Guest guest Posted November 14, 2011 Report Share Posted November 14, 2011 I now have my test results from Genova and would very much appreciate some help in deciphering them before I see an endocrinologist for the first time on Tuesday. Thyroid Hormone 24 Hour Urine T3 516 ref 592-1850 This is outside of the bottom of the reference range and you need to be given a trial of some form of T3 in combination with thyroxine (T4), either synthetic or natural thyroid extract, T4 454 ref 347-1994 If you are not taking any form of thyroid hormone replacement, this number should be above the middle of the reference range. You must be feeling really poorly, Ratio T3/T4 1.1 I have already shown these to my GP who will not take any notice of them - says she has never heard of this test! Then your GP should refer you to a specialist who understands about thyroid problems and not leave you to worry about this on your own. Total Thyroid Screen Central Thyroid Function: T4 105 ref 58-154 - This is Total T4, which tells us little to nothing. TSH 5.95 high ref 0.4-4.0 - Understandable with such low fT3 and fT4 FT4 13.0 ref 10-22 - this should be over 17 Peripheral Thyroid Function: FT3 5.98 ref 2.8-6.5 - This result I don't understand B12 522 ref 211-911 B12 is one result that should be very close to the top of the reference range, i.e. over 800 at least. You would benefit from B122 sublingual tablets 1000mcgs daily. Folate 4.9 3.4-17.5 - This is very low. What dose Folic Acid are you taking? I have not had ferritin checked - it is VERY important that you get this checked and did they do any other iron tests? My liver function (taken about 5 weeks ago): Total Bilirubin 8 Ref 0-17 AST H53 ref 0-40 ALT H88 ref 0-40 GGT H96 ref 0-55 I don't have latest results from docs but I know it's still high as saw the red on the screen. It's important to get the latest liver results and ask your GP what you need to do about this, and the possible cause - it could be untreated hypothyroidism. I'm on very high dose statins following a heart attack and stent so don't know if they are affecting my liver. My liver levels were high previous to the heart attack (a friend who is a nurse got it done for me )) My cholesterol was slightly raised before the heart attack but not enough to need medication. Yesterday I was also diagnosed with a slightly enlarged heart whigh is assumed to be from the heart attack. Statins are pretty evil and get rid of the good cholesterol as well as the bad cholesterol - and leave you with all sorts of problems. Statin prescription is often discussed on this forum, with the general belief you should stop Statins and take natural CoEnzyme Q10 and Niacin (vitamin B3) instead. My husband also had a heart attack and Dr Peatfield made him stop the Statin and also one of the blood thinners, which were causing him to bruise so easily. He now takes 300mgs CoEnzymeQ10 and 350 mgs of the 'flushing' Niacin. This might be something you want to look into Anyway, following all that, any clarification, especially between the difference of the urine and blood tests would be very helpful. I want to be as armed as I can be for next Tuesday. The 24 hour urine thyroid function tests are more reliable than they blood tests. Blood tests ONLY show the level of thyroid hormone that is in your blood, which is useless, and the urine tests shows the level of thyroid hormone that has been used in the tissues and cells over the past 24 hours, which is what we need to know. Does anyone know if they actually do the 24 hour urine thyroid test on the NHS? Would be useful to know so I could push for it. Sorry, but the answer is No, they do not do the 24 hour urine thyroid function test within the NHS. Many many thanks in advance. I'm so glad I have found such a wonderful site - without your help yesterday and the day before I probably wouldn't have pushed so hard to see an endocrinologist. Problem with NHS endocrinologists is that the majority of them have diabetes as their speciality and know little to nothing about thyroid disease so don't be surprised if you meet up with one of them Jane. This will probably still leave you with no particular step forward and not quite knowing which way to turn, but let's wait and see. Luv - Sheila Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2011 Report Share Posted November 22, 2011 Hi I am currently on 30 mgs of HC a day for adrenal fatigue and have recently had my blood results back and wondering what my next step should be.RT3 Range .09 - .35 Result .35Free T4 Range 9.0 - 19 Result 14 Free T3 Range 2.63 - 5.7 Result 4.1T3 Range 1.3 - 3.1 Result 1.5T4 Range 66 - 181 Result 93In Past tests I do have antibodies aswell but don't have the results I have an app. next week so I'm wondering what course of treatment would be best for me any advice is very welcome.Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2011 Report Share Posted November 27, 2011 Hi to Sheila and all An update on my visit to endo privately last week. He totally ignored the 24 hour urine test done by Genova but did take note of my symptoms, some of which, he said, could be down to the meds I'm taking for my heart attack 10 months ago. He also suggested that I might be depressed. I gave him my tsh etc blood results from Genova, plus he had my doctors results, and he finally agreed to give me a trial of thyroid med. He said he was aiming to get my tsh under 4. I'm still waiting for my prescription so don't know what I've been prescribed yet but I do know that he said T3 med was unnecessary. He's starting me on 25 mg for a few weeks. Will that be enough to make a difference? I feel like it will be a drop of water on a sponge. I have a question to ask. Does anyone else have a really itchy scalp? Mine itches so much I sometimes scratch and make it very sore. I worry my hairdresser is going to say I've got nits!! Has anyone any solutions to this problem? Thanks again to Sheila for being so helpful and no doubt I'll have many more questions. Jane x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2011 Report Share Posted November 27, 2011 Hi Jane, I presume you mean 25mcg thyroxine as thyroid meds. That is normal as a starting dose for an older person or a person with cardiac problems. Don't let him keep you on that for too long though as it is more or less a " testing " dose probably as you had a heart attack. You probably won't notice much, if any, difference on that dose for several weeks. I was put on 25mcgs thyroxine a few years ago as I have a cardiac problem. As I wasn't very ill with my thyroid and that particular doctor left the surgery I had no follow up and stayed on that dose for a couple of years through my own ignorance. I got wise only about 18 months ago and have been self medicating with the help of TPA and most of my symptoms have gone all of which had remained on 25mcgs thyroxine obviously....Val > > > > > Hi to Sheila and all > > An update on my visit to endo privately last week. > > He totally ignored the 24 hour urine test done by Genova but did take note of my symptoms, some of which, he said, could be down to the meds I'm taking for my heart attack 10 months ago. He also suggested that I might be depressed. > > I gave him my tsh etc blood results from Genova, plus he had my doctors results, and he finally agreed to give me a trial of thyroid med. He said he was aiming to get my tsh under 4. I'm still waiting for my prescription so don't know what I've been prescribed yet but I do know that he said T3 med was unnecessary. He's starting me on 25 mg for a few weeks. Will that be enough to make a difference? I feel like it will be a drop of water on a sponge. > > I have a question to ask. Does anyone else have a really itchy scalp? Mine itches so much I sometimes scratch and make it very sore. I worry my hairdresser is going to say I've got nits!! Has anyone any solutions to this problem? > > Thanks again to Sheila for being so helpful and no doubt I'll have many more questions. > > Jane x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2011 Report Share Posted November 29, 2011 Your doctor should be aiming to get your TSH around 1.0, never mind under 4. I bet you his speciality is diabetes and not thyroid disease. If it was, he wouldn't be making such a statement. I should imagine that he will have prescribed levothyroxine only for you, but don't worry, many do well on levothyroxine, at least, for quite a few years, so you may be one of them. Have you tried Neem Shampoo for your itchy scalp - or alternatively, when you have washed your hair, make a vinegar solution - half vinegar ha\lf water and rinse it over your hair, then just wrap a towel around it loosely and leave it for 10 minutes. This works wonders. After that, don't forget to rinse it with clear water so you don't smell like fish and chips. Luv - Sheila I gave him my tsh etc blood results from Genova, plus he had my doctors results, and he finally agreed to give me a trial of thyroid med. He said he was aiming to get my tsh under 4. I'm still waiting for my prescription so don't know what I've been prescribed yet but I do know that he said T3 med was unnecessary. He's starting me on 25 mg for a few weeks. Will that be enough to make a difference? I feel like it will be a drop of water on a sponge. ,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2011 Report Share Posted November 30, 2011 Hello again Thanks for the responses I've had. I'm due to have my tsh levels checked in about 8 weeks (after a few weeks of 25mg thyroxine) and noticed that the consultant has asked for folate and ferritin also to be checked. I think I need D3, magnesium, copper and zinc checking but can't work out which test to order from Genova. I'm probably being incredibly thick and would be grateful If someone would tell me which test to order. Btw Sheila his speciality is definitely diabetes and not thyroid. I can see me going down the self medicating route before too long! You should see the letter he's written to my doc - talk about depression and anxiety! I'll say no more. Jane > > > > I have a question to ask. Does anyone else have a really itchy scalp? Mine itches so much I sometimes scratch and make it very sore. I worry my hairdresser is going to say I've got nits!! Has anyone any solutions to this problem? > > > > Thanks again to Sheila for being so helpful and no doubt I'll have many more questions. > > > > Jane x > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2011 Report Share Posted December 1, 2011 Your GP should order the tests for you Jane, these are all available within the NHS and any of these, if they are returned low within the reference range, will stop the thyroid hormone (even your own) from being fully utilised at the cellular level. Ask your GP to test iron, transferrin saturation%, ferritin, vitamin B12, vitamin D3, magnesium, folate, copper and zinc and to let you have the results, plus reference range for each test done when they have been returned. Post them on the forum and we can help with their interpretation. Luv - Sheil I'm due to have my tsh levels checked in about 8 weeks (after a few weeks of 25mg thyroxine) and noticed that the consultant has asked for folate and ferritin also to be checked. I think I need D3, magnesium, copper and zinc checking but can't work out which test to order from Genova. I'm probably being incredibly thick and would be grateful If someone would tell me which test to order. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2012 Report Share Posted February 14, 2012 I now have some new blood test results and would appreciate someone taking the time to have a look over them for me. Just a note to say that I rang my Doctors for the results and was told all was OK so I asked for a print out and here it is. Even I can see that B12 is a little high (I take folate with B12 – so maybe I should just take folate alone as I was folate anaemic in the past) and total vitamin D is too low. No advice, nothing. I was ill with a lower respiratory infection in India so I've had a full blood count done to check the infection has definitely gone – plus other tests. Here goes: Full Blood Count (424..) Total White Blood count (XaldY) 6.6 10*9/L (3.8 – 11.0) Haemoglobin concentration (Xa96v) 12.9 g/dL (11.5 – 16.5) Platelet count – observation (42P..) 197 10*9/L (150.0 – 450.0) Red Blood Cell Count (426..) 4.18 10*12/L (3.8 – 5.8) Haematocrit (X76tb) 0.38 ((0.36 – 0.47) Mean cell volume (42A..) 89.9 fL (80.0 – 100.0) Mean cell haemoglobin level (XE2pb) 30.8 pg (27.0 – 32.0) Mean cell haemoglobin concentration (429.) 34.2 g/L (31.0 – 26.0) Differential white blood cell count (421..) Neutrophil count (42J..) 3.60 10*9/L (2.0 – 7.5) Lymphocyte count (42M..) 2.20 10*9/L (1.5 – 4.1) Monocyte count – observation (42N..) 0.50 10*9/L (0.2 – 0.8) Eosinophil count – observation (42K..) 0.10 10*9/L (0.04 – 0.4) Basophil count (42L..) 0.00 10*9/L (<=0.2) Percentage neutrophil count (XE2mP) 55.0% Percentage lymphocyte count (XE2mQ) 34.1% Percentage monocyte count (XE2mR) 8.1% Percentage eosinophil count (XaCJj)) 2.2% Percentage basophil count (XE2mS) 0.6% Serum vitamin level (XalzD) Total Vitamin D 21 ng/mL (30.0 – 100.0) I've just had nearly 5 weeks in the Indian sunshine so thought this would be fine. Can anyone tell me why I might have such low levels? Blood haematinic levels (XaDsm) Serum Iron level (X76tH) 16 umol/L (5.0 – 33.0) Serum transferrin level (XE2dx) 2.20 g/L (2.15 – 3.8) Serum TIBC (XE2mF) 49 umol/L (36.0 – 77.0) Saturation of iron binding capacity (XaFvN) 33% (15.0 – 50.0) Serum vitamin B12 level (XE2pf) 982 ng/L (180.0 – 910.0) Serum folate level (42U5) 16.42 ng/ml (5.4 – 24.0) Serum ferritin level (XE24r) 241.0 ug/L (10.0 – 291.0) Trace element level (X7730) Serum Zinc level (XM0m1) 15.0 umo/L (12.0 – 20.0) Unfortunately, didn't manage to get copper, magnesium etc. done. I'm seeing my endo (and he's also done some tests, iron, cholesterol, etc.) in a couple of weeks so would appreciate knowing what, if anything, I should ask for or indeed tell him I'm doing supplement wise. Many thanks Jane x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2012 Report Share Posted February 14, 2012 Your Ferritin level and range look too high as well. The usual female pre-menopausal range is much lower, more like 150 as the upper range. If you are post menopausal then its fine. 2 > Serum ferritin level (XE24r) 241.0 ug/L (10.0 – 291.0) > > Jane x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2012 Report Share Posted February 17, 2012 Hi Jane, I have deleted those results that appear to be fine and just left the following. Luv - Sheila > Total Vitamin D 21 ng/mL (30.0 – 100.0) Ooops! Talk to your doctor, you need a prescription for Vitamin D3 > Serum vitamin B12 level (XE2pf) 982 ng/L (180.0 – 910.0) This is OK, but stop taking vitamin B12. B12 should be at the top of the range. > Serum folate level (42U5) 16.42 ng/ml (5.4 – 24.0) You can take 400mcgs Folic Acid if this level needs to be built up. > > Quote Link to comment Share on other sites More sharing options...
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