Fw: DLA removed yet far more sick now than when awarded !!

[Guest guest]

> My daughter was awarded Highest DLA some 10 years ago thanks to Symphis pubis Dysfunction caused by NHS neglect in pregnancy no 3 and cannot walk far or up slopes

She also has Spondylolythesis

Add on severe Hashimotos and fibro myalgia which no amount of Armour or vitamins etc resolves to the point where she has major problems just coping day to day

she has now been refused any level of DLA which also means the loss of Social Services support Her latest claim was completed by her Social Worker so what on earth is going on She needs a wheelchair to get around a supermarket dare not drive for long as that aggravates the Back and pelvis problems

She is in far worse condition than when High rate DLA was awarded 10yrs ago so just what is going on.

Pat

[Guest guest]

>

>

>

>

>

>

>

>

>

>

> > My daughter was awarded Highest DLA some 10 years ago thanks to Symphis

pubis Dysfunction  caused by NHS neglect in pregnancy no 3 and cannot walk far

or up slopes

> She also has Spondylolythesis

>

> Add on severe Hashimotos and fibro myalgia which no amount of Armour or

vitamins etc resolves to the point where she has major problems just coping day

to day

>

> she has now been refused any level of DLA which also means the loss of Social

Services  support

>

>  Her latest claim was completed by her Social Worker so what on earth is going

on

>  She needs a wheelchair to get around a supermarket

>  dare not drive for long as that aggravates the Back and pelvis problems

>  

> She is in far worse condition than when High rate DLA was awarded 10yrs ago so

just what is going on.

>

>  Pat

>

The Government is committed to cutting 20% but in reality I think the numbers

are more like 40% of all people/children who claim DLA. You have appeal

straight away. Have a look on the benefits and work website some really good

information on their for people appealing the loss of their DLA.

Carewatch are fighting the cuts on behalf of people on DLA and ESA please sign

the following e petition and help fight the cuts.

http://epetitions.direct.gov.uk/petitions/20968

[Guest guest]

>  

> She is in far worse condition than when High rate DLA was awarded 10yrs ago so

just what is going on.

>

>  Pat

>

Go to appeal Pat,

I think the latest figures are that 80% of appeals are successful. The payments

that are stopped now, will be back paid, a nice lump sum in the future. It

doesn't help now I know, but its better than nothing.

Phone up and ask for the forms needed for an appeal, then ask for a copy of all

the documents and the claim as filled in by the Social worker. Many of the

'professionals' do not know how to fill in the forms, they think a two word

answer is enough. You have to give every bit of detail you can think of for DLA.

I have to do my husbands (severe rheumatoid Arthritis) and my son (Autism,

Dyspraxia, dyslexia etc) DLA and for each of them I regularly send in 40 pages

of extra info. In fact most of the boxes on the form have " Please see separate

sheet " written in the box because there just isn't enough room in the boxes for

the amount of info needed.

If your daughter has been for an ATOS review and then found that her DLA has

been stopped soon after losing at ATOS, then you will have to appeal the ATOS

AND the DLA.

2

[Guest guest]

Hi Pat, this is a bit OT, but does your daughter see a specialist about her SPD and if so what type of specialist. I had this when pregnant with my youngest (now nearly 5) and have had bouts of beings much worse and a little better. Never been the same since. Seems to be in the back, though (sacroiliac rather than pubic bone), but I now am in constant pain and can't walk up slopes etc. Just persuaded GP to do an x-ray in case of osteoarthritis but I want to see an expert - just not sure what expert to ask for!Do please email me off-list if you have any suggestions or advice, I am starting to feel a bit desperate over this, never mind the faltering thyroid (fibrositis - not even fms!) and only ever being offered the pill or anti-depressants for anything! Can't take

anti-inflammatories for the pelvic pain either, intolerant of them, so any help you can give me would be very much appreciated. If your daughter does have a decent specialist and you are near Surrey, the name would be helpful too if possible (but it sounds as if maybe she doesn't?)Thankyou in advance, > My daughter was awarded Highest DLA some 10 years ago thanks to Symphis pubis Dysfunction caused by NHS neglect in pregnancy no 3 and cannot walk far or up slopes

[Guest guest]

PREVIOUS MESSAGE TRIMMED- MODERATOR

Hi

I see the osteopath about my SPD, one of my many problems. Live in Berkshire. I

saw a guy in Gloucester, recommend by the SPD society. Then a guy in London

where I received injections to tighten up the muscles, which worked until a RTA

3 months later ! I have been given details of a hip specialist in London, he

maybe helpful. Problem is the back & pelvis are all interconnected. Had issues

with my knees recently and the knee consultant said the problem he is " your hip

bone is connected to your thigh bone " :-)

>

> Hi Pat, this is a bit OT, but does your daughter see a specialist about her

SPD and if so what type of specialist. I had this when pregnant with my youngest

(now nearly 5) and have had bouts of beings much worse and a little better.

Never been the same since. Seems to be in the back, though (sacroiliac rather

than pubic bone), but I now am in constant pain and can't walk up slopes etc.

Just persuaded GP to do an x-ray in case of osteoarthritis but I want to see an

expert - just not sure what expert to ask for!

be helpful too if possible (but it sounds as if maybe she doesn't?)

>

> Thankyou in advance,

>

>

>

>

>

>

> >________________________________

> >

> >

> >> My daughter was awarded Highest DLA some 10 years ago thanks to Symphis

pubis Dysfunction  caused by NHS neglect in pregnancy no 3 and cannot walk far

or up slopes

> >>

> >

>

[Guest guest]

Hi Thankyou for that. I will have to contact the SPD society, thankyou,

Hi

I see the osteopath about my SPD, one of my many problems. Live in Berkshire. I saw a guy in Gloucester, recommend by the SPD society. Then a guy in London where I received injections to tighten up the muscles, which worked until a RTA 3 months later ! I have been given details of a hip specialist in London, he maybe helpful. Problem is the back & pelvis are all interconnected. Had issues with my knees recently and the knee consultant said the problem he is "your hip bone is connected to your thigh bone" :-)

> Hi Pat, this is a bit OT, but does your daughter see a specialist about her SPD and if so what type of specialist.

>

>