Guest guest Posted November 20, 2011 Report Share Posted November 20, 2011 When writing the press release please remember that if it turns into one long accusation no paper will print it. It needs to be abjective, accurate but naming NO names and not taking anyone to task. I know it is very tempting to ram home the message but in reality this will not happen as it just won't get printed. YES you can say that the charges were innaccurate but NOT trumped up. Yes you can say how unfair it is that doctors have no protection against such charges but the GMC must not be criticised. I say this knowing how hard it is to get anything printed in a newspaper - even in the 'letters to the editor' column. Please don't waste this opportunity by trying to take revenge. Glynis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2011 Report Share Posted November 20, 2011 To get justice you need a platform, I understand how you must feel, I only hope that you will understand how I feel and the reason I started this thread. I do not want to see this opportunity wasted either. > > I am aware of all of these things Glynis and aware of the importance of > getting this right. I have no intention of wasting this opportunity. This is > NOT about taking revenge - this is about getting JUSTICE - not just for tens > of thousands of patients in the UK alone who have been left suffering, but > for tens of thousands of doctors too. > > Sheila > > > > > > When writing the press release please remember that if it turns into one > long accusation no paper will print it. It needs to be abjective, accurate > but naming NO names and not taking anyone to task. > > I know it is very tempting to ram home the message but in reality this will > not happen as it just won't get printed. > > YES you can say that the charges were innaccurate but NOT trumped up. > > Yes you can say how unfair it is that doctors have no protection against > such charges but the GMC must not be criticised. > > I say this knowing how hard it is to get anything printed in a newspaper - > even in the 'letters to the editor' column. > > Please don't waste this opportunity by trying to take revenge. > Glynis > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2011 Report Share Posted November 21, 2011 I disagree, I dont see how 'shouting from the rooftops'about such a huge achievement could be construed as revenge. If it becomes public knowledge how this particular doctor was treated by the GMC I dont think they would dare try to bring new 'trumped up' charges either. Bad publicity is often a good deterrent to any body ! I say publish and be damned, as it were ! > > To get justice you need a platform, I understand how you must feel, I only hope that you will understand how I feel and the reason I started this thread. I do not want to see this opportunity wasted either. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2011 Report Share Posted November 21, 2011 But you have to remember who you're working with here. The BTA / drug companies can and will quash any detrimental publicity - whether that is letter or article. To get something published (even a letter) the paper publishing has to ensure it cannot be sued - name names or criticise and they won't print it. > > > > > > > I disagree, I dont see how 'shouting from the rooftops'about such a huge achievement could be construed as revenge. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2011 Report Share Posted November 21, 2011 This is true - this country is getting more like communist China every day. Newspapers have to watch who they upset. This has to be done oh so subtley ... and probably gently gently bit by bit. I think the general public are noticing that something is going on with thyroid matters. So are doctors and endo specialists - most of them are already on the defensive and they don`t like us getting knowledge from the internet. As my doctor said " I suppose you got that from the internet " as if you only get false information from the internet. Jane > > > > > > > > > > > > > > I disagree, I dont see how 'shouting from the rooftops'about such a huge achievement could be construed as revenge. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2011 Report Share Posted November 21, 2011 …and the BTA et al also have to remember who they are working with, i.e. patients with symptoms of hypothyroidism who need to be properly diagnosed and given a choice of treatment. As I am the one who will be writing the PR, then I will decide whether what I write might be considered detrimental or not. I have been running TPA for quite a few years and to date, I am not aware of every having written anything that would be considered detrimental or run the risk of ever being sued. I'm quite a cautious old bird you know because I do try to think first! If I paid attention to all those people telling me to " be careful " and not upset " them up there because they won't like it " , I would have blown TPA into the ether long, long ago. Certain people and organisations need to be upset, but there are ways of doing this, and then there are other ways…… Sheila But you have to remember who you're working with here. The BTA / drug companies can and will quash any detrimental publicity - whether that is letter or article. To get something published (even a letter) the paper publishing has to ensure it cannot be sued - name names or criticise and they won't print it. > > I disagree, I dont see how 'shouting from the rooftops'about such a huge achievement could be construed as revenge. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2011 Report Share Posted November 21, 2011 My response to such doctors Jane is to say " Are you telling me that you do not check out the research that is published in all the top medical journals THAT are published on the Internet - I am VERY surprised at this Doctor! This is the ONLY place I can be sure of getting the most up to date information about the latest research and studies " . I would then suggest that if they are not sure where to find such information, I would be happy to give them some links. That should shut them up. This is so ignorant and arrogant, it's beyond belief. Luv - Sheila .. So are doctors and endo specialists - most of them are already on the defensive and they don`t like us getting knowledge from the internet. As my doctor said " I suppose you got that from the internet " as if you only get false information from the internet. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2011 Report Share Posted November 21, 2011 "Certain people and organisations need to be upset, but there are ways of doing this, and then there are other ways.. Sheila "SheilaGo for it ! I cannot think of suitable title but I'm sure you will get this to the attention of the general public, and those who are still publishing misleading or at worst incorrect information will have to rethink their publicity.Sue x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2011 Report Share Posted November 22, 2011 Oh Sheila - I do wish I was as `on the ball` as you. You sound such a confident gutsy person. Of course, your response is absolutely right and I have seen my doc google stuff himself before. But he just made me feel as if I`d been a naughty girl for looking on the internet. Its the illness - it tends to make us all weak and wobbly and a pushover. But I`m learning, thanks to you and this forum - thanks. Jane > > My response to such doctors Jane is to say " Are you telling me that you do > not check out the research that is published in all the top medical journals > THAT are published on the Internet ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2011 Report Share Posted November 22, 2011 Thanks for the encouragement Sue - without such encouragement, it can sometimes be very difficult to carry on. Afshan has posted the GPC Panel's Determination to me and I should be in receipt of this on Monday, so cannot do anything until I have got that, and then, I have to type it all out - and it was LONG, but I will only be posting the part referring to their decision regarding Dr Skinner's fitness to practice. Luv - Sheila " Certain people and organisations need to be upset, but there are ways of doing this, and then there are other ways.. Sheila " Sheila Go for it ! I cannot think of suitable title but I'm sure you will get this to the attention of the general public, and those who are still publishing misleading or at worst incorrect information will have to rethink their publicity. Sue x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2011 Report Share Posted November 22, 2011 It is certainly difficult being the one holding their head above the parapet -and we must give whoever is doing that not only the bullets to fire but the support to do so. And a thought - why not present the evidence - there is a growing register of counterexamples - why not a similar one which simply asks - were you successfully treated by the NHS or are you still struggling - and when you took your health into your own hands and saw someone who listened and treated did you recover more or less full health? Something along those lines - a thousand or so short paragraphs of before and afters - to prove that it is OK to medicate despite lab results and it does not have bad side effects. My only worry is that if I completely self medicate and do not at some stage have the blessing of a GP then what will happen in say 25 yrs time when I am in my 70s and maybe not able to order meds from overseas for whatever reason and I become dependent on the NHS. I visit a lot of elderly folks in my job and in carrying out assessments - I do come across - mainly women who have a diagnosis of hypothyroidism on 25 mcg of T4 , overwieght,levels of confusion, etc etc. Or worse, no diagnosis of thyroid issue but on thyroxin - one lady was so tired she slept most of the day, was so overweight it was getting harder for her to mobilise and she was puffy faced etc - I alerted her GP that she may need bloods and looking at he said she was fine and they had been done the previous week!!! SO - however, proactive and able most of us might be now in sticking two fingers up at the system and doing our own thing - we need to make it work properly for now and the future and some times we need to jump up and down and make a noise - as long as we can provide the evidence why and keep banging on about how things should be. Well, rant over. Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2011 Report Share Posted November 22, 2011 Hi Jane, actually, I am still often quite weak and wobbly and have to remember to be as assertive as I can muster to get the message over. I just hate it when doctors treat us like prime idiots, when most of the time, it is them that are the idiots and not us, and they hide behind their title of 'doctor'. They want you to feel naughty so you will go away with your tail between your legs, but don't allow that and stick up for yourself and others, and that way, perhaps they will eventually learn. And Jane, remember that in the past, before I started natural desiccated thyroid extract, I was ~VERY weak and wobbly with brain fog, and a complete push-over. What I write now is only what I have learned through the members of this forum and the information available for all on the Internet. Luv - Sheila Oh Sheila - I do wish I was as `on the ball` as you. You sound such a confident gutsy person. Of course, your response is absolutely right and I have seen my doc google stuff himself before. But he just made me feel as if I`d been a naughty girl for looking on the internet. Its the illness - it tends to make us all weak and wobbly and a pushover. But I`m learning, thanks to you and this forum - thanks. Jane _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2011 Report Share Posted November 23, 2011 Hi Stacey You are so right. We need to show the evidence as to why people on forums such as ours with medical advisers such as Dr Peatfield and Dr Skinner are getting back their normal health, which they are not doing following mainstream statements about how to diagnose and treat those with symptoms of hypothyroidism. I am hoping today to get the Panel's Determination in the Post and will get on with writing a press release or press report. Stacey, if you had no other choice but to take your thyroid health into your own hands and self-treat, then in 25 years time, you would not need a doctor - in fact, from starting to self-treat, your health would be in better hands than with the NHS at the present time as we know there are as many as 250,000 UK citizens who are being left without the correct thyroid hormone replacement that will make them well. You can turn your question around and ask what would happen when you are your 70's and still having your thyroid sysmptoms being treated (or not treated) within the NHS - will you even still be here. I stuck too fingers up to the NHS and started natural thyroid extract 8 years ago and now in my 70's and still going amazingly strong, everybody telling me at all turns how well and healthy I look - and I AM. Natural thyroid extract is now a lot, lot cheaper than when I first started out self medicating, but I persuaded my endocrinologist that as I was having to take this for life, would he recommend it on the NHS, which he did, and now has several of his other patients on NDT. We at TPA at least, will carry on banging the drum and jumping up and down until our message gets out to everybody, and we need to thank doctors such as our medical advisers for sticking with their beliefs and proving the NHS wrong - and now, even the GMC has accepted it - so little by little, we are getting there. It is up to each one of us though to fight our corner - get the facts (we have them all on our web site and in our files if only members would read them) and pass them on to our doctors. Without these, my endocrinologist would never have changed his mind and continued to believe that L-thyroxine was the only medication needed, and that natural thyroid extract had potency problems in the past and the T4 and T3 levels couldn't be standardised in all batches. He now knows how wrong he was and is delighted to be making his patients well again. Luv - Sheila My only worry is that if I completely self medicate and do not at some stage have the blessing of a GP then what will happen in say 25 yrs time when I am in my 70s and maybe not able to order meds from overseas for whatever reason and I become dependent on the NHS. I visit a lot of elderly folks in my job and in carrying out assessments - I do come across - mainly women who have a diagnosis of hypothyroidism on 25 mcg of T4 , overwieght,levels of confusion, etc etc. Or worse, no diagnosis of thyroid issue but on thyroxin - one lady was so tired she slept most of the day, was so overweight it was getting harder for her to mobilise and she was puffy faced etc - I alerted her GP that she may need bloods and looking at he said she was fine and they had been done the previous week!!! SO - however, proactive and able most of us might be now in sticking two fingers up at the system and doing our own thing - we need to make it work properly for now and the future and some times we need to jump up and down and make a noise - as long as we can provide the evidence why and keep banging on about how things should be. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2011 Report Share Posted November 23, 2011 Snap - in the mental health sector, I saw many ladies and probably a couple of gents that obviously had thyroid (some hyper, some hypo)symptoms. Many, many mental health issues can stem from a dysfunctioning endocrine system - yet its never considered by the professionals - easier to bung them on anti-psychotics, anti-depressants etc which have awful side affects. It really annoyed me when colleagues labelled clients as lazy and hassled them into action they just didn`t have the energy for. Grrrrr. Jane > > > > > I do come across - mainly women who have a diagnosis of hypothyroidism on 25 mcg of T4 , overwieght,levels of confusion, etc etc. Or worse, no diagnosis of thyroid issue but on thyroxin - one lady was so tired she slept most of the day, was so overweight it was getting harder for her to mobilise and she was puffy faced etc - I alerted her GP that she may need bloods and looking at he said she was fine and they had been done the previous week!!! > > Well, rant over. > Stacey > Quote Link to comment Share on other sites More sharing options...
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