Re: Ordered Cytomel

November 24, 2011

Snippet>>>>I also told him that I have a perminant ache in my kidney area that seems to have gotten worse on starting levo, I asked if it could be adrenal related and he told me no and that would not be thyroid related. He then went on to say that I should stop reading things on the internet and start reading mills & boon, it would do me and my partner the world of good!! And to leave the endocrinology to him! Luv Sue XHi Sue,OMG, i cant believe what i`ve just read! How dare he talk to you like that, Just who does he think he is? You should report him, thats totally discusting.Best wishes Hun.Caz x

November 25, 2011

well done sue ...i know what you mean about the butterflies even just at the

ordering stage because i was like that too!

what an appallingly ignorant endo ...sounds like he needs to patronise patients

in order to make himself feel better...quite frankly people like that should

have no place in practicing medicine.

a constant ache in your kidneys is not a good situation and it could be adrenal

related and that certainly sounds possible in view of it getting worse when you

started t4. in the patient informaton leaflet for t4 it states that adrenals

need to be ok (words to that effect).

what are you doing to support your adrenals? at the very least you need good

amounts of vitamin c (divided doses throughout the day), pantothenic acid (or

the active form pantothene), a good quality b complex, some good quality

saturated fat on a daily basis (e.g. preferably organic butter, organic cold

pressed coconut oil) and some unrefined salt. it is also essential to keep

properly hydrated (e.g. regular small amounts of good water rather than a large

glassful all in one go) and keep caffeine intake to an absolute minimum (or

zero). also try and gt to bed before 10.30pm.

when i first started taking a very small amount of t3 (6.25mcg) i immediatley

felt *odd* (due to low adrenals) ...at the time i didn't know about taking t3 in

the middle of the night to coincide with the natural rythym of cortisol

production (even though i had been taking t4 in the middle of the night and

found that more effective than taking it in the morning)...i think it is very

logical to take t3 between say 4am and 7am so you might want to give that a try

when you get your supply. i think it is paul robinson who has written about

this and apparently he is writing a book that is soon to be published but in the

meantime you could perhaps do a search on his messages on the forum here for

greater insight.

also have a look in the files with regard to supporting your adrenals ...sally

jarvis has written extensively on this subject.

i hope you will keep a notebook about your improved health with t3 and then i

hope you will feel able to contact the ignorant and rather unpleasant endo and

explain to him that if you had let him continue to do the endocinology then you

would not be well and healthy.

best wishes

trish

>

> Hi All, I have just made the decision to order Cytomel from mymexdrugstore...I

hope you are going to see me through with this, I have butterflies about it and

all I have done is ordered the stuff!! :/ It's scary taking ones treatment into

your own hands but I'm not getting anywhere with the endo's appart from deaply

insulted!! The latest is, when I complained that my symptoms only abaited for

2-3 days after first starting levothyroxine and then quickly came back and even

seemed worse, he replied that it couldn't possibly be due to my thyroid as it is

now being treated (i am only on 50mcg), I also told him that I have a perminant

ache in my kidney area that seems to have gotten worse on starting levo, I asked

if it could be adrenal related and he told me no and that would not be thyroid

related. He then went on to say that I should stop reading things on the

internet and start reading mills & boon, it would do me and my partner the world

of good!! And to leave the endocrinology to him! My latest bloods are:

> TSH 0.15 (0.3-4.6)

> T4 18.0 (12.0-22.0)

>

> Previous: bloods that gave me diagnosis

> TSH 14.5 (0.3-4.6)

> fT4 5.0 (12.0-22.0)

> no t3 was done! and as previously stated I still feel very hypo and I am in a

lot of pain in feet etc some quite bad stabbing pains and all the other usual

symptoms of being hypo-t. So my guess is that it may be a rT3 but I would prefer

to have your guidance on this. Luv Sue X

>

November 25, 2011

Sue, you should report this doctor for such flippancy. This is

quite appalling behaviour. I would also tell this GP that you read the

information on the Internet because this is where all the latest

thyroid/adrenal research is published and that you also read the top Medical

Journals when you need information about thyroid disease, and that you are

thoroughly SHOCKED AND DISMAYED that he obviously does not do this himself, and

that you would advise him to stop reading Mill's and Boon and instead, do the

research on the Internet that would help his patients, and help himself also.

Seriously, I would NOT let this prat get away with even suggesting what he has.

Report this matter to your local Primary Care Trust or to the Chief

Executive of the hospital where he works, or better still, report him to the

GMC as not following 'The Duties of a Doctor Registered with the General

Medical Council'

Luv - Sheila

Snippet>>>>

I also told him that I have a

perminant ache in my kidney area that seems to have gotten worse on starting

levo, I asked if it could be adrenal related and he told me no and that would

not be thyroid related. He then went on to say that I should stop reading

things on the internet and start reading mills & boon, it would do me and

my partner the world of good!! And to leave the endocrinology to him!

Luv Sue X

November 25, 2011

It's normal to have butterflies when you first start treating yourself. I

started with the Iodine Protocol and I smile now when I look back at how I

tormented and doubted myself.

Your Endo is ignorant and patronising. Initially I got better on T4 and then

ended up even worse. It's probably due to RT3 and adrenal fatigue. My dose

went up and up, each time with an improvement and then back to square one or

even worse. It happens to a lot of people when they take T4 and all most

doctors do is up the dose until you are a complete mess and then declare

themselves baffled or tell you are doing something wrong.

The permanent ache in your kidney area is worrying. If it goes away on T3 good,

if not may be you should ask for a scan, just in case. Make sure that your

doctor has a letter from you about this. That might make him sit up and pay

attention. I don't want to be alarmist but could be serious.

I also had burning and painful feet. I got rid of it by taking Low Dose

Naltrexone. This is not a solution which deals with the problem. I have heard

that some people have gotten rid of burning feet with a mixture of vitamin B12,

alpha lipoic acid and a type of vitamin B1 called Benfotiamine. For some people

vitamin B5 and others chromium. None of this worked for me, so I tried LDN and

it worked straight away. Still worries me that I haven't the real cure, but I

was in such pain that I had to go something.

Good luck with the T3. You might need some adrenal support. I used

hydrocortisone for about a year at 27mg/day, now I am down to 15mg. There are

other products such as adrenal glandulars too which support the adrenals.

Sheila knows more about this than I do. There is a very good website called

www.stopthethyroidmadness.com that has some good information about adrenal

fatigue and what you can do about it.

Hope this helps,

MacG.

>

November 25, 2011

>

> Hi All, I have just made the decision to order Cytomel from mymexdrugstore...I

hope you are going to see me through with this, I have butterflies about it and

all I have done is ordered the stuff!!

>

Thankyou all so much for your advice and support, I did write a stinking letter

but was to chicken to send it for fear of being booted off his list but now that

I have made the decision to try T4/T3 combo I really cant see why I should

worry so it may get posted regardless I started myself back on the NAX (on 2

a day so far) when the ache in my kidney area started to worsen in case it was

adrenal related and I also take 2000mg vitC split into 2doses, 200ug selenium,

3000mg fish oil, 200mg magnesium citrate, 800iu vit D3 and I have been taking

about a teaspoon of coconut oil with a little bit of manuka honey on my toast

every morning and I use unrefined salt, I will give up the tea (I dont drink

coffee)and drink spring water instead. Sod it I am going to post that letter as

it is addressed to his senior who is Dr B @ solihull who is on Sheila's list,

and he needs to be told not to disrespect patients like this! Thanks again

everyone. Luv Sue X

November 26, 2011

Good on Yer Sue - you go girl!

Perhaps you should also enclose

a copy of the attached Press Release I have written and sent off to all UK

National and local newspapers to pop into your letter to show him that the

General Medical Council have now confirmed that doctors can go outside the

generally accepted diagnostic and treatment protocol for

those with symptoms of hypothyroidism and that it is safe, practical and

legitimate to do so. The GMC also conceded that there are valid alternatives to

levothyroxine-only therapy and that blood test results alone should no longer

dictate how doctors diagnose and treat this illness.

Unless we let these

doctors know how wrong they are, they will continue with their bad practice.

I was kicked out of my

surgery because they said I criticised their practice because they refused to

prescribe 'unlicensed' medicine. My local PCT found me another doctor even

nearer to where I live, who was very happy to prescribe me natural thyroid

extract within the NHS. It was the best favour my ex-surgery ever did for me.

You do not have to put up with doctors ignorance and arrogance. This is YOUR

health, not theirs.

Luv - Sheila

Thankyou all so much for your advice and support, I did write a stinking letter

but was to chicken to send it for fear of being booted off his list but now

that I have made the decision to try T4/T3 combo I really cant see why I should