Ferrous Fumerate, Ferrous Glutamate, 2 to 3 Sachets of

Spatone. You should also be taking high doses of vitamin C i.e. 3/4000mgs

daily. Do not take any form of iron or calciuim 4 hours near to taking any form

of thyroid hormone replacement.

> B12 .......................(240 - 911) 470.00 B12 levels should be near to the

top of the range, so you might benefit with 1000mcgs sublingual B12 daily.

> Cortisol ..................(193 - 690)

444.00<193%20-%20690%20%20%20444.00> Was this an early morning blood

test?

> DHEAS umol/L .......(0.89 - 5.75) 1.60 - this is low and you could

benefit with 25mgs DHEA daily. DHEA takes quite a while to build up and you may

not feel any benefit for up to 3 months, but you should continue to take it.

> Vitamin D ????? - was this not tested?

> Cholesterol ......................(0.1 - 5.2) 7.23* [was 9.30] 281. Are

you taking anything to lower your cholesterol?

Luv - Sheila

_,_._,___

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Hi Sheila,Thank you so much for your reply & advice.  I really appreciate it :-)  I'm putting my replies below (in red):

On 27 November 2011 11:42, Sheila <sheila@...> wrote:

If your doctor wants to start prescribing thyroid hormone

replacement, he is likely to start you on 25 or 50mcgs levothyroxine. Thyroxine

works for the majority of folk, at least for a few years, and then sometimes

you need to add some form of T3, but for now, you should go along with any

prescription for thyroxine and see how that works.Ok, thanks.  I thought my T3 was low & I hear people on the LDN site saying not to take T4 only thyroid meds. 

Did the LDN work

for you. ME and fibromyalgia  Both can be treated

successfully with the thyroid hormone T3. Both are caused through a lack of the

active thyroid hormone T3.It only took me 25 years to hear this :-)  This is what I heard on the LDN group which is why I got these tests done.  I got M.E. in 1986 and, as you say, my blood tests have always mostly been normal.  I hadn't heard of any other type of thyroid tests until recently & it took a long time to get them done here (Ireland).  I started LDN in August and in the past while I'm definitely feeling stronger.  Wouldn't be able to walk  up to the top of my road but gees, I can walk around the house & my husband brought me into town & I managed to walk around a store, slowly but still :-)  So I honestly think it's working.  Of course with M.E., it may have happened anyway!!!  But my gut is telling me it's the LDN.

What was your oestrogen result and did they test

progesterone/testosterone?The results I gave are the only ones I got.  A very kind lady on a thyroid site gave me the name of a professor here in Ireland.  When I got an appt. with him he said he knew by looking at me that I need oestrogen.  When I posted my results to him (I didn't have the Free T3 result at that time), he said again that I needed Oestrogen.  So I thought maybe the DHEA was the test which indicated this.  I'm 52 so I thought I would naturally have less Oestrogen, being almost at the end of the menopause?

I have highlighted only those results that need looking into

> Reverse T3 ug/L.....(0.09 - 0.35) 0.26 ......399.4 pmol/L (399.4 I think?) ,

can you help here?Do I need to write to her personally? 

> Free T3 pmol/L .....(3.50 - 6.50) 3.70 FAR too low. Your fT3 should be in

the upper third of the reference range.So, do you mean when I my doctor prescribes, he should prescribe one that includes T3? 

> Ferritin ...................(10 - 322) 68.50 -

ferritin levels should be

oround 90 to 130, so you would benefit from supplementing with some form of

elemental iron, such as Ferrous Fumerate, Ferrous Glutamate, 2 to 3 Sachets of

Spatone. My ferritin was 'almost completely depleted' about 24 years ago & my then doctor panicked big time.  I had the equivalent of 12 iron injections to bring it up!!  Also I'm not good at absorbing things as I have a lot of trouble with my tummy :-(

 

You should also be taking high doses of vitamin C i.e. 3/4000mgs

daily. Do not take any form of iron or calciuim 4 hours near to taking any form

of thyroid hormone replacement.Ok, I can get Vitamin C, thank you.

> B12 .......................(240 - 911) 470.00 B12 levels should be near to the

top of the range, so you might benefit with 1000mcgs sublingual B12 daily.I get B12 injections every so often, one a day for 7 days but it just gradually dwindles down.  I still have some vials here in the fridge so I can get somebody to give me the injections.  I feel I need them again :-)

> Cortisol ..................(193 - 690)

444.00<193%20-%20690%20%20%20444.00> Was this an early morning blood

test?Yes!  I had expected it to be low as I can normally barely get out of bed ( & that's on a good day).  Also I can't get to sleep at night so I thought I had adrenal issues as well as thyroid problems.  I had started to improve though from being on the LDN for 2 months, was not as weak!  I've never had the 24-hour saliva test done that I see mentioned and don't know if it can be done here. 

> DHEAS umol/L .......(0.89 - 5.75) 1.60 - this is low and you could

benefit with 25mgs DHEA daily. DHEA takes quite a while to build up and you may

not feel any benefit for up to 3 months, but you should continue to take it.Ok, thanks :-)  I take it I need to ask my doctor to prescribe it? 

> Vitamin D ????? - was this not tested?Yes it was but I don't have the result yet.  My G.P. says it takes 2/3 weeks so I should have it in the next day or so. 

> Cholesterol ......................(0.1 - 5.2) 7.23* [was 9.30] 281. Are

you taking anything to lower your cholesterol? No but I'm not worried to be honest.  It has gone down from 9.30 to 7.23.  As you can imagine I'm not active.  I'm 'kind of' on the Paleo and I think if I could just get myself sorted someway, it'll be okay.  As my G.P. says, it's not the worst of my problems.  But yes, it is high. 

Luv - SheilaThank you so much for all that information, Sheila.  As you can imagine, I'm pretty much at the end of my tether.  I'll be getting another appt. with the professor soon & I felt I'd like to have as much information as possible as I definitely don't want to be prescribed something that isn't going to do the job.  I know my brother & daughter-in-law are on Eltroxin, which appears to be the usual prescription, though they were diagnosed from their TSH.  Also I was told about 24 years ago that I have a goitre.  I can't get my BP up, it normally ranges from 80/50 to 80/60 which doesn't make for easy living :-(.

Love, Noreen

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-- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

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Noreen,

My daughter Tara started ldn 2 years ago age 16 at 1.5mg for very low thyroid and goitre. It worked like a dream and her bloods normalised after 4-5 months. Sadly she lost quite a lort of weight and wouldnt continue, couldnt be persuaded to take anything and now her bloods have gone compeltely awry again.

Next tests this week will give us the decider about levo thyroxine or ldn again.

I thinks he will choose ythyroxine. Know she needs something that will work fast.

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I also meant to add that my average temperature was 96.8 (36.04) degrees with a variation of at least 1 full degree (i.e. lowest: 96.4, highest: 97.4).I await hearing from you as regards the below and many thanks again :-)>> > Hi Sheila,> >> > Thank you so much for your reply & advice. I really appreciate it :-)> > I'm putting my replies below (in red):> >> > On 27 November 2011 11:42, Sheila sheila@... wrote:> >> >> **> >>> >>

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Hi Sheila,Thank you for your reply.  I've removed comments that don't require further response :-)

Have you yet managed to get your oestrogen results. If this was

tested, your GP will have them in your medical notes, together with the

reference range, so give him a ring and ask for the results.No, I didn't find out yet, I'm not sure they have been tested recently.  I think it could have been May when they were last tested, as my G.P. told me then I had about 6 months left of menopause.  Is the correct test called Estradiol?

I have highlighted only

those results that need looking into

> Reverse T3 ug/L.....(0.09 - 0.35) 0.26 ......399.4 pmol/L (399.4 I think?) , can you help

here?

Do I need to write to her

personally? 

If has not seen your

message, I will pass it on to her privately and she will let you know That'd be great as I've not heard from yet, thanks Sheila.

> Free T3 pmol/L .....(3.50 - 6.50) 3.70 FAR too low. Your fT3 should be in the upper third of the reference

range.

So, do you mean when I my

doctor prescribes, he should prescribe one that includes T3?

It would be preferable, but

it is very doubtful a NHS doctor would start you straight off on T3, believing

that everybody can convert the mainly inactive thyroid hormone T4 into T3.

However, it could be that T4 might well work very well for you, so give it a

try.I live in Ireland Sheila and don't have a Medical Card (which I think is like your NHS?) so I pay my G.P.  I'd say it's quite unusual for a private G.P. here to prescribe it too but the professor may - hopefully!

> Ferritin ...................(10 - 322) 68.50 -

ferritin levels should be oround 90 to 130, so

you would benefit from supplementing with some form of elemental iron, such as

Ferrous Fumerate, Ferrous Glutamate, 2 to 3 Sachets of Spatone.

My ferritin was 'almost completely depleted' about 24 years ago

& my then doctor panicked big time.  I had the equivalent of 12 iron

injections to bring it up!!  Also I'm not good at absorbing things as I

have a lot of trouble with my tummy :-(

That could be a problem for

anybody taking iron, and also vitamin C. What is the " tummy trouble "

you are experiencing?I've had gastritis & ulcers and, even if I don't have ulcers, I have lots of bacteria and gastritis.  I'm trying to get rid of Candida at the moment and am also taking probiotics.  I think I'll include prebiotics.  It doesn't take much for me to be sick, then I get dehydrated very quickly & end up in hospital :-(

> Cortisol ..................(193 - 690)

444.00<193%20-%20690%20%20%20444.00> Was this an early morning blood test?

 

You can get the 24 hour

salivary adrenal stress test done privately through Genova Diagnostics. they

send you out a kit comprising of four little test tubes and four straws. You

place one straw in one test tube and you proceed to spit down the straw until

the test tube is almost full. You can stimulate more saliva flow by placing

your finger and thumb under your chin where you can feel two little glands

either side of your wind pipe and massage them. Check out our FILES section on

this forum web site. Go to the Home Page, and click FILES in the Menu. Then

open the FOLDER Discounts on Supplements and Tests and open the document

entitled 'Genova Diagnostics' and follow the instructions for ordering the test

- you need to write 'Thyroid Patient Advocacy' when they ask who your medical

practitioner is. The results should be back with you within about 10 days.Thank you for that information, much appreciated. 

> DHEAS umol/L .......(0.89 - 5.75) 1.60 - this is low and you could benefit with 25mgs DHEA

daily. DHEA takes quite a while to build up and you may not feel any benefit

for up to 3 months, but you should continue to take it.

Ok, thanks :-)  I take it

I need to ask my doctor to prescribe it? 

Again, I very much doubt

your doctor will prescribe DHEA for you. However, you can buy this easily without

prescription over the Internet. You need 25mgs daily. Biovea in the UK is a

good source to buy this from and they are a very reputable pharmacy.I'll ask about that too at my appointment 

> Vitamin D ?????

- was this not tested?

Yes it was but I don't have the

result yet.  My G.P. says it takes 2/3 weeks so I should have it in the

next day or so. 

Do you yet have this result?No, would you believe I just found out today that the blood sample had aged.  Pity the lab hadn't told my doctor 3 weeks ago.  Hope to have another sample taken on Monday.

> Cholesterol ......................(0.1 - 5.2) 7.23* [was 9.30] 281. Are you taking anything

to lower your cholesterol?

Keep an eye on your cholesterol,

remember that high levels of cholesterol can cause a furring up or your blood

vessels leaving little room for a good blood flow. You can use natural products

such as Niacin (vitamin B3) 350mcgs and CoEnzymeQ10 300mgs. Again, you can buy

these privately. . Thanks Sheila, I'll get them. 

Do tell the professor about

your family history of thyroid and/or autoimmune disease - this can run down

the family line.I will, thanks! I've an appointment with the professor on Monday.  I also emailed him my daily temperature, which is low.  Hopefully he'll prescribe accordingly and in agreement with your recommendations.

Again thank you so much, I really appreciate it.Love,Noreen x

Luv - Sheila

 

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-- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

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Have you yet

managed to get your oestrogen results. If this was tested, your GP will have

them in your medical notes, together with the reference range, so give him a

ring and ask for the results.

No, I didn't find out yet,

I'm not sure they have been tested recently. I think it could have been

May when they were last tested, as my G.P. told me then I had about 6 months

left of menopause. Is the correct test called Estradiol?

YES - you also need your progesterone and testosterone testing

too.

I have

highlighted only those results that need looking into

> Reverse T3 ug/L.....(0.09 - 0.35) 0.26 ......399.4 pmol/L (399.4 I think?) , can you help

here?

Do I need to

write to her personally?

If has not seen your message, I will

pass it on to her privately and she will let you know

That'd be

great as I've not heard from yet, thanks Sheila.

I have sent her a copy of your message.

> Free T3 pmol/L .....(3.50 - 6.50) 3.70 FAR too low. Your fT3 should be in the upper third of

the reference range.

So, do you mean

when I my doctor prescribes, he should prescribe one that includes T3?

Yes, if your thyroxine is not converting to the active T3, you

need T3 in some form, either in combination with T4 or natural thyroid extract.

It would be

preferable, but it is very doubtful a NHS doctor would start you straight off

on T3, believing that everybody can convert the mainly inactive thyroid hormone

T4 into T3. However, it could be that T4 might well work very well for you, so

give it a try.

I live in Ireland Sheila and

don't have a Medical Card (which I think is like your NHS?) so I pay my G.P.

I'd say it's quite unusual for a private G.P. here to prescribe it too

but the professor may - hopefully!

Hopefully indeed. Let us know the outcome of this.

> Ferritin ...................(10 - 322) 68.50 -

ferritin levels should be oround 90 to 130, so

you would benefit from supplementing with some form of elemental iron, such as

Ferrous Fumerate, Ferrous Glutamate, 2 to 3 Sachets of Spatone.

My ferritin was

'almost completely depleted' about 24 years ago & my then doctor panicked

big time. I had the equivalent of 12 iron injections to bring it up!!

Also I'm not good at absorbing things as I have a lot of trouble with my

tummy :-(

That could be

a problem for anybody taking iron, and also vitamin C. What is the " tummy

trouble " you are experiencing?

I've had gastritis & ulcers

and, even if I don't have ulcers, I have lots of bacteria and gastritis.

I'm trying to get rid of Candida at the moment and am also taking

probiotics. I think I'll include prebiotics. It doesn't take much

for me to be sick, then I get dehydrated very quickly & end up in hospital

:-(

Perhaps you should look into taking Betaine HCL - see http://www.highernature.co.uk/ShowProductFamily.aspx?ProductFamilyID=63

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,I wonder if you could confirm that I have converted my Revese T3 result which was in ug/L to pmol/L correctly please?  It was 0.26 ug/L and I make it 399.4 pmol/L, which gives a ratio FT3/RT3 of 9.3.  

I'm seeing a professor tomorrow and would appreciate having this information beforehand.Many, many thanks & Regards,Noreen

On 2 December 2011 11:56, Sheila <sheila@...> wrote:

 

Have you yet

managed to get your oestrogen results. If this was tested, your GP will have

them in your medical notes, together with the reference range, so give him a

ring and ask for the results.

No, I didn't find out yet,

I'm not sure they have been tested recently.  I think it could have been

May when they were last tested, as my G.P. told me then I had about 6 months

left of menopause.  Is the correct test called Estradiol?

YES - you also need your progesterone and testosterone testing

too.

I have

highlighted only those results that need looking into

> Reverse T3 ug/L.....(0.09 - 0.35) 0.26 ......399.4 pmol/L (399.4 I think?) , can you help

here?

Do I need to

write to her personally? 

If has not seen your message, I will

pass it on to her privately and she will let you know

That'd be

great as I've not heard from yet, thanks Sheila.

I have sent her a copy of your message.

> Free T3 pmol/L .....(3.50 - 6.50) 3.70 FAR too low. Your fT3 should be in the upper third of

the reference range.

So, do you mean

when I my doctor prescribes, he should prescribe one that includes T3?

Yes, if your thyroxine is not converting to the active T3, you

need T3 in some form, either in combination with T4 or natural thyroid extract.

It would be

preferable, but it is very doubtful a NHS doctor would start you straight off

on T3, believing that everybody can convert the mainly inactive thyroid hormone

T4 into T3. However, it could be that T4 might well work very well for you, so

give it a try.

I live in Ireland Sheila and

don't have a Medical Card (which I think is like your NHS?) so I pay my G.P.

 I'd say it's quite unusual for a private G.P. here to prescribe it too

but the professor may - hopefully!

Hopefully indeed. Let us know the outcome of this.

> Ferritin ...................(10 - 322) 68.50 -

ferritin levels should be oround 90 to 130, so

you would benefit from supplementing with some form of elemental iron, such as

Ferrous Fumerate, Ferrous Glutamate, 2 to 3 Sachets of Spatone.

My ferritin was

'almost completely depleted' about 24 years ago & my then doctor panicked

big time.  I had the equivalent of 12 iron injections to bring it up!!

 Also I'm not good at absorbing things as I have a lot of trouble with my

tummy :-(

That could be

a problem for anybody taking iron, and also vitamin C. What is the " tummy

trouble " you are experiencing?

I've had gastritis & ulcers

and, even if I don't have ulcers, I have lots of bacteria and gastritis.

 I'm trying to get rid of Candida at the moment and am also taking

probiotics.  I think I'll include prebiotics.  It doesn't take much

for me to be sick, then I get dehydrated very quickly & end up in hospital

:-(

Perhaps you should look into taking Betaine HCL - see http://www.highernature.co.uk/ShowProductFamily.aspx?ProductFamilyID=63

 

-- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

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Hi Sheila,I had my appointment with the professor today.  I had sent all my test results to him.  He said I had a thyroid problem and an adrenal problem.  He said:

1)  I needed T3 - woohoo.  I didn't even need to ask!!  Said T3 needed to be brought up & my Reverse T3        needed to be taken care of, i.e. brought down and gotten rid of (I think that's what he said)

2)  I needed DHEA for my adrenals.  3)  I needed CoQ10.He changed some of my other medication, increased the Baclofen (for muscle spasm) and prescribed Difene for pain, as he didn't want me on the 3,000mg of Paracetamol I've been on for years for M.E. plus arthritis & Fibromyalgia.  He said Paracetamol causes sinus trouble, which I've been plagued with!!!  He reduced my Nexium from 40mg twice daily to once daily.  Told me he doesn't treat anybody who has tummy issues if they drink caffeine.  So no tea, coffee, cocoa or hot chocolate!!!!!  He's extremely anti-caffeine and tea.

I asked about B12 and he asked if I had ever had the intrinsic factor antibody test.  I hadn't.  He also thought I should have a nasal swab done in the hospital for my sinuses.  I mentioned about my oestrogen, can't remember exactly what he said, something like we'll see how you get on with all of above.

UNFORTUNATELY, he insisted I stop the LDN.  I'm very disappointed in this as, for the past 3 weeks, that dreadful, debilitating weakness that keeps me bed-ridden has disappeared & I was so excited about that.  But he said he couldn't have me on the thyroid meds & LDN at the same time.  I understood but am disappointed :-(

So he prescribed:  Liothyronine (20  mcg, 1 per day)DHEA         (25 mg, 1 per day)CoQ10,       I don't know how much, left prescription into chemist & will collect tomorrow.

Sheila, I want to thank you so much for all of your advice, help, information and time.  You have no idea how much I appreciate it.**Is there a specific time in the day that I should take the T3 and DHEA?

Again, THANK YOU so very much & Best Wishes.Love,Noreen xoxoOn 2 December 2011 11:56, Sheila <sheila@...> wrote:

 

Have you yet

managed to get your oestrogen results. If this was tested, your GP will have

them in your medical notes, together with the reference range, so give him a

ring and ask for the results.

No, I didn't find out yet,

I'm not sure they have been tested recently.  I think it could have been

May when they were last tested, as my G.P. told me then I had about 6 months

left of menopause.  Is the correct test called Estradiol?

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On 7 December 2011 11:34, Sheila <sheila@...> wrote:

 

This is amazing and I am so delighted. Did you send me the name

of this Professor and the hospital where he works from. You probably did, but

right now, there is so much to remember I cannot retain it. If you did send it

to me, I will have added him to my list, but a reminder please Noreen.I didn't send you his name, Sheila.  I have to phone him next Monday and I'll ask if it's okay to do that.  I wouldn't like to give his name on a public forum without his permission.  I hope you understand.  Although one lady here did ask for it, I asked him & he said it was fine, that he's here to help.  So I'm sure there won't be a problem.  He's semi-retired (supposed to be retired lol), is 84 years old, still doing research etc.  Amazing!! 

He

changed some of my other medication, increased the Baclofen (for muscle spasm)

and prescribed Difene for pain, as he didn't want me on the 3,000mg of

Paracetamol I've been on for years for M.E. plus arthritis & Fibromyalgia.

 He said Paracetamol causes sinus trouble, which I've been plagued with!!!

 He reduced my Nexium from 40mg twice daily to once daily.  Told me

he doesn't treat anybody who has tummy issues if they drink caffeine.  So

no tea, coffee, cocoa or hot chocolate!!!!!  He's extremely anti-caffeine

and tea.

Probably the severe muscle spasm pain is caused because your

body is lacking in T3. Once you get on the correct dose, you might suddenly find

it has completely disappeared - so we will watch this space with anticipation

and great hope! Do you know whether you have Hashimoto's disease, i.e. have

antibodies to your thyroid. If you have, you may need to consider going on a

gluten free diet.I don't know, he said I had hypothyroidism (even before he got my Free T3 result).  I've been on a gluten-free diet for the past 7 years.  My TPO was 18 with a negative range of < 50, Equivocal range (50 - 75) and Positive > 75.  I did tell him that my brother had an under-active thyroid and asked if we could take it that it is in the family.  He said yes. 

I

asked about B12 and he asked if I had ever had the intrinsic factor antibody

test.  I hadn't.  He also thought I should have a nasal swab done in

the hospital for my sinuses.  I mentioned about my oestrogen, can't

remember exactly what he said, something like we'll see how you get on with all

of above.

Did he arrange to do the specific vitamins and minerals you need

testing, i.e. iron, transferrin saturation%, ferritin, vitamin B12, vitamin D3,

magnesium, folate, copper and zinc? You should get a copy of the letter that he

will be sending to your GP to see what he said about your oestrogen. Many

sufferers of hypothyroidism have high oestrogen levels, and need to take

natural progesterone (cream rubbed into the soft part of your body daily) to

balance these sex hormones.I've had quite a lot of those tests done (per my original post here), except for Vitamin D & Oestrogen.  He said my oestrogen is low.  

ALSO he said he does not want patients taking supplements when they're ill (or maybe when they have infection, I'm not sure exactly what he said), except for Vitamin C, as they make matters worse rather than better.  You know, when he explained it, it made sense but I can't recall exactly what he said.  i.e. I was taking probiotics for my tummy and he said well, you have a lot of bacteria in your tummy & taking probiotics is increasing the bad bacteria too - it was something like that.  He told me to stop the probiotics.  

I did ask about taking Betaine HCL, as maybe taking Nexium is exactly the wrong thing to be doing, he said it would depend on the cause of my tummy problems.  He also said any PPI not only works on the tummy but on other organs like the brain.  I think at the moment he's focusing on SOME of the problems I have for now, especially the thyroid :-)

UNFORTUNATELY,

he insisted I stop the LDN.  I'm very disappointed in this as, for the

past 3 weeks, that dreadful, debilitating weakness that keeps me bed-ridden has

disappeared & I was so excited about that.  But he said he couldn't

have me on the thyroid meds & LDN at the same time.  I understood but am

disappointed :-(

I would have liked to have been given some research to show that

LDN and thyroid hormone replacement cannot be taken together. Did he give you a

reason for this?Well, he looked up the side effects of Nalorex and said no way, it can cause heart problems, palpitations etc.  I tried & tried to explain that each Nalorex tablet is 50mg and I only take 4.5 ml.  He said it didn't matter.  He couldn't have me take it with thyroid meds.  

He has a massive background in pharmacology as well as endocrinology and other disciplines.

So

he prescribed:  

Liothyronine

(20  mcg, 1 per day) - take 10mcgs when you

wake, and the other 10 mcgs around 2.00/3.00p.m. to 'keep the engine topped up'.

Did he tell you that this should be increased(if no adverse reaction) in

another 2 to 3 weeks by another 10mcgs?As he hadn't told me when to take it, I phoned him yesterday.  He said to take it in the morning, thyroid meds are daytime meds.  He said he'd see how I go before increasing to twice daily.  I've now taken 2, one yesterday & 1 today.  I really feel strange.  

I know I'm not the best at taking meds but I definitely need T3, so don't understand why I would feel anything but good taking it :-(   Is it common to feel strange when starting T3?

DHEA

        (25 mg, 1 per day) -

good. Remember though that a lot of folk do not feel any particular benefit for

quite some time, and think it is not doing them any good and get disheartened. In

fact, for some people they do not start to feel the benefit for up to 3 months,

so keep on persevering. This will make a difference.That's okay :-)  After 25 years I've stopped looking for instant cures LOL 

CoQ10,

      I don't know how much, left prescription into chemist

& will collect tomorrow. It will be interesting

to see how much he has recommended. The usual Daily Recommended Dose is too

little to be of any great benefit, especially if this is really low. You should

start on about 100mgs and see how  you get on with that, but if really

depleted (this happens as we get older) you need about  3 00mgs (or more)

daily.It was 100 mg he prescribed.  They're not on prescription here.  60 tablets cost over €51 WOW  I'll check elsewhere before I buy the next lot.

Sheila,

I want to thank you so much for all of your advice, help, information and time.

 You have no idea how much I appreciate it.

**Is there a specific time in the day that I should take the T3

and DHEA?

T3 mentioned above - we recommend twice daily to start with

because T3 has a very short half life, and after 6 to 8 hours of taking a dose,

the 'good' effect starts to wear off and you might find yourself needing an

afternoon nap if you take it all in a morning, so take your second dose at that

time, and you should be fine.I'm waiting for that 'good effect'??  I feel I'll have to wait until I phone him on Monday to mention the twice daily 'half-dose " .  Each tablet are 20 mcg, so do I halve them?

DHEA dosage - check the link here http://antiagingguide.com/dhea-dosage.htm

Thank you, chemist is ordering it in for me. 

Luv - SheilaAgain many thanks!!  Was I blessed with this forum and the professor or what??  My hubby had said it's about time I had a bit of luck as regards my health and my goodness, it appears that good luck all came together ... with you Sheila & the professor (so thank you too to Elaine who told me about him).

Love,Noreen xo

_,_._,___

-- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

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