Guest guest Posted February 7, 2000 Report Share Posted February 7, 2000 Ok, another hypothetical question: Knowing what you know now, which tests do you wish you would have had EARLY in the disease to document baseline and the progression of the disease for medical and/or disability purposes? Example: SPECT, Brain MRI, Spinal Tap, Rnlase( 37 kDa 2-5A binding polypeptide ), ISAC, cognitive functioning tests, muscle biopsy. Gratefully, Marty Z. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2000 Report Share Posted February 7, 2000 For Medical: ISAC, PCR for {Mycoplasma, Rickettsia, neo-rickettsia} ,LUAT (Lyme) -- all the ones that has known cures with positive diagnosis... For Disability: COMPREHESIVE Cognitive functioning tests, O2 consumption (i.e. http://www.folkarts.com/idef/cheney_o2.htm), but more importantly, an experience good lawyer (since brain-fog is the most harmful for your case) Ken Lassesen 2 @ 2 ft PWC, 2 @ 4ft PWC 2 ft PWC: http://www.folkarts.com/idef/ 4 ft PWC: http://corgi.folkarts.com/ Fax: (520) 832-6836 ICQ #: 2122097 (Netmeeting too) Re: Tests From: " Marty Zavala " <martyz@...> Ok, another hypothetical question: Knowing what you know now, which tests do you wish you would have had EARLY in the disease to document baseline and the progression of the disease for medical and/or disability purposes? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2000 Report Share Posted November 5, 2000 To date I have had none but the most basic blood test. But now I have received a package from a dr in Gordon (Sydney) with information for my GP and suggested tests. I sat down to read it all, and feel really overwhelmed. My dr will probably agree to getting some of the tests done, but I don't want to start out too ambitious - cost, energy required, etc. I want to start out with the most logical for me. My history: - began with glandular fever in 1965-66. Relapses every few years - of extreme fatigue / headaches (treated as depression). Feb to April this year - build up of stress led to poor sleep, flu type virus (April), fatigue, headaches, glands, nausea, sensitivity to light and noise, new alergy to my cats (I've bred burmese for years), developing muscle weakness and intollerance to exercise, increasing GI problems, weight gain, joint and muscle pains, mental confusion, chest pains, elevated resting heart rate etc (leading up to my coronary emergency triggered by anti-migraine treatment). Headaches are now gone, heart seems OK, I can handle my cats again, GI problems are improving with psyllium husks (but not solved), I can walk 1/2 mile most days, but not much else. Even if I sleep reasonably well, I am at my worst in the mornings. If I overdo anything (including socializing) I start coughing, which develops into a retching asthmatic type cough if I don't opt out immediately. When I feel really bad I crave sweets, but usually feel even worse afterwards. One thing I realize is really atypical, is I have a good tolerance to wine with our evening meal. I am taking whey protein daily - probably not as good as immunocal etc, but its a start. I am taking Temaze (temazepam) when I really can't sleep. But feel it's not good for me very often. Which of the following tests would you think would be the most important and the best place for me to start investigations. (I don't know what most of them are) [Firstly] FBC, ESR, Electrolytes, Urea, Calcium / reatinine BSL / liver Function tests T.S.H. Urinalysis for blood, protein and sugar [Then] Antinuclear Antibody Anti-gladen Antibody (AGA) Anti-endonyosial Antibody Reticulum Antibodies EBV, CMV, Toxoplasmosis titres Lyme Disease ) Burmah Forest Virus ) Titres Ross River Virus ) HIV, Hepatitis B & C studies Polymerase Chain Reaction Test (PCR) PCR for Mycoplasma, Chlamydia and Rickettsia DNA Screen in blood and Giardia Lamblia DNA in faeces [Also] Live Blood Assay and Clot Retraction Tests 24 hour Holter monitor Tilt table testing Study of blood, faeces and urine for Protein Metabolism, Free Fatty Acid and Fat Metabolism and Bowel Flora studies Nuclear Medicine gastric emptying time studies and bowel transit time DHEA Levels Temperature chart (This one I can do on my own!) There is no mention of ISAC panels. I'm not sure whether blood PH levels are included in the above ( B and Ken recommended these after my coronary emergency). It's taken me a while to get moving on any of this - just too tired to plan appointments, and I needed time to get over the shock to my system, and all the excitement of the air ambulance and angiogram etc etc. Anyway - Thanks in advance to any of you who can help me sort out this overload of information! Kerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Nevermind, I found it in one of my books. ---------- > From: <dlneff@...> > < > > Subject: Tests > Date: Wednesday, February 28, 2001 10:16 PM > > Does anyone know of a website that has a list of the different kinds of > tests they do on our kids. (IQ, speech, OT, etc.) I thought it would be on > the WRights' site but I can't find it. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2001 Report Share Posted July 16, 2001 Hi, Best of luck to your Dad. I had some ideas I wanted to share. Try the website at www.DoctorsNutrition and call them for a free consultation about how great success has been had with COLOSTRUM in building immune function and overcoming some cancers. (even animals have overcome cancers with this) It is the lactation milk from the cow the first 48 hrs. after giving birth. It gives the baby calf it's immune function booster! It is sold in Lactose Neutralized bottles, too. Drs. Janine and Jim Fox, Doctor's Nutrition, are located at 200 Pass Road, Gulfport, MS 39507 (228) 863 - 0885. I believe they have an 800 number, too. Ask them and call them anytime. They are two retired (young) chiropractors who quit chiropractic to do nutritional therapy work only. NICE folks! I am a massage therapist and I send my clients to them, as well as see them just about every week, myself! They have helped me immensely! I take Colostrum for fibromyalgia and if I run out, I get some sort of infection, due to my low immune function! It works! And, I get Olive Leaf Extract (Olivir) from them, too, for immunce function. Also, my mother had a brain tumor and I gave her ESSIAC tea, or the FLOR-ESSENCE version is great, with additional herbs. She overcame her tumor within the first six weeks of radiation, and I want to give the credit to the tea. Read about it and it's founder, Caisse (Essiac is Caisse spelled backwards) in books about ESSIAC TEA, etc. You need to have your dad take the tea for six weeks, at least, and it can be used for prevention, in the case of you and other family members, as well. (They do not carry ESSIAC at Doctor's Nutrition, but most privately-owned health food stores have it, usually. I don't know if GNC carries it or not.) Also, have you read about PYGEUM for prostate cancer and prevention? They sell a combination product that has Pygeum in it, at Doctor's Nutrition by mail order. My prayers are with your dad and you and your family. Take care of yourselves. I was a caregiver for three years until my mother had another stroke and brain tumor and the feeding tube that was installed led her to her demise and she was in a nursing home the last three years. Being a caregiver takes it's toll on you. Try weekly massage and aromatherapy for yourself, and to relieve your Dad's stress -- maybe massage his neck and shoulders or work on his feet! Massage increases your immune function, too! Sincerely, Debbie Berry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2001 Report Share Posted July 17, 2001 Hi Ted, There is a simple blood test for ALL cancers! It is called the AMAS test or Anti-Malignin Antibody Screen. It is an FDA approved test. It was invented by Dr. Bogoch,MD,PhD (MD from Toronto, PhD from Harvard. It has been very good detecting prostate cancer. It can detect cancer up to 19 months before it is otherwise clinically detectable. Contact Oncolab,Inc 36 The Fenway Boston,MA 02215 tel. 800-9CA-TEST( 800-922-8378) or 617-536-0850 in Boston References: National Cancer Institute Monograph, 46:133-137,1977 Lancet 1:987,1979;2:141-142,1981;337:977,1991 Journal of Medicine 13:49-69,1982 Cancer Detection & Prevention, 18 Number 5/6,551,1985;11:Number 1/2,85,1987; 12:313-320,1988;17(1):180,1993 Biopsy might spread it. Start Flax & CC immediately, its good if you have cabcer or not-builds essential immunity. good luck, Arnold Gore Consumers Health Freedom Coalition Tests > Hi: > I joined this group nearly two years ago just for personal interest. > Now, unfortiunately, I need help. My dad, now 80, had prostate cancer > about 15 years ago which was treated with radiation and his PSA is > now 9. A few weeks ago he had a pain in his right side and an x-ray > showed a spot and a bone scan showed > something on one of his ribs. His doctor wants to do a biopsy. > Here are my questions: > 1) Will the biopsy help spread the cancer? > 2) What blood tests can be used to determine if cancer is > present > and what type it is. He is a non-smoker, so my feeling is that the > cancer is prostate that has migrated to the lungs. > 3) What test/s are used to determine the strength of the immune > system? > 4) I have read on this list that most, if not all, cancer > patients are deficient in omega-3 fatty acids. What test is used to > determine this deficiency? > Oddly enough, I posted about the use of guar gum and modified > citrus pectin to prevent metastis last week, so he will be starting > on > one of those, moonbeam's protocol, and a soy/flax product from > Natural > Care Products in FL that is having good results. > Thanks for your help, and I will keep the group informed of his > progress. I have learned so much from this group and this helps > reduce > the panic that sets in. > Ted > > > Get HUGE info at http://www.cures for cancer.ws, and post your own links there. Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by visiting http://www.bobhurt.com/subunsub.mv > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 check our files section one is posted Janelle Heusinger, RD.,LD. Grinnell Regional Medical Center (641)236-2488 Jheusinger@... -----Original Message-----From: Elina Schwartz [mailto:elina_schwartz@...] Sent: Saturday, October 16, 2004 9:54 PM Subject: tests Hi everyone, could anyone direct me to the appropriate source or any advice? I am trying to create a "pretest" after nutrition information has been given to patient regarding Gastric Bypass diet prior to surgery. I would like to administer a test to see what area(s) still need to be addressed. Elina Schwartz, RD Center for Bariatric Surgery Middletown, Ct Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 > Colleen, > > Has found any information on his knee? Will therapy work or will he need surgery? Hey Jeanine! It's not his ACL, whatever that is. He's waiting for his dr to review the report from his MRI to let him know what's up. He's in a lot of pain when he plays He-Man and doesn't take his pain meds though!!! Thanks for asking! Colleen Handcrafted & Decorative Soap http://www.countrymeadowcreations.com Kat's Coffees & More Consultant #0892 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 They are probably wanting to check out the kidneys because scoliosis can be associated with kidney problems. I don't think it necessarily has anything to do with a connective tissue disorder. Shriners did an ultrasound of Ian's kidneys to make sure they were both there and functioning properly. Noelle (12-2-01) Ian (8-15-04) Tests I had a doctor recommend that Evan have a urine test to make sure that his bladder function, etc is normal. Is this b/c of the Connective Tissue Disorders? What are the normal tests done to rule it all out? Just wondering, I had asked once a while back and felt at ease with my decision NOT to have him tested, until the doc suggested it, not based on anything more that she said that in her research 33% of kids with scoli have the probs that would show up in the urine test. Thanks everyone-you all are my first resource and I appreciate all the input/ideas. and Evan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 hi jenny, lucas has never had a urine test to check for kidney/bladder function although i do know of kids who have congenital scoliosis, then a lot of times other problems can arise in other organs during development. VATER/VACTERL -- i'm sure that carmell or gail can elaborate on that. since evan has infantile/idiopathic scoliosis, i'm not sure why your doc would want this test unless they are testing for ehlers-danlos/kyphoscoliosis type which can be detected by a urine test (although i was told by our geneticists that there are a lot of false negatives -- i don't know why she says this). anyway, i hope someone else has a better response than me! 33% of kids with > scoli have the probs that would show up in the urine > test. what does this mean????? i've never run across this? deshea ---- Original message ---- >Date: Wed, 12 Jul 2006 11:42:34 -0000 >From: " basketsnboyds " <basketsnboyds@...> >Subject: Tests >infantile scoliosis treatment > > I had a doctor recommend that Evan have a urine test > to make sure that > his bladder function, etc is normal. > Is this b/c of the Connective Tissue Disorders? > What are the normal tests done to rule it all out? > Just wondering, I had asked once a while back and > felt at ease with my > decision NOT to have him tested, until the doc > suggested it, not based > on anything more that she said that in her research > 33% of kids with > scoli have the probs that would show up in the urine > test. > Thanks everyone-you all are my first resource and I > appreciate all the > input/ideas. > and Evan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 Hey Deshea- I'm with you, WHAT does IT mean?! I hadn't heard of that either, so put a call in this AM and told the nurse that in all the research I've done I hadn't seen any stats like that and since Evan's isn't congenital, why was she recommending that? I'll let you know what I find out. I thought I had a pretty good feel for Evan's scoli and that his was just idiopathic, but have read so many times that scoli is an outward sign that something else could be wrong, esp in the structural type of scoli.(like abnormalities in the brain, spinal cord, GI tract, vertebral column,cardiovascular system, renal system, etc)-but I assumed since he had a good MRI, that we didn't have to worry anymore?! Thanks Deshea. " Deshea L. " <deshea@...> wrote: hi jenny, lucas has never had a urine test to check for kidney/bladder function although i do know of kids who have congenital scoliosis, then a lot of times other problems can arise in other organs during development. VATER/VACTERL -- i'm sure that carmell or gail can elaborate on that. since evan has infantile/idiopathic scoliosis, i'm not sure why your doc would want this test unless they are testing for ehlers-danlos/kyphoscoliosis type which can be detected by a urine test (although i was told by our geneticists that there are a lot of false negatives -- i don't know why she says this). anyway, i hope someone else has a better response than me! 33% of kids with > scoli have the probs that would show up in the urine > test. what does this mean????? i've never run across this? deshea ---- Original message ---- >Date: Wed, 12 Jul 2006 11:42:34 -0000 >From: " basketsnboyds " <basketsnboyds@...> >Subject: Tests >infantile scoliosis treatment > > I had a doctor recommend that Evan have a urine test > to make sure that > his bladder function, etc is normal. > Is this b/c of the Connective Tissue Disorders? > What are the normal tests done to rule it all out? > Just wondering, I had asked once a while back and > felt at ease with my > decision NOT to have him tested, until the doc > suggested it, not based > on anything more that she said that in her research > 33% of kids with > scoli have the probs that would show up in the urine > test. > Thanks everyone-you all are my first resource and I > appreciate all the > input/ideas. > and Evan > > --------------------------------- Want to be your own boss? Learn how on Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 I have no clue that the dr was talking about 33% of kids with scoli have something show up in the urine. however, since the kidneys and spine form around the same time in utero, it has been my understanding they will check kidney structure and function in the scoli kids. lexi had a renal ultrasound at the same time of her mri right after diagnosis. Tests I had a doctor recommend that Evan have a urine test to make sure that his bladder function, etc is normal. Is this b/c of the Connective Tissue Disorders? What are the normal tests done to rule it all out? Just wondering, I had asked once a while back and felt at ease with my decision NOT to have him tested, until the doc suggested it, not based on anything more that she said that in her research 33% of kids with scoli have the probs that would show up in the urine test. Thanks everyone-you all are my first resource and I appreciate all the input/ideas. and Evan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 Hi I was also told by our first ortho (one who was of the wait and watch persuassion) that a renal ultrasound is kind of standard procedure for kids with scoliosis as, if I remember correctly, the spinal column and liver develop at the same time inutero. Owen also had a urodynamic test done to check bladder function since he was suspected of having a tethered spinal cord (which he did) For this procedure they basically fill the bladder through a catheter and using x-ray and other equipment watch to see how the bladder empties. Obviously inserting the catheter doesn't feel good, but Owen did fine after that until his bladder was full. His urethra wasn't bigger than the catheter so he basically couldn't pee until they took it out- very uncomfortable. The test didnt really show us anything, but acts as a baseline of sorts to see if his bladder function gets worse (his was affected by the tethered cord, but we are hoping that we released it before the damage was permanent). good luck to you and Evan allison --- Claflin <noellesmommy@...> wrote: > They are probably wanting to check out the kidneys > because scoliosis can be associated with kidney > problems. I don't think it necessarily has anything > to do with a connective tissue disorder. Shriners > did an ultrasound of Ian's kidneys to make sure they > were both there and functioning properly. > > > Noelle (12-2-01) > Ian (8-15-04) > Tests > > > I had a doctor recommend that Evan have a urine > test to make sure that > his bladder function, etc is normal. > Is this b/c of the Connective Tissue Disorders? > What are the normal tests done to rule it all out? > > Just wondering, I had asked once a while back and > felt at ease with my > decision NOT to have him tested, until the doc > suggested it, not based > on anything more that she said that in her > research 33% of kids with > scoli have the probs that would show up in the > urine test. > Thanks everyone-you all are my first resource and > I appreciate all the > input/ideas. > and Evan > > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 , who has Congenital Scoliosis, was born with only one kidney. We discovered that she may have only one during one of my Ultrasounds. It was confirmed the day after she was born when she was given an ultrasound. Hasn't been an issue as far as urinating, her kidney works just fine. <basketsnboyds@...> wrote: Hey Deshea- I'm with you, WHAT does IT mean?! I hadn't heard of that either, so put a call in this AM and told the nurse that in all the research I've done I hadn't seen any stats like that and since Evan's isn't congenital, why was she recommending that? I'll let you know what I find out. I thought I had a pretty good feel for Evan's scoli and that his was just idiopathic, but have read so many times that scoli is an outward sign that something else could be wrong, esp in the structural type of scoli.(like abnormalities in the brain, spinal cord, GI tract, vertebral column,cardiovascular system, renal system, etc)-but I assumed since he had a good MRI, that we didn't have to worry anymore?! Thanks Deshea. " Deshea L. " wrote: hi jenny, lucas has never had a urine test to check for kidney/bladder function although i do know of kids who have congenital scoliosis, then a lot of times other problems can arise in other organs during development. VATER/VACTERL -- i'm sure that carmell or gail can elaborate on that. since evan has infantile/idiopathic scoliosis, i'm not sure why your doc would want this test unless they are testing for ehlers-danlos/kyphoscoliosis type which can be detected by a urine test (although i was told by our geneticists that there are a lot of false negatives -- i don't know why she says this). anyway, i hope someone else has a better response than me! 33% of kids with > scoli have the probs that would show up in the urine > test. what does this mean????? i've never run across this? deshea ---- Original message ---- >Date: Wed, 12 Jul 2006 11:42:34 -0000 >From: " basketsnboyds " >Subject: Tests >infantile scoliosis treatment > > I had a doctor recommend that Evan have a urine test > to make sure that > his bladder function, etc is normal. > Is this b/c of the Connective Tissue Disorders? > What are the normal tests done to rule it all out? > Just wondering, I had asked once a while back and > felt at ease with my > decision NOT to have him tested, until the doc > suggested it, not based > on anything more that she said that in her research > 33% of kids with > scoli have the probs that would show up in the urine > test. > Thanks everyone-you all are my first resource and I > appreciate all the > input/ideas. > and Evan > > --------------------------------- Want to be your own boss? Learn how on Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 > Lymphocyte Enumeration panel (T & B cell) > Natural T-cell Killer enumeration In blood test lab terms " enumeration " generally means using special techniques for counting the number of specific cell types in a volume of blood. What your doctor is looking for is precise counts of the various types of immune cells in the blood to help him identify where there are low counts (as many immmune deficient patients have) or high counts (as in leukemia patients) of cells in their various stages of development. It works like this: special protiens called " monoclonal antibodies " (MCAs hereforeward) are mixed with a volume of blood and bind to surface protiens known to exist on only one type of cell. The MCA absorbs specific colors of light, allowing a special cell-sorting machine to separate and count very specific types of cells. This is very useful when you consider that red blood cells outnumber white blood cells 10-to-1, and certain white blood cells make up only 1-4% of a normal volume of whote blood cells. So the enumeration panels your doctor asked for will give him very acurate information on the number of T " helper, " T " killer, " B " memory " lymphocytes and " natural killer " lymphocytes. This is useful in diagnosing several primary immune disorders as well as other problems like AIDS and some types of leukemia. > Lymphocyte stimulation panel Specific lymphocytes are supposed to do very specific things once they are " activated " by antigens present on target bacteria and viruses. These tests check to see if they're doing their job right. CHecking for a " titer " to a specific immunization does the same kind of thing, testing for one specific response instead of many; when someone says their " titer " is low it means that the lymphocytes aren't doing their job. Useful for diagnosing a range of immune disorders, from XLA to CVID to AIDS. > HIV Test (freaked me out but I know for elimination purposes) You know what this is. > Nuetrophil Oxidative Burst Test Neutrophils are the body's first line of defense against internal pathogens. THey kill bacteria by swallowing and encapsulating invading bacteria, then releasing oxidizing chemicals like hydrogen peroxide into the chamber enclosing the bacteria to kill it. This test establishes whether or not the neutrophils are releasing enough hydrogen peroxide to kill the bacteria they have swallowed. Useful in diagnosing Chronic Granulamatous Disorder (CGD). -- > > I need some input on the tests that were run on today. He sees > a new docotor in Aug and he wanted these tests run: > > Lymphocyte Enumeration panel (T & B cell) > Natural T-cell Killer enumeration > Lymphocyte stimulation panel > HIV Test (freaked me out but I know for elimination purposes) > Nuetrophil Oxidative Burst Test > > They took 9 vials of blood today, I felt so bad for him.. They had to > stick both arms because the first one started to clot. > > Any input would be helpful. > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 Thanks, ! Would you, or anyone, happen to know how infections affect WBCs in our kids? My daughter has a mild infection and her WBC and neutrophil counts are out of range low. Has anyone seen their kiddo's already low numbers dip further due to viruses? bacteria? mom to CVIDer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 , if you go to www.shwachmandiamondamerica.org <http://www.shwachmandiamondamerica.org/> and click on " community " and then on the neutropenia forum, there you will find a list of things that can lower WBC/neutrophils. We've been on vacation and then had a slew of appointments for the boys, so I am just getting back to the list. Hope everyone is doing well. Peace Be With You, ~Pattie Curran~ Piedmont Triad, NC " No arsenal, or no weapon in the arsenals of the world, is so formidable as the will and moral courage of free men and women. " ~ Reagan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 I don't know enough details to venture a guess about your daughter, but I can give some general principles on how neutrophils work. First, neutrophils are the most common of all the WBCs. They are the " first responders " in immune response, and work by engulfing and digesting bacteria. They're very active cells with short lifetimes, lifetimes that are even shorter (like a few minutes) when they're actively fighting an infection, so the body makes a lot of them. When the body is fighting an infection it increases (or is supposed to increase) the rate it produces the neutrophils so it can replace the rapidly depleting stock. Why your daughter isn't doing this is something I just can't answer. --P > > Thanks, ! > > Would you, or anyone, happen to know how infections affect WBCs in our kids? > > My daughter has a mild infection and her WBC and neutrophil counts are out of range low. Has anyone seen their kiddo's already low numbers dip further due to viruses? bacteria? > > > mom to CVIDer > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2006 Report Share Posted December 3, 2006 Kerri, Thank you, and did your report use the term "hemangioma"? I'm not so much scared anymore (I've been on good Holistic Supplements and was and am feeling ever so much better) but I am still rather angry at the GI.. Sheena Kerri Landress <kerrilandress@...> wrote: Sheena, I also had a ct-scan that showed a hemangioma in the liver. My dr. said they are common... i'ts not cancer. I pray that everything goes okay with you. I totally understand about being scared... I was very freaked out, too. Kerri <marvindamartian05 > wrote: Wow! That is the best advice I have heard/read. Sheena, if you want meto go with you to the doc's office and be by your side, or be youradvocate, I will..I can be very pushy.-- In Hepatitis C , Jackie on<redjaxjm@...> wrote:>> Sheena honey,,, WHO said it appeared to be a cancer? Hepatoma justmeans a tumor or mass in the hepa or liver... Lots of heppers get whatis called hemangioma's which are kind of like a tumor but is made ofblood vessels and is most definately NOT CANCER.. If my memory servesme well, you havent had hep c for very long,, am I right about that? Most liver cancers come when one is end stage liver disease and hasfull cirrhosis and I dont remember you telling us you have cirrhosis,,is that right?> I know you are scared, I'd be scared too,, but remember there aremany tumors that are NOT cancer and this could be one of those. Ihave a cousin who had a non malignant liver tumor and does not evenhave hep c.. they resected her liver and cut it out and she is fine!> My first inclination is that is a hemangioma... > I would, as Janet said, get pushy,, I'd GO TO HIS OFFICE andREFUSE TO LEAVE UNTIL you see the doc with a copy of this ultrasoundin your hand... HE IS YOUR DOC and HE is guilty of 'abandonment' whichis the WORST crime a doc can be found guilty of.. IF HE doesnt wish totake care of you as his patient, HE MUST refer you to another doc ofequal or greater training as he has OR he is guilty of "ABANDONMENT"..a very very serious crime on his record... As I said, I WOULD take mycopy of that and I'd be in HIS OFFICE the moment his office opened andI would NOT LEAVE until I SAW HIM and spoke to him about theseresults! And then I'd write a letter to the AMA !> Let us know what you find out honey,, and in the meantime,,remember that we are here for you and you are in our prayers... > hugs> jax> > Sheena <mom4possums2002@...> wrote:> I appreciate your below post, . > I hope everyone is doing as well as can be.> I've been caught up this week in a dilemma.> Seems my Cat Scan showed a (small) mass> in my liver that "appears to be hepatoma"..> cancer of the liver.> My GI has never bothered to call me to tell me,> nor has he returned my phone calls.> I have also been unable to make an appointment> with him. I picked up my report myself and> took it in to see my Primary Doc this week.> Even he had no luck with pushing for an> appointment with the GI, I believe that office> has written me off entirely. > Having an HMO, my Primary Doc has done all that> he can, it's the GI doc that MUST shedule a > liver biopsy to confirm findings.> There is one other GI in the medical group,> but I would have to wait at least 8 weeks> to see him, and start all over at square one..> I will give them until Wednesday, that will > be 2 weeks that they've had the report in> their office, then I go to shove to get > it done.. I hate to rock the boat with the> only GI I have to work with, but it's either > rock it, or sink.. How sad the things we have> to go through..> I don't know what I'd do without you all.> Thank you again..and nope, I'm not on treatment yet,> just thankfully good Supplements and my Faith in> a God that loves us all, or I suspect> I'd be in even deeper doo..> > Sheena> > > > > <marvindamartian05@...> wrote:> -I certainly sympathize with your point of view, and agree that we> should all be positive and focus on what is important. However, a> member of this group was very much interested in discussing the legal> remedies that may be available to him, and perhaps he needs to> exercise his legal rights in order to obtain the resources for> treatment. Our member may be experiencing stress from dealing with> trying to figure out how to not only pay his doctor bills, but just> have enough money to live on if he is disabled. Since stress is never> a positive thing for us to deal with, anything that we can do to> alleviate stress, either by providing information, suggestions about> how to get through tx, or just "be there" is helpful to members.> > Some of us can't use this forum yet to talk about our experiences with> tx because if insurance or other issues preventing us from paying for> tx! I myself would LOVE to talking about how my tx is going, but due> to insurance issues, I won't be able to start till the spring. I am> luckier than many, who don't have any insurance and have no hope of> getting any.> > This group is for people suffering from hep c and their families and> friends, NOT just for people on tx!> > -- In Hepatitis C , Denisa Dodd> <denisa_dodd@> wrote:> >> > I just had to put my 2cents in. I am not meaning to be rude or out> of line. But for real folks, I really think that the focus should be> on treating the HCV. If you spend all your time trying to figure out> how you got it, or who gave it to you I think its a waste of time and> energy. Stop playing the name game and get on with it, finding out how> you got it sure ain't gonna make it go away. The exception is the> prison worker thing... That is a little freaky. But how on earth can> we really know for sure how we all got here... The doc's can't even> give you an idea other than speculation. More power to you all, but> personally I had to put the hows and whys away and focus on tx. I mean> no disrespect, just one heppers opinon.> > good luck to all> > d> > > > <marvindamartian05@> wrote:> > Thanks, but not an attorney...just a paralegal that's been> at it a > > long time...I am actually a compliance officer for a mortgage bank, > > so my main practice is real estate and banking law. I have seen lots > > of litigation though. Lots of people think it is easy to just sue > > others and make "money for nothing" and it ain't the truth! In the > > case of Hep C, AIDs or other diseases that people "catch" from > > others, I think that oftentimes people manifest the anger stage of > > their diagnosis by wanting to get revenge on the person who infected > > them. > > > > In Bruce's case, it sounds like he may actually HAVE a viable case, > > if it can be proved that his employer KNEW that there was a danger > > and they failed to protect him. All healthcare professionals know > > there is an inherent danger of contracting diseases in the course of > > performing their work duties, and thus they are trained in proper > > protocol and given the tools and devices to protect themselves. I > > don't know what the protocol is at prisons.> > > > There is a guy in Sheena and my support group that contracted hep c > > in prison, and it seems to be rampant there. I would think that by > > now there would be protocols in place for correctional workers, but > > maybe not back when Bruce was exposed.> > > > > > > > > I am quit certain I got HCV from my ex-husband. My new > > > > husband does > > > > > not want me to tell my ex about the HCV because he is worried > > > that > > > > I > > > > > could be sued by him? That he could make me pay for his medical > > > > bills. > > > > > I have never heard of anything like this. My ex is a real jerk, > > > > > though, and if he could get any money from me, believe me he > > > would > > > > > try. At the same time, I feel obligated to tell him... or > > should > > > I > > > > > even care? I guess I would want to be told... My current > > husband > > > is > > > > > very paranoid about me saying anything, though.> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Tim Parsons > > > > > > > > > > knoxville,tn 37931 > > > > > > > > > > 865-588-2465 x107 work> > > > > > > > > > > > > > > www.knoxville1.com> > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > > Everyone is raving about the all-new beta.> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > Everyone is raving about the all-new beta.> > > >> > > > > > > > > > > > > > > > > > > > > Tim Parsons > > > > > > knoxville,tn 37931 > > > > > > 865-588-2465 x107 work> > > > > > > > > www.knoxville1.com> > > > > > > > > > > > ---------------------------------> > > Want to start your own business? Learn how on Small Business.> > >> > > > > > > > > > > > > > ---------------------------------> > Want to start your own business? Learn how on Small Business.> >> > > > > > ---------------------------------> Check out the all-new beta - Fire up a more powerfulemail and get things done faster. > > > > > Jackie> Everyone is raving about the all-new beta. Check out the all-new beta - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Sheena, I don't know why some doctors have to scare the crap out of people! I'm glad you're feeling better. They did use the term "hepatoma" but it is not dangerous... Many people have small growths in their liver that will never hurt you... sometimes they are hemagiomas, which I think they said mine was. I am by no means a doctor, so forgive me if this info is not accurate. I don't have a copy of my CT-scan anymore, I gave it to my GI doctor. But I remember how scared I was when I saw the notation on it about the hepatoma, but my GI dr. said that it was so small it was nothing to be worried about. Anyways, my thoughts and prayers are with you. KerriSheena <mom4possums2002@...> wrote: Kerri, Thank you, and did your report use the term "hemangioma"? I'm not so much scared anymore (I've been on good Holistic Supplements and was and am feeling ever so much better) but I am still rather angry at the GI.. Sheena Kerri Landress <kerrilandress > wrote: Sheena, I also had a ct-scan that showed a hemangioma in the liver. My dr. said they are common... i'ts not cancer. I pray that everything goes okay with you. I totally understand about being scared... I was very freaked out, too. Kerri <marvindamartian05 > wrote: Wow! That is the best advice I have heard/read. Sheena, if you want meto go with you to the doc's office and be by your side, or be youradvocate, I will..I can be very pushy.-- In Hepatitis C , Jackie on<redjaxjm@...> wrote:>> Sheena honey,,, WHO said it appeared to be a cancer? Hepatoma justmeans a tumor or mass in the hepa or liver... Lots of heppers get whatis called hemangioma's which are kind of like a tumor but is made ofblood vessels and is most definately NOT CANCER.. If my memory servesme well, you havent had hep c for very long,, am I right about that? Most liver cancers come when one is end stage liver disease and hasfull cirrhosis and I dont remember you telling us you have cirrhosis,,is that right?> I know you are scared, I'd be scared too,, but remember there aremany tumors that are NOT cancer and this could be one of those. Ihave a cousin who had a non malignant liver tumor and does not evenhave hep c.. they resected her liver and cut it out and she is fine!> My first inclination is that is a hemangioma... > I would, as Janet said, get pushy,, I'd GO TO HIS OFFICE andREFUSE TO LEAVE UNTIL you see the doc with a copy of this ultrasoundin your hand... HE IS YOUR DOC and HE is guilty of 'abandonment' whichis the WORST crime a doc can be found guilty of.. IF HE doesnt wish totake care of you as his patient, HE MUST refer you to another doc ofequal or greater training as he has OR he is guilty of "ABANDONMENT"..a very very serious crime on his record... As I said, I WOULD take mycopy of that and I'd be in HIS OFFICE the moment his office opened andI would NOT LEAVE until I SAW HIM and spoke to him about theseresults! And then I'd write a letter to the AMA !> Let us know what you find out honey,, and in the meantime,,remember that we are here for you and you are in our prayers... > hugs> jax> > Sheena <mom4possums2002@...> wrote:> I appreciate your below post, . > I hope everyone is doing as well as can be.> I've been caught up this week in a dilemma.> Seems my Cat Scan showed a (small) mass> in my liver that "appears to be hepatoma"..> cancer of the liver.> My GI has never bothered to call me to tell me,> nor has he returned my phone calls.> I have also been unable to make an appointment> with him. I picked up my report myself and> took it in to see my Primary Doc this week.> Even he had no luck with pushing for an> appointment with the GI, I believe that office> has written me off entirely. > Having an HMO, my Primary Doc has done all that> he can, it's the GI doc that MUST shedule a > liver biopsy to confirm findings.> There is one other GI in the medical group,> but I would have to wait at least 8 weeks> to see him, and start all over at square one..> I will give them until Wednesday, that will > be 2 weeks that they've had the report in> their office, then I go to shove to get > it done.. I hate to rock the boat with the> only GI I have to work with, but it's either > rock it, or sink.. How sad the things we have> to go through..> I don't know what I'd do without you all.> Thank you again..and nope, I'm not on treatment yet,> just thankfully good Supplements and my Faith in> a God that loves us all, or I suspect> I'd be in even deeper doo..> > Sheena> > > > > <marvindamartian05@...> wrote:> -I certainly sympathize with your point of view, and agree that we> should all be positive and focus on what is important. However, a> member of this group was very much interested in discussing the legal> remedies that may be available to him, and perhaps he needs to> exercise his legal rights in order to obtain the resources for> treatment. Our member may be experiencing stress from dealing with> trying to figure out how to not only pay his doctor bills, but just> have enough money to live on if he is disabled. Since stress is never> a positive thing for us to deal with, anything that we can do to> alleviate stress, either by providing information, suggestions about> how to get through tx, or just "be there" is helpful to members.> > Some of us can't use this forum yet to talk about our experiences with> tx because if insurance or other issues preventing us from paying for> tx! I myself would LOVE to talking about how my tx is going, but due> to insurance issues, I won't be able to start till the spring. I am> luckier than many, who don't have any insurance and have no hope of> getting any.> > This group is for people suffering from hep c and their families and> friends, NOT just for people on tx!> > -- In Hepatitis C , Denisa Dodd> <denisa_dodd@> wrote:> >> > I just had to put my 2cents in. I am not meaning to be rude or out> of line. But for real folks, I really think that the focus should be> on treating the HCV. If you spend all your time trying to figure out> how you got it, or who gave it to you I think its a waste of time and> energy. Stop playing the name game and get on with it, finding out how> you got it sure ain't gonna make it go away. The exception is the> prison worker thing... That is a little freaky. But how on earth can> we really know for sure how we all got here... The doc's can't even> give you an idea other than speculation. More power to you all, but> personally I had to put the hows and whys away and focus on tx. I mean> no disrespect, just one heppers opinon.> > good luck to all> > d> > > > <marvindamartian05@> wrote:> > Thanks, but not an attorney...just a paralegal that's been> at it a > > long time...I am actually a compliance officer for a mortgage bank, > > so my main practice is real estate and banking law. I have seen lots > > of litigation though. Lots of people think it is easy to just sue > > others and make "money for nothing" and it ain't the truth! In the > > case of Hep C, AIDs or other diseases that people "catch" from > > others, I think that oftentimes people manifest the anger stage of > > their diagnosis by wanting to get revenge on the person who infected > > them. > > > > In Bruce's case, it sounds like he may actually HAVE a viable case, > > if it can be proved that his employer KNEW that there was a danger > > and they failed to protect him. All healthcare professionals know > > there is an inherent danger of contracting diseases in the course of > > performing their work duties, and thus they are trained in proper > > protocol and given the tools and devices to protect themselves. I > > don't know what the protocol is at prisons.> > > > There is a guy in Sheena and my support group that contracted hep c > > in prison, and it seems to be rampant there. I would think that by > > now there would be protocols in place for correctional workers, but > > maybe not back when Bruce was exposed.> > > > > > > > > I am quit certain I got HCV from my ex-husband. My new > > > > husband does > > > > > not want me to tell my ex about the HCV because he is worried > > > that > > > > I > > > > > could be sued by him? That he could make me pay for his medical > > > > bills. > > > > > I have never heard of anything like this. My ex is a real jerk, > > > > > though, and if he could get any money from me, believe me he > > > would > > > > > try. At the same time, I feel obligated to tell him... or > > should > > > I > > > > > even care? I guess I would want to be told... My current > > husband > > > is > > > > > very paranoid about me saying anything, though.> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Tim Parsons > > > > > > > > > > knoxville,tn 37931 > > > > > > > > > > 865-588-2465 x107 work> > > > > > > > > > > > > > > www.knoxville1.com> > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > > Everyone is raving about the all-new beta.> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > Everyone is raving about the all-new beta.> > > >> > > > > > > > > > > > > > > > > > > > > Tim Parsons > > > > > > knoxville,tn 37931 > > > > > > 865-588-2465 x107 work> > > > > > > > > www.knoxville1.com> > > > > > > > > > > > ---------------------------------> > > Want to start your own business? Learn how on Small Business.> > >> > > > > > > > > > > > > > ---------------------------------> > Want to start your own business? Learn how on Small Business.> >> > > > > > ---------------------------------> Check out the all-new beta - Fire up a more powerfulemail and get things done faster. > > > > > Jackie> Everyone is raving about the all-new beta. Check out the all-new beta - Fire up a more powerful email and get things done faster. Access over 1 million songs - Music Unlimited. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 ps.. and MOST HCC sufferer's have had hep for decades and decades and are in end stage liver disease,,, Kerri Landress <kerrilandress@...> wrote: Sheena, I don't know why some doctors have to scare the crap out of people! I'm glad you're feeling better. They did use the term "hepatoma" but it is not dangerous... Many people have small growths in their liver that will never hurt you... sometimes they are hemagiomas, which I think they said mine was. I am by no means a doctor, so forgive me if this info is not accurate. I don't have a copy of my CT-scan anymore, I gave it to my GI doctor. But I remember how scared I was when I saw the notation on it about the hepatoma, but my GI dr. said that it was so small it was nothing to be worried about. Anyways, my thoughts and prayers are with you. KerriSheena <mom4possums2002 > wrote: Kerri, Thank you, and did your report use the term "hemangioma"? I'm not so much scared anymore (I've been on good Holistic Supplements and was and am feeling ever so much better) but I am still rather angry at the GI.. Sheena Kerri Landress <kerrilandress > wrote: Sheena, I also had a ct-scan that showed a hemangioma in the liver. My dr. said they are common... i'ts not cancer. I pray that everything goes okay with you. I totally understand about being scared... I was very freaked out, too. Kerri <marvindamartian05 > wrote: Wow! That is the best advice I have heard/read. Sheena, if you want meto go with you to the doc's office and be by your side, or be youradvocate, I will..I can be very pushy.-- In Hepatitis C , Jackie on<redjaxjm@...> wrote:>> Sheena honey,,, WHO said it appeared to be a cancer? Hepatoma justmeans a tumor or mass in the hepa or liver... Lots of heppers get whatis called hemangioma's which are kind of like a tumor but is made ofblood vessels and is most definately NOT CANCER.. If my memory servesme well, you havent had hep c for very long,, am I right about that? Most liver cancers come when one is end stage liver disease and hasfull cirrhosis and I dont remember you telling us you have cirrhosis,,is that right?> I know you are scared, I'd be scared too,, but remember there aremany tumors that are NOT cancer and this could be one of those. Ihave a cousin who had a non malignant liver tumor and does not evenhave hep c.. they resected her liver and cut it out and she is fine!> My first inclination is that is a hemangioma... > I would, as Janet said, get pushy,, I'd GO TO HIS OFFICE andREFUSE TO LEAVE UNTIL you see the doc with a copy of this ultrasoundin your hand... HE IS YOUR DOC and HE is guilty of 'abandonment' whichis the WORST crime a doc can be found guilty of.. IF HE doesnt wish totake care of you as his patient, HE MUST refer you to another doc ofequal or greater training as he has OR he is guilty of "ABANDONMENT"..a very very serious crime on his record... As I said, I WOULD take mycopy of that and I'd be in HIS OFFICE the moment his office opened andI would NOT LEAVE until I SAW HIM and spoke to him about theseresults! And then I'd write a letter to the AMA !> Let us know what you find out honey,, and in the meantime,,remember that we are here for you and you are in our prayers... > hugs> jax> > Sheena <mom4possums2002@...> wrote:> I appreciate your below post, . > I hope everyone is doing as well as can be.> I've been caught up this week in a dilemma.> Seems my Cat Scan showed a (small) mass> in my liver that "appears to be hepatoma"..> cancer of the liver.> My GI has never bothered to call me to tell me,> nor has he returned my phone calls.> I have also been unable to make an appointment> with him. I picked up my report myself and> took it in to see my Primary Doc this week.> Even he had no luck with pushing for an> appointment with the GI, I believe that office> has written me off entirely. > Having an HMO, my Primary Doc has done all that> he can, it's the GI doc that MUST shedule a > liver biopsy to confirm findings.> There is one other GI in the medical group,> but I would have to wait at least 8 weeks> to see him, and start all over at square one..> I will give them until Wednesday, that will > be 2 weeks that they've had the report in> their office, then I go to shove to get > it done.. I hate to rock the boat with the> only GI I have to work with, but it's either > rock it, or sink.. How sad the things we have> to go through..> I don't know what I'd do without you all.> Thank you again..and nope, I'm not on treatment yet,> just thankfully good Supplements and my Faith in> a God that loves us all, or I suspect> I'd be in even deeper doo..> > Sheena> > > > > <marvindamartian05@...> wrote:> -I certainly sympathize with your point of view, and agree that we> should all be positive and focus on what is important. However, a> member of this group was very much interested in discussing the legal> remedies that may be available to him, and perhaps he needs to> exercise his legal rights in order to obtain the resources for> treatment. Our member may be experiencing stress from dealing with> trying to figure out how to not only pay his doctor bills, but just> have enough money to live on if he is disabled. Since stress is never> a positive thing for us to deal with, anything that we can do to> alleviate stress, either by providing information, suggestions about> how to get through tx, or just "be there" is helpful to members.> > Some of us can't use this forum yet to talk about our experiences with> tx because if insurance or other issues preventing us from paying for> tx! I myself would LOVE to talking about how my tx is going, but due> to insurance issues, I won't be able to start till the spring. I am> luckier than many, who don't have any insurance and have no hope of> getting any.> > This group is for people suffering from hep c and their families and> friends, NOT just for people on tx!> > -- In Hepatitis C , Denisa Dodd> <denisa_dodd@> wrote:> >> > I just had to put my 2cents in. I am not meaning to be rude or out> of line. But for real folks, I really think that the focus should be> on treating the HCV. If you spend all your time trying to figure out> how you got it, or who gave it to you I think its a waste of time and> energy. Stop playing the name game and get on with it, finding out how> you got it sure ain't gonna make it go away. The exception is the> prison worker thing... That is a little freaky. But how on earth can> we really know for sure how we all got here... The doc's can't even> give you an idea other than speculation. More power to you all, but> personally I had to put the hows and whys away and focus on tx. I mean> no disrespect, just one heppers opinon.> > good luck to all> > d> > > > <marvindamartian05@> wrote:> > Thanks, but not an attorney...just a paralegal that's been> at it a > > long time...I am actually a compliance officer for a mortgage bank, > > so my main practice is real estate and banking law. I have seen lots > > of litigation though. Lots of people think it is easy to just sue > > others and make "money for nothing" and it ain't the truth! In the > > case of Hep C, AIDs or other diseases that people "catch" from > > others, I think that oftentimes people manifest the anger stage of > > their diagnosis by wanting to get revenge on the person who infected > > them. > > > > In Bruce's case, it sounds like he may actually HAVE a viable case, > > if it can be proved that his employer KNEW that there was a danger > > and they failed to protect him. All healthcare professionals know > > there is an inherent danger of contracting diseases in the course of > > performing their work duties, and thus they are trained in proper > > protocol and given the tools and devices to protect themselves. I > > don't know what the protocol is at prisons.> > > > There is a guy in Sheena and my support group that contracted hep c > > in prison, and it seems to be rampant there. I would think that by > > now there would be protocols in place for correctional workers, but > > maybe not back when Bruce was exposed.> > > > > > > > > I am quit certain I got HCV from my ex-husband. My new > > > > husband does > > > > > not want me to tell my ex about the HCV because he is worried > > > that > > > > I > > > > > could be sued by him? That he could make me pay for his medical > > > > bills. > > > > > I have never heard of anything like this. My ex is a real jerk, > > > > > though, and if he could get any money from me, believe me he > > > would > > > > > try. At the same time, I feel obligated to tell him... or > > should > > > I > > > > > even care? I guess I would want to be told... My current > > husband > > > is > > > > > very paranoid about me saying anything, though.> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Tim Parsons > > > > > > > > > > knoxville,tn 37931 > > > > > > > > > > 865-588-2465 x107 work> > > > > > > > > > > > > > > www.knoxville1.com> > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > > Everyone is raving about the all-new beta.> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > Everyone is raving about the all-new beta.> > > >> > > > > > > > > > > > > > > > > > > > > Tim Parsons > > > > > > knoxville,tn 37931 > > > > > > 865-588-2465 x107 work> > > > > > > > > www.knoxville1.com> > > > > > > > > > > > ---------------------------------> > > Want to start your own business? Learn how on Small Business.> > >> > > > > > > > > > > > > > ---------------------------------> > Want to start your own business? Learn how on Small Business.> >> > > > > > ---------------------------------> Check out the all-new beta - Fire up a more powerfulemail and get things done faster. > > > > > Jackie> Everyone is raving about the all-new beta. Check out the all-new beta - Fire up a more powerful email and get things done faster. Access over 1 million songs - Music Unlimited. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Thanks Kerri,, this is why this 'support' family here is so important! thank you for your input on this,, Im sure that Sheena is really nervous about this and just knowing that others have had 'things' on their livers can hopefully relieve some of the worry and stress while waiting! jaxKerri Landress <kerrilandress@...> wrote: Sheena, I don't know why some doctors have to scare the crap out of people! I'm glad you're feeling better. They did use the term "hepatoma" but it is not dangerous... Many people have small growths in their liver that will never hurt you... sometimes they are hemagiomas, which I think they said mine was. I am by no means a doctor, so forgive me if this info is not accurate. I don't have a copy of my CT-scan anymore, I gave it to my GI doctor. But I remember how scared I was when I saw the notation on it about the hepatoma, but my GI dr. said that it was so small it was nothing to be worried about. Anyways, my thoughts and prayers are with you. KerriSheena <mom4possums2002 > wrote: Kerri, Thank you, and did your report use the term "hemangioma"? I'm not so much scared anymore (I've been on good Holistic Supplements and was and am feeling ever so much better) but I am still rather angry at the GI.. Sheena Kerri Landress <kerrilandress > wrote: Sheena, I also had a ct-scan that showed a hemangioma in the liver. My dr. said they are common... i'ts not cancer. I pray that everything goes okay with you. I totally understand about being scared... I was very freaked out, too. Kerri <marvindamartian05 > wrote: Wow! That is the best advice I have heard/read. Sheena, if you want meto go with you to the doc's office and be by your side, or be youradvocate, I will..I can be very pushy.-- In Hepatitis C , Jackie on<redjaxjm@...> wrote:>> Sheena honey,,, WHO said it appeared to be a cancer? Hepatoma justmeans a tumor or mass in the hepa or liver... Lots of heppers get whatis called hemangioma's which are kind of like a tumor but is made ofblood vessels and is most definately NOT CANCER.. If my memory servesme well, you havent had hep c for very long,, am I right about that? Most liver cancers come when one is end stage liver disease and hasfull cirrhosis and I dont remember you telling us you have cirrhosis,,is that right?> I know you are scared, I'd be scared too,, but remember there aremany tumors that are NOT cancer and this could be one of those. Ihave a cousin who had a non malignant liver tumor and does not evenhave hep c.. they resected her liver and cut it out and she is fine!> My first inclination is that is a hemangioma... > I would, as Janet said, get pushy,, I'd GO TO HIS OFFICE andREFUSE TO LEAVE UNTIL you see the doc with a copy of this ultrasoundin your hand... HE IS YOUR DOC and HE is guilty of 'abandonment' whichis the WORST crime a doc can be found guilty of.. IF HE doesnt wish totake care of you as his patient, HE MUST refer you to another doc ofequal or greater training as he has OR he is guilty of "ABANDONMENT"..a very very serious crime on his record... As I said, I WOULD take mycopy of that and I'd be in HIS OFFICE the moment his office opened andI would NOT LEAVE until I SAW HIM and spoke to him about theseresults! And then I'd write a letter to the AMA !> Let us know what you find out honey,, and in the meantime,,remember that we are here for you and you are in our prayers... > hugs> jax> > Sheena <mom4possums2002@...> wrote:> I appreciate your below post, . > I hope everyone is doing as well as can be.> I've been caught up this week in a dilemma.> Seems my Cat Scan showed a (small) mass> in my liver that "appears to be hepatoma"..> cancer of the liver.> My GI has never bothered to call me to tell me,> nor has he returned my phone calls.> I have also been unable to make an appointment> with him. I picked up my report myself and> took it in to see my Primary Doc this week.> Even he had no luck with pushing for an> appointment with the GI, I believe that office> has written me off entirely. > Having an HMO, my Primary Doc has done all that> he can, it's the GI doc that MUST shedule a > liver biopsy to confirm findings.> There is one other GI in the medical group,> but I would have to wait at least 8 weeks> to see him, and start all over at square one..> I will give them until Wednesday, that will > be 2 weeks that they've had the report in> their office, then I go to shove to get > it done.. I hate to rock the boat with the> only GI I have to work with, but it's either > rock it, or sink.. How sad the things we have> to go through..> I don't know what I'd do without you all.> Thank you again..and nope, I'm not on treatment yet,> just thankfully good Supplements and my Faith in> a God that loves us all, or I suspect> I'd be in even deeper doo..> > Sheena> > > > > <marvindamartian05@...> wrote:> -I certainly sympathize with your point of view, and agree that we> should all be positive and focus on what is important. However, a> member of this group was very much interested in discussing the legal> remedies that may be available to him, and perhaps he needs to> exercise his legal rights in order to obtain the resources for> treatment. Our member may be experiencing stress from dealing with> trying to figure out how to not only pay his doctor bills, but just> have enough money to live on if he is disabled. Since stress is never> a positive thing for us to deal with, anything that we can do to> alleviate stress, either by providing information, suggestions about> how to get through tx, or just "be there" is helpful to members.> > Some of us can't use this forum yet to talk about our experiences with> tx because if insurance or other issues preventing us from paying for> tx! I myself would LOVE to talking about how my tx is going, but due> to insurance issues, I won't be able to start till the spring. I am> luckier than many, who don't have any insurance and have no hope of> getting any.> > This group is for people suffering from hep c and their families and> friends, NOT just for people on tx!> > -- In Hepatitis C , Denisa Dodd> <denisa_dodd@> wrote:> >> > I just had to put my 2cents in. I am not meaning to be rude or out> of line. But for real folks, I really think that the focus should be> on treating the HCV. If you spend all your time trying to figure out> how you got it, or who gave it to you I think its a waste of time and> energy. Stop playing the name game and get on with it, finding out how> you got it sure ain't gonna make it go away. The exception is the> prison worker thing... That is a little freaky. But how on earth can> we really know for sure how we all got here... The doc's can't even> give you an idea other than speculation. More power to you all, but> personally I had to put the hows and whys away and focus on tx. I mean> no disrespect, just one heppers opinon.> > good luck to all> > d> > > > <marvindamartian05@> wrote:> > Thanks, but not an attorney...just a paralegal that's been> at it a > > long time...I am actually a compliance officer for a mortgage bank, > > so my main practice is real estate and banking law. I have seen lots > > of litigation though. Lots of people think it is easy to just sue > > others and make "money for nothing" and it ain't the truth! In the > > case of Hep C, AIDs or other diseases that people "catch" from > > others, I think that oftentimes people manifest the anger stage of > > their diagnosis by wanting to get revenge on the person who infected > > them. > > > > In Bruce's case, it sounds like he may actually HAVE a viable case, > > if it can be proved that his employer KNEW that there was a danger > > and they failed to protect him. All healthcare professionals know > > there is an inherent danger of contracting diseases in the course of > > performing their work duties, and thus they are trained in proper > > protocol and given the tools and devices to protect themselves. I > > don't know what the protocol is at prisons.> > > > There is a guy in Sheena and my support group that contracted hep c > > in prison, and it seems to be rampant there. I would think that by > > now there would be protocols in place for correctional workers, but > > maybe not back when Bruce was exposed.> > > > > > > > > I am quit certain I got HCV from my ex-husband. My new > > > > husband does > > > > > not want me to tell my ex about the HCV because he is worried > > > that > > > > I > > > > > could be sued by him? That he could make me pay for his medical > > > > bills. > > > > > I have never heard of anything like this. My ex is a real jerk, > > > > > though, and if he could get any money from me, believe me he > > > would > > > > > try. At the same time, I feel obligated to tell him... or > > should > > > I > > > > > even care? I guess I would want to be told... My current > > husband > > > is > > > > > very paranoid about me saying anything, though.> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Tim Parsons > > > > > > > > > > knoxville,tn 37931 > > > > > > > > > > 865-588-2465 x107 work> > > > > > > > > > > > > > > www.knoxville1.com> > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > > Everyone is raving about the all-new beta.> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > Everyone is raving about the all-new beta.> > > >> > > > > > > > > > > > > > > > > > > > > Tim Parsons > > > > > > knoxville,tn 37931 > > > > > > 865-588-2465 x107 work> > > > > > > > > www.knoxville1.com> > > > > > > > > > > > ---------------------------------> > > Want to start your own business? Learn how on Small Business.> > >> > > > > > > > > > > > > > ---------------------------------> > Want to start your own business? Learn how on Small Business.> >> > > > > > ---------------------------------> Check out the all-new beta - Fire up a more powerfulemail and get things done faster. > > > > > Jackie> Everyone is raving about the all-new beta. Check out the all-new beta - Fire up a more powerful email and get things done faster. Access over 1 million songs - Music Unlimited. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Sheena, I have a little nodule on my liver. It sits on the junction of two blood vessels and it was more a worry to the doc to test it than the threat of cancer was. I DID have it tested, I'd much rather know anything, good or bad instead of wondering. It's no problem, say the tests. I think it's better to know, face it and do what can be done rather than worry and worry. Having said that, I DID worry til the test came back. I just do a very good job of hiding it from myself. SharonJackie on <redjaxjm@...> wrote: Thanks Kerri,, this is why this 'support' family here is so important! thank you for your input on this,, Im sure that Sheena is really nervous about this and just knowing that others have had 'things' on their livers can hopefully relieve some of the worry and stress while waiting! jaxKerri Landress <kerrilandress@...> wrote: Sheena, I don't know why some doctors have to scare the crap out of people! I'm glad you're feeling better. They did use the term "hepatoma" but it is not dangerous... Many people have small growths in their liver that will never hurt you... sometimes they are hemagiomas, which I think they said mine was. I am by no means a doctor, so forgive me if this info is not accurate. I don't have a copy of my CT-scan anymore, I gave it to my GI doctor. But I remember how scared I was when I saw the notation on it about the hepatoma, but my GI dr. said that it was so small it was nothing to be worried about. Anyways, my thoughts and prayers are with you. KerriSheena <mom4possums2002 > wrote: Kerri, Thank you, and did your report use the term "hemangioma"? I'm not so much scared anymore (I've been on good Holistic Supplements and was and am feeling ever so much better) but I am still rather angry at the GI.. Sheena Kerri Landress <kerrilandress > wrote: Sheena, I also had a ct-scan that showed a hemangioma in the liver. My dr. said they are common... i'ts not cancer. I pray that everything goes okay with you. I totally understand about being scared... I was very freaked out, too. Kerri <marvindamartian05 > wrote: Wow! That is the best advice I have heard/read. Sheena, if you want meto go with you to the doc's office and be by your side, or be youradvocate, I will..I can be very pushy.-- In Hepatitis C , Jackie on<redjaxjm@...> wrote:>> Sheena honey,,, WHO said it appeared to be a cancer? Hepatoma justmeans a tumor or mass in the hepa or liver... Lots of heppers get whatis called hemangioma's which are kind of like a tumor but is made ofblood vessels and is most definately NOT CANCER.. If my memory servesme well, you havent had hep c for very long,, am I right about that? Most liver cancers come when one is end stage liver disease and hasfull cirrhosis and I dont remember you telling us you have cirrhosis,,is that right?> I know you are scared, I'd be scared too,, but remember there aremany tumors that are NOT cancer and this could be one of those. Ihave a cousin who had a non malignant liver tumor and does not evenhave hep c.. they resected her liver and cut it out and she is fine!> My first inclination is that is a hemangioma... > I would, as Janet said, get pushy,, I'd GO TO HIS OFFICE andREFUSE TO LEAVE UNTIL you see the doc with a copy of this ultrasoundin your hand... HE IS YOUR DOC and HE is guilty of 'abandonment' whichis the WORST crime a doc can be found guilty of.. IF HE doesnt wish totake care of you as his patient, HE MUST refer you to another doc ofequal or greater training as he has OR he is guilty of "ABANDONMENT"..a very very serious crime on his record... As I said, I WOULD take mycopy of that and I'd be in HIS OFFICE the moment his office opened andI would NOT LEAVE until I SAW HIM and spoke to him about theseresults! And then I'd write a letter to the AMA !> Let us know what you find out honey,, and in the meantime,,remember that we are here for you and you are in our prayers... > hugs> jax> > Sheena <mom4possums2002@...> wrote:> I appreciate your below post, . > I hope everyone is doing as well as can be.> I've been caught up this week in a dilemma.> Seems my Cat Scan showed a (small) mass> in my liver that "appears to be hepatoma"..> cancer of the liver.> My GI has never bothered to call me to tell me,> nor has he returned my phone calls.> I have also been unable to make an appointment> with him. I picked up my report myself and> took it in to see my Primary Doc this week.> Even he had no luck with pushing for an> appointment with the GI, I believe that office> has written me off entirely. > Having an HMO, my Primary Doc has done all that> he can, it's the GI doc that MUST shedule a > liver biopsy to confirm findings.> There is one other GI in the medical group,> but I would have to wait at least 8 weeks> to see him, and start all over at square one..> I will give them until Wednesday, that will > be 2 weeks that they've had the report in> their office, then I go to shove to get > it done.. I hate to rock the boat with the> only GI I have to work with, but it's either > rock it, or sink.. How sad the things we have> to go through..> I don't know what I'd do without you all.> Thank you again..and nope, I'm not on treatment yet,> just thankfully good Supplements and my Faith in> a God that loves us all, or I suspect> I'd be in even deeper doo..> > Sheena> > > > > <marvindamartian05@...> wrote:> -I certainly sympathize with your point of view, and agree that we> should all be positive and focus on what is important. However, a> member of this group was very much interested in discussing the legal> remedies that may be available to him, and perhaps he needs to> exercise his legal rights in order to obtain the resources for> treatment. Our member may be experiencing stress from dealing with> trying to figure out how to not only pay his doctor bills, but just> have enough money to live on if he is disabled. Since stress is never> a positive thing for us to deal with, anything that we can do to> alleviate stress, either by providing information, suggestions about> how to get through tx, or just "be there" is helpful to members.> > Some of us can't use this forum yet to talk about our experiences with> tx because if insurance or other issues preventing us from paying for> tx! I myself would LOVE to talking about how my tx is going, but due> to insurance issues, I won't be able to start till the spring. I am> luckier than many, who don't have any insurance and have no hope of> getting any.> > This group is for people suffering from hep c and their families and> friends, NOT just for people on tx!> > -- In Hepatitis C , Denisa Dodd> <denisa_dodd@> wrote:> >> > I just had to put my 2cents in. I am not meaning to be rude or out> of line. But for real folks, I really think that the focus should be> on treating the HCV. If you spend all your time trying to figure out> how you got it, or who gave it to you I think its a waste of time and> energy. Stop playing the name game and get on with it, finding out how> you got it sure ain't gonna make it go away. The exception is the> prison worker thing... That is a little freaky. But how on earth can> we really know for sure how we all got here... The doc's can't even> give you an idea other than speculation. More power to you all, but> personally I had to put the hows and whys away and focus on tx. I mean> no disrespect, just one heppers opinon.> > good luck to all> > d> > > > <marvindamartian05@> wrote:> > Thanks, but not an attorney...just a paralegal that's been> at it a > > long time...I am actually a compliance officer for a mortgage bank, > > so my main practice is real estate and banking law. I have seen lots > > of litigation though. Lots of people think it is easy to just sue > > others and make "money for nothing" and it ain't the truth! In the > > case of Hep C, AIDs or other diseases that people "catch" from > > others, I think that oftentimes people manifest the anger stage of > > their diagnosis by wanting to get revenge on the person who infected > > them. > > > > In Bruce's case, it sounds like he may actually HAVE a viable case, > > if it can be proved that his employer KNEW that there was a danger > > and they failed to protect him. All healthcare professionals know > > there is an inherent danger of contracting diseases in the course of > > performing their work duties, and thus they are trained in proper > > protocol and given the tools and devices to protect themselves. I > > don't know what the protocol is at prisons.> > > > There is a guy in Sheena and my support group that contracted hep c > > in prison, and it seems to be rampant there. I would think that by > > now there would be protocols in place for correctional workers, but > > maybe not back when Bruce was exposed.> > > > > > > > > I am quit certain I got HCV from my ex-husband. My new > > > > husband does > > > > > not want me to tell my ex about the HCV because he is worried > > > that > > > > I > > > > > could be sued by him? That he could make me pay for his medical > > > > bills. > > > > > I have never heard of anything like this. My ex is a real jerk, > > > > > though, and if he could get any money from me, believe me he > > > would > > > > > try. At the same time, I feel obligated to tell him... or > > should > > > I > > > > > even care? I guess I would want to be told... My current > > husband > > > is > > > > > very paranoid about me saying anything, though.> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Tim Parsons > > > > > > > > > > knoxville,tn 37931 > > > > > > > > > > 865-588-2465 x107 work> > > > > > > > > > > > > > > www.knoxville1.com> > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > > Everyone is raving about the all-new beta.> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > Everyone is raving about the all-new Mail beta.> > > >> > > > > > > > > > > > > > > > > > > > > Tim Parsons > > > > > > knoxville,tn 37931 > > > > > > 865-588-2465 x107 work> > > > > > > > > www.knoxville1.com> > > > > > > > > > > > ---------------------------------> > > Want to start your own business? Learn how on Small Business.> > >> > > > > > > > > > > > > > ---------------------------------> > Want to start your own business? Learn how on Small Business.> >> > > > > > ---------------------------------> Check out the all-new Mail beta - Fire up a more powerfulemail and get things done faster. > > > > > Jackie> Everyone is raving about the all-new beta. Check out the all-new beta - Fire up a more powerful email and get things done faster. Access over 1 million songs - Music Unlimited. Jackie Cheap Talk? Check out Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Hi Kerri, Thanks! I LOVE my Primary Doc, if that's the worst he ever does, I'll survive it! Whatever mine is, it's small and seems dormant, at least for now, but he still feels further tests are warranted. Too bad he can't order them.. Politics... Sheena Kerri Landress <kerrilandress@...> wrote: Sheena, I don't know why some doctors have to scare the crap out of people! I'm glad you're feeling better. They did use the term "hepatoma" but it is not dangerous... Many people have small growths in their liver that will never hurt you... sometimes they are hemagiomas, which I think they said mine was. I am by no means a doctor, so forgive me if this info is not accurate. I don't have a copy of my CT-scan anymore, I gave it to my GI doctor. But I remember how scared I was when I saw the notation on it about the hepatoma, but my GI dr. said that it was so small it was nothing to be worried about. Anyways, my thoughts and prayers are with you. KerriSheena <mom4possums2002 > wrote: Kerri, Thank you, and did your report use the term "hemangioma"? I'm not so much scared anymore (I've been on good Holistic Supplements and was and am feeling ever so much better) but I am still rather angry at the GI.. Sheena Kerri Landress <kerrilandress > wrote: Sheena, I also had a ct-scan that showed a hemangioma in the liver. My dr. said they are common... i'ts not cancer. I pray that everything goes okay with you. I totally understand about being scared... I was very freaked out, too. Kerri <marvindamartian05 > wrote: Wow! That is the best advice I have heard/read. Sheena, if you want meto go with you to the doc's office and be by your side, or be youradvocate, I will..I can be very pushy.-- In Hepatitis C , Jackie on<redjaxjm@...> wrote:>> Sheena honey,,, WHO said it appeared to be a cancer? Hepatoma justmeans a tumor or mass in the hepa or liver... Lots of heppers get whatis called hemangioma's which are kind of like a tumor but is made ofblood vessels and is most definately NOT CANCER.. If my memory servesme well, you havent had hep c for very long,, am I right about that? Most liver cancers come when one is end stage liver disease and hasfull cirrhosis and I dont remember you telling us you have cirrhosis,,is that right?> I know you are scared, I'd be scared too,, but remember there aremany tumors that are NOT cancer and this could be one of those. Ihave a cousin who had a non malignant liver tumor and does not evenhave hep c.. they resected her liver and cut it out and she is fine!> My first inclination is that is a hemangioma... > I would, as Janet said, get pushy,, I'd GO TO HIS OFFICE andREFUSE TO LEAVE UNTIL you see the doc with a copy of this ultrasoundin your hand... HE IS YOUR DOC and HE is guilty of 'abandonment' whichis the WORST crime a doc can be found guilty of.. IF HE doesnt wish totake care of you as his patient, HE MUST refer you to another doc ofequal or greater training as he has OR he is guilty of "ABANDONMENT"..a very very serious crime on his record... As I said, I WOULD take mycopy of that and I'd be in HIS OFFICE the moment his office opened andI would NOT LEAVE until I SAW HIM and spoke to him about theseresults! And then I'd write a letter to the AMA !> Let us know what you find out honey,, and in the meantime,,remember that we are here for you and you are in our prayers... > hugs> jax> > Sheena <mom4possums2002@...> wrote:> I appreciate your below post, . > I hope everyone is doing as well as can be.> I've been caught up this week in a dilemma.> Seems my Cat Scan showed a (small) mass> in my liver that "appears to be hepatoma"..> cancer of the liver.> My GI has never bothered to call me to tell me,> nor has he returned my phone calls.> I have also been unable to make an appointment> with him. I picked up my report myself and> took it in to see my Primary Doc this week.> Even he had no luck with pushing for an> appointment with the GI, I believe that office> has written me off entirely. > Having an HMO, my Primary Doc has done all that> he can, it's the GI doc that MUST shedule a > liver biopsy to confirm findings.> There is one other GI in the medical group,> but I would have to wait at least 8 weeks> to see him, and start all over at square one..> I will give them until Wednesday, that will > be 2 weeks that they've had the report in> their office, then I go to shove to get > it done.. I hate to rock the boat with the> only GI I have to work with, but it's either > rock it, or sink.. How sad the things we have> to go through..> I don't know what I'd do without you all.> Thank you again..and nope, I'm not on treatment yet,> just thankfully good Supplements and my Faith in> a God that loves us all, or I suspect> I'd be in even deeper doo..> > Sheena> > > > > <marvindamartian05@...> wrote:> -I certainly sympathize with your point of view, and agree that we> should all be positive and focus on what is important. However, a> member of this group was very much interested in discussing the legal> remedies that may be available to him, and perhaps he needs to> exercise his legal rights in order to obtain the resources for> treatment. Our member may be experiencing stress from dealing with> trying to figure out how to not only pay his doctor bills, but just> have enough money to live on if he is disabled. Since stress is never> a positive thing for us to deal with, anything that we can do to> alleviate stress, either by providing information, suggestions about> how to get through tx, or just "be there" is helpful to members.> > Some of us can't use this forum yet to talk about our experiences with> tx because if insurance or other issues preventing us from paying for> tx! I myself would LOVE to talking about how my tx is going, but due> to insurance issues, I won't be able to start till the spring. I am> luckier than many, who don't have any insurance and have no hope of> getting any.> > This group is for people suffering from hep c and their families and> friends, NOT just for people on tx!> > -- In Hepatitis C , Denisa Dodd> <denisa_dodd@> wrote:> >> > I just had to put my 2cents in. I am not meaning to be rude or out> of line. But for real folks, I really think that the focus should be> on treating the HCV. If you spend all your time trying to figure out> how you got it, or who gave it to you I think its a waste of time and> energy. Stop playing the name game and get on with it, finding out how> you got it sure ain't gonna make it go away. The exception is the> prison worker thing... That is a little freaky. But how on earth can> we really know for sure how we all got here... The doc's can't even> give you an idea other than speculation. More power to you all, but> personally I had to put the hows and whys away and focus on tx. I mean> no disrespect, just one heppers opinon.> > good luck to all> > d> > > > <marvindamartian05@> wrote:> > Thanks, but not an attorney...just a paralegal that's been> at it a > > long time...I am actually a compliance officer for a mortgage bank, > > so my main practice is real estate and banking law. I have seen lots > > of litigation though. Lots of people think it is easy to just sue > > others and make "money for nothing" and it ain't the truth! In the > > case of Hep C, AIDs or other diseases that people "catch" from > > others, I think that oftentimes people manifest the anger stage of > > their diagnosis by wanting to get revenge on the person who infected > > them. > > > > In Bruce's case, it sounds like he may actually HAVE a viable case, > > if it can be proved that his employer KNEW that there was a danger > > and they failed to protect him. All healthcare professionals know > > there is an inherent danger of contracting diseases in the course of > > performing their work duties, and thus they are trained in proper > > protocol and given the tools and devices to protect themselves. I > > don't know what the protocol is at prisons.> > > > There is a guy in Sheena and my support group that contracted hep c > > in prison, and it seems to be rampant there. I would think that by > > now there would be protocols in place for correctional workers, but > > maybe not back when Bruce was exposed.> > > > > > > > > I am quit certain I got HCV from my ex-husband. My new > > > > husband does > > > > > not want me to tell my ex about the HCV because he is worried > > > that > > > > I > > > > > could be sued by him? That he could make me pay for his medical > > > > bills. > > > > > I have never heard of anything like this. My ex is a real jerk, > > > > > though, and if he could get any money from me, believe me he > > > would > > > > > try. At the same time, I feel obligated to tell him... or > > should > > > I > > > > > even care? I guess I would want to be told... My current > > husband > > > is > > > > > very paranoid about me saying anything, though.> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Tim Parsons > > > > > > > > > > knoxville,tn 37931 > > > > > > > > > > 865-588-2465 x107 work> > > > > > > > > > > > > > > www.knoxville1.com> > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > > Everyone is raving about the all-new beta.> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > Everyone is raving about the all-new beta.> > > >> > > > > > > > > > > > > > > > > > > > > Tim Parsons > > > > > > knoxville,tn 37931 > > > > > > 865-588-2465 x107 work> > > > > > > > > www.knoxville1.com> > > > > > > > > > > > ---------------------------------> > > Want to start your own business? Learn how on Small Business.> > >> > > > > > > > > > > > > > ---------------------------------> > Want to start your own business? Learn how on Small Business.> >> > > > > > ---------------------------------> Check out the all-new beta - Fire up a more powerfulemail and get things done faster. > > > > > Jackie> Everyone is raving about the all-new beta. Check out the all-new beta - Fire up a more powerful email and get things done faster. Access over 1 million songs - Music Unlimited. Check out the all-new beta - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Hi Sharon, What kind of a test did you have to determine that it was just a "nodule"? I think testing is important, as is repeat testing from time to time to make sure nothing has changed.. Sheena Sharon Crosby <blubirdxoxo@...> wrote: Sheena, I have a little nodule on my liver. It sits on the junction of two blood vessels and it was more a worry to the doc to test it than the threat of cancer was. I DID have it tested, I'd much rather know anything, good or bad instead of wondering. It's no problem, say the tests. I think it's better to know, face it and do what can be done rather than worry and worry. Having said that, I DID worry til the test came back. I just do a very good job of hiding it from myself. SharonJackie on <redjaxjm > wrote: Thanks Kerri,, this is why this 'support' family here is so important! thank you for your input on this,, Im sure that Sheena is really nervous about this and just knowing that others have had 'things' on their livers can hopefully relieve some of the worry and stress while waiting! jaxKerri Landress <kerrilandress > wrote: Sheena, I don't know why some doctors have to scare the crap out of people! I'm glad you're feeling better. They did use the term "hepatoma" but it is not dangerous... Many people have small growths in their liver that will never hurt you... sometimes they are hemagiomas, which I think they said mine was. I am by no means a doctor, so forgive me if this info is not accurate. I don't have a copy of my CT-scan anymore, I gave it to my GI doctor. But I remember how scared I was when I saw the notation on it about the hepatoma, but my GI dr. said that it was so small it was nothing to be worried about. Anyways, my thoughts and prayers are with you. KerriSheena <mom4possums2002 > wrote: Kerri, Thank you, and did your report use the term "hemangioma"? I'm not so much scared anymore (I've been on good Holistic Supplements and was and am feeling ever so much better) but I am still rather angry at the GI.. Sheena Kerri Landress <kerrilandress > wrote: Sheena, I also had a ct-scan that showed a hemangioma in the liver. My dr. said they are common... i'ts not cancer. I pray that everything goes okay with you. I totally understand about being scared... I was very freaked out, too. Kerri <marvindamartian05 > wrote: Wow! That is the best advice I have heard/read. Sheena, if you want meto go with you to the doc's office and be by your side, or be youradvocate, I will..I can be very pushy.-- In Hepatitis C , Jackie on<redjaxjm@...> wrote:>> Sheena honey,,, WHO said it appeared to be a cancer? Hepatoma justmeans a tumor or mass in the hepa or liver... Lots of heppers get whatis called hemangioma's which are kind of like a tumor but is made ofblood vessels and is most definately NOT CANCER.. If my memory servesme well, you havent had hep c for very long,, am I right about that? Most liver cancers come when one is end stage liver disease and hasfull cirrhosis and I dont remember you telling us you have cirrhosis,,is that right?> I know you are scared, I'd be scared too,, but remember there aremany tumors that are NOT cancer and this could be one of those. Ihave a cousin who had a non malignant liver tumor and does not evenhave hep c.. they resected her liver and cut it out and she is fine!> My first inclination is that is a hemangioma... > I would, as Janet said, get pushy,, I'd GO TO HIS OFFICE andREFUSE TO LEAVE UNTIL you see the doc with a copy of this ultrasoundin your hand... HE IS YOUR DOC and HE is guilty of 'abandonment' whichis the WORST crime a doc can be found guilty of.. IF HE doesnt wish totake care of you as his patient, HE MUST refer you to another doc ofequal or greater training as he has OR he is guilty of "ABANDONMENT"..a very very serious crime on his record... As I said, I WOULD take mycopy of that and I'd be in HIS OFFICE the moment his office opened andI would NOT LEAVE until I SAW HIM and spoke to him about theseresults! And then I'd write a letter to the AMA !> Let us know what you find out honey,, and in the meantime,,remember that we are here for you and you are in our prayers... > hugs> jax> > Sheena <mom4possums2002@...> wrote:> I appreciate your below post, . > I hope everyone is doing as well as can be.> I've been caught up this week in a dilemma.> Seems my Cat Scan showed a (small) mass> in my liver that "appears to be hepatoma"..> cancer of the liver.> My GI has never bothered to call me to tell me,> nor has he returned my phone calls.> I have also been unable to make an appointment> with him. I picked up my report myself and> took it in to see my Primary Doc this week.> Even he had no luck with pushing for an> appointment with the GI, I believe that office> has written me off entirely. > Having an HMO, my Primary Doc has done all that> he can, it's the GI doc that MUST shedule a > liver biopsy to confirm findings.> There is one other GI in the medical group,> but I would have to wait at least 8 weeks> to see him, and start all over at square one..> I will give them until Wednesday, that will > be 2 weeks that they've had the report in> their office, then I go to shove to get > it done.. I hate to rock the boat with the> only GI I have to work with, but it's either > rock it, or sink.. How sad the things we have> to go through..> I don't know what I'd do without you all.> Thank you again..and nope, I'm not on treatment yet,> just thankfully good Supplements and my Faith in> a God that loves us all, or I suspect> I'd be in even deeper doo..> > Sheena> > > > > <marvindamartian05@...> wrote:> -I certainly sympathize with your point of view, and agree that we> should all be positive and focus on what is important. However, a> member of this group was very much interested in discussing the legal> remedies that may be available to him, and perhaps he needs to> exercise his legal rights in order to obtain the resources for> treatment. Our member may be experiencing stress from dealing with> trying to figure out how to not only pay his doctor bills, but just> have enough money to live on if he is disabled. Since stress is never> a positive thing for us to deal with, anything that we can do to> alleviate stress, either by providing information, suggestions about> how to get through tx, or just "be there" is helpful to members.> > Some of us can't use this forum yet to talk about our experiences with> tx because if insurance or other issues preventing us from paying for> tx! I myself would LOVE to talking about how my tx is going, but due> to insurance issues, I won't be able to start till the spring. I am> luckier than many, who don't have any insurance and have no hope of> getting any.> > This group is for people suffering from hep c and their families and> friends, NOT just for people on tx!> > -- In Hepatitis C , Denisa Dodd> <denisa_dodd@> wrote:> >> > I just had to put my 2cents in. I am not meaning to be rude or out> of line. But for real folks, I really think that the focus should be> on treating the HCV. If you spend all your time trying to figure out> how you got it, or who gave it to you I think its a waste of time and> energy. Stop playing the name game and get on with it, finding out how> you got it sure ain't gonna make it go away. The exception is the> prison worker thing... That is a little freaky. But how on earth can> we really know for sure how we all got here... The doc's can't even> give you an idea other than speculation. More power to you all, but> personally I had to put the hows and whys away and focus on tx. I mean> no disrespect, just one heppers opinon.> > good luck to all> > d> > > > <marvindamartian05@> wrote:> > Thanks, but not an attorney...just a paralegal that's been> at it a > > long time...I am actually a compliance officer for a mortgage bank, > > so my main practice is real estate and banking law. I have seen lots > > of litigation though. Lots of people think it is easy to just sue > > others and make "money for nothing" and it ain't the truth! In the > > case of Hep C, AIDs or other diseases that people "catch" from > > others, I think that oftentimes people manifest the anger stage of > > their diagnosis by wanting to get revenge on the person who infected > > them. > > > > In Bruce's case, it sounds like he may actually HAVE a viable case, > > if it can be proved that his employer KNEW that there was a danger > > and they failed to protect him. All healthcare professionals know > > there is an inherent danger of contracting diseases in the course of > > performing their work duties, and thus they are trained in proper > > protocol and given the tools and devices to protect themselves. I > > don't know what the protocol is at prisons.> > > > There is a guy in Sheena and my support group that contracted hep c > > in prison, and it seems to be rampant there. I would think that by > > now there would be protocols in place for correctional workers, but > > maybe not back when Bruce was exposed.> > > > > > > > > I am quit certain I got HCV from my ex-husband. My new > > > > husband does > > > > > not want me to tell my ex about the HCV because he is worried > > > that > > > > I > > > > > could be sued by him? That he could make me pay for his medical > > > > bills. > > > > > I have never heard of anything like this. My ex is a real jerk, > > > > > though, and if he could get any money from me, believe me he > > > would > > > > > try. At the same time, I feel obligated to tell him... or > > should > > > I > > > > > even care? I guess I would want to be told... My current > > husband > > > is > > > > > very paranoid about me saying anything, though.> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Tim Parsons > > > > > > > > > > knoxville,tn 37931 > > > > > > > > > > 865-588-2465 x107 work> > > > > > > > > > > > > > > www.knoxville1.com> > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > > Everyone is raving about the all-new beta.> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > Everyone is raving about the all-new beta.> > > >> > > > > > > > > > > > > > > > > > > > > Tim Parsons > > > > > > knoxville,tn 37931 > > > > > > 865-588-2465 x107 work> > > > > > > > > www.knoxville1.com> > > > > > > > > > > > ---------------------------------> > > Want to start your own business? Learn how on Small Business.> > >> > > > > > > > > > > > > > ---------------------------------> > Want to start your own business? Learn how on Small Business.> >> > > > > > ---------------------------------> Check out the all-new beta - Fire up a more powerfulemail and get things done faster. > > > > > Jackie> Everyone is raving about the all-new beta. Check out the all-new beta - Fire up a more powerful email and get things done faster. Access over 1 million songs - Music Unlimited. Jackie Cheap Talk? Check out Messenger's low PC-to-Phone call rates. Want to start your own business? Learn how on Small Business. Quote Link to comment Share on other sites More sharing options...
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