Guest guest Posted November 11, 2011 Report Share Posted November 11, 2011 Sorry for the typo error. It is vit C that I am taking 3 grams of and not selenium and Zinc. I bought Cytomel but did not want to start it until the blood tests were over. If I started now, would it interfere with my retest of thyroid next Friday. With grateful thanks. Irene > > I am taking 4 Adreno max per day Vit C about 3 grams selenium, zinc, B12 and omega 3 that's all I am taking now. > > Irene. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2011 Report Share Posted November 11, 2011 MODERATED TO REMOVE MOST OF PREVIOUS MESSAGE. Please delete these before clicking SEND leaving just a small part of what you are responding to. uv - Sheila __________________________________________________ These saliva results look pretty bad. You dont have any official adrenal problems do you ? Thyroid tests are lower than mid range, so again not good, but much better than the comparable adrenal results. Overall your daily cortisol production is 3.6 and should be a minimum (if i remember) of 11 or 12 per day. So your body is just not making enough cortisol. With these results i would get checked by the NHS. Maybe you have already and they have said all is ok. If that is the case then my guess is you are simply too low on thyroid hormones and it is these which help us generate cortisol. Trying to take T4 at bedtime may help improve things. If this is not successful you may want to look at using some T3. > > Hi all > > Have just received my results from Genova this morning Can any one help decipher please. > > Adrenal stress profile > > sample 1. 1.4 range 12-22 > sample 2. 2.1 range 5-9 > sample 3. 0.1 range 3.0 -7.0 > sample 4 .01 range 1.0 3.0 > > DHEA : Cortisol Ratio 2.84 H > I had an adrenal test done 2 years ago and this seems worse. > > No wonder I am sooo tired. > > Thyroid hormone 24 hour urine. > Triiodthyronine (T3) 740 pmol/24h Range 592 -1850 > > Thyroxine (T4) 880 pmol/24h Range 347 -1994 > > T3:T4 Ratio 08 ratio 0.50-2.00 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2011 Report Share Posted November 11, 2011 Hello . Many thanks for your reply. Yes I got quite a shock when I saw the Adrenal results this morning. The same test two years ago was not so poor. At that time Dr P suggested I took Adrenal support and then go on Cytomel. I felt great on the Cytomel and stupidly thought I was cured and stopped taking them. When the thyroid symptoms all came very slowly back I decided to do the tests that Dr P had originally recommended, which is where I am at the moment. I had blood tests taken at the surgery earlier this week for Thyroid and some minerals, and have had a recall for a repeat thyroid test which will be done at the end of next week. Receptionist said the thyroid result was borderline. I have made an appointment for Monday morning to get a copy of these results. I haven't had any cortisol or adrenal tests on the NHS. The endocrinologist at the hospital was a waste of time seemed to think it was my age, I cancelled the follow on appointment. Last month I ordered Cytomel from My mexican Drugstore and some also from United phamacies, I now have both but haven't taken any as yet as I wanted to see what my results were like. I am a bit confused now and not sure what to do. With grateful thanks Irene. >> Thyroid tests are lower than mid range, so again not good, but much better than the comparable adrenal results. > > Overall your daily cortisol production is 3.6 and should be a minimum (if i remember) of 11 or 12 per day. So your body is just not making enough cortisol. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2011 Report Share Posted November 11, 2011 If you were good on T3 i would get back on it. But have you not tried T4, or are you on any prescribed by the NHS ? If you have had all blood tests i would start on the T3 and see how you get on. Start on a nice low dose and see how you get on. I would say 3 doses per day work best, but some prefer 4. If you are starting out i would try perhaps just 2 doses per day. Prob use 1/2 tablet per dose to start with. If you dose early morning you can help stimulate cortisol production, so take the first dose well before waking up. This means setting the alarm for 5 or 6am. I take mine at 5am and find it works well here. Some take it at 4am. You can mess around with the times. If you havent tried T4, it is always worth giving this a go first as it does work for a lot of people. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2011 Report Share Posted November 12, 2011 As I said in a previous message, that still won't leave my Outbox, you need to ask your doctor to refer you to the hospital to get a Short Synacthen test Irene to see whether you are suffering with adrenal insufficiency i.e. 's Disease. These results are outside the very bottom of the reference range at all four times during the day. Luv - Sheila Hi all Have just received my results from Genova this morning Can any one help decipher please. Adrenal stress profile sample 1. 1.4 range 12-22 sample 2. 2.1 range 5-9 sample 3. 0.1 range 3.0 -7.0 sample 4 .01 range 1.0 3.0 DHEA : Cortisol Ratio 2.84 H I had an adrenal test done 2 years ago and this seems worse. No wonder I am sooo tired. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2011 Report Share Posted November 12, 2011 Hi Irene, I cannot believe you stopped taking your Cytomel when you found yourself to be so well again, believing you were 'cured'. The reason why people in the UK get free prescriptions for life is because hypothyroidism is a life long condition. This rarely cures itself and you have to be committed to taking thyroid hormone replacement daily for the rest of your life to keep your body functioning. Oh well, we sometimes have to learn the hard way ( When you go to your doctors next, be sure to get the results of all your tests together with the reference range and post the results here so that we can help with their interpretation. NEVER ALLOW A DOCTOR TO TELL YOU THAT YOUR RESULTS ARE 'NORMAL' OR 'BORDERLINE'. This is because most doctors have little to no idea how to interpret blood results. If they come back ANYWHERE within the normal reference interval, they tell you that your results are 'normal' and you don't have a problem. We need to know whether they are at the bottom, the middle or the top of the range, as this really does matter. You need to speak to your GP and ask to be referred for a short synacthen test to ensure that you are not slipping into 's Disease (adrenal insufficiency) - but can you be referred to another endocrinologists. We have two good endocrinologists at the hospital I attend, but the others are absolutely useless and should be thrown into the dustbin with the lid stuck firmly down so they couldn't ever get out again to cause harm to their patients - so what one endocrinologist does, doesn't mean to say the others follow. As said previously, wait and see your thyroid function and then it will be easier to decide what you should do. Meanwhile, have you any Nutri Adrenal Extra that you can start taking to start to boost your adrenals before starting thyroid hormone replacement? Luv - Sheila Yes I got quite a shock when I saw the Adrenal results this morning. The same test two years ago was not so poor. At that time Dr P suggested I took Adrenal support and then go on Cytomel. I felt great on the Cytomel and stupidly thought I was cured and stopped taking them. When the thyroid symptoms all came very slowly back I decided to do the tests that Dr P had originally recommended, which is where I am at the moment. I had blood tests taken at the surgery earlier this week for Thyroid and some minerals, and have had a recall for a repeat thyroid test which will be done at the end of next week. Receptionist said the thyroid result was borderline. I have made an appointment for Monday morning to get a copy of these results. _ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2011 Report Share Posted November 12, 2011 Yes, taking any form of T3 would most definitely interfere with your thyroid function tests. Wait another week Irene and start when the test is over. Not long now to wait to start getting your life back once again. Luv - Sheila F Sorry for the typo error. It is vit C that I am taking 3 grams of and not selenium and Zinc. I bought Cytomel but did not want to start it until the blood tests were over. If I started now, would it interfere with my retest of thyroid next Friday. With grateful thanks. Irene ,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2011 Report Share Posted November 12, 2011 No , have not tried T4 and not on any prescription medication. I only took the T3 when Doc P recommended it almost 2 years ago. My Gp kept saying that I was not hypothyroid even when I had a TSH of 9.93 and T4 of 21.7.hence the reason I contacted DR P. which was almost 2 years ago. At the moment I don't feel great and wonder if I should start a low dose of T3. If I do this would it make much differenc to my T4 and Tsh tests next week. with grateful thanks Irene > > If you were good on T3 i would get back on it. But have you not tried T4, or are you on any prescribed by the NHS ? > > If you have had all blood tests i would start on the T3 and see how you get on. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2011 Report Share Posted November 12, 2011 Thank you Sheila I know now I made a bad mistake. I will do as you suggest and I do have an unopened tub of nutri adrenal extra which i will start today. Should I also start taking The T3 or maybe have to wait until results on Monday from GP. With grateful thanks Irene > Hi Irene, I cannot believe you stopped taking your Cytomel when you found > yourself to be so well again, believing you were 'cured'. The reason why > people in the UK get free prescriptions for life is because > YOUR RESULTS ARE 'NORMAL' OR 'BORDERLINE'. This is because most doctors have > before > starting thyroid hormone replacement? > > Luv - Sheila > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2011 Report Share Posted November 12, 2011 Thankyou so much Sheila Irene > > Yes, taking any form of T3 would most definitely interfere with your thyroid > function tests. Wait another week Irene and start when the test is over. Not > long now to wait to start getting your life back once again. > > Luv - Sheila > > > > F > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2011 Report Share Posted November 12, 2011 Yes it will. T3 will certainly affect your TSH result. Could well made it fall completley, even if it is approx 9. With a high Ft4 like yours, but a high TSH as well this indicates you are not converting the T4 very well into T3. So it sounds like you need the T3. Vits and minerals do help a bit, so get taking some brazil nuts as these contain selenium and are cheaper than the tablets. plus tastier. (selenium helps in T3-T3 conversion) > At the moment I don't feel great and wonder if I should start a low dose of T3. If I do this would it make much differenc to my T4 and Tsh tests next week. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2011 Report Share Posted November 12, 2011 ….and then there are idiots who tell us that we have no right to self diagnose and self treat when we have some of our doctors who simply know nothing about the greater thyroid function! Have you noticed that such people never come back to tell us what we SHOULD do if our doctors are failing us in this way. Curl up and die??? Luv - Sheila My Gp kept saying that I was not hypothyroid even when I had a TSH of 9.93 and T4 of 21.7.hence the reason I contacted DR P. which was almost 2 years ago. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2011 Report Share Posted November 12, 2011 Sorry I dod not see your post this morning , Yes, i do take a lot of brazil nuts i have to grind them first as not able to crunch so many. with grateful thanks Irene > >you are not converting the T4 very well into T3. So it sounds like you need the T3. > > Vits and minerals do help a bit, so get taking some brazil nuts as these contain selenium and are cheaper than the tablets. plus tastier. (selenium helps in T3-T3 conversion) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2011 Report Share Posted November 12, 2011 I was told to soak them for 24 hours to make them easier to digest? But i don't know if that affects selenium levels.... Pity we can't just eat a box of those chocolate brazil nuts instead! chris > > Sorry I dod not see your post this morning , Yes, i do take a lot of brazil nuts i have to grind them first as not able to crunch so many. > with grateful thanks > Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2011 Report Share Posted November 24, 2011 Hello Sheila I know you are so busy with the terrible things written in the newspapers just now, but if you get time can you look at my thyroid results please, I know they are not good. TSH 18 ( range 0.3 - 6 (not a mistook) This was a repeat test, I phoned this afternoon for it. T4 18.5 pmol/l ( range 9 - 24 Genova Adrenal tests and Urine thyroid hormones reported 10/11/11 T3 740 pmol/24H (range 592 - 1850 thyroxine (T4) 660 pmol/24H (range 347 -1994 T3 : T4 ratio 0.8 Salivary Cortisol and DHEA -Age Group > 60 sample 1) 1.4 nmol/L (range 12 - 22 sample2) 2.1 ''''''''''''''' 5.0 9.0 sample 3) 0.1 '''''''''''''''' 3.0 - 7.0 sample4) 0.1 '''''''''''''''''' 1.0 - 3.0 DHEA :Cortisol Ratio 2.84 H B12 - 737 ng/L (range 211 - 900 ferritin 103.9 ug/L (range 12 - 300 serum folate 7.1 ug/L (range 2.4 - 20.0 Haemoglobin 12.3 g/dl (range 12.2 - 16.5 white Cell Count 5.6 10'9L (range 3.9 - 11.1 Platelets 272 10'9L ( range 150 - 400 RBC 4.73 10'12/L (range 3.88 - 4.99 Haematocrit .36 % ( range .36 - 4.8 MCV low 77 fl (range 82 - 98 MCH low 26.0 pg (range 27.3 - 32.6 MCHC 33.9 g/dL (range 31.6 - 34.9 neutrophills low 1.7 10'9/L (range 1.8 - 7.4 Lymphocytes 3.1 10'9/L (range 1.1 - 5.0 Eosynophils 0.2 10'9/L range 0.1 - 0.7 Basophils 0.0 10'9/L ( range 0.0 0.1 The above is from the haemotology paper I did not get all the tests requested in my letter to the doctor. .. Creatinine. low 48 upmol/L (range 50 -125 AST 38 U/L (range 10.o - 40 Calcium low 2.19 mmol/L ( range 2.2 - 2.6 Adjusted Calcium 2.23 mmol/L (range 2.1 - 2..5 Phosphate 1.25 mmol/L (range 0.8 - 1.3 Total Protien 68 g/l (range 63 - 83 There were results on the biochemistry paper but I have only included those that were a bit low. I have been over and over the above to make sure all is correct. I am taking 2 NAE per day ,selenium , pantothenic acid, sublingual b12 with mult b, Too much vit C makes me go to the toilet too often but manage about 3 grams C per Day. Doc gave me Fersaday 100mg last week but it is full of chemicals and i'm taking 1 or 2 spatone per day instead. I started my T3 after my last blood test last week, I take a half tablet twice per day (20 ug) that is the only hormone i am taking. I don't know how I will get the strength to face a doctor tomorrow but I am going to ask for NDT. About two years ago a young doctor gave me thyroxine and it mad my body very toxic I was on this for a short time, then they just told me to stop taking it, hence my reason for asking for NDT. The surgery know that I don't want to see my usual Doc and want to see someone who is more understanding and sympathetic. fingers crossed. I've been hours trying to write this, I hope I hope there is no mistooks.. With many grateful thanks irene > > Thank you Sheila > I know now I made a bad mistake. I will do as you suggest and I do have an unopened tub of nutri adrenal extra which i will start today. Should I also start taking The T3 or maybe have to wait until results on Monday from GP. > With grateful thanks > Irene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2011 Report Share Posted November 25, 2011 Hi Irene - well, I finally got around to reading your message. TSH 18 ( range 0.3 - 6 (not a mistook) This was a repeat test, I phoned this afternoon for it. What have they recommended. This is VERT high as it should be in the region of 1.0 to feel 'normal'. free T4 is high in the range, which is fine if you are taking thyroid hormone replacement, but if you are not, the level should be just above the middle of the reference range. Why didn't they do a serum free T3? Genova Adrenal tests and Urine thyroid hormones reported 10/11/11 T3 740 pmol/24H (range 592 - 1850 thyroxine (T4) 660 pmol/24H (range 347 -1994 Your 24 hour urine thyroid test shows a completely different result to the blood levels, but this is the more correct test as it shows the amount of T4 and T3 that has been used in the cells over the past 24 hours, which is not a lot. T3 is very low and so is T4. This test shows you need thyroid hormone replacement to build up your levels. Salivary Cortisol and DHEA -Age Group > 60 sample 1) 1.4 nmol/L (range 12 - 22 sample2) 2.1 ''''''''''''''' 5.0 9.0 sample 3) 0.1 '''''''''''''''' 3.0 - 7.0 sample4) 0.1 '''''''''''''''''' 1.0 - 3.0 You need to ask your GP to refer you to the endocrine department at your local hospital for a short synacthen test to see whether you could be suffering with borderline 's Disease, or even 's disease. Don't hang about here Irene, these results are very very low. serum folate 7.1 ug/L (range 2.4 - 20.0 This could be higher and would be helped by taking 5mgs Folic Acid daily available from your health food store. Haemoglobin 12.3 g/dl (range 12.2 - 16.5 This too is low, MCV low 77 fl (range 82 - 98 MCH low 26.0 pg (range 27.3 - 32.6 Talk to your GP about these two - unfortunately perhaps, I mainly concentrate on thyroid and adrenal results. Creatinine. low 48 upmol/L (range 50 -125 - see above I started my T3 after my last blood test last week, I take a half tablet twice per day (20 ug) that is the only hormone i am taking. You may need to increase this by another half tablet (10mcg) daily in another week, and keep increasing by another 10mcgs every 2 to 3 weeks until you find the dose of T3 your body is happiest with. I don't know how I will get the strength to face a doctor tomorrow but I am going to ask for NDT. About two years ago a young doctor gave me thyroxine and it mad my body very toxic I was on this for a short time, then they just told me to stop taking it, hence my reason for asking for NDT. Copy out the attached letters from the Medicine and Healthcare products Regulatory Agency and show them to your GP when you ask for Natural Desiccated Thyroid, just in case they try to tell you that the NHS cannot prescribe them because they are unlicensed. The MHRA state categorically that NHS doctors can prescribe specific brands of NDT, i.e. Erfa 'Thyroid, Armour Thyroid, Nature Throid and Westhroid but because they remain unlicensed, a doctor must take full responsibility for this. The surgery know that I don't want to see my usual Doc and want to see someone who is more understanding and sympathetic. fingers crossed. I've been hours trying to write this, I hope I hope there is no mistooks.. Do ensure Irene that you get a referral immediately for a Short Synacthen test to see whether you are suffering with 's Disease, your salivary results looked pretty bad to me. Luv - Sheila With many grateful thanks irene --- 1 of 1 File(s) MHRA confirmation re Natur1.doc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2011 Report Share Posted November 25, 2011 Hello Sheila Thank you so very much for reading my letter and for good advice. The endo at the hospital said that a T3 test was not necessary, and more or less that it was my age and I should not read stuff on the internet. - that was 2 years ago. I would not take that now. I am very very reluctant to go there for a Synthacin test. Could it be done in the surgery? or privately. I coudn't get an appointment today but see a Doc on Monday. With grateful thanks Sheila. Irene. >. Why > didn't they do a serum free T3? >> >> Do ensure Irene that you get a referral immediately for a Short Synacthen > . >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2011 Report Share Posted November 26, 2011 Let us know what is suggested after your discussion with your GP Irene. You cannot go on like this and must find out whether or not you are suffering with 's Disease or you are borderline 's. Your Genova results are far too low to be ignored. Have you read anything about 's to see whether you are suffering with any of the symptoms or signs that might help you. Check out http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001416/ and/or http://www.addisons.org.uk/info/addisons/page1.html ....and by the way, whatever your endocrinologists says, a free T3 IS necessary. How else can you or anybody tell whether you are suffering because there is insufficient T3 in your body unless it is tested. free T3 levels should be in the upper third of the reference range, and if it is in the lower third, you need to be given some form of T3 hormone. Your thyroid produces about 85% of thyroxine, and as this is a pro-hormone, that does little in the body, it has to convert to the active thyroid hormone T3, because your thyroid gland only produces about 15% of T3. If funds allow, you can get the 25 hour urine test done through Genova to find out how much T4 and T3 has been used by the cells during the past 24 hours. Luv - Sheila Thank you so very much for reading my letter and for good advice. The endo at the hospital said that a T3 test was not necessary, and more or less that it was my age and I should not read stuff on the internet. - that was 2 years ago. I would not take that now. I am very very reluctant to go there for a Synthacin test. Could it be done in the surgery? or privately. I coudn't get an appointment today but see a Doc on Monday. With grateful thanks Sheila. Irene. _._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2011 Report Share Posted November 26, 2011 Hello Sheila I've looked at the link for s that you gave me and the only symptoms I have that relates to is are : Thyroid antobodies, Paleness, weakness and fatigue, a little weight loss - about a half stone I am now 10stone 6 lb. In everything else I seem to be okay. I have had the 24 HR urine test, I think this is the one you mean,I am sorry I called it an adrenal test. Genova 24 hour Urine hormones reported 10/11/11 T3 740 pmol/24H (range 592 - 1850 thyroxine (T4) 660 pmol/24H (range 347 -1994 T3 : T4 ratio 0.8 .. Sheila, Do you happen to have a name for a good NHS endo in North Ayrshire. If so, he would be in Crosshouse Hospital Scotland. If I have any trouble from the doc tomorrow then I will just ask for a referal to Dr Skinner. I have printed the press release to show her.( lady doc - may be more sympathetic) I sent a copy of my email ( mosely doctor) to the latest address, I've sent it so many times,somebody is sure to get it. I thank you from my heart for all your help. Luv Irene. > > Let us know what is suggested after your discussion with your GP Irene. You > cannot go on like this and must find out whether or not you are suffering > with 's Disease or you are borderline 's. Your Genova > > If funds allow, you can get the 25 hour urine test done through Genova to > find out how much T4 and T3 has been used by the cells during the past 24 > hours. > > Luv - Sheila > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2011 Report Share Posted November 27, 2011 Genova 24 hour Urine hormones reported 10/11/11 T3 740 pmol/24H (range 592 - 1850 - this is far too low - this level should be around 1500/1600 - so shows you do have a problem thyroxine (T4) 660 pmol/24H (range 347 -1994 - again, this is very, very low. Free T4 should be around 1600 You need some form of thyroid hormone replacement put in place Irene. I have sent you a list of doctors our members have recommended, but you may well have to travel. Luv Sheila Sheila, Do you happen to have a name for a good NHS endo in North Ayrshire. If so, he would be in Crosshouse Hospital Scotland. If I have any trouble from the doc tomorrow then I will just ask for a referal to Dr Skinner. I have printed the press release to show her.( lady doc - may be more sympathetic) I sent a copy of my email ( mosely doctor) to the latest address, I've sent it so many times,somebody is sure to get it. I thank you from my heart for all your help. Luv Irene. _ Quote Link to comment Share on other sites More sharing options...
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